Abstract 16622: Methodological Study for Validation of a Protocol for Behavioral Change in Patients on Warfarin: EmpoderACO

Circulation ◽  
2020 ◽  
Vol 142 (Suppl_3) ◽  
Author(s):  
Hannah Cardoso Barbosa ◽  
Adriana Silvina Pagano ◽  
Marcus Fernando da Silva Praxedes ◽  
Ilka Afonso Reis ◽  
Josiane Moreira da Costa ◽  
...  

Introduction: To achieve stable control in warfarin therapy is challenging in clinical practice. Patients′ active participation is essential to promote self-care and medication adherence. We sought to build a conceptual map to substantiate the validation of EmpoderACO, in Brazilian Portuguese, a protocol for behavior change for patients on warfarin. Methods: This methodological study involved the development of a conceptual map focused on identifying self-care domains in warfarin users. Its content guided the development and validation of a behavior change protocol which comprised the following steps: definition of instrument objectives; construction and selection of items; construction and measurement of response scales; iv) structuring and assessment of content validity. The content validity was assessed by a committee of judges (CJ) and calculated by content validity coefficient (CVC). We used the software CmapTools (version 6.04, 2020) to build the conceptual map. Ethical approval 65928316.3.0000.5149. Results: Self-care domains in the conceptual map were divided into three categories: understanding and satisfaction with drug therapy; reduction of adverse events; promotion of well-being and healthy habits. The use of the conceptual map allowed the development of the final version of EmpoderACO with 27 items. A total of 34 specialists composed the multiprofessional CJ that analyzed the validity content. The overall average of CVC was ≥0.91, including relevance (0.92), adequacy (0.92) and clarity (0.91). Conclusions: The protocol EmpoderACO may contribute to a global approach of patients on warfarin to improve patient′s understanding of drug therapy, self-care behaviors and design of patient-centered care. The application of empowerment principles may be of particular utility in vulnerable populations living in low- and middle-income countries where warfarin is still widely prescribed for oral anticoagulation. Fig. 1 Conceptual map

Author(s):  
Zainab Alimoradi ◽  
Nourossadat Kariman ◽  
Fazlollah Ahmadi ◽  
Masoumeh Simbar ◽  
Hamid AlaviMajd

Abstract Introduction The aim of this study was to design and evaluate the psychometric properties of an instrument for understanding female adolescents’ reproductive and sexual self-care behaviors. Methods A methodological study was conducted. In the qualitative phase, individual in-depth interviews were performed to develop the initial questionnaire. In the quantitative part, the psychometric properties of the questionnaire were evaluated. Findings The initial questionnaire with 128 items was reviewed by the research team and taking into account the cut-off point 1.5 for the item impact and 0.62 for the content validity ratio (CVR), the number of questions fell to 82 items. S-CVR and S-content validity index (CVI) rations were 0.83 and 0.91, respectively. Exploratory factor analysis led to 74 items in seven dimensions. The alpha Cronbach’s coefficient for the whole questionnaire was 0.895 and the intra-cluster correlation coefficient was 0.91. Conclusion The questionnaire developed in this study is reliable and valid for assessing female adolescents’ sexual and reproductive self-care.


Author(s):  
Graziano Pappadà ◽  
Laura Scaringella ◽  
Romina Bisceglie ◽  
Nicola Modugno ◽  
Antonio Pacilli ◽  
...  

2021 ◽  
Vol 74 (4) ◽  
Author(s):  
Ana Caroline Soares ◽  
Anderson da Silva Rêgo ◽  
Thamires Fernandes Cardoso da Silva Rodrigues ◽  
Luana Cristina Bellini Cardoso ◽  
Mariana Angela Rossaneis ◽  
...  

