scholarly journals People With Advanced Cancer: The Process of Living Well With Awareness of Dying

2018 ◽  
Vol 30 (8) ◽  
pp. 1143-1155 ◽  
Author(s):  
Maria Arantzamendi ◽  
Noelia García-Rueda ◽  
Ana Carvajal ◽  
Carole A. Robinson

Literature suggests that it is possible to live well with advanced cancer but little is known about the process. In this article, we present a secondary analysis of experiences of living with advanced cancer ( n = 22) that refines the theory of “Living Well with Chronic Illness” for a different context and population. The refined theory explains the experience of living well with advanced cancer illuminating a five-phase iterative process: struggling, accepting, living with advanced cancer, sharing the illness experience, and reconstructing life. These five phases revolve around the core concept of Awareness of Dying, which varied from awareness of the possibility of dying, to accepting the possibility of dying, to acceptance that “I am dying.” Awareness of Dying led to a focus on living well with advanced cancer and movement towards living a life rather than living an illness.

2021 ◽  
pp. 104345422199232
Author(s):  
Piera C. Robson ◽  
Mary S. Dietrich ◽  
Terrah Foster Akard

Background: Children with cancer often experience decreased quality of life (QOL) throughout the illness trajectory. The purpose of this study was to explore the associations of demographic characteristics with QOL in children with advanced cancer. Methods: This secondary analysis was part of a larger randomized clinical trial that evaluated the efficacy of a legacy intervention for children (7–17 years) with relapsed/refractory cancer and their primary parent caregivers. Assessments included child self-reports on the Pediatric Quality of Life Inventory (PedsQL) Cancer Module. Researchers used descriptive and linear regression statistical methods. Results: Children ( n = 128) averaged 10.9 years (SD = 3.0). The majority were female ( n = 68, 53%), white ( n = 107, 84%), had a hematologic malignancy ( n = 67, 52%), with family incomes of $50,000 or less ( n = 81, 63.3%). Statistically significant positive associations of both age and income level with PedsQL scores were observed ( p < .05) but not gender ( p > .05). The strongest correlations for age were with the procedural anxiety ( beta = 0.42), treatment anxiety ( beta = 0.26), and total ( beta = 0.28) scores (all p < .01). In general, there was a positive correlation between family income levels and PedsQL scores ( p < .05). The strongest correlations for income were with nausea ( R = 0.49), appearance ( R = 0.44), pain, and treatment anxiety (both R = 0.42) (all p < .01). Associations adjusted for age remained essentially the same (all p < .01). Discussion: Children with advanced cancer with lower family income and younger age are at high risk for poorer QOL. Oncology nurses should seek to identify families who may benefit from additional resources to promote QOL.


2021 ◽  
Vol 11 (9) ◽  
pp. 4011
Author(s):  
Dan Wang ◽  
Jindong Zhao ◽  
Chunxiao Mu

In the field of modern bidding, electronic bidding leads a new trend of development, convenience and efficiency and other significant advantages effectively promote the reform and innovation of China’s bidding field. Nowadays, most systems require a strong and trusted third party to guarantee the integrity and security of the system. However, with the development of blockchain technology and the rise of privacy protection, researchers has begun to emphasize the core concept of decentralization. This paper introduces a decentralized electronic bidding system based on blockchain and smart contract. The system uses blockchain to replace the traditional database and uses chaincode to process business logic. In data interaction, encryption techniques such as zero-knowledge proof based on graph isomorphism are used to improve privacy protection, which improves the anonymity of participants, the privacy of data transmission, and the traceability and verifiable of data. Compared with other electronic bidding systems, this system is more secure and efficient, and has the nature of anonymous operation, which fully protects the privacy information in the bidding process.


2016 ◽  
Vol 34 (4) ◽  
pp. 280-289 ◽  
Author(s):  
Ellen T Crumley

Background Internationally, physicians are integrating medical acupuncture into their practice. Although there are some informative surveys and reviews, there are few international, exploratory studies detailing how physicians have accommodated medical acupuncture (eg, by modifying schedules, space and processes). Objective To examine how physicians integrate medical acupuncture into their practice. Methods Semi-structured interviews and participant observations of physicians practising medical acupuncture were conducted using convenience and snowball sampling. Data were analysed in NVivo and themes were developed. Despite variation, three principal models were developed to summarise the different ways that physicians integrated medical acupuncture into their practice, using the core concept of ‘helping’. Quotes were used to illustrate each model and its corresponding themes. Results There were 25 participants from 11 countries: 21 agreed to be interviewed and four engaged in participant observations. Seventy-two per cent were general practitioners. The three models were: (1) appointments (44%); (2) clinics (44%); and (3) full-time practice (24%). Some physicians held both appointments and regular clinics (models 1 and 2). Most full-time physicians initially tried appointments and/or clinics. Some physicians charged to offset administration costs or compensate for their time. Discussion Despite variation within each category, the three models encapsulated how physicians described their integration of medical acupuncture. Physicians varied in how often they administered medical acupuncture and the amount of time they spent with patients. Although 24% of physicians surveyed administered medical acupuncture full-time, most practised it part-time. Each individual physician incorporated medical acupuncture in the way that worked best for their practice.


