Family Caregivers’ Experiences and Changes in Caregiving Tasks During the COVID-19 Pandemic

The purpose of this descriptive study was to describe family caregivers’ experiences and changes in caregiving tasks and approaches during the COVID-19 pandemic. Using web-based strategies, 69 family caregivers of adults with chronic or disabling conditions were recruited and completed an online survey about positive and negative caregiving experiences, and ways in which caregiving has changed. Data were analyzed using descriptive statistics (structured questions) and conventional content analysis (open-ended responses). Participants reported concerns about their loved one’s physical and mental health, the limited access to other caregiving sources, and the limited opportunities to maintain personal well-being. Caregiving tasks completed more than usual included providing emotional support, shopping for groceries and essentials, and contacting healthcare providers. Participants modified their caregiving approach by assuming added responsibilities, leveraging technology, and managing a new caregiving routine. Findings indicate that family caregivers experienced additional caregiving challenges and changed caregiving tasks considering the limited resources available.

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Exploring resilience and well-being of family caregivers of people with dementia exposed to mandatory social isolation by COVID-19

Dementia ◽

10.1177/14713012211042187 ◽

2021 ◽

pp. 147130122110421

Author(s):

David Sánchez-Teruel* ◽

María Auxiliadora Robles-Bello* ◽

Mariam Sarhani-Robles ◽

Aziz Sarhani-Robles

Keyword(s):

Family Caregivers ◽

Social Isolation ◽

Emotional Regulation ◽

Online Survey ◽

Health Care Systems ◽

Well Being ◽

Physical And Mental Health ◽

Predictive Variables ◽

People With Dementia ◽

Care Systems

Background The COVID-19 pandemic has raised questions about the resilience of health care systems worldwide. In this regard, one group of people whose physical and mental health has been affected has been family caregivers of people with dementia. Objective This study aims to identify the variables that predict a high degree of well-being in family caregivers of people with dementia during this period of mandatory lockdown. Methods A total of 310 respondents participated in an online survey (266 women and 44 men) from various regions in Spain, aged between 20 and 73 years old (M = 46.45; SD = 15.97), and all were family members. Results The results showed that there were notable differences in all the protective variables, together with a significant strong positive relationship between well-being and resilience ( r = 0.92; p < 0.01) and with coping strategies ( r = 0.85; p < 0.01), and there were also some significant negative relationships between well-being and difficulties in emotional regulation (ρ = −.78; p < 0.01). The most predictive variables of a higher level of well-being included the type of dementia (β = 1.19; CI (95%) = 1.01-1.29; p< 0.01), living in a large house (β = 0.97; CI (95%) =. 23-0.98; p < 0.01), social support as a coping strategy (β = 1.27; CI (95%) = 1.21-1.29; p < 0.01) and mainly resilience (β = 1.34; CI (95%) = 1.30-1.37; p < 0.01). Discussion We discuss the importance of promoting higher levels of resilience through the development of protective psychosocial variables in caregivers of people with dementia exposed to situations of mandatory social isolation as a modulator of the psychosocial well-being of these family caregivers.

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407 - The Baycrest Quick-Response Caregiver Tool: The Role for a New Tool for Caregivers of Persons with Dementia

International Psychogeriatrics ◽

10.1017/s1041610220002604 ◽

2020 ◽

Vol 32 (S1) ◽

pp. 123-123

Author(s):

Ken Schwartz ◽

Robert Madan ◽

Anna Berall ◽

Marsha Natadira ◽

Anna Santiago

Keyword(s):

