Identifying and understanding how to address the gaps in care experienced by adolescent and young adult cancer patients at UIHC.

2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e18238-e18238
Author(s):  
Erin Michele Mobley ◽  
Kristin Foster ◽  
William W. Terry
Keyword(s):  
Focus Group ◽  
Focus Groups ◽  
Focus Group Discussion ◽  
Group Discussion ◽  
Survival Rates ◽  
Adolescent And Young Adult ◽  
Comprehensive Cancer Center ◽  
Cancer Center ◽  
Services Research ◽  
Survey Questions

e18238 Background: Cancer survival rates for adolescents and young adults (AYAs) have not improved at the same rate as other age groups. According to the National Cancer Institute, these patients may fall into a gap between pediatric and adult practices. In an effort to counteract the decreased survival rates of AYAs, the Stead Family Children’s Hospital and the Holden Comprehensive Cancer Center joined forces to develop an AYA cancer program at the University of Iowa Hospitals and Clinics. Methods: The target population included patients aged 13-31 treated for malignancy in one of the following diseases or disease sites: central nervous system, leukemia, lymphoma, neuroendocrine, sarcoma, thyroid, and other. Four focus groups were held to identify and describe gaps in care, as well as provide suggestions for program development. A convergent-parallel mixed-methods design was used. Qualitative data were derived from focus group discussion and selected free-response survey questions, while quantitative data were derived from objective survey questions. Both quantitative and qualitative analyses were conducted to gain targeted feedback from participants. Results: Across the four focus groups, the number of participants ranged from 8 – 19 (n = 24). Topics discussed included: communication, treatment experience, overall AYA program; finances, work, school, late effects; relationships, emotions, spirituality; and body image, infertility, sexuality, risky behavior, and suicide. The results of the analyses found three unique domains that are important to AYAs across the cancer continuum: autonomy, communication, and relationships. The three primary domains make the AYA population different from traditional adult or pediatric populations. The surveys corroborated the focus group discussion findings. Conclusions: Information obtained from these analyses have been used to inform specific projects within the development of the AYA program to address patient-identified gaps. For AYAs, the importance of autonomy, communication, and relationships should be considered when developing an AYA program, as well as for potential policy or health services research utilization in the future.

scholarly journals Validating The Düsseldorf Orthorexie Scale (DOS) For Use In Adolescents Aged 14–17

2020 ◽  
Vol 4 (Supplement_2) ◽  
pp. 217-217
Author(s):  
Elizabeth King ◽  
Heidi Wengreen ◽  
April Litchford ◽  
Caitlyn Bailey ◽  
Chante Beck ◽  
...  
Keyword(s):  
Focus Group ◽  
Focus Groups ◽  
Key Words ◽  
School Health ◽  
Group Discussion ◽  
Face Validity ◽  
Effective Prevention ◽  
Funding Sources ◽  
Survey Questions ◽  
Dos Scale

Abstract Objectives To determine the face validity of the survey instrument, Düsseldorf Orthorexie Scale (DOS), in adolescents aged 14–17 years. The DOS has been validated for use in adults to identify individuals at-risk for symptoms and behaviors consistent with the condition of Orthorexia Nervosa (ON). This condition is characterized by a pathological obsession with healthy or “clean” eating which leads to psychological and physical impairment. Methods Researchers conducted seven focus groups with male and female students currently enrolled in a high school health class (n = 40; 11 males, 29 females aged 14–17). Participants first completed the DOS scale and then were asked to participate in a group discussion regarding their understanding of the meaning of the questions in the DOS survey. Focus groups were audio recorded, transcribed, and coded to identify recurring themes. Codes for each of the 10 questions in the DOS scale were analyzed to determine group understanding of key words identified for each question. Results Key words in the original DOS survey questions were in agreement with the codes identified from the transcript of the focus groups for eight of the 10 DOS survey questions. The key words in the other two questions (indulgence in question one and colleague in question seven) were either not understood by focus group population or would need to be altered due to incorrect or inadequate understanding by focus group participants. 38 participants completed the DOS (M = 18.5, SD = 4.88). 7.9% of participants DOS responses indicated they were at moderate (n = 2) or high (n = 1) risk of practicing orthorexic behavior. Conclusions The DOS scale demonstrated good face validity in an adolescent population and the modification of two questions may improve its face validity. Though our sample was small, results indicate that a sizeable proportion of adolescents may already be practicing orthorexic behaviors. This demonstrates a need for further research to be conducted on effective prevention and intervention strategies for this age group. Funding Sources The author(s) received no financial support for the research, authorship, and/or publication of this article.

