Views from the Inside, Part 2: What the Children with Arthritis Said, and the Experiences of Siblings, Mothers, Fathers and Grandparents

2002 ◽  
Vol 65 (9) ◽  
pp. 413-419 ◽  
Author(s):  
Carrie A Britton ◽  
Ann Moore
Keyword(s):  
Theory Approach ◽  
Rheumatology Clinic ◽  
Depth Data ◽  
The United Kingdom ◽  
Cohesive Group ◽  
The Common ◽  
Grounded Theory Approach ◽  
Video Diary ◽  
Inside Part

This second article in a series of three presents some of the findings from a study involving 46 families of children with juvenile idiopathic arthritis (JIA). The aim of the study overall was to describe and explore what life was like for families that included a child with JIA in the United Kingdom today. The study deployed a grounded theory approach, collecting different sorts of data over time in order to build up a picture of how these families lived with such a changeable long-term condition. In the first stage, data were collected using a self-completion questionnaire from 46 families, whose children attended a regular outpatient appointment at the paediatric rheumatology clinic. These data formed the contextual landscape to further in-depth data collected in stage two, from a cohesive group of nine families of girls selected from those who had already taken part in stage one. In stage two, the families were interviewed in their own homes, the children wrote diaries and the families recorded a video diary. All the data related to the respondents' recollections of events and their thoughts, feelings and perspectives: they formed the insiders' view of the experiences. This article presents the findings about the common themes that emerged from the data about children with JIA and their siblings, mothers, fathers and grandparents. It also discusses the key elements of the families' experiences and concludes with recommendations for health care practitioners. A distillation of the views of the majority of parents is provided in these two statements by different mothers: ‘Immobility and pain makes the joy of play, just armchair viewing’ and ‘It's a stolen childhood, really, isn't it?’

scholarly journals Golden Moves

2013 ◽  
Vol 19 (4) ◽  
pp. 230-241 ◽  
Author(s):  
Stephan Dahl ◽  
Lynne Eagle ◽  
Mustafa Ebrahimjee
Keyword(s):  
Physical Activity ◽  
Behavior Change ◽  
Nonprofit Organizations ◽  
Social Marketing ◽  
Transtheoretical Model ◽  
Perceived Barriers ◽  
Theory Approach ◽  
The United Kingdom ◽  
Activity Program ◽  
Grounded Theory Approach

Social marketing is increasingly being used by public and nonprofit organizations to deliver behavior change objectives. Drawing on the example of physical activity for the over 65s, we show how social marketing techniques can deliver a physical activity program for a priority group that has so far received little attention. In this study, conducted in the United Kingdom, we use a grounded theory approach to understand motivational factors and perceived barriers and to determine the types of messages and message channels that could be used for a potential social marketing–based intervention. We show how the findings of this pilot study can be used to develop such an intervention, and present a modeled intervention, based on the transtheoretical model of behavior change.

scholarly journals Protecting Family Interests: An Interview Study with Foreign-Born Parents Struggling On in Childhood Cancer Care

2012 ◽  
Vol 2012 ◽  
pp. 1-7 ◽  
Author(s):  
Pernilla Pergert ◽  
Solvig Ekblad ◽  
Olle Björk ◽  
Karin Enskär ◽  
Tom Andrews
Keyword(s):  
Childhood Cancer ◽  
Cancer Care ◽  
Main Concern ◽  
Theory Approach ◽  
Foreign Born ◽  
Healthcare Staff ◽  
Holistic View ◽  
Classic Grounded Theory ◽  
The Common ◽  
Grounded Theory Approach

Sweden's population is gradually changing to become more multiethnic and diverse and that applies also for recipients of health care, including childhood cancer care. A holistic view on the sick child in the context of its family has always been a cornerstone in childhood cancer care in Sweden. The purpose of this study was to gain knowledge about the experiences and main concern of foreign-born parents in the context of paediatric cancer care. Interviews were performed with eleven foreign-born parents and data were analysed using a classic grounded theory approach. Foreign-born parents often feel in a position of powerless dependence, but family interests are protected in their approaches to interaction with healthcare staff, through cooperation, contesting, and reluctant resigning. Healthcare staff need to listen to foreign-born parents and deal with their concerns seriously to prevent powerless-dependence and work for trustful cooperation in the common fight against childhood cancer.

