Experiences of shame for people with dementia: An Interpretative Phenomenological Analysis

Dementia ◽  
2017 ◽  
Vol 18 (5) ◽  
pp. 1896-1911 ◽  
Author(s):  
Hannah Aldridge ◽  
Paul Fisher ◽  
Ken Laidlaw
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Early Stage ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Psychological Therapies ◽  
People With Dementia ◽  
Depth Analysis ◽  
The Individual ◽  
And Control ◽  
Published Research

Studies highlight that shame can be problematic for people with early-stage dementia. However, no published research has specifically explored experiences of shame in dementia from the perspective of the individual. This study uses Interpretative Phenomenological Analysis to gain an understanding of how shame is experienced and made sense of by six people with early-stage dementia. Individual, semi-structured interviews took place in participants’ homes. An in-depth analysis of the data revealed four superordinate themes implicated in shame experiences: Avoidance explains the participants’ efforts to distance themselves from shaming experiences; participants reported Negative self-perceptions including a weakening self, loss of value and meaninglessness; Relationship matters involved issues around trust, burden and past relationships and Uncertainty and loss of control highlights participants’ anxiety about losing clarity and control. Ideas are contributed for promoting non-shaming experiences for people with dementia, particularly through communication during assessment and diagnosis, and psychological therapies.

scholarly journals Exploring the Lived Experience of People with Dementia Through Interpretative Phenomenological Analysis

2016 ◽  
Author(s):  
Helen Johnson
Keyword(s):  
Lived Experience ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Small Body ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
People With Dementia ◽  
Analytic Process ◽  
Moderate Dementia ◽  
Negative Perceptions

Dementia is arguably one of the biggest challenges facing society today, impacting millions of people worldwide. Nonetheless, there is only a relatively small body of research exploring what it is like to live with dementia from the perspectives of people who have this condition. This is partly because of the (implicit or explicit) belief that people with dementia lack insight into their condition and cannot talk about their experiences clearly. In this article, I argue that such beliefs are typically both erroneous and unhelpful, and that there is great value in seeking to illuminate the lived experiences of people with dementia. I present an interpretative phenomenological analysis of data from semi-structured interviews with six participants who had moderate dementia. I elicit five themes from this analytic process, and discuss the three most prominent here: awareness and understanding of dementia, clarity and confusion, and social support and relationships. I mobilise these themes to narrate the lived experiences of people with dementia, demonstrating their awareness both of the difficulties presented by dementia and of the negative perceptions of others.

scholarly journals The anatomy of business failure

2017 ◽  
Vol 26 (1) ◽  
pp. 2-20 ◽  
Author(s):  
Artur Dias ◽  
Aurora A.C. Teixeira
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Design Methodology ◽  
New Ventures ◽  
Phenomenological Analysis ◽  
Business Failure ◽  
Structured Interviews ◽  
Content Type ◽  
The North ◽  
Main Determinants ◽  
The Individual

Purpose The purpose of this paper is to analyze the aftermath of business failure (BF) by addressing: how the individual progressed and developed new ventures, how individuals changed business behaviors and practices in light of a failure, and what was the effect of previous failure on the individual’s decisions to embark on subsequent ventures. Design/methodology/approach The authors resort to qualitative methods to understand the aftermath of BF from a retrospective point of a successful entrepreneur. Specifically, the authors undertook semi-structured interviews to six entrepreneurs, three from the north of Europe and three from the south and use interpretative phenomenological analysis. Findings The authors found that previous failure impacted individuals strongly, being shaped by the individual’s experience and age, and their perception of blame for the failure. An array of moderator costs was identified, ranging from antecedents to institutions that were present in the individual’s lives. The outcomes are directly relatable to the failed experience by the individual. The authors also found that the failure had a significant effect on the individual’s career path. Originality/value While predicting the failure of healthy firms or the discovery of the main determinants that lead to such an event have received increasingly more attention in the last two decades, the focus on the consequences of BF is still lagging behind. The present study fills this gap by analyzing the aftermath of BF.

An interpretative phenomenological analysis of prisoners’ experience of riotous behaviour in an adult male prison

2014 ◽  
Vol 16 (3) ◽  
pp. 203-215 ◽  
Author(s):  
Niamh Kennedy
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Motivational Factors ◽  
Future Research ◽  
Structured Interviews ◽  
Prison Staff ◽  
Content Type ◽  
The Future ◽  
The Individual ◽  
Insight Into

