Using validated assessment tools in stoma care: a case study of an ileostomate with an inward body profile

2021 ◽  
Vol 19 (2) ◽  
pp. 20-27
Author(s):  
Paul Russell-Roberts ◽  
Diane Kay

The impact of having a stoma on an individual's quality of life (QoL) can be significantly worsened by leakage and consequent peristomal skin complications. Therefore, ostomates require individualised, person-centred and evidence-based care. Stoma care nurses can facilitate this using stoma-specific validated assessment tools, including the Body Profile Assessment Tool, Stoma Quality of Life Tool, Ostomy Skin Tool and Ostomy Leakage Impact Tool. These provide precise, repeatable quantitative data, which avoids reliance on vague language and allows for baseline comparisons to measure progression. This case study describes a female ileostomate who faced a number of stoma-related complications, including body image and confidence. Initial trial-and-error attempts to find an effective combination of products were fragmentary and failed to provide an effective long-term solution. During the COVID-19 pandemic, the patient underwent a remote telephone consultation, aided by digital photography. The stoma care nurse used validated assessment tools to determine the patient's needs. Based on this, she was recommended a new pouching routine suited to her inward body profile, and her progress was measured using the assessment tools. These showed sustained and considerable improvements in peristomal skin health, mental wellbeing and overall QoL. The patient's prescription costs were also dramatically reduced.

Author(s):  
Elena A. Beigel ◽  
Natalya G. Kuptsova ◽  
Elena V. Katamanova ◽  
Oksana V. Ushakova ◽  
Oleg L. Lakhman

Introduction. Occupational chronic obstructive pulmonary disease (COPD) is one of the leading nosological forms of occupational respiratory disease. Numerous studies have shown high effectiveness of the combination of indacaterol/glycopyrronium (Ultibro®breezhaler®) on the impact on clinical and functional indicators in the treatment of COPD in General practice.The aim of the investigation the case of occupational COPD with the analysis of the dynamics of functional indicators, tolerance to physical load and evaluation of the quality of life of workers engaged in aluminum production by using combination of indacaterol/glycopyrronium.Materials and methods. The random sampling method included 20 men, workers of aluminum production, with the established diagnosis of professional COPD at the age of 40 to 60 years. The survey was conducted (Borg scale, medical Research Council scale (mMRC) and COPD Assessment Test (CAT). Functional methods of studies were conducted: spirometry, body plethysmography, electrocardiography (ECG) and the six-minute stepper test (6-MST).Results. Against the background of 8 weeks of therapy, the volume of forced exhalation for 1 minute (FEV1) increased by 14.7% and amounted to 67.90% of the due values, the forced vital capacity of the lungs (FVC) increased by 11.3% and amounted to 76.95% of the due. According to the body plethysmography (BPG) is set to decrease in residual lung volume on average by 13.4% and static hyperinflation, confirmed by the decrease in functional residual volume (FRV) of 18.8%. During the study period increased physical activity of patients. The average difference between the distance traveled in the six-minute step test before and after treatment was 58.8 m. The analysis of personal data showed that the quality of life of patients improved, the total score in the questionnaire CAT at the beginning of the study was 16.9 points, and after 8 weeks decreased by 63% and amounted to 10.7 points.Conclusions: The Results indicate a positive effect of combination therapy with indacaterol/glycopyrronium on the course and progression of occupational COPD.


2003 ◽  
Vol 14 (04) ◽  
pp. 181-187 ◽  
Author(s):  
Christopher D. Bauch ◽  
Susan G. Lynn ◽  
Donald E. Williams ◽  
Michael W. Mellon ◽  
Amy L. Weaver

The impact of tinnitus and overall levels of distress were measured with three assessment tools for patients with tinnitus. The Tinnitus Handicap Inventory (THI), the Symptom Checklist-90-Revised (SCL-90-R) and an activities limitations questionnaire were administered to 53 audiology patients reporting tinnitus. Forty-three percent of these patients experienced either quality of life reductions associated with tinnitus, substantial perceived handicap, and/or a high level of distress. Results from the General Severity Index (GSI) of the SCL-90-R indicated that 25% of these patients displayed distress greater than that of the general medical population. The SCL-90-R can be a useful tool for audiologists working with tinnitus patients in assessing needs for referral for psychological or psychiatric counseling.