State and Private Pension Schemes in the European Economic Community and the United Kingdom

1963 ◽  
Vol 89 (3) ◽  
pp. 157-225 ◽  
Author(s):  
A. R. N. Ratcliff
Keyword(s):  
United Kingdom ◽  
European Economic Community ◽  
Customs Union ◽  
Economic Community ◽  
European Economic ◽  
The United Kingdom ◽  
Pension Schemes ◽  
Treaty Of Rome ◽  
The Common

The European Economic Community came into existence on 1 January 1958, following the ratification of the Treaty of Rome by the parliaments of the six member countries, Belgium, France, Germany, Italy, Luxembourg and the Netherlands. The long-term aim of ‘The Six’ in setting up the Community was to achieve a unified economic unit with a common economic policy, and whilst commonly referred to in the United Kingdom as the Common Market it should not be thought of merely as an advanced form of customs union.

scholarly journals Living with uncertainty and hope: A qualitative study exploring parents’ experiences of living with childhood multiple sclerosis

2016 ◽  
Vol 13 (2) ◽  
pp. 88-99 ◽  
Author(s):  
Denise Hinton ◽  
Susan Kirk
Keyword(s):  
Multiple Sclerosis ◽  
Health Service ◽  
Theory Approach ◽  
Sources Of Information ◽  
Diagnostic Uncertainty ◽  
The United Kingdom ◽  
Grounded Theory Approach ◽  
Depth Interviews ◽  
Over Time ◽  
Parents Experiences

Background There is growing recognition that multiple sclerosis is a possible, albeit uncommon, diagnosis in childhood. However, very little is known about the experiences of families living with childhood multiple sclerosis and this is the first study to explore this in depth. Objective Our objective was to explore the experiences of parents of children with multiple sclerosis. Methods Qualitative in-depth interviews with 31 parents using a grounded theory approach were conducted. Parents were sampled and recruited via health service and voluntary sector organisations in the United Kingdom. Results Parents’ accounts of life with childhood multiple sclerosis were dominated by feelings of uncertainty associated with four sources; diagnostic uncertainty, daily uncertainty, interaction uncertainty and future uncertainty. Parents attempted to manage these uncertainties using specific strategies, which could in turn create further uncertainties about their child’s illness. However, over time, ongoing uncertainty appeared to give parents hope for their child’s future with multiple sclerosis. Conclusion Illness-related uncertainties appear to play a role in generating hope among parents of a child with multiple sclerosis. However, this may lead parents to avoid sources of information and support that threatens their fragile optimism. Professionals need to be sensitive to the role hope plays in supporting parental coping with childhood multiple sclerosis.

Who's influencing whom? Developing sustainable business partnerships

2014 ◽  
Vol 9 (1) ◽  
pp. 60-74 ◽  
Author(s):  
Simon Adderley ◽  
Duane Mellor
Keyword(s):  
Single Case ◽  
Theory Approach ◽  
Business Partnerships ◽  
Structured Interviews ◽  
Sustainable Business ◽  
Content Type ◽  
Government Organisation ◽  
Grounded Theory Approach

Purpose – Recently David Jones in Who Cares Wins proposed sustainability as being essential for businesses success over the coming decades. The purpose of this paper is to present a case study of the development of a partnership between an environmental non-government organisation (NGO) (world wildlife fund-UK) and a major retailer (Marks and Spencer). The partnership developed three “types”, sponsorship, technical and communication partnerships. Design/methodology/approach – A grounded theory approach was taken; information was gathered using semi-structured interviews. Data from these interviews were then triangulated with corporate materials to allow generalisations to develop. Findings – Through the three “types” of partnership themes of conflict and project drift were identified, although the overarching “Plan A” commitment is seen as a potential exemplar in sustainability. Difficulties were identified with respect to the dissemination of the outputs from the partnership, some of which were too complex, where others appeared to change to be more appealing to the consumer. Social implications – Although a single case study, it highlights the challenges and benefits to both partners. As such, it provides insight into the practical issues of delivering sustainability commitments and projects in partnership. Such approaches are critical not only for the viability of business, but also for the long-term health of our planet. Originality/value – This represents a case study of the development of a sustainable partnership between a large corporate and an NGO, which could represent a template for sustainable business. This paper in responds to the growing demand for such case-study examples.

