Predicting perceived medication-related hassles in dementia family caregivers

Dementia ◽  
2015 ◽  
Vol 16 (6) ◽  
pp. 797-810 ◽  
Author(s):  
Nika R George ◽  
Ann M Steffen

Objective This study examined predictors of medication administration hassles reported by intergenerational dementia family caregivers. Methods A sample of 53 women who aided a cognitively impaired older adult with healthcare and who identified as inter-generational caregivers provided self-report medication management and psychosocial data. Results Hierarchical multiple regression analyses revealed that six independent variables hypothesized for this model, the total number of prescription medications managed by caregivers, educational attainment, care-recipient functional impairment, care-recipient cognitive impairment, caregiver depressive symptomatology, and self-reported feelings of preparedness for the caregiving role together significantly predicted caregiver medication administration hassles scores F(1, 48) = 4.90, p = .032, and accounted for approximately 25% of the variance of self-reported hassles (adjusted R2 = .247). Discussion Future interventions may reduce medication-related hassles by providing psychoeducation about healthcare, medication management, and strategies for coping with care-related stressors and depressed mood.

Author(s):  
Sherry N. Mong

This chapter discusses the type of work caregivers do. Among the medical procedures that caregivers do that are mentioned in the chapter are: intravenous therapies (IVs), total parenteral nutrition (TPN), gastrostomy tubes (G-tubes) and nasogastric tubes (NG-tubes), urinary catheters, external catheters, intermittent catheters, wound care, ostomy, bowel management programs, respiratory procedures, tracheostomy, and positive-pressure ventilators. The chapter discusses caregiver insights and the dilemmas they face in having to provide skilled care. In general, many of the medical procedures are not only difficult to master but also cause trepidation because of the possible complications that can result if the caregiver makes a mistake. Several caregivers who gave IVs said they worried about contaminating the IV site or shooting air in the line. In hospitals, problems with medication administration are a leading cause of death, and so are infections that occur when a wound is not correctly dressed or an IV carefully accessed. Yet family caregivers are asked to do these activities on a routine basis — over a period of months or even years. The worry about complications is well founded, as they can have deleterious consequences. Coupled with issues of anxiety and fear of causing harm to the care recipient are issues of manual dexterity and “getting the feel” of the procedures. Not only do caregivers have to overcome fear, get the feel of procedures, and make sure they are done correctly, but they also have to get past the personal discomfort they may have regarding the intimate nature of the work they are asked to do.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 801-801
Author(s):  
Jennifer Tjia ◽  
Margaret Clayton ◽  
Jennifer Smith ◽  
Olivia Wood ◽  
Susan Hurley ◽  
...  

Abstract Objective: To characterize FCG burden of medication administration for older adults in home hospice. Methods: Pilot clinical trial of a hospice-staff level communication and medication review program to facilitate goal-concordant prescribing, including deprescribing, for older adults in home hospice. Patients newly admitted to hospice were eligible if >=65 years, prescribed >= 5 medications and had a FCG. Exclusion criteria included being non-English speaking or having a Palliative Performance Score<40. Measurements include 24-item FCG Medication Administration Hassle Scale (range 0-96) at hospice admission and at 2-, 4-, 6-, 8-weeks and monthly until death. Descriptive statistics characterize baseline FCG Hassle score. Results: In this actively recruiting study, n=9 patient-caregiver dyads are enrolled to date. Mean patient age is 80.6 years (range 69-101). Of 9 caregivers, 7 were female, 5 children, and 3 spouses. The majority (67%) of caregivers were extremely involved in medication management. Mean FCG Hassle Score =17.1 (SE 5.9; range 2-58), and differed between spouses (mean =5 [SE 1.7; range 2-8]) and children (mean =31.4 [SE 9.53; range 3-58]). The highest burden concern was recognizing medication side effects, followed by feeling comfortable making medication decisions, arguing with the care-recipient about when to take medications, knowing why a medication is being given and whether it is effective, and knowing when to hold, increase, decrease a dose or discontinue the medication. Conclusion: FCGs of older adults in home hospice report different levels of medication administration hassle depending on their relationship to the patient. The most bothersome concern is recognizing medication side effects.


2018 ◽  
Vol 10 (1) ◽  
Author(s):  
Omar Enzo Santangelo ◽  
Sandro Provenzano ◽  
Dario Piazza ◽  
Alberto Firenze

The aim of the study was to evaluate depressive symptomatology within the student population of the University of Palermo (Italy). An anonymous online questionnaire was provided to the students of the University of Palermo. The first section investigated demographic and social data, while in the second section the QIDSSR16 (Quick Inventory of Depressive Symptomatology Self-Report) test was administered. 539 students (68.3% female) gave informed consent and completed the questionnaire. Considering as a dependent variable: Depressive symptomatology moderate- severe-very severe, the statistically significant independent variables associated are I don’t live with my family (aOR 1.63, 95% CI 1.01-2.63, P=0.043), I currently smoke (aOR 1.55, 95% CI 1.01-2.39, P=0.048) and Low perceived health status (aOR 4.14, 95% CI 2.73-6.28, P<0.001). Smoking is associated with an increased risk of developing a high-grade depressive symptomatology. Family plays a crucial role in decreasing the risk of moderate, severe or very severe symptoms.


