scholarly journals The Experiences of Young Liver Patients Transferring From Children’s to Adult Services and Their Support Needs for a Successful Transition

2018 ◽  
Vol 28 (3) ◽  
pp. 244-249 ◽  
Author(s):  
Alex Toft ◽  
Rachel Taylor ◽  
Lee Claridge ◽  
Charlotte Clowes ◽  
James Ferguson ◽  
...  
Keyword(s):  
Young People ◽  
Health Care Professionals ◽  
Medical Information ◽  
Information Support ◽  
Future Research ◽  
Adult Health ◽  
Mobile Phone Application ◽  
Transition Readiness ◽  
Adult Services ◽  
Liver Transplant Recipients

Background: The period of transition from pediatric to adult services represents a time when young people need support, information, and appropriate care in order to successfully move. It is a period that is associated with nonadherence and disengagement with care. Objective: To explore the experiences of young liver transplant recipients transitioning to adult services and determine what they require in order to achieve a successful move. The research also explored the possibility of using a mobile phone application (app) as a tool to support transition. Design: Qualitative approach using novel arts-based focus groups and one-to-one interviews. Participants: Twenty-one young people aged 16 to 25 years, 16 health-care professionals involved in their care, and 7 young people as follow-up. Participants used services provided by the 3 liver centers in England (Leeds, Birmingham, and London). Results: Data highlighted the variability of transition pathways in England for young people moving from child to adult health services. The results showed that they required clear information regarding transition processes including specific medical information and that there was a shortfall in such information. Support was required in the form of a designated transition coordinator or similar specialist who could act as a point of reference and guidance throughout the process. Transitions needed to be individualized and based upon transition readiness rather than age, although the research showed that age cut-offs were still used. Conclusion: Young people welcomed apps to provide information, reminders, contacts, and connections. Future research should explore the efficacy of such apps.

A systematic review of transition readiness and transfer satisfaction measures for adolescents with chronic illness

2014 ◽  
Vol 26 (2) ◽  
pp. 159-174 ◽  
Author(s):  
Jennifer Stinson ◽  
Sara Ahola Kohut ◽  
Lynn Spiegel ◽  
Meghan White ◽  
Navreet Gill ◽  
...  
Keyword(s):  
Health Care ◽  
Transitional Care ◽  
Chronic Illnesses ◽  
Future Research ◽  
Adult Health ◽  
Transition Readiness ◽  
Cosmin Checklist ◽  
Validated Questionnaire ◽  
Satisfaction Measures ◽  
Adult Health Care

Abstract Background: The transition from pediatric to adult health care can be challenging for adolescents with chronic illnesses. As a result, many adolescents are unable to transfer to adult health care successfully. Adequate measurement of transition readiness and transfer satisfaction with disease management is necessary in order to determine areas to target for intervention towards improving transfer outcomes. Objectives: This study aims to systematically review and critically appraise research on transition readiness and transfer satisfaction measures for adolescents with chronic illnesses as well as to assess the psychometric quality of these measures. Methods: Electronic searches were conducted in MEDLINE, EMBASE, CINAHL, PsychINFO, ERIC, and ISI Web of Knowledge for transition readiness and transfer satisfaction measures for adolescents with chronic health conditions. Two reviewers independently selected articles for review and assessed methodological quality. Results: In all, eight readiness and six satisfaction measures met the inclusion criteria, for a total of 14 studies, which were included in the final analysis. None of these measures have well-established evidence of reliability and validity. Most of the measures were developed ad hoc by the study investigators, with minimal to no evidence of reliability and/or validity using the Cohen criteria and COSMIN checklist. Conclusion: This research indicates a major gap in our knowledge of transitional care in this population, because there is currently no well-validated questionnaire that measures readiness for transfer to adult health care. Future research must focus on the development of well-validated transition readiness questionnaires, the validation of existing measures, and reaching consensus on outcomes of successful transfer.

