‘If I knew what was going to happen, it wouldn’t worry me so much’: Children’s, parents’ and health professionals’ perspectives on information for children undergoing a procedure

2019 ◽  
Vol 23 (4) ◽  
pp. 626-638 ◽  
Author(s):  
Lucy Bray ◽  
Victoria Appleton ◽  
Ashley Sharpe

Children undergoing procedures such as blood tests and X-rays experience less anxiety and upset if they are well prepared and informed. Currently the provision of information about procedures can be ad hoc and there are barriers to children understanding this information. This study explored the perspectives of 32 children undergoing procedures (aged between 8 and 12 years), 27 parents and 19 health professionals on the provision of preparatory information to children. Qualitative interviews, prompted by visual images, were thematically analysed. The three themes, ‘accessing information’, ‘understanding information’ and ‘using information’, resonated with the central tenets of health literacy. Children reported mainly accessing information second-hand through their parents and demonstrated misconceptions about their procedure. Children identified that procedural information would help them to know what was going to happen and enable them to feel less worried and scared about their procedure. This study highlights that children can have low levels of health literacy in relation to a planned procedure. Their health literacy in this context is heavily influenced by the adults (parents and health professionals) around them. There needs to be further work conducted, informed directly by children, to improve the health literacy of children attending hospital for planned procedures.

Author(s):  
C. W. Mehard ◽  
W. L. Epstein

The underlying cause of a disease may not he readily apparent but may have a long history in development. We report one such case which was diagnosed with the aid of the analytical electron microscope.The patient, a 48 yr. old white female, developed a tender nodule on the sole of her foot in December, 1981. Subsequently additional lesions developed on the same foot resulting in deep pain and tenderness. Superficial lesions also extended up to the knee on both legs. No abnormalities were revealed in blood tests or chest X-rays.


2018 ◽  
Vol 2 (1) ◽  
pp. 35
Author(s):  
Jacquie Kidd

These three poems re-present the findings from a research project that took place in 2013 (Kidd et al. 2018, Kidd et al. 2014). The research explored what health literacy meant for Māori patients and whānau when they accessed palliative care. Through face-to-face interviews and focus groups we engaged with 81 people including patients, whānau, bereaved loved ones, support workers and health professionals. The poems are composite, written to bring some of our themes to life. The first poem is titled Aue. This is a Māori lament that aligns to English words such as ‘oh no’, or ‘arrgh’, or ‘awww’. Each stanza of the poem re-presents some of the stories we heard throughout the research. The second poem is called Tikanga. This is a Māori concept that encompasses customs, traditions and protocols. There are tikanga rituals and processes that guide all aspects of life, death, and relationships. This poem was inspired by an elderly man who explained that he would avoid seeking help from a hospice because ‘they leave tikanga at the door at those places’. His choice was to bear his pain bravely, with pride, within his cultural identity. The third poem is called ‘People Like Me’. This is an autoethnographical reflection of what I experienced as a researcher which draws on the work of scholars such as bell hooks (1984), Laurel Richardson (1997) and Ruth Behar (1996). These and many other authors encourage researchers to use frustration and anger to inform our writing; to use our tears to fuel our need to publish our research.


BMJ Open ◽  
2019 ◽  
Vol 9 (11) ◽  
pp. e029525
Author(s):  
Tamasin Taylor ◽  
Wendy Wrapson ◽  
Ofa Dewes ◽  
Nalei Taufa ◽  
Richard J Siegert

Minority ethnic patient groups typically have the highest bariatric surgery preoperative attrition rates and lowest surgery utilisation worldwide. Eligible patients of Pacific Island ethnicity (Pacific patients) in New Zealand (NZ) follow this wider trend.ObjectivesThe present study explored structural barriers contributing to Pacific patients’ disproportionately high preoperative attrition rates from publicly-funded bariatric surgery in Auckland, NZ.SettingPublicly-funded bariatric surgery programmes based in the wider Auckland area, NZ.DesignSemi-structured interviews with health sector professionals (n=21) were conducted.Data were analysed using an inductive thematic approach.ResultsTwo primary themes were identified: (1) Confidence negotiating the medical system, which included Emotional safety in clinical settings and Relating to non-Pacific health professionals and (2) Appropriate support to achieve preoperative goals, which included Cultural considerations, Practical support and Relating health information. Clinical environments and an under-representation of Pacific staff were considered to be barriers to developing emotional safety, trust and acceptance of the surgery process with patients and their families. Additionally, economic deprivation and lower health literacy impacted preoperative goals.ConclusionsHealth professionals’ accounts indicated that Pacific patients face substantial levels of disconnection in bariatric surgery programmes. Increasing representation of Pacific ethnicity by employing more Pacific health professionals in bariatric teams and finding novel solutions to implement preoperative programme components have the potential to reduce this disconnect. Addressing cultural competency of staff, increasing consultancy times and working in community settings may enable staff to better support Pacific patients and their families. Programme structures could be more accommodating to practical barriers of attending appointments, managing patients’ preoperative health goals and improving patients’ health literacy. Given that Pacific populations, and other patients from minority ethnic backgrounds living globally, also face high rates of obesity and barriers accessing bariatric surgery, our findings are likely to have broader applicability.


