scholarly journals The Perception of Disability Among Mothers Living With a Child With Cerebral Palsy in Saudi Arabia

2019 ◽  
Vol 6 ◽  
pp. 233339361984409 ◽  
Author(s):  
Sanaa Mohamed Madi ◽  
Anne Mandy ◽  
Kay Aranda
Keyword(s):  
Cerebral Palsy ◽  
Research Literature ◽  
Perceptions Of Disability ◽  
Children With Disability ◽  
Ethnographic Approach ◽  
Health Care Practitioners ◽  
The Family ◽  
The Impact ◽  
Family Centered

The purpose of this study was to explore the perceptions of disability among Saudi mothers and to understand the implication of the meaning for the mothers of children with disability. A critical ethnographic approach was employed using focus groups and follow-up interviews with the mothers. Three primary themes were identified that specifically influenced and affected the mothers’ experiences: (a) culture and religion, (b) motherhood and disability, and (c) community stigma and discrimination. The study reveals much-needed knowledge and sheds light on a topic, the details of which are rarely available in research literature from the Middle East. The findings further endorse the need for clinicians to listen to the mothers to consider their beliefs and the impact of these beliefs on their experiences. This, in turn, may provide a valuable conceptual lens for health care practitioners to use the family-centered model when working with cerebral palsy children.

scholarly journals The Project TALENT Twin and Sibling Study

2012 ◽  
Vol 16 (1) ◽  
pp. 437-448 ◽  
Author(s):  
Carol A. Prescott ◽  
Deanna Lyter Achorn ◽  
Ashley Kaiser ◽  
Lindsey Mitchell ◽  
John J. McArdle ◽  
...  
Keyword(s):  
Genetic Research ◽  
Original Data ◽  
Family Characteristics ◽  
Shared Environment ◽  
Occupational Outcomes ◽  
School Based ◽  
The Family ◽  
Specific Factors ◽  
The Impact

Project TALENT is a US national longitudinal study of about 377,000 individuals born in 1942–1946, first assessed in 1960. Students in about 1,200 schools participated in a 2-day battery covering aptitudes, abilities, interests, and individual and family characteristics (Flanagan, 1962; www.projectTALENT.org). Follow-up assessments 1, 5, and 11 years later assessed educational and occupational outcomes. The sample includes approximately 92,000 siblings from 40,000 families, including 2,500 twin pairs and 1,200 other siblings of twins. Until recently, almost no behavior genetic research has been conducted with the sample. In the original data collection information was not collected with the intent to link family members. Recently, we developed algorithms using names, addresses, birthdates, and information about family structure to link siblings and identify twins. We are testing several methods to determine zygosity, including use of yearbook photographs. In this paper, we summarize the design and measures in Project TALENT, describe the Twin and Sibling sample, and present our twin-sib-classmate model. In most twin and family designs, the ‘shared environment’ includes factors specific to the family combined with between-family differences associated with macro-level variables such as socioeconomic status. The school-based sampling design used in Project TALENT provides a unique opportunity to partition the shared environment into variation shared by siblings, specific to twins, and associated with school- and community-level factors. The availability of many measured characteristics on the family, schools, and neighborhoods enhances the ability to study the impact of specific factors on behavioral variation.

scholarly journals A single Epley manoeuvre can improve self-perceptions of disability (quality of life) in patients with cp-BPPV: A randomised controlled trial in primary care.

2020 ◽  
Author(s):  
Ricard Carrillo Muñoz ◽  
Jose Luis Ballve Moreno ◽  
Ivan Villar Balboa ◽  
Yolanda Rando Matos ◽  
Oriol Cunillera Puertolas ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Primary Care ◽  
Intervention Group ◽  
Control Group ◽  
Perceived Disability ◽  
Self Perceptions ◽  
Perceptions Of Disability ◽  
The Impact