Family Caregivers ◽

Health Care Providers ◽

Healthcare Providers ◽

Well Being ◽

Moderate Degree ◽

Quick Response ◽

Care Providers ◽

High Level ◽

Person With Dementia ◽

The Impact

Background:Responsive behaviours in dementia are associated with poor outcomes for the person with dementia (PWD) and caregiver burnout. Family caregivers need a variety of tools to manage responsive behaviours. The Baycrest Quick-Response Caregiver Tool was developed to provide caregivers with a tool that can be used in real time. In this study, the feasibility, impact, and effectiveness of this new tool were studied in family caregivers and health care providers (HCP) using quantitative and qualitative measures.Methods:Family caregivers were recruited and were asked to complete a pre-survey before being sent the link to the educational tool. One month after the telephone survey, caregivers were sent an online post-survey to gather their feedback on the tool and the impact of the tool on caregiver well -being. Healthcare providers were also recruited and reviewed the tool through an online feedback survey. The feasibility, impact, and effectiveness of the tool were assessed using quantitative and qualitative measures.Results:Caregivers had a moderate degree of and reported a high level of competence - these scores were maintained throughout the study. Caregivers reported that tool positively impacted their compassion towards the person with dementia (PWD), and that their interactions with improved. 100% of HCP who completed the feedback survey would recommend the tool to other HCP and to caregivers of PWD. The caregivers and HCP provided specific suggestions for improvement.Conclusions:The Baycrest Quick-Response Caregiver Tool was found to be feasible and helpful. It provides caregivers and HCP with an additional approach for responsive behaviours.

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Public Concerns during the COVID-19 Lockdown: A Multicultural Cross-Sectional Study among Internet Survey Respondents in Three Countries

Journal of Clinical Medicine ◽

10.3390/jcm10081577 ◽

2021 ◽

Vol 10 (8) ◽

pp. 1577

Author(s):

Alona Emodi-Perlman ◽

Ilana Eli ◽

Nir Uziel ◽

Joanna Smardz ◽

Anahat Khehra ◽

...

Keyword(s):

Mental Health ◽

Online Survey ◽

Middle Eastern ◽

Well Being ◽

Cross Sectional Study ◽

Internet Survey ◽

Physical And Mental Health ◽

Cross Sectional ◽

Culturally Different ◽

Patient Health

(1) Background: this study aimed to evaluate the worries, anxiety, and depression in the public during the initial coronavirus disease 2019 (COVID-19) pandemic lockdown in three culturally different groups of internet survey respondents: Middle Eastern (Israel), European (Poland), and North American (Canada). (2) Methods: a cross-sectional online survey was conducted in the mentioned countries during the lockdown periods. The survey included a demographic questionnaire, a questionnaire on personal concerns, and the Patient Health Questionnaire-4 (PHQ-4). A total of 2207 people successfully completed the survey. (3) Results: Polish respondents were the most concerned about being infected. Canadian respondents worried the most about their finances, relations with relatives and friends, and both physical and mental health. Polish respondents worried the least about their physical health, and Israeli respondents worried the least about their mental health and relations with relatives and friends. Canadian respondents obtained the highest score in the PHQ-4, while the scores of Israeli respondents were the lowest. (4) Conclusions: various factors should be considered while formulating appropriate solutions in emergency circumstances such as a pandemic. Understanding these factors will aid in the development of strategies to mitigate the adverse effects of stress, social isolation, and uncertainty on the well-being and mental health of culturally different societies.

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Examining Dementia Family Caregivers’ Forgone Care for General Practitioners and Medical Specialists during a COVID-19 Lockdown

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18073688 ◽

2021 ◽

Vol 18 (7) ◽

pp. 3688

Author(s):

Perla Werner ◽

Aviad Tur-Sinai ◽

Hanan AboJabel

Keyword(s):