2004 ◽  
Vol 118 (10) ◽  
pp. 796-798 ◽  
Author(s):  
M. Daniel ◽  
A.R. Banerjee

Objectives: Pre-admission clinics are traditionally run jointly by nurses and doctors. Within an adult ENT pre-admission clinic, we wished to assess what doctors added tonurses’ pre-clerking, to determine whether doctors were actually needed in the clinic.Methods: Prospective study,looking at how often doctors, seeing patients after ward-based nurses, changed or added to clerking or tests as organized by nurses.Results: Out of 184 patients, doctors changed or added to nurses’ clerking or planned investigations in 47 patients (26 per cent), making 64 different changes. The commonest reasonsfor changes were ordering blood tests (22 changes), chest X-rays (eight), cancelling due to hypertension (seven), altering drug history (five) and requesting electrocardiograms (five changes).Conclusion: Most changes made by doctors could be eliminated by designing a pre-admission clinic protocol that could easily be used by nurses. We recommend that all ENT departments consider implementing nurse-led pre-admission clinics.


2021 ◽  
pp. bmjinnov-2020-000498
Author(s):  
Stephanie Aboueid ◽  
Samantha B Meyer ◽  
James R Wallace ◽  
Shreya Mahajan ◽  
Teeyaa Nur ◽  
...  

ObjectiveSymptom checkers are potentially beneficial tools during pandemics. To increase the use of the platform, perspectives of end users must be gathered. Our objectives were to understand the perspectives and experiences of young adults related to the use of symptom checkers for assessing COVID-19-related symptoms and to identify areas for improvement.MethodsWe conducted semistructured qualitative interviews with 22 young adults (18–34 years of age) at a university in Ontario, Canada. Interviews were audio-recorded, transcribed, and analysed using inductive thematic analysis.ResultsWe identified six main themes related to the decision of using a symptom checker for COVID-19 symptoms: (1) presence of symptoms or a combination of symptoms, (2) knowledge about COVID-19 symptoms, (3) fear of seeking in-person healthcare services, (4) awareness about symptom checkers, (5) paranoia and (6) curiosity. Participants who used symptom checkers shared by governmental entities reported an overall positive experience. Individuals who used non-credible sources reported suboptimal experiences due to lack of perceived credibility. Five main areas for improvement were identified: (1) information about the creators of the platform, (2) explanation of symptoms, (3) personalised experience, (4) language options, and (5) option to get tested.ConclusionsThis study suggests an increased acceptance of symptom checkers due to the perceived risks of infection associated with seeking in-person healthcare services. Symptom checkers have the potential to reduce the burden on healthcare systems and health professionals, especially during pandemics; however, these platforms could be improved to increase use.


2004 ◽  
Vol 2 (4) ◽  
pp. 371-378 ◽  
Author(s):  
ELIZABETH GRANT ◽  
SCOTT A. MURRAY ◽  
MARILYN KENDALL ◽  
KIRSTY BOYD ◽  
STEPHEN TILLEY ◽  
...  

Objective: Health care professionals and policy makers acknowledge that spiritual needs are important for many patients with life-limiting illnesses. We asked such patients to describe their spiritual needs and how these needs may impinge on their physical, psychological, and social well-being. Patients were also encouraged to explain in what ways their spiritual needs, if they had any, could be addressed.Methods: We conducted two qualitative interviews, 3 months apart, with 20 patients in their last year of life: 13 patients with advanced cancer and 7 with advanced nonmalignant illness. We also interviewed each patient's general practitioner. Sixty-six interviews were tape-recorded, transcribed, and analyzed.Results: Patients' spiritual needs centered around their loss of roles and self-identity and their fear of dying. Many sought to make sense of life in relation to a nonvisible or sacred world. They associated anxiety, sleeplessness, and despair with such issues, which at times resulted in them seeking support from health professionals. Patients were best able to engage their personal resources to meet these needs when affirmed and valued by health professionals.Significance of results: Enabling patients to deal with their spiritual needs through affirmative relationships with health professionals may improve quality of life and reduce use of health resources. Further research to explore the relationship between spiritual distress and health service utilization is indicated.