2021 ◽  
Vol 7 (1) ◽  
pp. 25
Author(s):  
Patricia Concheiro-Moscoso ◽  
Betania Groba ◽  
Sílvia Monteiro-Fonseca ◽  
Nereida Canosa ◽  
Cristina Queirós

(1) Background: Stress is a major public health problem due to its relevant health, social and economic repercussions. Moreover, stress can be associated with work; when stress increases over time, burnout can occur, an occupational phenomenon recognized by the WHO in 2019. There is interest in the use of wearable devices to monitor and control stressors and their influence on the condition of workers. This study aims to identify the level of job stress and its influence on the quality of life of workers. (2) Methods:This longitudinal study was carried out between the end of May and mid-July 2021. Three assessment tools along with a daily and a weekly questionnaire were computerized through the RedCap platform. The participants had to fill out the diary and weekly questionnaires and wear a Xiaomi Mi Band 5 during the project. (3) Results and discussion: Thirty-six workers from the University of Coruña and from the University of Porto participated in the project. This study promotes the awareness of workers regarding their work stress and the influence of this factor on their quality of life using physiological (e.g., activity, sleep, and heart rate) and psychological indicators (self-report questionnaires in different moments).


2021 ◽  
Vol 7 ◽  
Author(s):  
Jamal Al-Qawasmi ◽  
Muhammad Saeed ◽  
Omar S. Asfour ◽  
Adel S. Aldosary

Urban quality of life (QOL) is a complex and multidimensional concept. A wide range of urban QOL assessment tools has been developed worldwide to measure and monitor the quality of urban life taking into account the particular conditions of cities/regions and the needs of their residents. This study aims to develop an urban QOL assessment tool appropriate for the context of Saudi Arabia (SA). For this purpose, this study developed and used a structured approach that consists of an in-depth analysis of 21 urban QOL assessment tools in use worldwide, combined with focus group analysis and feedback from a panel of experts. The results revealed that there is a lack of consensus among the existing tools regarding the usage of QOL indicators and domains, and that the majority of the tools demonstrate a lack of proper coverage of QOL subdomains. The results also show wide variations in the number of indicators used and that most of the examined tools are using objective measurable indicators. This study has identified 67 indicators distributed across 13 domains that constitute the core criteria of the proposed QOL assessment tool. The selected indicators and domains cover all the attributes of urban QOL and are evaluated by experts as important criteria to assess/measure QOL. Moreover, the results demonstrate the advantage of the developed framework and comprehensive list of criteria (CLC) as a structured and efficient approach to design better QOL assessment tools.


Author(s):  
Raluca-Mariana Popa

The objective of the following research is the investigation of the impact that management of dysphagia has upon quality of life in persons with neurological pathology of vascular cerebreal attack type. The group of participants in this study has 6 members with ages between 34 and 69, all suffering from a neurological pathology of VCA type or cranio-cerebreal trauma with direct implications on the swallowing process. This paper used case study methode as experimental design, the goal being to detect the impact that speach therapy has on the dysphagia, in the context of safety and quality of life. A series of instruments regarding clinical evaluation of dysphagia and quality of life in the context of VCA and dysphagia where been translated and adapted in the fallowing research.


2020 ◽  
Vol 90 (19-20) ◽  
pp. 2304-2321
Author(s):  
Olivia Ho-Yi Fung ◽  
Joanne Yip ◽  
Mei-Chun Cheung ◽  
Kit-Lun Yick ◽  
Kenny Yat-Hong Kwan ◽  
...  

Bracing is the most common non-operative treatment option for patients with adolescent idiopathic scoliosis (AIS). However, existing brace designs have deficiencies, including a long production lead time and low patient compliance caused by the negative impacts of bracing on quality of life (QoL). The aim of this study was to address these problems by developing a new textile-based scoliosis brace in accordance with the biomechanics used in the existing braces for spinal correction. A case study of interface pressure had been carried out to determine the optimum combination of pads to be used in the proposed brace to correct a scoliotic spine. AIS patients who were undergoing hard brace treatment were recruited to complete a questionnaire (BrQ) on hard braces and on the proposed brace. The BrQ scores of the two types of braces were compared to assess their respective impacts on the QoL. The findings show that the proposed brace can address the issue of patient compliance by reducing the impact of bracing on QoL, and shorten the production lead time through incorporation of the mass customization concept into the design. Similar to most of the commonly-used scoliosis braces, the selected combination of pads used in the proposed brace for spinal correction shows a sufficient amount of exerted pressure and a similar function of active spinal correction.


2020 ◽  
Vol 2020 ◽  
pp. 1-5
Author(s):  
Fandresena Arilala Sendrasoa ◽  
Naina Harinjara Razanakoto ◽  
Volatantely Ratovonjanahary ◽  
Onivola Raharolahy ◽  
Irina Mamisoa Ranaivo ◽  
...  