Experiences of Young Offenders and Health-care Professionals Involved in Transitions from Forensic Adolescent Mental Health Services: A Qualitative Study

2017 ◽  
Vol 41 (S1) ◽  
pp. S153-S153
Author(s):  
M. Livanou ◽  
V. Furtado ◽  
S. Singh
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Services ◽  
Young People ◽  
Health Services ◽  
Health Care Professionals ◽  
Adolescent Mental Health ◽  
Child And Adolescent ◽  
Young Offenders ◽  
Adult Services

IntroductionTransitions from child and adolescent mental health services to adult mental health services have been quite troublesome for young people in the UK. There is strong evidence throughout the literature that long waiting lists and rigid adult services criteria hamper dramatically transitions across services. Little knowledge exists about transitions from forensic adolescent services to adult services.ObjectivesTo interview health-care professionals and young offenders in transition of care from forensic child and adolescent mental health services in England.AimsThis study aimed to bridge the current literature gap in regards to transitions across forensic services and the complexities resulting from disruptive care.MethodsThis study adopted a prospective design to identify young offenders referred to adult services over a six-month period. We utilized semi-structured interviews. Health-care professionals were interviewed about their transition views and perspectives. Young offenders were followed-up within a month of their transition and were interviewed.ResultsThe numbers of transitions within forensic settings are much lower compared to those of general transitions across mental health services in England. Transition delays were a repetitive theme across interviews due to lack of bed availability, especially in medium secure hospitals, and poor multi-agency communication. Commissioning determines age boundaries along with transfer destination for each service.ConclusionsIneffective liaison among different sectors might impact adversely young people and hallmark their long-stay in the system. Therefore, continuity of care within forensic services should be looked warily along with the role of policy shaped by commissioning. Multiple transitions can repeatedly traumatize young people moving across services.

A Qualitative Study on the Experiences of Women With Breast Implant Illness

2021 ◽  
Author(s):  
Samantha Tang ◽  
Natalie E Anderson ◽  
Kate Faasse ◽  
William P Adams ◽  
Jill M Newby
Keyword(s):  
Social Media ◽  
Thematic Analysis ◽  
Health Care Professionals ◽  
Qualitative Methodology ◽  
Breast Implant ◽  
Information Support ◽  
Future Research ◽  
Physical And Mental Health ◽  
Structured Interviews ◽  
Experiences Of Women

Abstract Background Breast Implant Illness (BII) is a term used to describe physical and psychological symptoms experienced by some women following breast implant surgery. Few studies have examined the experiences of women with BII – a poorly understood condition with no clear cause or treatment. Objectives To explore women’s experiences of BII, including symptoms, healthcare encounters, social media and explant surgery. Methods Using an exploratory qualitative methodology, researchers undertook semi-structured interviews with twenty-nine women who self-identified as having BII. Interviews were audio-recorded and transcribed verbatim. Data were analyzed using inductive thematic analysis. Results Thematic analysis of the interviews identified six themes: 1. Symptoms without explanation; 2. Invalidation and invisibility; 3. Making the BII connection; 4. Implant toxicity; 5. Explant surgery: solution to suffering?; and 6. Concealed information. BII was described as distressing and debilitating across multiple domains including relationships, work, identity, physical and mental health, and symptoms were attributed to implant toxicity and immune system rejecting foreign objects. When their experience was not validated by health care professionals, many looked to social media for information, support and understanding, and explant as their only chance at recovery. Conclusions BII is disabling mentally and physically. Women with BII require support, understanding, and validation, and proactive treatment to prevent disability. With unclear pathophysiology, future research should examine how biopsychosocial approaches can be used to guide treatment, and how to best support women with BII, focusing on early detection and evidence-based education and intervention.

Family management affecting transition readiness and quality of life of Chinese children and young people with chronic diseases

2018 ◽  
Vol 22 (3) ◽  
pp. 470-485 ◽  
Author(s):  
Nan Sheng ◽  
Jiali Ma ◽  
Wenwen Ding ◽  
Ying Zhang
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Young People ◽  
Self Management ◽  
Family Management ◽  
Adult Health ◽  
Children And Young People ◽  
Transition Readiness ◽  
Adult Health Care