Purpose – Prison violence generates much public interest with concerns for the financial costs, staff safety and public safety. The purpose of this paper is to explore the experience of riotous behaviour from the perspective of prisoners in a maximum secure adult prison. It also seeks gather information and to generate discussion on areas for future research. Design/methodology/approach – A purposive sampling method and in-depth semi-structured interviews were carried out. Interpretative phenomenological analysis identified super ordinate themes and related sub-themes within the participants’ narratives. Emergent themes were then considered in relation to the theories and concepts that underpinned and connected them. Findings – Super ordinate themes emerged centred around the subject of social processing and relationships. Prisoners emphasised the role of prisoner-staff relationships in feeling valued as part of the social structure and considered riotous behaviour the best method of communication at that time. Social comparison highlighted the value they placed in being part of the prisoner culture and the nostalgic nature of the riotous behaviour for them. It lends support to earlier theory on prison adjustment and social psychological explanations for rioting. Research limitations/implications – It is not assumed that the findings of this study can be universally applied given the sample size and the idiosyncratic nature of participants’ experiences. This research may provide greater insight into the motivational factors related to individuals involved in riotous behaviour. With such insight prison staff may be more able to consider whether prisoners’ needs are being sufficiently met to help prevent such behaviour in the future. Practical implications – This research may help inform training on the identification and management of potential riots. With insight into the individual motivational factors prison staff may be more able to consider whether prisoners’ needs are being sufficiently met to help prevent such behaviour in the future. Originality/value – This paper reports on the prisoners’ individual experience of being involved in riotous behaviour. Due to the paucity of literature on this behaviour, this exploratory study is intended to add to existing knowledge.

scholarly journals What is the meaning of filial piety for people with dementia and their family caregivers in China under the current social transitions? An interpretative phenomenological analysis

Dementia ◽  
2018 ◽  
Vol 18 (7-8) ◽  
pp. 2620-2634 ◽  
Author(s):  
Xiubin Zhang ◽  
Charlotte L. Clarke ◽  
Sarah J. Rhynas
Keyword(s):  
Cultural Values ◽  
Family Caregivers ◽  
Interpretative Phenomenological Analysis ◽  
Filial Piety ◽  
Phenomenological Analysis ◽  
Chinese Society ◽  
Structured Interviews ◽  
Filial Obligation ◽  
Social Transitions ◽  
People With Dementia

The filial piety model of family centred care has dominated Chinese society for thousands of years. The ways in which filial piety is presented are being modified and modernised as China undergoes social transitions. The study aims to understand the meaning of filial piety for people with dementia and family caregivers. Semi-structured interviews with people with dementia ( n = 10) and family caregivers ( n = 14) were conducted. Data were analysed using interpretative phenomenological analysis. Three themes emerged: (a) ‘Being filial is a cultural continuity and my future investment’. (b) ‘The changed perception and ways of being filial’. (c) ‘Filial responsibility is a social and cultural convention, but not my personal choice’. This study highlights the importance of cultural values in family care decision making and in shaping filial responsibilities. It indicates that filial obligation can be maintained through social support, even though the nature of filial piety has been changed by social transitions.

scholarly journals An Interpretative Phenomenological Analysis of Discontinued Use of the E-Cigarette

2018 ◽  
Vol 14 (2) ◽  
pp. 104-111
Author(s):  
Camille Alexis-Garsee ◽  
Stephanie Meehan ◽  
Olga van den Akker
Keyword(s):  
Self Efficacy ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Future Research ◽  
Structured Interviews ◽  
Quit Smoking ◽  
Stop Smoking Services ◽  
The Individual ◽  
Individual Effort

Introduction: Many UK smokers use e-cigarettes as a quitting aid; however, a substantial number discontinue use of the e-cigarette and revert to smoking. Understanding why this may happen is important both for individuals and for stop smoking services.Aims: To explore young adult smokers’ experiences of use and discontinued use of the e-cigarette.Methods: Semi-structured interviews were conducted with six participants who tried e-cigarettes for at least seven days and returned to smoking. Data was transcribed and analysed using interpretative phenomenological analysis.Results: Findings suggested participants held conflicting attitudes about using e-cigarettes, which undermined attempts to quit smoking, and led to the discontinuation of the e-cigarette. These conflicts centred on participants’ discomfort with the e-cigarette or vaping identity, lack of abstinence self-efficacy and navigation of barriers to e-cigarette use. The complex interplay of these factors may have led to an underestimation of the individual effort required to continue vaping and reinforced participants’ perception of the e-cigarette as an inferior product to the cigarette.Conclusions: Future research should focus on the role of identity, self-efficacy, control and smokers’ expectations of e-cigarettes on smoking cessation as these may be important factors to consider for a more tailored service for e-cigarette users.

