scholarly journals Impacto da cognição, funcionalidade e força de indivíduos com doença de Alzheimer sobre a qualidade de vida do cuidador

2021 ◽  
Vol 28 (1) ◽  
pp. 22-29
Author(s):  
Fernanda Gaideski ◽  
Sandra Regina Socha ◽  
Ana Angélica Tsingos Ramos ◽  
Sibele Yoko Mattozo Takeda

As demandas de cuidados na Doença de Alzheimer podem influenciar no cotidiano do cuidador.  Objetivo: Avaliar se o comprometimento cognitivo, funcional e motor do indivíduo com a doença influenciam na qualidade de vida do cuidador. Método: Estudo transversal, do qual participaram 27 indivíduos com Doença de Alzheimer e seus cuidadores. A qualidade de vida do cuidador foi avaliada pelo questionário Quality of Life-AD, a cognição do paciente foi verificada pela Clinical Dementia Rating, a funcionalidade pela Medida de Independência Funcional, mobilidade pelo Timed Up and Go e a força muscular pela força de preensão manual. A associação entre as variáveis foi realizada pelos testes Kruskal-Wallis e exato de Fisher ou pelos testes de correlação de Pearson ou Spearman, considerando p≤0,05. Resultado: Observou-se associação entre a cognição do indivíduo com Doença de Alzheimer e qualidade de vida do cuidador (p=0,026) e correlação entre a funcionalidade do paciente e qualidade de vida do cuidador (p=0,031). Conclusão: Os aspectos de qualidade de vida afetados pela cognição, função e mobilidade, são: disposição, capacidade para fazer atividades de lazer e a vida em geral. Percebe-se a necessidade de se pensar em estratégias que representem suporte profissional para a capacitação e desempenho de cuidados.

2019 ◽  
Vol 15 (2) ◽  
pp. 95-104
Author(s):  
L. Bassôa ◽  
L. Trevizol ◽  
I. Fraga ◽  
N.C. Martins ◽  
F. Variani ◽  
...  

This study aimed to examine the effects of grape juice consumption during 4 weeks alone or combined with a therapeutic exercise protocol on quality of life (SF-36), handgrip strength (dynamometry) and physical function performance evaluated through Berg Balance Scale (BBS), Timed Up and Go, Six-Minute Walk Test (6MWT) in elderly women. Nineteen healthy elderly women were distributed in Grape Juice Group (GJG, n=9) and Grape Juice + Exercise Group (GJEG, n=10). A significant improvement in handgrip strength and BBS were observed in GJG. Both groups showed increased values in 6MWT and the quality of life was significantly improved after intervention in GJEG. Daily grape juice consumption is able to improve some physical functional parameters in elderly women; however, when in combination with therapeutic exercise intervention may provide a more effective strategy to positively affect the quality of life.


2015 ◽  
Vol 48 (4) ◽  
pp. 349
Author(s):  
Aline M. Nobrega ◽  
Lislei J. Patrizzi ◽  
Isabel A P de Walsh

Modelo do estudo: Observacional, transversal, analítico. Objetivos do estudo: Caracterizar e correlacionar o perfil sociodemográfico, hábitos de vida, características ginecológicas, obstétricas, miccionais e a qualidade de vida em mulheres entre 19 a 59 anos com e sem incontinência urinária no município de Uberaba/MG. Metodologia: Foram utilizados um questionário previamente elaborado pelas pesquisadoras e o SF-36, seguido pela realização da avaliação antropométrica. Resultados: Foram avaliadas 194 mulheres, com prevalência de incontinência urinária em 17,53%. Obesidade, tabagismo, maior número de gestações, abortos e uso de medicamentos para transtornos mentais foram fatores de risco significativos para a Ocorrência desta. A Qualidade de Vida foi significativamente comprometida pela incontinência urinária, com exceção dos domínios da dor e vitalidade. Conclusão: Aponta-se a importância de se abordar rotineiramente essa queixa e continuar buscando conhecer os fatores de risco associados, o que pode contribuir para auxiliar os profissionais de saúde na identificação e implantação de estratégias preventivas o mais precocemente possível, visando diminuir sua prevalência nas mulheres.


2014 ◽  
Vol 19 (1) ◽  
pp. 164-171 ◽  
Author(s):  
Kenichi Hirano ◽  
Shiro Imagama ◽  
Yukiharu Hasegawa ◽  
Zenya Ito ◽  
Akio Muramoto ◽  
...  

BJPsych Open ◽  
2017 ◽  
Vol 3 (4) ◽  
pp. 171-178 ◽  
Author(s):  
Gill Livingston ◽  
Julie Barber ◽  
Louise Marston ◽  
Penny Rapaport ◽  
Deborah Livingston ◽  
...  