Transition from pediatric to adult health care is a key milestone for children and young people (CYP) with chronic conditions. Family management (FM) and self-management are two important concepts during the process. This study aimed to explore the relationships between FM, self-management and transition readiness, and quality of life (QoL), and identify the potential CYP or family factors influencing the relationships. Data about FM, self-management and transition readiness, QoL, and various contextual factors were collected from 268 caregiver–child pairs. Structural equation modeling was used to examine the relationships between all variables. Results revealed that the easy aspects of FM mediated the relationships between the challenging aspects of FM, self-management and transition readiness, and QoL of CYP. Self-management and transition readiness mediated the relationship between the easy aspects of FM and QoL. Contextual factors indirectly influenced CYP’s transition readiness and QoL through different aspects of FM. The results imply that to ensure the smooth transition from pediatric to adult health care and improve the CYP’s QoL, strengthening CYP’s independence and self-management competencies, combined with the support of the easy aspects of FM, seem to be useful strategies to increase CYP’s readiness for transfer.

scholarly journals Transition from child-centred to adult-oriented healthcare systems for young people with neurodisability: a scoping review protocol

2020 ◽  
Vol 3 ◽  
pp. 61
Author(s):  
Jennifer Fortune ◽  
Paul Murphy ◽  
Nabil Merchant ◽  
Claire Kerr ◽  
Thilo Kroll ◽  
...  
Keyword(s):  
Young People ◽  
Scoping Review ◽  
Transitional Care ◽  
Grey Literature ◽  
Healthcare Systems ◽  
Current Evidence ◽  
Cochrane Library ◽  
Future Research ◽  
Adult Health ◽  
Current Evidence Base

Background: The transition from child-centred to adult-oriented healthcare is a challenging time for young people with neurodisability. As the prevalence of neurodisability increases, greater numbers of young people will eventually transfer to the adult healthcare system. While there is a growing recognition of the importance of providing quality, transitional care, little is known about how to manage and optimise this process for young people with neurodisability. The objective of this scoping review is to examine and map existing literature related to the transition from child-centred to adult-oriented healthcare systems for young people with neurodisability. Methods: Systematic literature searches of OVID MEDLINE, EMBASE, PsycINFO, CINAHL, Cochrane Library and Web of Science will be conducted from inception to present. A structured iterative search of grey literature will be conducted. This review will consider all study designs examining the transition from child to adult health services in neurodisability. Two reviewers will independently screen each retrieved title and abstract and assess full-text articles against the inclusion criteria to determine eligibility. Data will be extracted and synthesised quantitatively and qualitatively. The process and reporting will follow PRISMA-ScR guidelines. Conclusion: This review will provide a broad and systematically mapped synthesis of the extent and nature of the available published and unpublished literature on transition from child-centred to adult-oriented healthcare systems in neurodisability. The results will be used to determine gaps in the current evidence base in order to prioritise areas for future research.

Multi-Echelon Distributed Army Leaders' Information Support Training (Medalist): Prototype Development and Recommendations for Future Research

2004 ◽  
Author(s):  
Christopher R. Graves ◽  
Charles G. Heiden ◽  
Samuel N. Jenkins ◽  
Michael R. Flynn ◽  
Paul G. Smith
Keyword(s):  
Information Support ◽  
Future Research ◽  
Prototype Development

scholarly journals Comparison of disclosure/concealment of medical information given to conversational agents or to physicians

2021 ◽  
Vol 27 (1) ◽  
pp. 146045822199486
Author(s):  
Nicholas RJ Frick ◽  
Felix Brünker ◽  
Björn Ross ◽  
Stefan Stieglitz
Keyword(s):  
Natural Language ◽  
Medical Information ◽  
Frame Of Reference ◽  
Future Research ◽  
Negative Consequences ◽  
Conversational Agents ◽  
Online Questionnaire ◽  
Computer Based

Within the anamnesis, medical information is frequently withheld, incomplete, or incorrect, potentially causing negative consequences for the patient. The use of conversational agents (CAs), computer-based systems using natural language to interact with humans, may mitigate this problem. The present research examines whether CAs differ from physicians in their ability to elicit truthful disclosure and discourage concealment of medical information. We conducted an online questionnaire with German participants ( N = 148) to assess their willingness to reveal medical information. The results indicate that patients would rather disclose medical information to a physician than to a CA; there was no difference in the tendency to conceal information. This research offers a frame of reference for future research on applying CAs during the anamnesis to support physicians. From a practical view, physicians might gain better understanding of how the use of CAs can facilitate the anamnesis.