Abstract Background: Posterior canal benign paroxysmal positional vertigo (pc-BPPV) causes physical, functional, and emotional impairment. The treatment of choice is the Epley manoeuvre (EM). The purpose of the study was to compare the impact of the EM and a sham manoeuvre in primary care on self-perceived disability. Method: Randomised, double-blind, sham-controlled clinical trial conducted in primary care with a follow-up of 1 year. Patients aged ≥18 years old diagnosed with pc-BPPV according to the Dix-Hallpike test (DHT) were randomised to an intervention (EM) group or a control (sham manoeuvre) group. The main study covariables were age, sex, history of depression and anxiety, presence of nystagmus in the DHT, patient-perceived disability assessed with the Dizziness Handicap Inventory-screening version (DHI-S). Data were analyzed using bivariate and multivariate mixed Tobit analyses. Results: Overall, 134 patients were studied: 66 in the intervention group and 68 in the control group. Median age was 52 years (interquartile range [IQR], 38.25–68.00 years) and 76.12% of the patients were women. The DHT triggered nystagmus in 40.30% of patients. The median total DHI-S score for the overall sample at baseline was 16 (IQR, 8.00–22.00); 16 [IQR, 10.5–24.0] vs 10 [6.0–14.0] for women vs men ( P <0.001) and 16 [IQR, 10.0-24.0] vs 12 [IQR, 8.0–18.0] for patients without nystagmus vs those with nystagmus ( P =0.033).Patients treated with the EM experienced a mean reduction of 2.03 points in DHI-S score over the follow-up period compared with patients in the sham group. Conclusion: Pc-BPPV affects the quality of life of primary care patients. A single EM can improve self-perceptions of disability by around 2 points on the DHI-S scale, Trial registration : ClinicalTrials.gov Identifier: NCT01969513. Retrospectively registered. First Posted: October 25, 2013. https://clinicaltrials.gov/ct2/show/NCT01969513

scholarly journals The Effectiveness of the Discrimination Model-Based Counseling Supervisory Program in Improving Crisis Counseling Skills among Family Reform Counselors in Jordan

2020 ◽  
Vol 14 (3) ◽  
pp. 481
Author(s):  
Rami A. Tashtoush
Keyword(s):  
Control Group ◽  
Counseling Skills ◽  
Crisis Counseling ◽  
Family Crisis ◽  
Discrimination Model ◽  
The Family ◽  
Group 15 ◽  
The Impact ◽  
Experimental Group

This study aimed to explore the effectiveness of a counseling supervisory program based on the discrimination model in improving crisis counseling skills for family reform counselors in Jordan. The sample of the study consisted of 30 female and male counselors, who were randomly assigned to two groups: the experimental group (15) male and female counselors received the supervisory program according to the discrimination model with 90-minute 18 weekly sessions over 9 weeks, whereas  the control group (15) female and male counselors did not receive the supervisory program. The  Family Crisis Skills  Scale which  consists  of 59 items was divided into three subscales: Family Crisis Counseling, Counseling Relation Skills, and Procedures of Intervention & Response to Crisis. It  was  used with the total sample in the pre-post-test, and in the follow-up test only with experimental group. The results of the study showed that there are statistically significant differences in the overall mean scores of  the  posttest and all sub-scales of the Family Crisis Skills Scale between the two study group, in favor of the experimental group. Also, the results showed that although the differences between the two groups  in the overall mean scores of the post-follow-up test and all sub-scales of the Family Crisis Skills Scale were not statistically significant, there was a positive gain of improvement for the experimental group. These findings suggest that the counselors in the experimental group retained the impact of the program, and provided  evidence that the impact of the program was efficient and sustainable.

scholarly journals STAYING ENGAGED: A TAILORED COMMUNITY PROGRAM FOR PEOPLE LIVING WITH DEMENTIA AND THEIR FAMILY CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S111-S111
Author(s):  
Gwen McGhan ◽  
Kimberly Shapkin ◽  
Whitney Alpaugh ◽  
Jessica Power Cyr
Keyword(s):  
Family Caregivers ◽  
Mixed Method ◽  
Exercise Physiology ◽  
Recreational Therapy ◽  
Daily Lives ◽  
Assessment Period ◽  
The Family ◽  
Mixed Method Design ◽  
The Impact