BackgroundAgitation is reportedly the most common neuropsychiatric symptom in care home residents with dementia.AimsTo report, in a large care home survey, prevalence and determinants of agitation in residents with dementia.MethodWe interviewed staff from 86 care homes between 13 January 2014 and 12 November 2015 about residents with dementia with respect to agitation (Cohen-Mansfield Agitation Inventory (CMAI)), quality of life (DEMQOL-proxy) and dementia severity (Clinical Dementia Rating). We also interviewed residents and their relatives. We used random effects models adjusted for resident age, gender, dementia severity and care home type with CMAI as a continuous score.ResultsOut of 3053 (86.2%) residents who had dementia, 1489 (52.7%) eligible residents participated. Fifteen per cent of residents with very mild dementia had clinically significant agitation compared with 33% with mild (odds ratios (ORs)=4.49 95% confidence interval (CI)=2.30) and 45% with moderate or severe dementia (OR=6.95 95% CI=3.63, 13.31 and OR=6.23 95% CI=3.25, 11.94, respectively). More agitation was associated with lower quality of life (regression coefficient (rc)=-0.53; 95% CI=-0.61, -0.46) but not with staffing or resident ratio (rc=0.03; 95% CI=-0.04, 0.11), level of residents' engagement in home activities (rc=3.21; 95% CI=-0.82, 7.21) or family visit numbers (rc=-0.03; 95% CI=-0.15, 0.08). It was correlated with antipsychotic use (rc=6.45; 95% CI=3.98, 8.91).ConclusionsCare home residents with dementia and agitation have lower quality of life. More staffing time and activities as currently provided are not associated with lower agitation levels. New approaches to develop staff skills in understanding and responding to the underlying reasons for individual resident's agitation require development and testing.


2016 ◽  
Vol 29 (4) ◽  
pp. 713-721
Author(s):  
Jéssica Silva Teixeira ◽  
Luiza Mayara Lima de Jesus Santos ◽  
Nayhara Lemos dos Santos ◽  
Carla Cristine Cunha Casali ◽  
Carolina Marques Carvalho Mitre Chaves

Abstract Introduction: Cerebral palsy (CP) is a non-progressive disorder characterized by changes in muscle tone and voluntary movement, leading to adaptive changes in muscle length and in some cases, resulting in bone deformities and increased energy expenditure while performing activities of daily living. Objective: The aim of this study was to investigate the effects of cardiovascular training by an adult with athetoid CP. Methods: The sample was composed of one patient with athetoid CP. The instruments used were the timed ten-meter walk test; the SF-36 quality of life questionnaire, a six-minute walk test and the Timed Up and Go test. Using an exercise bike and resistance exercises for the upper limbs, the patient underwent 24 sessions lasting fifty minutes each during eight weeks. Results: In all tests, significant improvement was observed at four and eight weeks, especially in the first four, and progressed in the following four weeks. In the post-training period, improvement was observed when compared to pre-training values. The SF-36 questionnaire on quality of life showed increase in some areas and decrease in others. Conclusion: Patients with CP can benefit from a physical training program, which can improve their quality of life and be included in their rehabilitation protocol.


Author(s):  
Fernando Wendelstein Cano ◽  
Daniela Parizotto ◽  
Stella Maris Michaelsen

Introduction: climbing up and down stairs is entered directly into the Community ambulation and activities of daily living. In individuals with hemiparesis after stroke, this activity may be compromised due to deficits in components of body function and structures, activity and participation. Objective: To identify the characteristics of individuals with hemiparesis, according to the self-perception of difficulty climbing stairs and relate to components of body function and structures (BFS), activity and participation with the cadence of up / down stairs. Method: Twenty-five subjects (57.8±12.4 years) with chronic hemiparesis (57.8±42.7 months) were divided into two groups as perceived with and without difficulty climbing stairs by this particular question in the Stroke Specific Quality of Life Scale (SSQOL). In the BSF domain was rated lower limb motor impairment (Fugl-Meyer Scale), the activity domain, gait/mobility (gait speed, the Timed Up and Go-TUG) and balance (one-leg support and BERG) and participation domain the quality of life with SSQOL. Results: The group with self-perception without difficulty showed less motor impairment and higher levels of activity and participation. Strong correlations of the stair climbing cadence with the Fugl-Meyer Scale and TUG and between stair descent cadence with gait speed and TUG. Conclusion: Variables of body function andstructures , activity and participation are lower in the group with self-perceived difficulty in stair climbing and are correlated with the cadence of stair ascent and descent. 