Family Caregivers ◽

Emotional Support ◽

Online Survey ◽

Behavioral Model ◽

Cross Sectional Study ◽

Enabling Factors ◽

Dementia Caregivers ◽

Predisposing Factor ◽

Cross Sectional ◽

Medical Specialists

The present study aimed to assess dementia caregivers’ reports of the prevalence and correlates of forgone care regarding visits to a general practitioner (GP) and to a specialist during the COVID-19 lockdown in Israel, using Andersen’s Behavioral Model of Healthcare Utilization. A cross-sectional study using an online survey was conducted with 73 Israeli family caregivers of persons with dementia residing in the community (81% Jews, 86% female, mean age = 54). Overall, one out of two participants reported having to delay seeking needed help from a GP or a specialist for themselves, as well as for their relatives with dementia, during the COVID-19 lockdown period. Among the predisposing factor, education was associated with caregivers’ reports regarding forgone care for themselves as well as for their loved ones. Living with the care-receiver and income level were the enabling factors associated with forgone care for caregivers. Finally, feelings of burden were associated with caregivers’ forgone care and feelings of loneliness and perceptions of the care-receiver’s cognitive functioning were associated with care-receivers’ forgone care. Our findings show that it is essential that this population receive appropriate practical and emotional support at times of distress and crisis to enable them to continue with their caregiving role.

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Resilience, well-being, depression symptoms and concussion levels in equestrian athletes

Journal of Public Mental Health ◽

10.1108/jpmh-08-2020-0110 ◽

2021 ◽

Vol ahead-of-print (ahead-of-print) ◽

Author(s):

Annika McGivern ◽

Stephen Shannon ◽

Gavin Breslin

Keyword(s):

Mental Health ◽

Online Survey ◽

Well Being ◽

Depression Symptoms ◽

Physical And Mental Health ◽

Cross Sectional Survey ◽

Cross Sectional ◽

Content Type ◽

Mental Health Support ◽

History Of

Purpose This paper aims to conduct the first cross-sectional survey on depression, Resilience, well-being, depression symptoms and concussion levels in equestrian athletes and to assess whether past concussion rates were associated with depression, resilience and well-being. Design/methodology/approach In total, 511 participants from Canada, Republic of Ireland, UK, Australia and USA took part in an international cross-sectional, online survey evaluating concussion history, depression symptoms, resilience and well-being. Findings In total, 27.1% of athletes met clinically relevant symptoms of major depressive disorder. Significant differences were shown in the well-being and resilience scores between countries. Significant relationships were observed between reported history of concussion and both high depression scores and low well-being scores. Practical implications Findings highlight the need for mental health promotion and support in equestrian sport. Social implications Results support previous research suggesting a need for enhanced mental health support for equestrians. There is reason to believe that mental illness could still be present in riders with normal levels of resilience and well-being. Originality/value This study examined an understudied athlete group: equestrian athletes and presents important findings with implications for the physical and mental health of this population.

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Psychosocial Care for Family Caregivers of Patients With Cancer

Journal of Clinical Oncology ◽

10.1200/jco.2011.39.5798 ◽

2012 ◽

Vol 30 (11) ◽

pp. 1227-1234 ◽

Cited By ~ 275

Author(s):

Laurel Northouse ◽

Anna-leila Williams ◽

Barbara Given ◽

Ruth McCorkle

Keyword(s):

Family Caregivers ◽

Sleep Disturbances ◽

Well Being ◽

Future Research ◽

Care Practice ◽

Physical And Mental Health ◽

Policy And Practice ◽

Patients With Cancer ◽

Cancer Support ◽

Recommendations For Practice

Purpose To understand family caregivers' needs for better preparation and care, this state-of-the-science review examines the effect of caregiving on the health and well-being of caregivers, the efficacy of research-tested interventions on patient and caregiver outcomes, implications of the research on policy and practice, and recommendations for practice and future research. Methods We reviewed research that described the multiple effects of cancer on caregivers' well-being. Five meta-analyses were analyzed to determine the effect of interventions with caregivers on patient and caregiver outcomes. In addition, we reviewed legislation such as the Affordable Care Act and the Family Leave Act along with current primary care practice to determine whether family caregivers' needs have been addressed. Results Research findings indicate that caregiver stress can lead to psychological and sleep disturbances and changes in caregivers' physical health, immune function, and financial well-being. Research-tested interventions delivered to caregivers of patients with cancer or other chronic illnesses can reduce many of these negative effects and improve caregivers' coping skills, knowledge, and quality of life. Although these interventions also decrease patients' symptoms, reduce mortality (non-dementia patients), and improve patients' physical and mental health, they are seldom implemented in practice. Conclusion Recommendations for practice include development of standardized guidelines that address caregiver assessment, education, and resources; identification of “caregiver champions” in practice settings; provision of referrals to established support organizations for caregivers (eg, Cancer Support Community, Cancer Care); and collaboration among caregiving, professional, and cancer-related organizations to advocate policy and practice changes for family caregivers.