scholarly journals FOCUS GROUP DISCUSSION: A TOOL FOR QUALITATIVE INQUIRY

2018 ◽  
Vol 3 (3) ◽  
pp. 81-88
Author(s):  
Hom Bahadur Basnet
Keyword(s):  
Focus Group ◽  
Focus Groups ◽  
Focus Group Discussion ◽  
Group Discussion ◽  
Social Process ◽  
Qualitative Inquiry ◽  
Theory Building ◽  
Qualitative Information ◽  
Research Journal ◽  
Field Setting

This article focused on to explore the concept, use, strengths and weakness of focus groups discussion. It also provides the ideas about searching qualitative information in field setting. This tool has the potential to become a central approach in sociological and educational research, whether focused on the pragmatic end of evaluation or the abstract goal of theory building. Moreover, focus group discussion is an efficient and effective way to gain insights into social process. During focus group discussion, the moderator facilitates all informants in active participation and dig out the richer information.Researcher: A Research Journal of Culture and Society Vol. 3, No. 3, January 2018, Page: 81-88

scholarly journals MODEL EVALUASI LAYANAN AIR MINUM DI DKI JAKARTA

2016 ◽  
Vol 16 (2) ◽  
pp. 10-20
Author(s):  
Samadi Samadi ◽  
Suhardjo Suhardjo
Keyword(s):  
Focus Group ◽  
Focus Groups ◽  
Focus Group Discussion ◽  
Group Discussion

ABSTRAK Tujuan penelitian adalah mengkonstruksi model layanan air bersih (air minum) di DKI Jakarta khususnya untuk parameter kontinuitas pelayanan 24 jam. Metode penelitian menggunakan metode kualitatif. Populasi dan sampel penelitian terdiri dari masyarakat pelanggan air PAM di wilayah Timur Jakarta sebanyak 499 responden serta pihak pengelola (perusahaan) air bersih PT. AETRA. Sampel dipilih berdasarkan teknik purpossive sampling. Teknik pengumpulan data melalui wawancara langsung dengan bantuan panduan wawancara. Disamping itu, data primer juga diperoleh melalui proses FGD (focus groups discussion). Instrumen penelitian menggunakan panduan wawancara dan panduan umum diskusi untuk pelaksanaan Focus Group Discussion. Data terolah dianalisis melalui system dinamik. Hasil penelitian menunjukkan bahwa : (1) Faktor-faktor yang berpengaruh terhadap peningkatan kontinuitas layanan air minum di DKI Jakarta adalah jumlah penduduk, tarif air bersih, kapasitas terpasang, tingkat kehilangan air, dan kuantitas air baku. (2) Model dinamika kontinuitas layanan air minum di DKI Jakarta dapat disusun dari tiga aspek, yaitu aspek-aspek pelanggan, kapasitas pengolahan, danpasokan air. Faktor-faktor penduduk dan tarif dapat digolongkan kedalam sub model pelanggan. Faktor-faktor kapasitas terpasang dan tingkat kehilangan air dapat digolongkan kedalam sub model kapasitas pengolahan. Sementara faktor kuantitas air baku dapat digolongkan kedalam sub model pasokan air. Kata kunci : Model Evaluasi, Kontinuitas layanan air minum, DKI Jakarta.

scholarly journals Using Student Focus Groups to Support the Validation of Rubrics for Large Scale Undergraduate Independent Research Projects

2015 ◽  
Author(s):  
Lisa Romkey ◽  
Alan Chong ◽  
Lobna El Gammal
Keyword(s):  
Focus Group ◽  
Focus Groups ◽  
Focus Group Discussion ◽  
Large Scale ◽  
Group Discussion ◽  
Final Report ◽  
Research Projects ◽  
Independent Research ◽  
Student Focus

Finding methods of validating rubrics forsignificant “capstone” experiences, including fourth yeardesign projects and the research-oriented thesis, can bechallenging, given the large number of individualstypically involved in the assessment of studentdeliverables. This paper describes a methodology forusing student focus groups to support the validation of arubric for a fourth year thesis course in a largeEngineering Program, and the results from these focusgroups. Through focus group discussion and activitysheets used in the focus groups, a number of interestinginsights were raised about both the rubric, namely: a lackof consultation by the students with the rubric until thefinal stages of writing the final report; concerns andinconsistencies in the perception of how supervisors willuse the rubric; a perceived lack of focus on process andproject experience-related criteria and concerns with thelevel of expectation of the project experience-relatedcriteria that are present, and other concerns related toterminology and distance between rubric descriptors. Thefocus group provided a useful forum for discussion oncourse experience and assessment, effectively allowingstudents to both individually reflect, and build on eachother’s ideas and suggestions.