Background. Psoriasis is a chronic, inflammatory, and multifactorial dermatosis that impairs quality of life (QoL). Health-related QoL has become an important element in medical decision-making along with the effectiveness and the harmlessness of the treatments. Objective. To assess the impact of psoriasis in the QoL of patients with psoriasis by using the DLQI scales. Methods. A cross-sectional study from January to June 2018 was conducted in the Department of Dermatology of the University Hospital Joseph Raseta Befelatanana, Antananarivo, Madagascar, including patients more than 18 years old with mild to severe psoriasis. The severity of psoriasis was assessed using the “Psoriasis Area and Severity Index (PASI)”. QoL of patients with psoriasis was evaluated by using the DLQI scales. Results. 80 patients were included, their mean age was 36.5 years, and the male to female was 1.5 : 1. The mean DLQI score was 13.8. Symptoms, feelings, and psychic were the most altered dimensions. QoL was impaired in young patients, single, having medium level education. Even though patients with disease duration more than 5 years had higher DLQI score than other patients, the difference was not statistically significant (p=0.36). Furthermore, the clinical presentation of psoriasis did not influence the patient’s QoL (p=0.73). Patients with nail involvement had QoL impaired but the difference with another localization was not statistically significant (p=0.2). The quality of life was influenced by body area involved. The higher the body surface area involved, the more QoL is impaired (p=0.002). Furthermore, the higher the PASI, the more QoL is altered (p=0.002). Conclusion. Psoriasis has a negative impact in the quality of life in Malagasy patients with psoriasis, especially in younger and single patients. Worse quality of life is correlated to severity of psoriasis.


2020 ◽  
Vol 16 (6) ◽  
pp. 252-253
Author(s):  
Mark Greener

Narcolepsy can profoundly affect a patient's quality of life, including their mental wellbeing, social life, work and study. Mark Greener briefly summarises some recent papers that offer new insights into the causes of narcolepsy, the overlap with depression and other comorbidities, and the impact on patients.


2015 ◽  
Vol 3 (1) ◽  
Author(s):  
Bhavna Mukund ◽  
Rejani Thudalikunil Gopalan

Background: People living with HIV/AIDS (PLWHA) manifest a wide range of stress responses ranging from disbelief, denial, fear to extreme conditions of anxiety disorders, depression and even suicidal thoughts. These complications can have a significant impact on daily functioning and greatly diminish quality of life. Mental wellbeing and Quality of Life can help in better management of stress and facilitate adaptive coping among PLWHA. Aim: The research examined the impact of mental wellbeing and Quality of Life on Depression, Anxiety and Stress among people living with HIV/AIDS infection. Research Design: Cross sectional survey design was used. Sample: A sample of 60 people (males and females of equal number) over the age of 18 years and with the diagnosis for HIV/AIDS for more than six months participated in the study. Tools used: To assess the depression, anxiety and stress among PLWHA, DASS scale was used and to assess their psychological wellbeing, Warwick Edinburgh Mental Well-Being scale was used. In order to assess their present status of QOL regarding the illness, WHO’s QOL HIV-BREF Scale was used. Results: Majority of the PLWHA had moderate level of anxiety and mild level of depression after being diagnosed. Most of the participants have positive mental well-being and had enhanced quality of life. Conclusion: A direct effect of mental wellbeing has been found on the depression, anxiety and stress among PLWHA indicating that higher the mental wellbeing of the PLWHA, the greater is the likelihood that they do not suffer from depression, exhibit less anxiety and are living a stress free life and vice versa. The study also found direct impact of QOL on psychological distress, depression and anxiety among PLWHA i.e. poor QOL of PLWHA makes them more prone to and vulnerable to stress, depression and anxiety and vice versa.


2017 ◽  
Vol 15 (3) ◽  
pp. 215 ◽  
Author(s):  
Rafael Pino Vitti ◽  
Adriano Relvas Barreira de Oliveira ◽  
Mário Alexandre Coelho Sinhoreti ◽  
Lawal Folake Barakat ◽  
Ifesanya Joy Ucheonye

Aim: To validate and determine the applicability of OHIP-14 in assessing the impact of unmet dental treatment needs on the quality of life of adolescents in a rural community. Methods: The OHIP-14 questionnaire and the Aesthetic component (AC) of Index of Orthodontic Treatment Need (IOTN) were data collection instruments in a cross sectional survey among students in a rural community. The reliability and validity of the OHIP-14 as well as the association between it and dental treatment needs including malocclusion was assessed. Data obtained was analyzed using Mann Whitney U Test. Results: The mean age of participants was 14.9 (±1.6) years. The OHIP-14 had acceptable Cronbach alpha value of 0.8. It could discriminate between respondents with or without dental treatment needs due to caries and dental trauma (p <0.001). The OHIP-14 did not differentiate between respondents with or without orthodontic treatment need (p= 0.808). However, significant association existed between being irritable with people and unmet orthodontic treatment needs (p= 0.032). Conclusion: The OHIP-14 is a valid and reliable quality of life assessment tool in young adolescents in this rural community. However, only the social disability domain componente discriminated significantly between those with or without orthodontic treatment needs.


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