Bereavement among Adolescents with Intellectual Disability: A Qualitative Study

2022 ◽  
pp. 003022282110652
Author(s):  
Noor-ul-ain Haider ◽  
Noshi Iram Zaman
Keyword(s):  
Content Analysis ◽  
Intellectual Disability ◽  
Time Frame ◽  
Structured Interviews ◽  
Death Rituals ◽  
Loved One ◽  
Interview Guide ◽  
Development Concept ◽  
And Coping ◽  
Death Data

The current study was conducted to explore the bereavement (experienced loss of a loved one through death within time frame of 0–3 years span). Seven adolescents (10–19 years old) with intellectual disability were included in the study. Semi-structured interviews were conducted through interview guide which was prepared with the help of Piaget’s theory of cognitive development concept related to death. Data was analyzed with content analysis and six major themes were derived, that is, meaning of death, death rituals, religious concepts related to death, reasons of death, grieving perception, and coping with grief. Mostly, concepts were explained under the light of religious preaching and their introjection in the lives of adolescents with intellectual disability. Current study helped in exploration of experiential phenomenon of loss in adolescents with intellectual disability.

scholarly journals Reaction to and Coping With Domestic Violence by Iranian Women Victims: A Qualitative Approach

2015 ◽  
Vol 8 (7) ◽  
pp. 100 ◽  
Author(s):  
Masoud Bahrami ◽  
Paymaneh Shokrollahi ◽  
Shahnaz Kohan ◽  
Ghodratollah Momeni ◽  
Mozhgan Rivaz
Keyword(s):  
Domestic Violence ◽  
Content Analysis ◽  
Reliability And Validity ◽  
Qualitative Approach ◽  
Structured Interviews ◽  
Coping With Stress ◽  
Ways Of Coping ◽  
Health Promoting ◽  
Seeking Help ◽  
And Coping

<p><strong>INTRODUCTION:</strong> Domestic violence is a continual stressor that motivates its victim to react. The way a woman deals with her husband’s violence determine the consequence of the violent relationship. In the present study, a qualitative approach was employed to investigate women’s reactions to and ways of coping with domestic violence.</p><p><strong>METHOD:</strong> Semi-structured interviews were conducted in 2014 with 18 women who experienced domestic violence in an attempt to explain how women deal with domestic violence. After the interviews were transcribed word by word, they were explored in the form of meaningful units and encoded as subcategories and categories<strong> </strong>through inductive content analysis. The reliability and validity of the interviews were measured by an external supervisor.</p><p><strong>RESULTS: </strong>Two categories of reaction and coping were identified through content analysis: passive and non-normative measures and active measures. Passive and non-normative measures included the subcategories of harmful behaviors, retaliation, tolerance, and silence. Active measures included seeking help and advice, legal measures, leaving the spouse, positive and health promoting measures.</p><p><strong>CONCLUSION: </strong>In the present study, ways of coping with a husband’s violence among women experiencing domestic violence were divided into two categories: passive and non-normative measures and active measures. These categories confirmed the models of coping with stress in previous studies. Adopting an appropriate approach to dealing with domestic violence is affected by a woman’s capacity and beliefs, the dominant culture, intensity of the violence, available social and legal supports, and effectiveness of evaluation measures. To generalize service provision to victimized women, the type of coping and the reason for adopting the chosen approach need to be taken into account.</p>

scholarly journals ‘I Waited for It until Forever’: Community Barriers to Accessing Intellectual Disability Services for Children and Their Families in Cape Town, South Africa

2020 ◽  
Vol 17 (22) ◽  
pp. 8504
Author(s):  
Siyabulela Mkabile ◽  
Leslie Swartz
Keyword(s):  
South Africa ◽  
Intellectual Disability ◽  
Cape Town ◽  
Disability Services ◽  
Structured Interviews ◽  
Middle Income ◽  
Middle Income Countries ◽  
Qualitative Research Design ◽  
Interview Guide ◽  
Children With Intellectual Disability

Background: Intellectual disability is more common in low- and middle-income countries than in high-income countries. Stigma and discrimination have contributed to barriers to people with intellectual disability accessing healthcare. As part of a larger study on caregiving of children with intellectual disability in urban Cape Town, South Africa, we interviewed a sub-group of families who had never used the intellectual disability services available to them, or who had stopped using them. Methods: We employed a qualitative research design and conducted semi-structured interviews to explore the views and perspectives of parents and caregivers of children with intellectual disability who are not using specialised hospital services. We developed an interview guide to help explore caregivers’ and parents’ views. Results: Results revealed that caregivers and parents of children with intellectual disability did not use the intellectual disability service due to financial difficulties, fragile care networks and opportunity costs, community stigma and lack of safety, lack of faith in services and powerlessness at effecting changes and self-stigmatisation. Conclusion: Current findings highlight a need for increased intervention at community level and collaboration with community-based projects to facilitate access to services, and engagement with broader issues of social exclusion.

