scholarly journals Isolation, Uncertainty and Treatment Delays: Parents’ Experiences of Having a Baby with Cleft Lip/Palate During the Covid-19 Pandemic

2021 ◽  
pp. 105566562110550
Author(s):  
Bruna Costa ◽  
Danielle McWilliams ◽  
Sabrina Blighe ◽  
Nichola Hudson ◽  
Matthew Hotton ◽  
...  

Objectives Previous literature finds that having a child with a cleft lip and/or palate (CL/P) may pose social and emotional challenges for parents. For parents of children born during the Covid-19 pandemic, such challenges may be heightened. Further, novel demands brought about by the pandemic could have caused additional hardships. The aim of this study was to describe the impact of the pandemic on new parents through qualitative exploration of their experiences. Design Semi-structured interviews were conducted with 14 parents of children born in the United Kingdom with CL/P between January and June 2020, around the start of the pandemic. Data were analysed using inductive thematic analysis. Results Three themes, with sub-themes, were identified. The first theme, “ Changes to Healthcare: The Impact of Restrictions and Reduced Contact”, discussed the impact of the pandemic on perinatal care, the care received from the specialist CL/P teams, and parents’ experiences of virtual consultations. The second theme, “Family Functioning During the Pandemic”, covered parental anxiety, fathers’ experiences, and social support. The third theme, “ Surgical Prioritisation: Delays and Uncertainty”, addressed changes to surgical protocols, coping with uncertainty, complications associated with delayed surgery, and how parents created positive meaning from this period. Conclusions A range of increased and additional psychosocial impacts for parents were identified, along with several coping strategies, utilization of social support, and the positive aspects of their experiences. As the pandemic continues, close monitoring of families affected by CL/P remains imperative, particularly for those at risk of emotional distress.

2021 ◽  
Vol 5 (1) ◽  
pp. 71-87 ◽  
Author(s):  
Jane Ellis

This study examined the effects of the Junior Rock Music Academy (JRMA) on participants’ (N = 39) confidence and self-esteem. The JRMA was a widening participation Saturday music programme developed to reduce the influences of poverty on educational underachievement for young people (10–18 years) from poorer families across South East Wales. Participants’ confidence and self-esteem scores reported a significant rise, with no significant difference reported between genders or age groups. Participants (N = 5), programme tutors (N = 3) and participant parents/guardians (N = 4) were interviewed using semi-structured interviews to establish the fidelity of the structure and content of the intervention. The impact of JRMA on the psychosocial, cultural and emotional characteristics of participants and their parents/guardians as barriers to educational attainment and preparedness to thrive in education are discussed; these include enhanced cognitive development, social and emotional skills and learner motivation.


2020 ◽  
Vol 8 (4) ◽  
pp. 30-35
Author(s):  
P. Anil Kumar ◽  
V. Ramgopal Rao

Background: During the neonatal age, seizures are the most distinctive sign of neurological disease. Convulsive symptoms are the most promi- nent forms of neonatal neurological disorders. The goal of this research was to have a better view of the epidemiology, etiology, incidence, forms and mortality of neonatal seizures in our hospital. This research was undertaken to evaluate the prevalence, forms of neonatal seizures, etiology, occurrence period and correlation with etiology, and to establish the mortality correlated with neonatal seizures. For research the etiology and its etiological connection, the occurrence of neonatal seizures. Subjects and Methods: A comprehensive history was collected for the antenatal, natal, postnatal and family history. Age of initiation, form, duration and amount of seizures, consciousness before and after the seizures were taken. Comprehensive neonate examination was performed after detailed history. Relevant investigations were carried out depending upon clinical presentation. Results: In our analysis of 200 neonatal seizures, 194 had one of the four classically identified neonatal seizures. Multifocal clonic seizures were among the most common type of seizures 36% (72 cases) followed by subtle 27% (54 cases), GTS 26% (52 cases), Myoclonic 7% (15 cases), mixed type of seizures 3% (6 cases) and focal clonic seizures 1% (2 cases). Conclusion: Because neonatal seizures are most frequently due to birth asphyxia, better antenatal and perinatal care reduces birth asphyxia and if mothers are identified as high-risk. The impact of neonatal seizures is thereby minimized. Subtle seizures are the most frequent form of psychiatric seizure; thus, close monitoring of newborns at risk is important.


Author(s):  
Glòria Reig-Garcia ◽  
Cristina Bosch-Farré ◽  
Rosa Suñer-Soler ◽  
Dolors Juvinyà-Canal ◽  
Núria Pla-Vila ◽  
...  

Background: Fibromyalgia is a chronic and complex disease whose management by patients requires a high level of commitment. Patient empowerment therefore represents an important milestone in chronic disease treatment and control. We explored the impact of a peer social support network from the perspective of women with fibromyalgia. Methods: A generic qualitative design was proposed for the study, for which women who had been diagnosed with fibromyalgia were purposefully selected. Six semi-structured interviews were conducted, and the collected data were thematically analysed. Results: Three key themes emerged regarding the peer social support network: (1) empowerment (facilitating acceptance of the diagnosis and acting as a source of information); (2) effects on well-being and quality of life (attenuated the stigma, improved physical well-being, provided emotional support and was a socialization medium); and (3), valuable aspects (transmitted feelings of being understood and listened to and increased personal feelings of satisfaction). Conclusions: A peer social support network for women with fibromyalgia exerts positive effects on their physical, mental, and social well-being and empowers them to better manage their disease. Healthcare for women with fibromyalgia should include strategies that connect them through peer social support networks.