KARAKTERISTIK SOSIAL EKONOMI DAN KEBIJAKAN MITIGASI KONFLIK MANUSIA-GAJAH DI RESORT BESITANG, TAMAN NASIONAL GUNUNG LEUSER (SOCIAL-ECONOMIC CHARACTERISTICS AND POLICY FOR MITIGATION HUMAN-ELEPHANT CONFLICT AT BESITANG RESORT OF GUNUNG LEUSER NATIONAL P

Inovasi ◽  
2018 ◽  
Vol 15 (2) ◽  
pp. 153-162 ◽  
Author(s):  
Wanda Kuswanda
Keyword(s):  
Focus Group ◽  
Focus Group Discussion ◽  
Social Economic ◽  
Group Discussion ◽  
Response Unit

Salah satu habitat gajah yang masih tersisa adalah Kawasan Taman Nasional Gunung Leuser (TNGL), terutama di wilayah Besitang. Penelitian ini bertujuan mengidentifikasi karakteristik sosial ekonomi, kepemilikan lahan, pemetaan wilayah dan mitigasi konflik manusia dengan gajah di Resort Besitang, TNGL. Metode pengumpulan data dilakukan dengan penyebaran kuesioner, wawancara dan Focus Group Discussion (FGD). Analisis data menggunakan tabel frekuensi dan analisa deskriptif. Hasil penelitian menunjukkan bahwa wilayah yang memiliki potensi konflik gajah di Resort Besitang adalah Daerah Halaban, Aras Senapal, Sekundur, Bukit Selamat dan Bukit Mas dengan intensitas konflik rendah sampai tinggi. Penyebab utama konflik manusia dengan gajah adalah fragmentasi kawasan hutan,  ketidakpastian status lahan di daerah penyangga, pertumbuhan penduduk yang tinggi dan meningkatnya pendatang di wilayah Besitang, perambahan dan ilegal logging yang terus terjadi, minimnya kesadaran masyarakat dan peranan lembaga desa dalam mendukung konservasi gajah. Rekomendasi resolusi mitigasi konflik gajah diantaranya: 1) memperbaiki habitat gajah yang sudah terfragmentasi di dalam kawasan TNGL; 2) meningkatkan peran Tim CRU (Conservation Response Unit); 3) membentuk unit reaksi cepat penanganan konflik gajah dengan melibatkan para pihak; 4) menanam jenis tanaman yang tidak disukai dan dijauhi oleh gajah; 5) mereduksi ketergantungan masyarakat akan sistem pertanian yang membutuhkan lahan yang luas; 6) mengembangkan program untuk membantu peningkatan hasil panen; dan,  7) penyuluhan untuk meningkatkan pemahaman bahwa gajah merupakan bagian dari ekosistem yang harus lestari.   Kata kunci: gajah, konflik, habitat, Besitang, Taman Nasional Gunung Leuser

Komunikasi Pembangunan di Era Digital melalui e-Government dalam Pelayanan Publik dan Pemberdayaan

2019 ◽  
Vol 1 (1) ◽  
pp. 14-21
Author(s):  
Rili Windiasih
Keyword(s):  
Civil Society ◽  
Focus Group ◽  
Focus Group Discussion ◽  
Group Discussion

Perkembangan Teknologi informasi dan komunikasi di era globalisasi, demokratisasi dan desentralisasi sudah menjadi kebutuhan sekaligus tantangan khususnya bagi pemerintah daerah dalam komunikasi pembangunan untuk pelayanan publik dan pemberdayaan masyarakat. Penelitian menggunakan metode kualitatif studi kasus, dengan pengumpulan data melalui dokumentasi, wawancara, pengamatan dan Focus Group Discussion (FGD). Subjek penelitian dipilih secara purposif yaitu pemerintah daerah di Eks-KaresidenanBanyumas Jawa Tengah, akademisi dan civil society. Penelitian dianalisis dengan analisis interaktif melalui reduksi data, penyajian data, penarikan kesimpuan dan verifikasi data. Hasil penelitian menunjukkan bahwa (1) Pentingnya komunikasi pembangunan dengan media teknologi informasi dan komunikasi melalui e-Government untuk meningkatkan pelayanan publik yang baik, cepat dan responsif, adanya partisipasi aktif dari publik dan transparansi baik anggaran serta program pembangunan. (2) Perlunya mengantisipasi adanya kesenjangan teknologi informasisehingga membutuhkan peningkatan kompetensi sumber daya manusia di pemerintahan daerah dan publik, serta memperluas fasilitas akses jaringan informasi.Kata kunci: komunikasi pembangunan, pelayanan publik, partisipasi, teknologi informasi, transparansi 

