scholarly journals Coping and Psychological Health of Aging Parents of Adult Children With Developmental Disabilities

Author(s):  
Vivian E. Piazza ◽  
Frank J. Floyd ◽  
Marsha R. Mailick ◽  
Jan S. Greenberg

Abstract Among aging parents (mean age  =  65, N  =  139) of adults with developmental disabilities, we examined the effectiveness of multiple forms of coping with caregiver burden. As expected, accommodative strategies of adapting to stress (secondary engagement), used frequently in later life, buffered the impact of caregiver burden, whereas disengagement and distraction strategies exacerbated the effects of burden on depression symptoms. Most effects were similar for mothers and fathers, and all coping strategies, including active strategies to reduce stress (primary engagement), had greater effects for the parents with co-resident children. Vulnerability to caregiver burden was greatest when the aging parents with co-resident children used disengagement and distraction coping, but those who used engagement coping were resilient.

2020 ◽  
pp. 002076402097131
Author(s):  
Heloísa Monteiro Amaral-Prado ◽  
Filipy Borghi ◽  
Tânia Maron Vichi Freire Mello ◽  
Dora Maria Grassi-Kassisse

Background: The current situation due COVID-19 may cause an eminent impact on mental health because the confinement restrictions. Aims: The aim of this study was to analyze and compare perceived stress, resilience, depression symptoms and coping strategies on the members of University of Campinas, in Brazil, before and during the outbreak of the COVID-19. Methods: Volunteers over 18 years of both sexes, members of the University of Campinas (Unicamp) in Brazil answered instruments related to perceived stress, depression, resilience and coping strategies during final exams at the end of semester during 2018 to 2020. Results: We obtained 1,135 responses (893 before COVID-19 and 242 during COVID-19). The volunteers did not show significant differences for perceived stress, depressive signs and resilience before and during the pandemic. In both periods, men exhibited lower scores for perceived stress and depression and higher scores for resilience when compared to women. Undergraduate and graduate students exhibited higher perceived stress scores, more pronounced depressive signs and lower resilience, and employees and professors presented lower scores for perceived stress, depressive signs and greater resilience. Conclusions: These first months of confinement did not directly affect the scores of perceived stress, depression and resilience, however, each subgroup adapted to the new routine by changing the coping strategy used. This study suggests the importance of monitoring the mental health of member in the university, especially in times of epidemic, in the search for policies that aim to improve the resilience of the population and seek positive and effective coping strategies within the university environment.


2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 278-278
Author(s):  
C. Clark ◽  
M. Smuk ◽  
D. Lain ◽  
S. Stansfeld ◽  
M. van der Horst ◽  
...  

2015 ◽  
Vol 17 (6) ◽  
pp. 253-260 ◽  
Author(s):  
Tamara McKenzie ◽  
Mary Elizabeth Quig ◽  
Tuula Tyry ◽  
Ruth Ann Marrie ◽  
Gary Cutter ◽  
...  

Background: Caring for someone with multiple sclerosis (MS) can be a stressful experience that requires clinical attention. We investigated the impact of caregiver stress on the emotional well-being and physical health of the MS care partner using the North American Research Committee on Multiple Sclerosis (NARCOMS) Registry. Methods: Care partners of NARCOMS participants were invited to complete an online questionnaire that captured demographic characteristics, health status, caregiver burden as measured by the Zarit Caregiver Burden Interview, and impact of caregiving on employment. Results: Of 1446 care partners who agreed to participate, 1333 had complete data. Most were men (n = 825, 61.9%), with a mean (SD) age of 51.1 (11.2) years. The mean (SD) Zarit total score was 24.6 (15.1), placing the overall group in the mild caregiver burden range. Compared with male care partners, female care partners reported higher levels of burden and stress and more medication use for stress/anxiety and mood disorders. Male care partners were more likely to report physical concerns. Care partners of people with primary progressive MS reported greater perceived burden than did partners of people with secondary progressive MS and relapsing-remitting MS. More than 40% of care partners (559 of 1288) had missed work during the past year owing to caregiving responsibilities. Conclusions: Care partners of people with MS have substantial physical and psychological health concerns and experience an adverse impact on employment. Future research should evaluate how to mitigate the adverse effects of caregiving and evaluate positive aspects of the role.


BJPsych Open ◽  
2018 ◽  
Vol 4 (5) ◽  
pp. 332-338 ◽  
Author(s):  
Natasha Mitter ◽  
Afia Ali ◽  
Katrina Scior

BackgroundThere is a lack of good-quality instruments measuring stigma experienced by family members of stigmatised people.AimsTo develop a self-report measure of stigma among families of people with intellectual and developmental disabilities and examine associations between family stigma and other variables.MethodThe new Family Stigma Instrument (FAMSI) was tested with 407 family carers, 53% of whose offspring had an autism spectrum disorder in addition to intellectual disability. They also completed measures of subjective well-being, caregiver burden, self-esteem and social support.ResultsThe FAMSI yielded a five-factor structure and had good reliability. Perceived family stigma, caregiver burden and subjective well-being were the strongest predictors of family stigma.ConclusionsThis instrument can advance our understanding of the impact of stigma on family members. It can also help us understand sociodemographic, psychosocial and contextual variables of both the carer and cared for person that may influence family members' experiences.Declaration of interestNone.