Understanding mental health outcomes related to compassion fatigue in parents of children diagnosed with intellectual disability

2021 ◽  
pp. 174462952110136
Author(s):  
Stacy Davenport ◽  
Tara Rava Zolnikov
Keyword(s):  
Mental Health ◽  
Intellectual Disability ◽  
Health Outcomes ◽  
Compassion Fatigue ◽  
Emotional Reactions ◽  
Mental Health Outcomes ◽  
Structured Interviews ◽  
Loved One ◽  
Caregiving Roles ◽  
Anxiety Depression

Background: Parenting a child diagnosed with intellectual disability includes a variety of stressors. The degree to which stress affects these parents has been given little emphasis. Compassion fatigue includes experiencing an emotional response to being unable to relieve the suffering of a loved one, burnout, strain and stress on the caregiver. Compassion fatigue develops in parents of children diagnosed with intellectual disability due to their caregiving roles. Method: A phenomenological qualitative study was conducted using 25 semi-structured interviews to understand the mental health outcomes of parents caring for a child diagnosed with intellectual disability. Results: The results showed that initial emotional reactions after receiving their child’s diagnosis was a combination of anxiety, depression and compassion satisfaction. This study’s findings suggest that parents of children diagnosed with intellectual disability experience moderate levels of compassion fatigue in the caring of their child. Conclusions: This research provides evidence that the caregiving of a child diagnosed with intellectual disability comes with a myriad of stressors that can lead to compassion fatigue.

scholarly journals Comparison of High and Low Responders to a Cross-Country Skiing Talent Transfer Program: A Coach’s Perspective

Sports ◽  
2021 ◽  
Vol 9 (10) ◽  
pp. 138
Author(s):  
Stig Arve Sæther ◽  
Mats Iversen ◽  
Rune Kjøsen Talsnes ◽  
Øyvind Sandbakk
Keyword(s):  
Selection Process ◽  
Time Frame ◽  
Transfer Program ◽  
Structured Interviews ◽  
Endurance Sport ◽  
Low Responders ◽  
Class Level ◽  
Interview Guide ◽  
Cross Country ◽  
Performance Development

Purpose: To examine how coaches differentiate athletes with successful and non-successful development during a cross-country (XC) skiing talent transfer (TT) program. Methods: We conducted qualitative, semi-structured interviews with seven Norwegian coaches working with a group of 23 Chinese summer endurance athletes transferring from running, rowing, and kayaking to the winter endurance sport XC skiing over a six-month training period. The athletes were grouped as either high (n = 9), moderate (n = 3), or low responders (n = 11) based on objective performance development, quantified using laboratory testing. The interview guide contained six sections: physiological development, technical development, psychological characteristics, training and recovery routines, athlete background, and considerations about the effectiveness of TT initiatives in general. Results: The assessments of the coaches revealed that greater development of both physiological and technical capacities among the high-responding TT athletes were associated with higher motivation, as well as superior ability to deal with adversity in the development process. Conclusion: The coaches considered the TT program to be effective; however, successful transfer of athletes to a world class level in a complex sport such as XC skiing requires a multidisciplinary selection process and a longer time frame than the six-month period used in the current project.

Examining How Students with Visual Impairments Navigate Accessible Documents

2020 ◽  
Vol 114 (5) ◽  
pp. 393-405
Author(s):  
Korey J. Singleton ◽  
Kristine S. Neuber
Keyword(s):  
Content Analysis ◽  
Exploratory Study ◽  
Visual Impairments ◽  
Structural Elements ◽  
Structured Interviews ◽  
Barriers To Access ◽  
Reading Efficiency ◽  
Video Observations ◽  
Alternative Text ◽  
And Coping

Introduction: This exploratory study examined how students with visual impairments navigate accessible Word and PDF documents. Methods: Using a combination of video observations and semi-structured interviews, data were collected on participants’ expressed and observed interactions with accessible Word and PDF documents. Results: Using a technique called summative content analysis, four core themes emerged from the findings: useful navigation elements or features (expressed and observed), strategies for navigating accessible documents, barriers to access, and coping strategies. Discussion: The findings suggest practical strategies for training participants to navigate accessible documents. Additionally, they identify the structural elements (i.e., headings, alternative text, etc.) most useful to the study’s participants when navigating accessible documents. Implications for practitioners: As suggested by the findings of this study, universities should implement targeted training initiatives for faculty on basic document accessibility, which could include clearly defining the accessibility features included in a document. Likewise, targeted assistive technology training for students with visual impairments on how to access these elements could increase reading efficiency and reduce cognitive load.

scholarly journals ‘I Waited for It Until Forever’: Community Barriers to Accessing Intellectual Disability Services for Children and Their Families in Cape Town, South Africa

2020 ◽  
Author(s):  
Siyabulela Mkabile ◽  
Leslie Swartz
Keyword(s):  
South Africa ◽  
Intellectual Disability ◽  
Cape Town ◽  
Disability Services ◽  
Structured Interviews ◽  
Middle Income ◽  
Middle Income Countries ◽  
Qualitative Research Design ◽  
Interview Guide ◽  
Children With Intellectual Disability