Behavior change techniques in mobile apps targeting self-harm in young people: a systematic review

2021 ◽  
Author(s):  
Elena Panagiotopoulou ◽  
Celeste Peiris ◽  
Daniel Hayes
Keyword(s):  
Young People ◽  
Behavior Change ◽  
Dialectical Behavior Therapy ◽  
Mobile Apps ◽  
Mental Healthcare ◽  
Future Research ◽  
Active Components ◽  
Behavior Change Techniques ◽  
Other Information ◽  
Self Harm

Abstract Despite the high prevalence of self-harm among young people, as well as their extensive use of mobile apps for seeking support with their mental healthcare, it is unclear whether the design of mobile apps aimed at targeting self-harm is underpinned by behavior change techniques (BCTs). To systematically analyze and identify (a) what BCTs and (b) what theories are present in self-harm apps for young people in an attempt to understand their active components. Systematic searches in Apple store, followed by thorough screening, were conducted to identify free mobile apps targeting self-harm in young people. Five apps met the inclusion criteria and were used by trained researchers, who coded identified features against the BCT Taxonomy V1. Despite the majority of apps being underpinned by principles of Dialectical Behavior Therapy (DBT), no other information is available about specific theories underpinning these apps. Nineteen of the 93 BCTs were identified across the five apps. The most frequently used BCT was “Distraction” (54.2%), offering ideas for activities to distract users from self-harming. Other techniques that were used often were “Social Support (unspecified)” (27.0%) and “Behavior Substitution” (10.6%). This study provides the first analysis of BCTs present in mental health apps which are designed to target the reduction of self-harm in young people. Future research is needed to evaluate the effectiveness of the apps, as well as assess the effectiveness of the BCTs present.

scholarly journals Providing trial results to participants in phase III pragmatic effectiveness RCTs: a scoping review

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Hanne Bruhn ◽  
Elle-Jay Cowan ◽  
Marion K. Campbell ◽  
Lynda Constable ◽  
Seonaidh Cotton ◽  
...  
Keyword(s):  
Scoping Review ◽  
Health Care Professionals ◽  
Search Strategy ◽  
Phase Iii ◽  
Future Research ◽  
To Receive ◽  
Emotional Effects ◽  
Trial Participants ◽  
Narrative Description ◽  
Do So

Abstract Background There is an ethical imperative to offer the results of trials to those who participated. Existing research highlights that less than a third of trials do so, despite the desire of participants to receive the results of the trials they participated in. This scoping review aimed to identify, collate, and describe the available evidence relating to any aspect of disseminating trial results to participants. Methods A scoping review was conducted employing a search of key databases (MEDLINE, EMBASE, PsycINFO, and the Cumulative Index to Nursing & Allied Health Literature (CINAHL) from January 2008 to August 2019) to identify studies that had explored any aspect of disseminating results to trial participants. The search strategy was based on that of a linked existing review. The evidence identified describes the characteristics of included studies using narrative description informed by analysis of relevant data using descriptive statistics. Results Thirty-three eligible studies, including 12,700 participants (which included patients, health care professionals, trial teams), were identified and included. Reporting of participant characteristics (age, gender, ethnicity) across the studies was poor. The majority of studies investigated dissemination of aggregate trial results. The most frequently reported mode of disseminating of results was postal. Overall, the results report that participants evaluated receipt of trial results positively, with reported benefits including improved communication, demonstration of appreciation, improved retention, and engagement in future research. However, there were also some concerns about how well the dissemination was resourced and done, worries about emotional effects on participants especially when reporting unfavourable results, and frustration about the delay between the end of the trial and receipt of results. Conclusions This scoping review has highlighted that few high-quality evaluative studies have been conducted that can provide evidence on the best ways to deliver results to trial participants. There have been relatively few qualitative studies that explore perspectives from diverse populations, and those that have been conducted are limited to a handful of clinical areas. The learning from these studies can be used as a platform for further research and to consider some core guiding principles of the opportunities and challenges when disseminating trial results to those who participated.

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