TINGKAT KEAKURATAN DAN KEBERTERIMAAN TERJEMAHAN KALIMAT YANG MENGAKOMODASI TINDAK TUTUR KOMISIF PADA NOVEL INSURGENT (THE ACCURACY AND ACCEPTABILITY OF TRANSLATION ON THE SENTENCES WHICH ACCOMODATE COMMISSIVE SPEECH ACT IN THE INSURGENT NOVEL)

Widyaparwa ◽  
2017 ◽  
Vol 45 (2) ◽  
pp. 151-164
Author(s):  
Novita Sumarlin Putri
Keyword(s):  
Focus Group ◽  
Focus Group Discussion ◽  
Speech Act ◽  
Group Discussion ◽  
Document Analysis ◽  
High Accuracy ◽  
Pragmatic Approach ◽  
Componential Analysis ◽  
Pragmatic Aspects

Tindak tutur komisif merupakan salah satu aspek pragmatik yang harus diperhatikan oleh penerjemah ketika menerjemahkan teks. Hal itu dilakukan agar menghasilkan terjemahan yang berkualitas dari aspek keakuratan dan keberterimaan. Berdasarkan alasan tersebut, penelitian ini bertujuan mendiskripsikan tingkat keakuratan dan keberterimaan terjemahan kalimat yang mengakomodasi tindak tutur komisif dengan pendekatan pragmatik. Data yang digunakan ialah tuturan komisif dan hasil penilaian kualitas terjemahan. Data bersumber dari novel Insurgent karya Veronica Roth dan informan. Data dikumpulkan dengan cara analisis dokumen, kuesioner dan Focus Group Discussion. Selanjutnya, data dianalisis dengan cara analisis domain, taksonomi, komponensial, dan tema budaya. Hasil penelitian ini menunjukkan bahwa terjemahan dalam novel Insurgent mempunyai nilai keakuratan dan keberterimaan yang cukup tinggi. Berdasarkan penelitian ini, dapat disimpulkan bahwa tingkat keakuratan dan keberterimaan pada setiap jenis tindak tutur komisif memiliki dampak terhadap kualitas keseluruhan terjemahan kalimat yang mengandung tindak tutur komisif.Commissive speech act is one of the pragmatic aspects to regard by the translator in translating the text. It aims to produce a qualified translation in regarding accuracy and acceptability aspects. According to the aspects, this research aims to describe accuracy and acceptability of translation in sentences which accommodate commissive speech act using pragmatic approach. The data used is commissive speech and qualitative translation value result. The sources of the data are an Insurgent novel by Veronica Roth and informants. The data were collected through document analysis, questionnaire, and Focus Group Discussion then analyzed the domain, taxonomic, componential analysis, and cultural theme. The result shows that translation in the Insurgent novel has high accuracy and acceptability values. This research concludes that the accuracy and acceptability level in each commissive speech act has an impact on quality of whole translated sentences which contain commissive speech act.

Kesiapan Dosen Dalam Pelaksanaan Uji Objective Structured Clinical Examination (Osce) Program Studi D3 Keperawatan

2018 ◽  
Vol 16 (1) ◽  
pp. 53
Author(s):  
Bejo Danang Saputra
Keyword(s):  
Focus Group ◽  
Focus Group Discussion ◽  
Clinical Examination ◽  
Comparative Method ◽  
Group Discussion ◽  
Objective Structured Clinical Examination ◽  
Constant Comparative Method ◽  
Constant Comparative