2021 ◽  
Vol 6 (14) ◽  
pp. 35-44
Author(s):  
burçin aysu ◽  
Neriman ARAL ◽  
Fatih AYDOĞDU ◽  
Figen GÜRSOY

Introduction and aim: When health literacy is considered in terms of family and especially mother, its importance increases even more. Because the health literacy of the mother and the health of the child are related to each other, the probability of the children of mothers with high health literacy to be healthy is also high. Considering this situation, it is emphasized that health literacy is an important concept for child development professionals, who are one of the health professionals working with children. Because child development professionals involve families and especially mothers in the process while working with children, health literacy can also affect mothers' involvement in the process. Determining the health literacy of mothers and handling it with a child development perspective; It is thought that it will also guide interdisciplinary research on health literacy. In this study, it is aimed to determine the health literacy of mothers and to discuss them with a child development perspective. Method: In the study, residing in Mamak district of Ankara were included 100 mothers. Mixed method was used in the research. Quantitative data were collected with the “Adult Health Literacy Scale”, and qualitative data were collected through the “Questionnaire Form”. Ethics committee approval was obtained before starting to collect data in the study. Afterwards, the participants were given detailed information about the research and consent forms were signed. The research was conducted on a voluntary basis. After the quantitative data were collected, they were processed into the SPSS package program, and whether the data showed normal distribution was examined with the kolmogrov smirnov test. Since the data showed a normal distribution, Anova and t tests, which are parametric tests, were used in the analysis of quantitative data. Qualitative data were analyzed by descriptive analysis method. Results: As a result of the research, it was found that the health literacy levels of the mothers differed significantly according to the variables of education level, education level of the spouse and having a chronic disease. It has been determined that mothers consult physicians for health issues, receive support from health professionals about their children's health problems, and explain the concept of health as physical, mental, social well-being and protection of health. Conclusions and recommendations: In line with the results obtained from the research; preparing early intervention programs as child developers to increase mothers' health literacy levels, conducting health literacy screening in clinical settings and including the assessment of mothers' health literacy in the child's assessment process, it may be recommended to plan studies involving fathers on health literacy.


2012 ◽  
Vol 200 (5) ◽  
pp. 419-425 ◽  
Author(s):  
Nicola J. Reavley ◽  
Anthony F. Jorm

BackgroundA 1995 Australian national survey of mental health literacy showed poor recognition of disorders and beliefs about treatment that differed from those of health professionals. A similar survey carried out in 2003/4 showed some improvements over 8 years.AimsTo investigate whether recognition of mental disorders and beliefs about treatment have changed over a 16-year period.MethodA national survey of 6019 adults was carried out in 2011 using the same questions as the 1995 and 2003/4 surveys.ResultsResults showed improved recognition of depression and more positive ratings for a range of interventions, including help from mental health professionals and antidepressants.ConclusionsAlthough beliefs about effective medications and interventions have moved closer to those of health professionals since the previous surveys, there is still potential for mental health literacy gains in the areas of recognition and treatment beliefs for mental disorders. This is particularly the case for schizophrenia.


1990 ◽  
Vol 104 (4) ◽  
pp. 308-311 ◽  
Author(s):  
Nigel Padgham

AbstractOne hundred and seven consecutive patients with acute and chronic epistaxis were examined to identify the site and nature of the source. Aetiological factors in the history, nasal anatomy or pathology were noted, along with the blood pressure and laboratory results.In most presentations an anterior bleeding point was isolated. Cautery usually sufficed in both anterior and posterior sources. No source was hidden behind a septal spur or deflection. Hypertension was associated with bleeding from the middle meatus, but not with the severity of bleeding. Patients on antihypertensive medication were more likely to be admitted.Point sources of bleeding were from prominent vessels or haemorrhagic nodules; the latter are not well recognized and are easily overlooked.Routine blood tests did not reveal unsuspected abnormalities or change management; neither did sinus X-rays.Initial examination of the nose in the acute phase by experienced personnel is suggested, to reduce admissions and avoid nasal packing.


Sign in / Sign up

Export Citation Format

Share Document