The parent and child experience of childhood vitiligo: An interpretative phenomenological analysis

2020 ◽  
Vol 25 (4) ◽  
pp. 740-753
Author(s):  
Kate Moss ◽  
Samantha A Johnston ◽  
Andrew R Thompson
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Skin Condition ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Self Confidence ◽  
Parents And Children ◽  
Depth Analysis ◽  
Child Experience ◽  
And Coping ◽  
The Impact

Vitiligo is a chronic and visible skin condition involving depigmentation with half of those with the condition developing it before the age of 20. This study sought to gain an experiential understanding of the impact of vitiligo on children and their parents. Interpretative phenomenological analysis was used, and semi-structured interviews were conducted with four child–parent dyads (eight participants). Analysis of the participants’ accounts revealed four overarching themes (Continuing Burden, The Significance of Visible Difference, Uncertainty and Unpredictability, and Coping), with 12 subthemes. There were some subtle differences between the parents and children. Both parents and child participants described the condition as posing a continuing burden with most participants reporting experiencing unwanted attention and being concerned about future relationship impact. Some parents described experiencing a sense of resignation to the condition, whereas all the children described a greater sense of acceptance. Nevertheless, acceptance seemed fragile, and parents were concerned that their children needed assistance in developing self-confidence. The findings represent the first in-depth analysis of childhood vitiligo.

scholarly journals Paradoxical and powerful: Volunteers’ experiences of befriending people with dementia

Dementia ◽  
2016 ◽  
Vol 17 (7) ◽  
pp. 821-839 ◽  
Author(s):  
Diane E Greenwood ◽  
Carolyn Gordon ◽  
Claire Pavlou ◽  
Jessica V Bolton
Keyword(s):  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Human Experience ◽  
Phenomenological Analysis ◽  
Future Research ◽  
Structured Interviews ◽  
Personal Learning ◽  
People With Dementia ◽  
Power Equality ◽  
The Relationship

This qualitative UK study explored the lived experiences of volunteer befrienders to people with dementia, using interpretative phenomenological analysis. Individual semi-structured interviews were conducted with nine befrienders aged between 25 and 66 years. The relationship that developed between befriender and befriendee was at the heart of befrienders’ experiences. It comprised numerous paradoxical processes that generated issues of power, equality and boundaries, characterising befriending as a complex and unique phenomenon. Befriending was expressed as a deeply personal and human experience, often with emotional power and profound meaning. Befrienders’ personal learning included seeing past dementia stereotypes, challenging their own assumptions and boundaries, and reflecting on love, life and humanness. Dissemination of these findings could help to challenge the stigma around dementia, and enhance recruitment and support of dementia befrienders. Future research should consider befriendee experiences of the relationship, additional measures of befriending effectiveness, and exploration of befriender attrition and support.

STUDI KUALITATIF : KEBUTUHAN IBU HAMIL DENGAN DIABETES MELITUS GESTASIONAL DI KABUPATEN KARANGANYAR JAWA TENGAH

2020 ◽  
pp. 17-26
Author(s):  
Arista Apriani ◽  
M Mufdlilah ◽  
Menik Sri Daryanti
Keyword(s):  
Social Support ◽  
Pregnant Women ◽  
Health Center ◽  
Blood Sugar ◽  
Interpretative Phenomenological Analysis ◽  
Health Workers ◽  
Phenomenological Analysis ◽  
Lifestyle Changes ◽  
Structured Interviews ◽  
Diabetes Melitus