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Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users’ Experiences

Journal of Medical Internet Research ◽

10.2196/18099 ◽

2020 ◽

Vol 22 (11) ◽

pp. e18099

Author(s):

Victoria Perkins ◽

Neil S Coulson ◽

E Bethan Davies

Keyword(s):

Tourette Syndrome ◽

Social Isolation ◽

Online Communities ◽

Emotional Support ◽

Online Survey ◽

Well Being ◽

Tic Disorders ◽

Online Support ◽

Face To Face ◽

Face Support

Background People living with a tic disorder (TD)—such as Tourette syndrome (TS)—experience many negative psychological and social challenges arising from chronic tics, such as stigmatization from peers and poorer quality of life, and these can impact upon their families too. It can be difficult for this population to access face-to-face support for tics, and so online support communities offer one avenue for support from peers facing similar experiences. However, little is known about how online support communities may be used by people with TS and other TDs, and by others (eg, parents, caregivers) supporting a person with TS/TD. Objective This study aimed to explore users’ experiences of participation in online support communities for TS and TDs. Methods In total, 90 respondents (aged 13-62 years; 62% [56/90] female) from 13 countries completed an online survey exploring their experiences of using online support communities for TS and TDs. Respondents were people living with TS/TD themselves (n=68) or supportive others of someone with TS/TD (eg, parent, sibling, spouse; n=14), or both (n=8). The online survey contained open-ended questions eliciting their self-reported motivations for using online communities, their benefits and drawbacks of participation, and whether online support communities affected offline management of tics. Responses were analyzed using thematic analysis. Results Seven overarching themes captured experiences of using online support communities for TS/TDs. The overwhelming reason for their use was to find accessible support due to a lack of offline face-to-face support. Online support communities were valued sources of informational and emotional support, and also had a positive impact upon helping users’ psychological well-being. Online communities helped provide a space where people with TS/TDs could feel accepted and reduce the social isolation they felt offline. The suggestible nature of tics and being reminded of the challenging nature of TDs were main disadvantages arising from using online support communities, alongside conflict arising within online communities. Conclusions The findings suggest that online support communities appear to offer valuable informational and emotional support to those living with TS/TD and their families too, especially given the lack of locally available support. This facilitates a sense of community online, which can help users in overcoming long-standing social isolation and aid self-reported improvements in psychosocial well-being. Users reported some drawbacks in engaging with online support communities, such as conflict between different types of users and triggering content, which negatively affected experiences of community participation.

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Psychological impact of COVID-19 on doctors and medical undergraduate students in a government medical college in Uttar Pradesh, India

International Journal of Community Medicine and Public Health ◽

10.18203/2394-6040.ijcmph20204949 ◽

2020 ◽

Vol 7 (12) ◽

pp. 4781

Author(s):

Kunwar Vaibhav ◽

Adity Priya ◽

Pratibha Gupta

Keyword(s):