1) Background: Intellectual disability is more common in low- and middle-income countries than in high-income countries. Stigma and discrimination have contributed to barriers to people with intellectual disability accessing healthcare. As part of a larger study on caregiving of children with intellectual disability in urban Cape Town, South Africa, we interviewed a sub-group of families who had never used the intellectual disability services available to them, or who had stopped using them; 2) Methods: We employed a qualitative research design and conducted semi-structured interviews to explore the views and perspectives of parents and caregivers of children with intellectual disability who are not using specialised hospital services. We developed an interview guide to help explore caregivers&rsquo; and parents&rsquo; views; 3) Results: Results revealed that caregivers and parents of children with intellectual disability did not use the service due to financial difficulties, fragile care networks and opportunity costs, community stigma and lack of safety, lack of faith in services and powerlessness at effecting changes, and self-stigmatisation; 4) Conclusion: Current findings highlight a need for increased intervention at community level and collaboration with community-based projects to facilitate access to services, and engagement with broader issues of social exclusion.

scholarly journals “It is the beautiful things that let us live”: How engaging in creative activities outside of standardized interventions helps family members of persons with Dementia

Dementia ◽  
2021 ◽  
pp. 147130122110418
Author(s):  
Fabian Hutmacher ◽  
Klara Schouwink
Keyword(s):  
Content Analysis ◽  
Qualitative Content Analysis ◽  
Family Members ◽  
Structured Interviews ◽  
Dementia Diagnosis ◽  
Loved One ◽  
Positive Effects ◽  
Wide Range

Creative activities can have profound positive effects on family members of persons with dementia. Typically, these effects have been studied in the context of standardized arts-based interventions. However, family members of persons with dementia may also engage in creative activities outside of standardized interventions. As these kinds of creative activities have not been investigated so far, the present study tried to fill this gap based on seven semi-structured interviews. The interviews were analysed using qualitative content analysis. The participants reported a wide range of activities that included, but were not limited to, prototypical creative activities such as making music and writing. Crucially, the positive effects extended beyond the experience of engaging in the activities themselves and also included significant changes in cognitions, emotions and behaviour that helped the participants to make meaning of the challenges and difficulties that are associated with the dementia diagnosis of a loved one.

“We Speak the Truth!”

2019 ◽  
Vol 12 (2) ◽  
pp. 53-80
Author(s):  
Sari Hanafi
Keyword(s):  
Social Sciences ◽  
Content Analysis ◽  
Social Science ◽  
The Political ◽  
Structured Interviews ◽  
Social Phenomena ◽  
The Social ◽  
Academic Qualifications

This study investigates the preachers and their Friday sermons in Lebanon, raising the following questions: What are the profiles of preachers in Lebanon and their academic qualifications? What are the topics evoked in their sermons? In instances where they diagnosis and analyze the political and the social, what kind of arguments are used to persuade their audiences? What kind of contact do they have with the social sciences? It draws on forty-two semi-structured interviews with preachers and content analysis of 210 preachers’ Friday sermons, all conducted between 2012 and 2015 among Sunni and Shia mosques. Drawing from Max Weber’s typology, the analysis of Friday sermons shows that most of the preachers represent both the saint and the traditional, but rarely the scholar. While they are dealing extensively with political and social phenomena, rarely do they have knowledge of social science

Patients’ Perceptions of Caring and Uncaring Nursing Encounters in Inpatient Rehabilitation Settings

2019 ◽  
Vol 21 (2) ◽  
Author(s):  
Joan C Cheruiyot ◽  
Petra Brysiewicz
Keyword(s):  
South Africa ◽  
Content Analysis ◽  
Inpatient Rehabilitation ◽  
Structured Interview ◽  
The Self ◽  
Personal Relationships ◽  
Individual Interviews ◽  
Textual Data ◽  
Interview Guide ◽  
Being There

This study explores and describes caring and uncaring nursing encounters from the perspective of the patients admitted to inpatient rehabilitation settings in South Africa. The researchers used an exploratory descriptive design. A semi-structured interview guide was used to collect data through individual interviews with 17 rehabilitation patients. Content analysis allowed for the analysis of textual data. Five categories of nursing encounters emerged from the analysis: noticing and acting, and being there for you emerged as categories of caring nursing encounters, and being ignored, being a burden, and deliberate punishment emerged as categories of uncaring nursing encounters. Caring nursing encounters make patients feel important and that they are not alone in the rehabilitation journey, while uncaring nursing encounters makes the patients feel unimportant and troublesome to the nurses. Caring nursing encounters give nurses an opportunity to notice and acknowledge the existence of vulnerability in the patients and encourage them to be present at that moment, leading to empowerment. Uncaring nursing encounters result in patients feeling devalued and depersonalised, leading to discouragement. It is recommended that nurses strive to develop personal relationships that promote successful nursing encounters. Further, nurses must strive to minimise the patients’ feelings of guilt and suffering, and to make use of tools, for example the self-perceived scale, to measure this. Nurses must also perform role plays on how to handle difficult patients such as confused, demanding and rude patients in the rehabilitation settings.

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