2020 ◽  
Vol 14 (50) ◽  
pp. 151-165
Author(s):  
Allex Alves Sobral de Sousa ◽  
Carmelita Maria Silva Sousa ◽  
Marta Coêlho Bezerra Dantas ◽  
Iasmin Belém Silva Queiroz ◽  
Wesley Leite Tavares ◽  
...  

O envelhecimento da população é um fenômeno crescente onde o número de idosos tem aumentado consideravelmente e, de modo particular nos países em desenvolvimento como é o caso do Brasil. Somada ao aumento da expectativa de vida vem os problemas que afetam esta população, destacando-se entre estes as fraturas. As fraturas são eventos relevantes a saúde dos idosos e a sua qualidade de vida (QV). Assim, o objetivo do estudo foi realizar um levantamento na literatura relativo a ocorrência de fraturas em idosos e seus impactos na qualidade de vida destes indivíduos. Trata-se de uma revisão integrativa de abordagem qualitativa. Realizada nas seguintes bases de dados LILACS, Medline, SciElo e PubMed, utilizando-se dos seguintes descritores em saúde (DeCS): “qualidade de vida”, “idosos” e “fratura”. Adotou-se como critério de inclusão artigos nos idiomas português e inglês, disponíveis na integra, na forma gratuita e publicados entre 2014 a 2019. Aparte da procura dos descritores nas bases de dados encontrou-se 43 antigos relacionado ao tema, após leitura e análise minuciosa, selecionou-se 10 artigos para compor a amostra final. Os achados revelados nos estudos permitiu observa que as fraturas em idosos são determinantes para perda da QV deste endividou, onde, fatores intrínsecos relativos ao modo de vida dos idosos e complicações durante o período de recuperação são os principais motivos para perda da QV do idoso. Conclui-se que, existe a necessidade de se propor ações voltadas a minimiza os efeitos negativos das fraturas, assim, proporcionando uma melhor QV a esta população.


2016 ◽  
Vol 18 (2) ◽  
pp. 71-77 ◽  
Author(s):  
Hina Garg ◽  
Steffani Bush ◽  
Eduard Gappmaier

Background: Fatigue is a common symptom in people with multiple sclerosis (MS), but its associations with disability, functional mobility, depression, and quality of life (QOL) remain unclear. We aimed to determine the associations between different levels of fatigue and disability, functional mobility, depression, and physical and mental QOL in people with MS. Methods: Eighty-nine individuals with MS (mean [SD] disease duration = 13.6 [9.8] years, mean [SD] Expanded Disability Status Scale [EDSS] score = 5.3 [1.5]) and no concurrent relapses were retrospectively analyzed. Participants were divided into two groups based on five-item Modified Fatigue Impact Scale (MFIS-5) scores: group LF (n = 32, MFIS-5 score ≤10 [low levels of fatigue]) and group HF (n = 57, MFIS-5 score >10 [high levels of fatigue]). Results: Sixty-four percent of the sample reported high levels of fatigue. Compared with group LF, group HF demonstrated significantly (P < .05) greater impairments in the Timed Up and Go test, Activities-specific Balance Confidence scale, and 12-item Multiple Sclerosis Walking Scale scores; depression; and QOL but not in the EDSS scores, which were not significantly different between groups. Conclusions: Fatigue was found to be a predominant symptom in the study participants. Individuals reporting higher levels of fatigue concomitantly exhibited greater impairments in functional mobility, depression, and physical and mental QOL. Disability was not found to be related to level of fatigue. These findings can be important for appropriate assessment and management of individuals with MS with fatigue.


PeerJ ◽  
2017 ◽  
Vol 5 ◽  
pp. e4097 ◽  
Author(s):  
Valeria Jia-Yi Chiu ◽  
Li-Ping Tsai ◽  
Jang-Ting Wei ◽  
I-Shiang Tzeng ◽  
Hsin-Chi Wu