ABSTRACT Objectives: to build and validate educational self-care technology for informal caregivers. Methods: methodological study, anchored in the Delphi technique, carried out in a municipality in the state of Paraná, Brazil, between September 2018 and November 2019. It was developed in three stages: situational diagnosis; elaboration of educational technology; content and appearance validation by expert judges and informal caregivers, using the content validity index and coefficient of variation. Results: after the steps of the methodological process, an educational technology called “Taking Care of Those Who Care” was produced, as an information tool that deals with the self-care of informal caregivers, receiving a content validity index above 0.86 and a variation coefficient. below 20% on all items. Conclusions: the educational technology was built and evaluated with satisfactory rates by the specialists and target audience, showing a high correlation of agreement, characterizing it as adequate and informative to informal caregivers.


2015 ◽  
Vol 3 (3) ◽  
pp. 295 ◽  
Author(s):  
Emilie Paul-Savoie ◽  
Patricia Bourgault ◽  
Emillie Gosselin ◽  
Stephane Potvin ◽  
Sylvie Lafrenaye

Rationale, aims and objectives: Patient-centered care (PCC) is widely acknowledged as a central component of high-quality health care and it has been associated with many positive outcomes for patients. Although many studies support the benefits of PCC, the style of practice may vary from a caregiver to another. To measure PCC and investigate the factors that may be related to this concept, it is necessary to have rigorous instruments. Thus, the aim of this study was to adapt and validate a French version of the PPOS (F-PPOS) for the assessment of PCC in both nurses and physicians who work with chronic pain patients.Method: The PPOS was translated and validated in a French population of nurses and physicians according to the Hébert methodological recommendations for translation and validation. The final version of the F-PPOS was distributed to 21 nurses and 21 physicians working with chronic pain patients. The content validity and the internal consistency were assessed. Results: The expert panel was satisfied with the content validity of this instrument. The internal consistency was acceptable for the total score for all participants (Cronbach’s alpha = 0.60), for nurses (Cronbach’s alpha = 0.62) and for physicians (Cronbach’s alpha = 0.54). The F-PPOS showed good content validity and acceptable internal consistency.Conclusions: The F-PPOS could be used in future studies in French populations, in both nurses and physicians. This instrument can also be used to compare the type of approach between caregivers in worldwide since it is available in several languages.


2016 ◽  
Vol 43 (7) ◽  
pp. 1363-1375 ◽  
Author(s):  
Ayano Nakayama ◽  
David J. Tunnicliffe ◽  
Vivek Thakkar ◽  
Davinder Singh-Grewal ◽  
Sean O’Neill ◽  
...  

Objective.Systemic sclerosis (SSc) is a chronic, progressive autoimmune disease with major end-organ involvement. Much attention has been focused on the management of physical and clinical manifestations; however, the effect of the disease and treatment on the patient’s identity, relationships, functioning, and mental well-being are less known. We aimed to describe the patients’ perspectives and experiences of living with SSc.Methods.Electronic databases were searched to October 2014. Thematic synthesis was used to analyze the findings.Results.We included 26 studies involving 463 patients. Six key themes were identified: distressing appearance transformation (disturbing facial changes, stigmatizing sickness, unrecognizable self), palpable physical limitations (bodily restrictions, frustrating mind-body disconnect, pervasive fatigue, disabling pain), social impairment (breaking intimacy, struggling to fulfill family responsibilities, maintaining work, losing independence), navigating uncertainty (diagnostic ambiguity, medically fending for oneself, unpredictable course of illness), alone and misunderstood (fearful avoidance of fellow patients, invisible suffering), and gradual acceptance and relative optimism (adapting to change and accepting limitations, taking a positive spin, cautious hoping, empowering relationships, valuing medical support).Conclusion.SSc is a rare and unpredictable illness that undermines patients’ sense of certainty and control and impairs their self-image, identity, and daily functioning. Patient-centered care that encompasses strategies to promote self-esteem, resilience, and self-efficacy may help to improve treatment satisfaction and health and quality of life outcomes for patients with SSc.