Mental Health ◽

Social Support ◽

Large Scale ◽

Online Survey ◽

Psychological Impact ◽

Well Being ◽

Healthcare Services ◽

Health Impact ◽

Physical And Mental Health ◽

Medical Undergraduate

Background: COVID-19 wrath has influenced the socio economic, physical and mental health well-being of all the citizens. Doctors being at the frontline has been affected substantially by it. The paucity of literature on mental health impact of medical health professionals directed the present study to explore the Psychological Impact of COVID-19 on doctors and medical undergraduates.Methods: A cross section online survey was used for data collection. Socio demographic, COVID 19 related preventive practice, Oslo social support scale-3 (OSSS-3) for social support and impact of events scale-revised (IES-R) scale for assessment of psychological Impact was used. Data was analyzed using SPSS 23.Results: Overall 56 (36.36%) of the participants reported having psychological Impact of whom 25 (43.86%) doctors and 31 (31.96%) students were affected. The predictor variables as derived by the regression model were presence of comorbidity, poor social support and postings in isolation wards.Conclusions: Large scale longitudinal multicentric studies can provide a better picture of the actual magnitude of the mental health impact. The predictive factors should be taken into account for policy making decisions. Coping skills and mental health preparedness for the frontline warriors can be lifesaving and will uplift their morale for better delivery of healthcare services in a resource constrained setting.

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Biopsychosocial benefits of movement-based complementary and integrative health therapies for patients with chronic conditions

Chronic Illness ◽

10.1177/1742395318782377 ◽

2018 ◽

Vol 16 (1) ◽

pp. 41-54 ◽

Cited By ~ 2

Author(s):

Rendelle E Bolton ◽

Gemmae M Fix ◽

Carol VanDeusen Lukas ◽

A Rani Elwy ◽

Barbara G Bokhour

Keyword(s):

Chronic Conditions ◽

Tai Chi ◽

Health Benefits ◽

Well Being ◽

Chronic Illnesses ◽

Self Awareness ◽

Physical And Mental Health ◽

Integrative Health ◽

Medical Centers ◽

Conventional Content Analysis

Objectives Complementary and integrative health practices are growing in popularity, including use of movement-based therapies such as yoga, tai-chi, and qigong. Movement-based therapies are beneficial for a range of health conditions and are used more frequently by individuals with chronic illness. Yet little is known about how patients with chronic conditions characterize the health benefits of movement-based therapies. Methods We conducted focus groups with 31 patients enrolled in yoga and qigong programs for chronic conditions at two VA medical centers. Transcripts were analyzed using conventional content analysis with codes developed inductively from the data. Participants’ descriptions of health benefits were then mapped to Engel’s biopsychosocial model. Results Participants described improvements in all biopsychosocial realms, including improved physical and mental health, reduced opiate and psychotropic use, enhanced emotional well-being, and better social relationships. Changes were attributed to physical improvements, development of coping skills, and increased self-awareness. Discussion Patients with chronic illnesses in our sample reported multiple benefits from participation in movement-based therapies, including in physical, mental, and social health realms. Providers treating patients with complex comorbidities may consider referrals to movement-based therapy programs to address multiple concerns simultaneously, particularly among patients seeking alternatives to medication or adjunctive to an opiate reduction strategy.

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Left-Behind Women in the Context of International Migration: A Scoping Review

Journal of Transcultural Nursing ◽

10.1177/1043659620935962 ◽

2020 ◽

Vol 31 (6) ◽

pp. 606-616

Author(s):

Higinio Fernández-Sánchez ◽

Jordana Salma ◽

Patricia Marisol Márquez-Vargas ◽

Bukola Salami

Keyword(s):

Scoping Review ◽

Social Economic ◽

Transnational Migration ◽

Well Being ◽

The United States ◽

Descriptive Statistics ◽

Future Research ◽

Left Behind ◽

Cultural Conditions ◽

Conventional Content Analysis

Introduction: Despite the research on left-behind children, less is known about left-behind women across transnational spaces. The purpose of this scoping review was to assess the extent, range, and nature of the existing body of literature on left-behind women whose partners have migrated across borders. Method: This scoping review was guided by the five-step approach of Arksey and O’Malley. Fifty-four articles that focused on left-behind women across transnational spaces were included. Data were synthesized using descriptive statistics and conventional content analysis. Results: Left-behind women were primarily from Mexico ( n = 13) and the migrants’ place of destination was primarily the United States ( n = 14). We identified two major themes: (a) women’s social, economic and cultural conditions and (b) women’s well-being. Discussion: We identified significant knowledge gaps regarding left-behind women in the context of transnational migration. Implications for future research and practice are discussed.

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