Background Prader-Willi syndrome (PWS) is a complex, multisystem genetic disorder characterized by a variety of physical, cognitive, and behavioral impairments. PWS is a unique sarcopenia model characterized by an abnormal increase in body fat mass and a decrease in muscle mass that predisposes patients to reduced physical activity, functional limitations, and disability. These manifestations may require both symptomatic and supportive management, thus negatively influencing their lifelong family caregiver’s quality of life. The aim of this study was to examine the functional motor performance of adults with PWS in Taiwan and to measure the quality of life of their primary family caregivers. Methods The functional motor tests consisted of the following: (1) 30-s sit-to-stand test, (2) timed up-and-go test, (3) hand grip and lateral pinch strength tests, and (4) Berg Balance Scale. The World Health Organization Quality of Life-short form (WHOQOL-BREF) and the Short-Form 36 Health Survey Questionnaire (SF-36) were used to evaluate health-related quality of life, and the parenting stress index was used to assess the magnitude of stress within the parent-child system. Results The participants included seven adults (two females and five males) with genetically confirmed PWS and their respective main caregivers. The mean age of the adults with PWS was 25.28 years; range 18–31 years, SD 5.10; the mean BMI was 29.2 kg/m2, SD 6.43. All adults with PWS showed lower hand grip and lateral pinch strengths, fewer sit-to-stand cycles during the 30-s chair stand test, and greater average time during the timed up-and-go test when compared to the normative data on healthy adults. Balance was negatively correlated with the caregiver’s health concepts of social functioning (rs −0.879, P = 0.009) and with role limitations due to physical problems (rs −0.899, P = 0.006) and emotional problems (rs −0.794, P = 0.033); hand grip strength was negatively correlated with bodily pain (rs −0.800, P = 0.031), as assessed using the SF-36 questionnaire. The timed up-and-go test was positively correlated with the social relationship domain (rs 0.831, P = 0.021), as assessed using the WHOQOL-BREF questionnaire. The parenting stress index showed no association with the PWS patient’s physical activities. Conclusions All adults with PWS showed decreased upper and lower limb strength and functional mobility when compared to healthy adults. Some of their motor performance might have negative effects on their primary family members in terms of social participation and physical and emotional role limitations. Future research should explore the relationship between physical performances, psychological difficulties of PWS and caregiver’s QOL.


Author(s):  
Luana Maris Borri ◽  
Lúcia Hilda Machado ◽  
Ana Letícia De Giuli ◽  
Carolina Oliveira Zerbinatti ◽  
Flavia Kroehnke ◽  
...  

O presente estudo visa investigar os fatores psicossociais potencialmente prejudiciais, que interferem na qualidade de vida de adolescentes gestantes, que residem na cidade de Joinville (SC) através de uma pesquisa de campo de abordagem qualitativa. A coleta de dados ocorreu por meio de uma entrevista semiestruturada com três gestantes com idades entre 10 e 19 anos, sendo que a análise foi realizada a partir da Análise de Conteúdo de Bardin, considerando o referencial teórico da Psicologia Social. Para abarcar a questão da gravidez de adolescentes e os fatores psicossociais, que interferem na sua qualidade de vida, as reflexões propostas foram organizadas pelas seguintes subcategorias: família, âmbito escolar, relacionamento, questões financeiras, fatores psicossociais positivos e negativos, mudanças, preconceito e planos futuros. Sendo assim, apesar de se buscar os aspectos comuns nas gestantes, percebeu-se justamente que cada adolescente e sua família recebem e lidam de maneiras diferentes com a gestação, levantando justamente a importância de não definir fatores determinantes ou generalizados sobre as gestações, visando sempre respeitar a singularidade de cada pessoa. De modo geral, a partir dos resultados da pesquisa foi possível confirmar a hipótese de que a maternidade impacta, diretamente, no futuro destas adolescentes, visto que interfere nos estudos, nas possibilidades de se conseguir um bom trabalho, uma moradia digna e uma estabilidade econômica, gerando uma (in) sustentabilidade, pois as mesmas repetem situação de vulnerabilidade, como condições econômicas reduzidas e prejuízos em relação ao âmbito escolar dos filhos. Palavras-chave: Adolescência. Qualidade de Vida. Fatores Psicossociais. Gravidez. Psicologia Social.AbstractThe present study aims to investigate the potentially harmful psychosocial factors that interfere with the quality of life of pregnant teenagers who reside in the city of Joinville (SC), through a field research of a qualitative approach. Data collection took place by means of a structured interview with three pregnant women aged 10 to 19 years, being that the analysis was performed based on the analysis of the content of Bardin, considering the Social Psychology theoretical framework. To encompass the issue of adolescent pregnancy and psychosocial factors that interfere in their quality of life, the proposed reflections have been organized by the following subcategories: Family, scholastic, relationship, financial issues, psychosocial factors both positive and negative, changes, prejudice and future plans. Thus, although the common aspects in pregnant women were sought, it was realized that each adolescent and herfamily receive and deal in different ways with the pregnancy, raising precisely the importance of not defining factors or generalized about the pregnancy, always aiming at respecting the uniqueness of each person. Generally, from the search results it was possible to confirm the hypothesis that the motherhood directly impacts on the future of these adolescents, since it interferes in the studies, the possibilities of getting a good job, a decent housing and economic stability, generating an (un)sustainability, because the same repeat situation of vulnerability, such as reduced economic conditions and losses in relation to the scope of school children.  Keywords: Adolescence. Quality of Life. Psychosocial Factors. Pregnancy. Social Psychology.


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