Abstract Tailored care strategies have potential to address declines in physical and cognitive functioning for people living with dementia (PLWD) while making a positive difference in their daily lives; however, these services are not commonplace. As dementia progresses, PLWD become more dependent upon caregivers, increasing caregiving strain and negatively affecting their ability to provide support. The purpose of this study is to examine the feasibility of a tailored community dementia program (TCDP) prescribed for individual abilities of PLWD and measure the impact on the caregiving dyad. A mixed method design was used for a 12-week TCDP with 8 dyads living in the community. Recreational therapy and exercise physiology specialists led the cognitive and physical components of the program. PLWD and caregivers completed assessments at baseline, 6, 12 and 18 weeks. Daily activity was measured in PLWD with no decline observed during the assessment period. Measurements for family caregivers included caregiver strain, satisfaction and assessment of the PLWD’s abilities. Although quantitative findings were not significant, caregivers praised the program in the follow-up focus group with one commenting that “it is important for the mental health of the family and for the patient to keep them active…and (for) socialization”. Another caregiver wrote in their journal “I feel he has really benefited from this program. It keeps him engaged with people and I do think he is more fit”. Overall the TCPD shows promise as a meaningful intervention. Cohort 2 begins in summer 2019 and will implement changes suggested by the caregiving dyads.

scholarly journals Effect of the Problem-solving on the Mental Well-being of Mothers With Autistic Children

2021 ◽  
Vol 11 (3) ◽  
pp. 203-212
Author(s):  
Keivan Kakabaraee ◽  
◽  
Maryam Seidy ◽  
Keyword(s):  
Problem Solving ◽  
Children With Autism ◽  
Well Being ◽  
Autism Spectrum ◽  
Autistic Children ◽  
The Family ◽  
Post Test ◽  
Mental Well Being ◽  
Family Centered

Background: The birth of an exceptional child in a family can decrease the mental well-being of family members. This study aimed to investigate the effect of the family-centered problem-solving intervention on the mental well-being of the mothers of children with autism spectrum disorder. Methods: This was a quasi-experimental research with a pre-test, post-test, follow-up design and a control group. The statistical population of the study included all the mothers of children with autism disorder in Kermanshah City. Using the purposeful sampling method, we selected 30 mothers of autistic children studying at a rehabilitation center and randomly assigned them into the two groups of experimental (n=15) and control (n=15). In this study, the Satisfaction With Life Scale (Diener et al., 1985) and the Positive and Negative Affect Schedule (Watson et al., 1988) were used to measure mental well-being. After collecting the pre-test data of the mothers in the experimental group, 10 2-hour sessions (for a month) of family-centered problem-solving programs were administered. Also, the post-test and follow-up phases were executed after the end of the sessions and a 1-month interval, respectively. Finally, the obtained data were analyzed considering the repeated measures design. Results: The results showed a significant difference between the pre-test and post-test scores in the variable studied. However, the post-test and follow-up scores did not significantly differ in the variable studied. Conclusion: The results of this study supported the effectiveness of family-centered problem-solving training intervention on mental well-being and its subscales. Therefore, the family-centered problem-solving training program is of great importance as a preventive program.

A Prospective Study of the Impact of Home Monitoring on the Family

PEDIATRICS ◽  
1984 ◽  
Vol 74 (3) ◽  
pp. 323-329
Author(s):  
Abby L. Wasserman
Keyword(s):  
Home Monitoring ◽  
Initial Contact ◽  
Semistructured Interviews ◽  
The Family ◽  
Motor Problems ◽  
Two Phases ◽  
A Prospective Study ◽  
The Impact ◽  
Speech Learning

Fourteen families whose infants required home monitoring for apnea were followed for approximately 5 years from the initial contact (1977). Each family received at least three psychiatric interviews and two follow-up contacts. Effects on the monitored infant, siblings, and parents were examined in open and semistructured interviews. At first follow-up (mean of 21 months after monitoring discontinuance), seven of 14 monitored children were characterized as spoiled by parents. By the second follow-up, 2½ years later, nine children showed speech, learning, and motor problems; five of these nine children had required resuscitation during their initial episode. Apnea severity was also related to both duration of monitoring and number of additional psychiatric interviews requested by parents or staff. Of 16 older siblings, 12 had psychological problems reported by their parents at first follow-up; these problems appeared to be largely resolved by the second follow-up, although three children were still having problems that caused parental concern. Monitoring, as well as the apnea itself, caused substantial distress manifested in depression, fatigue, and anxiety in many parents, particularly mothers. However, despite their considerable distress, none of the families discontinued monitoring prematurely. Results of the study indicated that the monitoring experience can be divided into four phases: doubt/acceptance, dependence/frustration, discontinuance, and late effects, with substantial differences in parents' responses occurring only in the last two phases.

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