2018 ◽  
Vol 10 (1) ◽  
pp. 8-11
Author(s):  
Omar Enzo Santangelo ◽  
Sandro Provenzano ◽  
Dario Piazza ◽  
Alberto Firenze

The aim of the study was to evaluate depressive symptomatology within the student population of the University of Palermo (Italy). An anonymous online questionnaire was provided to the students of the University of Palermo. The first section investigated demographic and social data, while in the second section the QIDSSR16 (Quick Inventory of Depressive Symptomatology Self-Report) test was administered. 539 students (68.3% female) gave informed consent and completed the questionnaire. Considering as a dependent variable: Depressive symptomatology moderate-severe-very severe, the statistically significant independent variables associated are I don't live with my family (aOR 1.63, 95% CI 1.01-2.63, P=0.043), I currently smoke (aOR 1.55, 95% CI 1.01-2.39, P=0.048) and Low perceived health status (aOR 4.14, 95% CI 2.73-6.28, P<0.001). Smoking is associated with an increased risk of developing a high-grade depressive symptomatology. Family plays a crucial role in decreasing the risk of moderate, severe or very severe symptoms.


2009 ◽  
Vol 23 (2) ◽  
pp. 147-159 ◽  
Author(s):  
Myra J. Cooper ◽  
Phil Cowen

This study aimed to identify differences in the personal themes in negative self or core beliefs that might be characteristic of high levels of eating disorder symptoms when compared to high levels of depressive symptoms in those with an eating disorder and/or depression. Differences between putative diagnostic subgroups were also examined. One hundred and ninety-three participants completed self-report measures of negative self-beliefs, eating, and depressive symptoms. Putative diagnostic subgroups were also identified, including an eating disorder group that also had high levels of depressive symptomatology and in most cases a diagnosis of depression. Six themes descriptive of the self corresponding to 6 robust factors were identified and provisionally labeled isolated, repelled by self, self-dislike, lacking in warmth, childlike, and highly organized. Multiple regression analyses indicated that, in the whole sample, eating disorder symptoms were uniquely predicted by subscales reflective of repelled by self and lacking in warmth, though depressive symptoms were uniquely predicted by subscales measuring isolation and self-dislike. Between-group analyses indicated that high scores on isolation, self-dislike, and lacking in warmth were typical of both eating-disordered and depressed-only diagnostic groups when compared to the control group, though only the eating-disordered group (also high in depressive symptoms and “diagnosis” of depression) also had high scores on repelled by self. The findings indicate that eating disorder and depressive symptoms are associated with some potentially important differences in self-beliefs. Putative diagnostic subgroups may also differ in these beliefs. The findings further indicate that psychometrically sound themes exist in the core or negative self-beliefs associated with eating disorder and depressive symptoms. Implications of the findings for cognitive therapy with eating disorders and depression are briefly considered, and the limitations and implications of the diagnostic subgroups identified here are discussed.


Author(s):  
Regina M. Fink ◽  
Rose A. Gates ◽  
Robert K. Montgomery

Pain is multifactorial and affects the whole person and family caregivers, and multiple barriers to pain assessment exist. Patients should be screened for pain on admission to a hospital, clinic, nursing home, hospice, or home care agency. If pain or discomfort is reported, a comprehensive pain assessment should be performed at regular intervals, whenever there is a change in the pain, and after any modifications in the pain management plan. The patient’s self-report of pain is the gold standard, even for those patients who are nonverbal or cognitively impaired. Multiple pain scales are available for use in nonverbal or cognitively impaired patients or residents; these should be used in combination with clinical observation and information from healthcare professionals and family caregivers.