scholarly journals What Do Health Libraries Tweet About? A Content Analysis

2016 ◽  
Vol 11 (1) ◽  
Author(s):  
Christine J Neilson
Keyword(s):  
Content Analysis ◽  
The United States ◽  
Theory Approach ◽  
The United Kingdom ◽  
Awareness Tool ◽  
Medical Libraries ◽  
Twitter Activity ◽  
Grounded Theory Approach ◽  
A Current ◽  
Shed Light

Many libraries have adopted Twitter to connect with their clients, but the library literature has only begun to explore how health libraries use Twitter in practice. When presented with new responsibility for tweeting on behalf of her library, the author was faced with the question “what do other health libraries tweet about?”. This paper presents a content analysis of a sample of tweets from ten health and medical libraries in Canada, the United States, and the United Kingdom. Five hundred twenty-four tweets were collected over 4 one-week periods in 2014 and analyzed using a grounded theory approach to identify themes and categories. The health libraries included in this study appear to use Twitter primarily as a current awareness tool, focusing on topics external to the library and its broader organization and including little original content. This differs from previous studies which have found that libraries tend to use Twitter primarily for library promotion. While this snapshot of Twitter activity helps shed light on how health libraries use Twitter, further research is needed to understand the underlying factors that shape libraries’ Twitter use. Beaucoup de bibliothèques ont choisi d’utiliser Twitter pour communiquer avec leurs clients, mais la littérature a commencé à peine à explorer comment des bibliothèques de la santé utilisent Twitter dans la pratique. Lorsqu’on lui a présenté la nouvelle responsabilité de s’occuper du compte Twitter pour la bibliothèque, l’auteure s’est demandé « qu'est-ce que d’autres bibliothèques de la santé disent sur Twitter ? ». Cet article présente une analyse du contenu d’un échantillon de Tweets de dix bibliothèques médicales au Canada, aux États-Unis et au Royaume-Uni. 524 Tweets ont été recueillis au cours de quatre périodes d’une semaine en 2014 et ont été analysés selon une théorie ancrée afin d’identifier des thèmes et des catégories. Les bibliothèques de la santé incluses dans l’étude paraissent utiliser Twitter principalement comme outil de sensibilisation, se concentrant sur des sujets en dehors de la bibliothèque et l’organisation en général, et comprenant peu de contenu original. Cela se différencie d’autres études qui ont trouvé que les bibliothèques sont enclines à utiliser Twitter principalement pour la promotion de la bibliothèque. Bien que cet aperçu d’activité sur Twitter aide à éclairer la façon dont des bibliothèques l’utilisent, une recherche plus approfondie est nécessaire afin de comprendre les facteurs sous-jacents qui touchent l’usage de Twitter par des bibliothèques.

scholarly journals An explorative interview study of men and women on sick leave with a musculoskeletal diagnosis seeking an acceptable life role

2013 ◽  
Vol 4 ◽  
Author(s):  
Ulla-Britt Eriksson ◽  
Staffan Janson
Keyword(s):  
Sick Leave ◽  
Sickness Absence ◽  
Theory Approach ◽  
The Public ◽  
Rehabilitation Professionals ◽  
The Individual ◽  
Life Roles ◽  
Grounded Theory Approach ◽  
Depth Interviews