ABSTRAK GDM dapat berpotensi menimbulkan komplikasi serius yang dapat mengakibatkan risiko kesehatan jangka pendek dan jangka panjang bagi ibu dan bayinya. diagnosis GDM menimbulkan efek emosional yang negatif. Persepsi ibu hamil tentang GDM dapat memengaruhi perubahan gaya hidup. Garis pertama penatalaksanaan DMG yaitu dengan perubahan gaya hidup. Tujuan menggali secara mendalam kebutuhan ibu dengan diagnosis diabetes melitus gestasional. Metode penelitian kualitatif dengan pendekatan  fenomenologi. Lokasi di Kabupaten Karanganyar yaitu Puskesmas Jaten I, Puskesmas Matesih dan RSUD Kabupaten Karanganyar, pada bulan Oktober 2019 - Januari 2020. Sampel secara criterion sampling Pengumpulan data dengan semistructure interview dengan one on one interview. Uji Keabsahan Data dengan Credibility pada penelitian ini menggunakan strategi validitas triangulasi, Tranferability, Dependability, Confirmability. Analisis data dengan Interpretative Phenomenological Analysis (IPA). Hasil penelitian kebutuhan ibu hamil dengan DMG teridentifikasi empat tema, yaitu dukungan keluarga dalam hal mengontrol pola makan, mengatarkan periksa ke tenaga kesehatan, dan mengingatkan untuk aktifitas olah raga. Dukungan sosial, yaitu cara mengontrol gula darah. Dukungan tenaga kesehatan, yaitu saran dan motivasi untuk mengontrol gula darah. Informasi mendapat saran atau perawatan DMG dalam kehamilan adalah dari tenaga kesehatan yaitu bidan, dokter, serta selain tenaga kesehatan dari teman dan internet. Kesimpulannya kebutuhan ibu hamil dengan DMG teridentifikasi empat tema, yaitu dukungan keluarga, dukungan sosial, dukungan tenaga kesehatan dan informasi.   Kata kunci: diabetes melitus gestasional, kehamilan, kebutuhan.   ABSTRACT GDM can overcome serious problems that can overcome short-term and long-term health problems for mother and baby. a diagnosis of GDM has a negative emotional effect. Pregnant women 's perception of GDM can affect lifestyle changes. The first line of management of DMG is lifestyle changes. Diagnosis of gestational diabetes mellitus. Qualitative research methods by studying phenomenology. Locations in Karanganyar Regency are Jaten I Health Center, Matesih Health Center and Karanganyar District Public Hospital, in October 2019 - January 2020. Sample sampling criteria Data collection by semi-structured interviews with one-on-one interviews. Data Validity Test with Credibility in this study using the triangulation validity strategy, Transparency, Dependability, Confirmability. Data analysis with Interpretative Phenomenological Analysis (IPA). The results of the study of the needs of pregnant women with DMG identified four themes, namely supporting the family in terms of controlling diet, sending check to health workers, and reminding for sports activities. Social support, which is a way to control blood sugar. Support of Health Workers, namely advice and motivation to control blood sugar. The information obtained from DMG advice or treatment in the assessment is from health workers, namely midwives, doctors, and also health workers from friends and the internet. In conclusion, the needs of pregnant women with DMG identified four themes, namely family support, social support, support of health workers and information.  

scholarly journals Interactive effects between travel behaviour and COVID-19: a questionnaire study

2021 ◽  
Author(s):  
Jinbao Zhang ◽  
Jaeyoung Lee
Keyword(s):  
Early Stage ◽  
Travel Behaviour ◽  
Interactive Effects ◽  
Factors Affecting ◽  
Individual Level ◽  
Passenger Volume ◽  
Spatial Autoregressive ◽  
Railway Passenger ◽  
The Individual ◽  
And Control

Abstract This study has two main objectives: (i) to analyse the effect of travel characteristics on the spreading of disease, and (ii) to determine the effect of COVID-19 on travel behaviour at the individual level. First, the study analyses the effect of passenger volume and the proportions of different modes of travel on the spread of COVID-19 in the early stage. The developed spatial autoregressive model shows that total passenger volume and proportions of air and railway passenger volumes are positively associated with the cumulative confirmed cases. Second, a questionnaire is analysed to determine changes in travel behaviour after COVID-19. The results indicate that the number of total trips considerably decreased. Public transport usage decreased by 20.5%, while private car usage increased by 6.4%. Then the factors affecting the changes in travel behaviour are analysed by logit models. The findings reveal significant factors, including gender, occupation and travel restriction. It is expected that the findings from this study would be helpful for management and control of traffic during a pandemic.

scholarly journals Identity in transition: an interpretative phenomenological analysis of international humanitarian workers’ experiences of returning home

2021 ◽  
Vol 6 (1) ◽  
Author(s):  
Emilia Marie Wersig ◽  
Kevin Wilson-Smith
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Moral Values ◽  
Future Research ◽  
Aid Workers ◽  
Structured Interviews ◽  
Work Settings ◽  
Returning Home ◽  
The Uk ◽  
Humanitarian Work

AbstractThis interpretative phenomenological analysis explores aid workers’ understanding of identity and belonging through the transition from working in humanitarian aid to returning home. Semi-structured interviews were conducted with 10 participants who had returned to the UK after working in recently founded non-governmental organisations in Northern France between 2016 and 2019. Analysis of interview data identified four superordinate themes: (1) shared humanitarian identity, (2) limits and borders, (3) holding on to humanitarian identity and (4) redefining belonging and identity. Aid workers’ belonging in humanitarian work settings is rooted in shared moral values and being able to fulfil a clearly defined role. Upon returning, aid workers struggled to reintegrate, manifesting as denial of having left humanitarian work, re-creation of the social setting and moral demarcation. Participants formed a new sense of belonging through redefining their social in-group. The study sheds light on a previously unexplored area of research, specifically characterised through the closeness of the international humanitarian setting and participants’ homes. Findings suggest organisations can assist aid workers’ re-entry by supporting professional distance in the field, and through opportunities that allow to sustain moral values post-mission. Future research should focus on the role of peer support in the re-entry process and the re-entry experiences of aid workers returning from comparable settings further afield (e.g. Greece).

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