Author(s):  
Michael H. Herzog ◽  
Gregory Francis ◽  
Aaron Clarke
Keyword(s):  

Author(s):  
Roger D. Peng ◽  
Hilary S. Parker

The field of data science currently enjoys a broad definition that includes a wide array of activities which borrow from many other established fields of study. Having such a vague characterization of a field in the early stages might be natural, but over time maintaining such a broad definition becomes unwieldy and impedes progress. In particular, the teaching of data science is hampered by the seeming need to cover many different points of interest. Data scientists must ultimately identify the core of the field by determining what makes the field unique and what it means to develop new knowledge in data science. In this review we attempt to distill some core ideas from data science by focusing on the iterative process of data analysis and develop some generalizations from past experience. Generalizations of this nature could form the basis of a theory of data science and would serve to unify and scale the teaching of data science to large audiences. Expected final online publication date for the Annual Review of Statistics, Volume 9 is March 2022. Please see http://www.annualreviews.org/page/journal/pubdates for revised estimates.


2021 ◽  
Vol 8 (1) ◽  
pp. 252-266
Author(s):  
Ahmet Koşar ◽  
Aytul Kasapoglu

More than 95 percent of those who lost their lives as a result of the spread of the Covid-19 virus to the world since the beginning of 2020 are over the age of 60 (WHO, 2020). The main purpose of this article is to reveal the vital difficulties of the 65-75 age group in Turkey, who were quarantined due to the Covid-19 pandemic, as a result of deprivation of their former normal lives and how they overcame them. The theoretical starting point of this study is the relational sociologist H. White and his “uncertainty” classification. In the study, Grounded Theory Methodology was chosen as one of the qualitative research approaches and open, axial and selective codings were made as a requirement of this. In this context, interviews were made with 12 individuals from the 65-75 age group and the data were presented in figures. As a result of open, axial and selective coding, the core concept of the study was determined as "solidarity". In accordance with the grounded theory, at the end of the study, the "solidarity process" was narrated using the "river" metaphor.


Meridians ◽  
2020 ◽  
Vol 19 (S1) ◽  
pp. 513-521
Author(s):  
Claudia Ferreira ◽  
Adriana Medeiros

Abstract These three brief pieces formed part of a two-part special issue (vol. 4, nos. 1 and 2, 2016) on Afro-Descendant Feminisms in Latin America. The unprecedented nationwide mobilizational process that culminated in the first-ever Marcha das Mulheres Negras contra o Racismo e a Violência e pelo Bem Viver (Black Women’s March against Racism and Violence and for Living Well), which brought tens of thousands of Black women to Brasília on November 18, 2015, is described in an opening essay by Alvarez. It is followed by one of the several Manifestos produced by Marcha organizers, which captures the core political and theoretical issues discussed in hundreds of events across every sector of Afro-descendant women’s activism and women from the mixed-gender Brazilian Black movement as well. Finally, a photo essay by Brazilian photographers Claudia Ferreira and Adriana Medeiros offers a vivid glimpse into what many consider a watershed moment in the Afro-Brazilian feminist movement.


2014 ◽  
Vol 1 (1) ◽  
pp. 21-34 ◽  
Author(s):  
Steen Leleur

This article reviews the generic meaning of ‘system’ and complements more conventional system notions with a system perception based on recent complexity theory. With system as the core concept of systems theory, its actual meaning is not just of theoretical interest but is highly relevant also for systems practice. It is argued that complexity theory and thinking with reference to Luhmann a.o. ought to be recognised and paid attention to by the systems community. Overall, it is found that a complexity orientation may contribute to extend and enrich the explanatory power of current systems theory when used to complex real-world problems. As regards systems practice it is found that selective use and combination of five presented research approaches (functionalist, interpretive, emancipatory, postmodern and complexity) which function as different but complementing ‘epistemic lenses’ in a process described as constructive circularity, may strengthen the exploration and learning efforts in systems-based intervention.


2012 ◽  
Vol 25 (1) ◽  
pp. 159-175
Author(s):  
Mark Thornton

The authors of Crime and Culpability hold a subjectivist theory of criminal culpability according to which the core concept in culpability is subjective recklessness, negligence is not culpable, and it is irrelevant to culpability whether or not a criminal act results in harm. I argue against these three theses and criticize the authors’ views on the structure of criminal law, criminal defences, criminal attempts, and codification.


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