Introduction: A dramatic increase in sicknesses absence in Sweden has led to a shift in the public debate. Departing from the view of sickness absence as a result of a poor work environment and stress, the debate in the early 2000s became more concerned with the breakdown of norms and the abuse of sickness insurance. Sickness absence became the responsibility of the individual rather than of society.Aim: This study has sought to explore the consequences of being on sick leave with a musculoskeletal diagnosis, the experiences of encounters with rehabilitation professionals, and the attitudes towards sick-listing from the perspective of the sick-listed persons. Methods: Individual in-depth interviews were conducted in 2010 with eight women and nine men aged 33-60 who were on long-term sick leave (at least 60 days) with a musculoskeletal diagnosis. We analysed the data using a grounded-theory approach. Results: There was an obvious tension between work strategy as a societal norm and finding an acceptable life role when sick-listed. Four groups with partially differing experiences and perceptions crystallized out of the total population. These experiences and perceptions formed their choice of different acceptable life roles and strategies for gaining self-respect and the respect of others. Discussion: The fact that the four groups that emerged from our study experienced their sickness absence in different ways and their pathways back to work were different demonstrates the value of not considering those on sick leave with a musculoskeletal diagnosis as a homogeneous group. The results imply that rehabilitators should adopt a sensitive approach based on the sickness absentees’ wishes and views since the latter spend much of their time and thought during their period of sickness on counteracting distrust in search of an acceptable life role to regain respect.

scholarly journals Impact of coercive measures on life stories: qualitative study

2011 ◽  
Vol 199 (3) ◽  
pp. 239-244 ◽  
Author(s):  
Ingrid Sibitz ◽  
Alexandra Scheutz ◽  
Richard Lakeman ◽  
Beate Schrank ◽  
Markus Schaffer ◽  
...  
Keyword(s):  
Adverse Effects ◽  
Hospital Admission ◽  
Life Stories ◽  
Political Engagement ◽  
Theory Approach ◽  
Life Narrative ◽  
Coercive Measures ◽  
Grounded Theory Approach ◽  
Long Term Adverse Effects

BackgroundHow people integrate the experience of involuntary hospital admission and treatment into their life narrative has not been explored systematically.AimsTo establish a typology of coercion perspectives and styles of integration into life stories.MethodTranscripts of recorded interviews with 15 persons who had previously been involuntarily admitted to hospital were coded and analysed thematically using a modified grounded theory approach.ResultsWith hindsight, people viewed the experience of involuntary hospital admission as a ‘necessary emergency brake’, an ‘unnecessary overreaction’ or a ‘practice in need of improvement’. With respect to how they integrated the experience into their life narratives, participants viewed it as ‘over and not to be recalled’, a ‘life-changing experience’ or a ‘motivation for political engagement’.ConclusionsThe participants' diverse and differentiated perspectives on coercive measures and their different styles of integration suggest that people may come to accept coercive measures as necessary when confronted with danger to self or others. However, the implementation of coercion needs to be improved substantially to counteract possible long-term adverse effects.

scholarly journals Using conceptual depth criteria: addressing the challenge of reaching saturation in qualitative research

2016 ◽  
Vol 17 (5) ◽  
pp. 554-570 ◽  
Author(s):  
James Nelson
Keyword(s):  
Qualitative Research ◽  
Research Study ◽  
Evidence Base ◽  
Theory Building ◽  
Theory Approach ◽  
Sampling Process ◽  
Theoretical Sampling ◽  
The Common ◽  
Common Problems ◽  
Grounded Theory Approach

Saturation remains a problematic concept within the field of qualitative research, particularly with regard to issues of definition and process. This article sets out some of the common problems with saturation and, with reference to one research study, assesses the value of adopting a range of ‘conceptual depth criteria’ to address problems of definition and process when seeking to establish saturation within a grounded theory approach. It is suggested that the criteria can act as a test to measure the progress of the theoretical sampling and thus ascertain the readiness of the research for the final analytical stages and theory building. Moreover, the application of ‘conceptual depth criteria’ provides the researcher with an evaluative framework and a tool for producing a structured evidence base to substantiate choices made during the theoretical sampling process.

Sign in / Sign up

Export Citation Format

Share Document