2014 ◽  
Vol 32 (31_suppl) ◽  
pp. 121-121
Author(s):  
Jennifer Tjia ◽  
Maija Reblin ◽  
Celeste Lemay ◽  
Margaret Clayton ◽  
Lee Ellington

121 Background: In the home hospice setting, family caregivers (CGs) often assume medication administration responsibilities traditionally performed by licensed nurses. Little is known about how to assess and support CG medication management skills. As part of an ongoing study of nurse-caregiver interactions in home hospice, we gathered data on CG medication management needs. Methods: A longitudinal, multicenter study of home hospice nurse visits captured audiorecorded communication between nurses and CGs. Participants included patients with cancer and their self-identified CGs who were recruited upon home hospice enrollment. The current sub-study included participants aged ≥65 and their family CGs from 7 hospice agencies. Two investigators independently coded transcriptions of the first audio recorded nurse home visit using a directive content analytic approach to map conversations to a previously published, interview-derived, framework for hospice medication management by CGs. Results: A total of 18 patients (mean age 76.5 [SD 10.7], 56% female) and their CGs (mean age 59.6 [SD13.4], 78% female) were included. Content analysis revealed that CG skills needed for medication management are not limited to drug knowledge. Complicated organizational skills are needed to track medication acquisition and dosing, record the use of short- and long-acting drugs with similar modes of action, and coordinate medication administration by multiple CGs. Teamwork skills are needed to help coordinate medication prescribing between specialist, primary, and hospice physicians. CGs also need symptom management skills regarding the proper selection of medications, as well as skills to manage side effects, inadvertent errors, and possible medication related-emergencies. CGs play a vital role in patient advocacy, alerting providers to the burden and quality of life issues related to medication use, including whether medications have intended or unintended effects, or are potentially unnecessary or causing harm. Conclusions: CGs must have multiple skills to effectively manage medications in home hospice. A systematic approach and intervention is needed to support CGs’ medication management skills.


2014 ◽  
Vol 114 (3) ◽  
pp. 653-674 ◽  
Author(s):  
Akira Hasegawa ◽  
Munenaga Koda ◽  
Yosuke Hattori ◽  
Tsuyoshi Kondo ◽  
Jun Kawaguchi

The Ruminative Responses Scale, a measure of depressive rumination, contains two subscales: Brooding and Reflection. Treynor, Gonzalez, and Nolen-Hoeksema (2003) proposed that Brooding is maladaptive and Reflection is adaptive. This article examined the relationships among Brooding, Reflection, and previous depression in two samples of Japanese undergraduates, who were non-depressed at the time of their participation. Based on answers to a self-report measure, participants were divided into a formerly depressed group, who had experienced an episode that met the criteria for major depression, and a never-depressed group. Logistic regression analyses were conducted with Brooding, Reflection, and current depression as the independent variables and past depression as the dependent variable. Brooding had consistent positive associations with past depression. The relationship between Reflection and past depression was not significant for one sample, but was statistically significant and positive in the second sample. In the second sample, Brooding and Reflection both were related with past depression after controlling for worry.


2020 ◽  
Vol 35 (1) ◽  
Author(s):  
Emily Frith ◽  
Paul D. Loprinzi

The purpose of this study was to examine the relationship between physical activity and creative behaviors. A random sample of 612 college students, ages 18-35, enrolled at a large Southeastern university, were recruited via an anonymous email invitation. Creative behaviors were assessed via two self-report questionnaires, includingthe Kaufman Domains of Creativity Scale (K-DOCS) and the Biographical Inventory of Creative Behaviors (BICB). Self-reported physical activity habits were assessed with the Physical Activity Vital Sign (PAVS) questionnaire. One-week test–retest reliability was established on 10% of the participants.Of the multiple regression analyses that were conducted to examine the hypothesized relation-ship, between physical activity and creative activities, physical activity participation did not meaningfully influence domain-general or domain-specific creative activities. Additional selected independent variables, such as degree of exercise enjoyment and academic major were statistically significantly associated with self-reported creative activities. This study serves to identify more inclusive, yet parsimonious research hypotheses to further scientific knowledge in this under-investigated area.


2021 ◽  
pp. 101053952098624
Author(s):  
Gyeong-Min Lee ◽  
Jang-Ho Yoon ◽  
Woo-Ri Lee ◽  
Li-Hyun Kim ◽  
Ki-Bong Yoo

During self-reporting, respondents underreport their smoking status for various reasons. We aimed to evaluate the difference between smoking status self-reporting and urinary cotinine tests in Korea respondents. Logistic regression analyses were performed to identify factors associated with the differences between self-reporting and urinary cotinine criteria. The dependent variable was the underreporting of smoking status; independent variables were sociodemographic, health status, and secondhand smoke (SHS) exposure. Total underreporting was 3.6% when Cot ≥164 and 4.0% when Cot-variable (classified) criteria underreported. Positive associations were found between smoking and age, education, drinking, and SHS. Underreporting in the nonsmoker group (odds ratio [OR] = 2.336; confidence interval [CI] = 1.717-3.179) was significantly associated with SHS, but this difference was nonsignificant in the ex-smoker group (OR = 1.184; CI = 0.879-1.638). Underreporting was 3.6% to 4.0%, and C-statistics was about 0.7, indicating that outcomes could be classified. SHS in nonsmokers was positively associated with underreporting; however, only the nonsmoker group had positive associations, demonstrating unintentional underreporting due to SHS.


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