2016 ◽  
Vol 18 (10) ◽  
pp. 644-649 ◽  
Author(s):  
Joni S. Williams ◽  
Rebekah J. Walker ◽  
Brittany L. Smalls ◽  
Rachel Hill ◽  
Leonard E. Egede

2021 ◽  
Author(s):  
Kainat Asmat ◽  
Khairunnisa Dhamani ◽  
Raisa Gul ◽  
Erika Sivarajan Froelicher

Abstract Background: Patient-centered care in diabetes self-management might be a significant factor in improving self-care outcomes yet the supporting evidence is inadequate. This review is aimed to assess the effectiveness of patient-centered self-management care interventions on self-care outcomes such as glycemic control (HbA1c) and self-care behaviors in adults with type-2 diabetes compared with usual care. Methods: CINAHL, PubMed, Cochrane Library, Google Scholar and the HEC Pakistan digital library were searched for English language studies that assessed patient-centered self-management educational and/or behavioral interventions in adults aged 18 years or above with type 2 diabetes from 1991 to 2020. Interventional studies comprising randomized controlled trials (RCT) and quasi experimental studies (QES) with at least three months follow up and reporting on self-care outcomes with glycemic control (HbA1c) as primary outcome and self-care behaviors including diet control, physical activity, medication adherence and foot care as secondary outcomes were included. Results: Of the 168 identified records, 25 were found eligible comprising 21 RCTs and 4 QESs with total 4,443 participants. The meta-analysis involved 23 studies that provided enough information for a pooled estimate of HbA1c. Compared with the control group, patient-centered self-management interventions significantly lowered HbA1c −0.53 (95% CI −0.73, −0.32). Stratified analysis for HbA1c with respect to various aspects of intervention showed larger effects in interventions employing both educational and behavioral components −0.59 (95% CI −0.86, −0.32), spanned over shorter (<03 months) duration −0.56 (95% CI −0.86, −0.27), administered by nurses −0.80 (95% CI −1.44, −0.16) and delivered in community setting −0.65 (95% CI −1.00, −0.29). Moreover, patient-centered self-management interventions were found effective in improving diet control, physical activity and foot care. Conclusion: This systematic review provided the evidence supporting the effectiveness of patient-centered self-management care interventions in improving glycemic control and self-care behaviors in adults with type 2 diabetes and identified key features of intervention contributing towards success.


2021 ◽  
Vol 8 ◽  
Author(s):  
Prianna Menezes ◽  
Salman Y. Guraya ◽  
Shaista Salman Guraya

Introduction: A compassionate and patient-centered care leads to improved clinical outcomes. Promoting empathy and compassion of medical students is a forerunner of their well-being, emotional stability, and a patient-centered care. However, there is slender evidence about best educational interventions that can inculcate empathy and compassion skills. Our objective was to conduct a systematic review of research evaluating the associations between spectrum, effectiveness, frequency of teaching modalities and their outcomes on compassion and empathy to highlight best practices.Methods: We searched the Web of Science, PubMed, Scopus, and EBSCO Host on 22nd July 2020. We adapted our search strategy from a previously published systematic review on education for compassion and empathy. Selected studies were required to have used unique educational interventions for promoting empathy and compassion of medical students. The research questions were based on Participants (medical students), Intervention (empathy and/or compassion related teaching), Comparison, and Outcome.Results: We analyzed 24 articles from the initial yield of 2,861. Twenty-two were quantitative studies with a mean of 12.8 on MERSQI. Twelve were randomized controlled trials while 5 measured outcomes with single group pre- and post-tests. There was no association found between duration, frequency and complexity of an educational intervention and its effectiveness. Twenty used multimodality curricula, and of those 18 reported statistically significant positive improvement in empathy, while 3 of 4 single modality were effective. Only three studies looked for long-term effects of educational interventions. Fourteen studies evaluated Kirkpatrick's level one (self-reported knowledge), 2 level three (behavior), and 6 level four (patient outcomes). We identified six major educational constructs of teaching empathy and compassion; communication, mindfulness, early clinical exposure, technology-enhanced learning, comics and arts and culture.Discussion: Our review couldn't identify a standard teaching construct in place and highlighted that different teaching tools carry similar impact in promoting compassion and empathy and a sustainable program rather than a single training activity is essential.


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