Author(s):  
Salma Naz Gul ◽  
Rabia Chishti ◽  
Maher Bano

The present study aims to investigate the impact of educational qualification on social support, social isolation, and loneliness (social and emotional) among Senior Citizens. De Jong Gierveld Loneliness Scale (1985),Social Support Scale developed by Malik (2002), and Friendship Scale developed by Hawthorne (2006) were used to measure the pertinent constructs of present study. Purposive convenient sampling technique was used to draw the sample of older adults (N = 500) aged 60 to 90 years (M = 67.59, SD = 7.54) from both urban and rural areas of various districts of Khyber Pakhtunkhwa province of Pakistan. Alpha coefficients, for all the variables were computed, which ranged between .60 for social loneliness to .96 for social support total scale. Study found significant differences among the variables. Findings revealed that educational qualification of the sample had a positive impact on their social support and they were less socially isolated as compared to uneducated senior citizens.


2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Shuang Liu

PurposeThe purpose of this paper is to provide an exploratory understanding of the impact of social support on job stress of shift working mothers in Macao casinos.Design/methodology/approachA qualitative research method was adopted in this study. A snowball sampling strategy was used to recruit participants, and in-depth semi-structured interviews were conducted on participants from different casinos of six Macao gaming operators.FindingsThe paper found out that emotional and instrumental supports from families and friends are the most important social support for shift working mothers to cope with their job stress in casinos.Research limitations/implicationsA qualitative method may lead to a misinterpretation or ignorance of key information due to the researcher bias. The snowball sampling strategy may lead to a biased sample which may not represent the entire population.Originality/valueThe understanding of what types of social support that shift working mothers appreciate and need the most may provide managerial implications for casino operators for a better support to their female employees.


Author(s):  
M. Black

ABSTRACTStructured interviews were conducted with forty-eight older clients discharged from a public health nursing service in order to: (1) describe their social support network and (2) identify specific components of social support related to physical, social and emotional health. The sample was comprised primarily of older widows living alone to whom family and relatives contributed the largest amount of support. Correlation analyses revealed that: (1) age, emotional support given by older persons to their supporters and aid given and received by older persons were related to physical functioning; (2) emotional, decisional and aid support given by older persons to their supports (total reciprocity) and femaleness were related to emotional functioning and; (3) emotional and aid support received by older persons and reciprocity were related to social functioning.


Author(s):  
Eimile Holton ◽  
Rachel Fitzpatrick ◽  
Rebecca Maguire ◽  
Seán Commins ◽  
Thomas Scharf ◽  
...  

In the Republic of Ireland (RoI), COVID-19 public health guidelines have been most restrictive for people aged 70 and over. Such individuals are most likely to avail of befriending services offered by a network of Irish organisations. The aim of this study was to explore the impact of COVID-19 guidelines on befriending service users, and to develop recommended adaptations to befriending services compatible with such guidelines. A qualitative constructivist grounded theory approach was taken to the study design and analysis, using semi-structured interviews to collect data from 11 participants by telephone between May 2020 and January 2021. Results show a grounded theory describing how older users of a befriending service maintained their personal autonomy in the face of strict government guidelines. Participants described living life as usual, often contravening guidelines, and how they chose to adapt to the situation, yielding both positive and negative outcomes. Some potential adaptations were discussed to the befriending service (including a preserved focus on the social and emotional functions of the befriending relationship, and the accommodation of collaborative decision making about communicative alternatives), but ultimately it was made clear that participants would tailor the services to their own preferences. Results have implications for befriending service design and delivery, and for public health officials who wish to support the health of older adults during the COVID-19 pandemic.


Author(s):  
N.V RUBTSOVA ◽  

According to forecasts, by the end of 2020, the number of users of social networks will reach more than 3 billion people. The growing popularity of social networks is due to the acquisition by their members of certain social and emotional benefits: the possibility of interacting with other people in real time, receiving support, approval, admiration, self-education and self-development. The purpose of the article is to study the impact of communication in social networks on the satisfaction of consumers of tourism services based on the theory of social impact and the theory of positive emotions. The author defines the meaning of the concept of “social support”. Based on an analysis of the results of a number of studies, the hypothesis that social support in social networks has a significant impact on the experience of travel and the satisfaction of consumers of tourism services is confirmed. The study makes a theoretical contribution to deepening knowledge about the role of social support and positive emotions received by users on social networks on their satisfaction with travel experience. Understanding the relationship between the use of social networks and the satisfaction of consumers of tourism services is of practical value for marketing in tourism and advertising in social networks.


2019 ◽  
Vol 5 (3) ◽  
pp. 103
Author(s):  
Khaldoon Waleed Husam Al-Mofti ◽  
Juma’a Qadir Hussein

There are many reasons for learning a foreign or a second language. It might be for some learners, a kind of future income; while for others, it is only a hobby to learn about a new culture of a foreign country. The present study aims to investigate what factors play in learning English language. This paper also highlights the influence of the factor of outside social support such as good income job on the other factors of motivation. Data were gathered through scale questionnaire distributed to 60 EFL learners and 10 semi-structured interviews with randomly selected students from two different departments of English in two colleges, College of Arts and College of education for humanities at Anbar University, Iraq. The data were analyzed using SPSS tool.  The results indicated that the motivation to learn English varied according to students’ intentions, goals and, attitudes towards learning. In addition, it shows a clear statistical correlation between the outside social support – finding better career and future opportunities and goal factors. Henceforth, the outside social support appears a significant contributor to the motivation of the EFL Iraqi learners.


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