Perencanaan pengembangan uji kompetensi perawat Indonesia akan dikembangkan  dengan metode OSCE.. Pelaksanaan uji OSCE membutuhkan persiapan yang matang, terutama kesiapan sumber daya manusia (SDM) dalam hal ini adalah dosen untuk melaksanakan uji OSCE. Mengetahui kesiapan SDM dalam pengembangan uji OSCE di Prodi D3 Keperawatan Sekolah Tinggi Ilmu Kesehatan (STIKES) Al-Irsyad Al-Islamiyyah Cilacap. Desain penelitian yang digunakan adalah kualitatif dengan rancangan studi kasus. Informan penelitian adalah 6 orang dosen dan Kepala Program Studi D3 keperawatan. Data diperoleh melalui, focus group discussion, wawancara mendalam dan studi dokumentasi. Data kemudian dianalisis dengan menggunakan constant comparative method. Penelitian menunjukan bahwa pengetahuan dosen tentang OSCE dan kompetensi berdasarkan pendidikan memenuhi persyaratan untuk pengembangan uji OSCE, namun masih membutuhkan pelatihan mengenai OSCE. Uji OSCE dapat diselenggarakan dengan melibatkan dosen dari prodi lain karena jumlah dosen di Prodi D3 Keperawatan  STIKES Al-Irsyad Al-Islamiyyah Cilacap belum memenuhi kebutuhan pelaksanaan uji OSCE. Hambatan penyelenggaraan OSCE adalah SDM belum terkoordinasi, belum terlatih dan keterbatasan sarana pendukun. Pengetahuan dan kompetensi dosen berdasarkan tingkat pendidikan memenuhi syarat dalam pengembangan OSCE dan OSCE dapat diselenggarakan dengan melibatkan dosen prodi lain.

Social Media Literacy For Housewives In Kanoman Maguwoharjo Village, Sleman, Yogyakarta

2020 ◽  
Author(s):  
Dewi Novianti ◽  
Siti Fatonah
Keyword(s):  
Social Media ◽  
Focus Group ◽  
Data Collection ◽  
Focus Group Discussion ◽  
Media Literacy ◽  
Participant Observation ◽  
Group Discussion ◽  
Qualitative Approach ◽  
Research Subjects

Social media is a necessity for everyone in communicating and exchanging information. Social media users do not know the boundaries of age, generation, gender, ethnicity, and religion. However, what is interesting is the user among housewives. This study took the research subjects of housewives. Housewives are chosen as research subjects because they are pillars or pillars in a household. If the pillar is strong, then the household will also be healthy. Thus, if we want to build a resilient and robust generation, we will start from the housewives. A healthy household starts from strong mothers too. This study aims to find out the insights of the housewives of Kanoman village regarding the content on smartphones and social media and provide knowledge of social media literacy to housewives. This study used a qualitative approach with data collection techniques using participant observation, interviews, focus group discussion (FGD), and documentation. The results of the study showed that previously housewives had not experienced social media literacy. Then the researchers took steps to be able to achieve the desired literacy results. Researchers took several steps to make them become social media literates. They become able to use social media, understand social media, and even produce messages through social media.

KETAHANAN SOSIAL DALAM MENGHADAPI PERUBAHAN SOSIAL KOMUNITAS ADAT KAMPUNG PULO DI KABUPATEN GARUT

2018 ◽  
Vol 16 (2) ◽  
Author(s):  
Theresia Martina Marwanti
Keyword(s):  
Focus Group ◽  
Focus Group Discussion ◽  
Group Discussion

Abstrak Tujuan penelitian ini untuk memperoleh gambaran ketahanan sosial dalam menghadapi perubahan sosial pada komunitas adat Kampung Pulo, yang meliputi profil komunitas, perlindungan sosial, partisipasi komunitas dan penyelesaian konflik terkait dengan perubahan sosial. Metode penelitian menggunakan penelitian kualitatif dengan pendekatan deskriptif. Teknik pengumpulan data melalui wawancara mendalam, observasi, studi dokumentasi dan focus group discussion (FGD). Penentuan sumber data ada 6 informan dilakukan secara purposive. Pemeriksaan keabsahan data, melalui uji kredibilitas dan uji konfirmabilitas. Teknik analisis data yang digunakan yaitu dengan reduksi data, kategorisasi dan penyajian data. Hasil penelitian menunjukkan perlindungan sosial warga komunitas ini  bersifat tradisional maupun kontemporer. Dalam hal partisipasi, hampir semua warga masyarakat adat ikut berpartisipasi aktif dalam menghadapi perubahan sosial. Konflik yang terjadi diantara warga komunitas adat dalam menghadapi perubahan masih ditemukan, namun tidak sampai ke permukaan dan tidak menimbulkan gejolak. Secara umum komunitas adat Kampung Pulo, memiliki ketahanan sosial yang sudah baik, sehingga mampu menjadi benteng pengamanan bagi perubahan sosial dalam kehidupannya. Kata kunci: ketahanan sosial, komunitas adat, perubahan sosial

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