2022 ◽  
Author(s):  
Rebecca Ann Charlton ◽  
Goldie McQuaid ◽  
Lauren Bishop ◽  
Gregory Wallace

Cardiovascular risk factors (CVRF) increase during later-life and are associated with depression symptoms and difficulties with executive function among non-autistic older people. Few studies have examined CVRF among autistic people. Using data from the Simons Foundation Powering Autism Research for Knowledge research match, this study examined the frequency of CVRF and associations between CVRF, depression symptoms and executive function in 387 middle-aged and older autistic people (aged 40-83 years). Individuals provided demographic and health information to assess the number of CVRF (presence of hypertension, high cholesterol, diabetes, obesity). Participants also self-reported their depression symptoms and executive functions in the domains of inhibitory control and emotional regulation. CVRF were common among autistic middle-aged and older people, with 28.9% reporting two and 23.2% reporting three or more CVRF. Regression analyses explored the variables associated with depression symptoms. After accounting for the effects of age and sex assigned at birth, CVRF contributed a small but significant amount to the model. A regression model examined the impact of executive function. Emotional regulation (but not inhibitory control), CVRF and age were significantly associated with depression symptoms in middle-aged and older autistic people. In conclusion, CVRF was significantly associated with depression symptoms, and depression symptoms, in turn, were primarily associated with emotional regulation. CVRF occur at high rates in middle-aged and older autistic people but may not be as important a mechanism for depression symptoms as among non-autistic older people.


2014 ◽  
Vol 43 (5) ◽  
pp. 513-525 ◽  
Author(s):  
Ana Cristina Wesner ◽  
Juliana Braga Gomes ◽  
Tatiana Detzel ◽  
Luciano S. P. Guimarães ◽  
Elizeth Heldt

Background:Panic disorder (PD) has a chronic nature, especially as a result of maladaptive coping strategies to deal with stressful events.Aims:To evaluate the impact of booster sessions with cognitive techniques on coping strategies, resilience, and quality of life (QoL) in patients previously submitted to standard cognitive-behavioural group therapy (CBGT) for PD.Method:A controlled clinical trial with 44 patients with PD (intervention = 20; control = 24) who had previously completed a 12-week CBGT protocol. PD, anxiety, and depression severity symptoms were assessed at baseline and 1, 6, and 12 months after the booster sessions. Coping strategies, resilience, and QoL were assessed by Coping Strategies Inventory (CSI), Resilience Scale, and WHOQOL-BREF respectively.Results:Over time, a significant improvement in PD and depression symptoms was observed in both groups. A significant increase in the QoL social relations domain was found in the booster group, considering a time/group interaction. Coping and other QoL domains did not change after the booster sessions. Changes in resilience were dependent on the intensity of symptoms, with negative but non-significant correlations.Conclusions:The improvement in PD and depression symptoms for both groups may be a result of the group format of the intervention. Group booster sessions after CBGT are useful to maintain the benefits obtained with CBGT.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 324-325
Author(s):  
Eun Young Choi ◽  
Yujin Franco ◽  
Elizabeth Zelinski

Abstract Individuals with negative attitudes towards own aging (ATOA) experience worse psychological health in later life. At the intersection of sexism and ageism, women are likely to have greater concerns about growing older and hold more negative views of aging than their men counterparts. However, the impact of gender on the relationship between ATOA and psychological health is unclear. Moving forward, the current study aims to examine 1) gender differences in longitudinal changes in ATOA and 2) whether gender moderates the association of ATOA with cognitive function and depressive symptoms. Using three waves (2008, 2012, and 2016) from the Health and Retirement Study, a total of 6,675 adults aged 50+ (60% female) were analyzed. A series of multilevel growth curve analyses were performed to investigate the 8-year changes in ATOA and within- and between-person effects of ATOA on cognitive function and depressive symptoms. The models controlled for demographic, socio-economic, and physical health characteristics. Women had more negative ATOA at baseline compared to men, but not in rates of change. When levels of ATOA were more negative, both cognitive performance and depressive symptoms were poorer over time between individuals as well as within-person. We found that the detrimental effects of negative ATOA on depressive symptoms were stronger for women, but there were no significant gender differences in relation to cognitive functioning. Our findings demonstrated that women view aging more unfavorably than men, and the effects of endorsing negative ATOA are more pronounced on women’s mental health.


Author(s):  
Eun Ha Namkung ◽  
Jan S. Greenberg ◽  
Marsha R. Mailick ◽  
Frank J. Floyd

Abstract This research examined how parenting adults with developmental disabilities affects parental well-being beyond midlife and into old age. Parents of adults with developmental disabilities (n = 249) and parents of adults without disabilities (n = 9,016), studied in their early 50s and mid-60s, were longitudinally tracked into their early 70s. Compared to parents of adults without disabilities, parents of adults with disabilities showed a pattern of normative functioning in their 50s, followed by poorer well-being in their mid-60s, and further declines in health and well-being into the early 70s. Aging parents who co-resided with their adult child with disabilities were particularly vulnerable, experiencing a steeper increase in depressive symptoms and body mass index (BMI) than parents whose child with disabilities lived away from home.


2020 ◽  
Vol 12 (8) ◽  
pp. 136 ◽  
Author(s):  
Tatiana Begotti ◽  
Martina Bollo ◽  
Daniela Acquadro Maran

Aims: In the last decade, the use of smartphones, computers and devices has progressively increased, and prolonged use of technology and the internet has generated new arenas (and tools) for victimization. The first aim of this study was to analyze the use of coping strategies in young adult self-declared victims of cyberstalking. The coping strategies were categorized as proactive behavior, avoidance tactics and passivity. To better understand these strategies, they were analyzed in light of the experience of victimization in terms of incurred misconduct. The second aim was to analyze the coping strategies and the consequences (in terms of depression and anxiety) that occurred in victims; a comparison was made between males and females. Methods: A self-administered questionnaire was distributed to over 433 young adults living in Italy. The questionnaires were filled out by 398 (92%) subjects, 41% males and 59% females. Their ages ranged from 18 to 30 years (M = 23.5, SD = 2.76). Respondents took part on a voluntary basis and did not receive any compensation (or extra credit) for their participation. Results: Findings from this investigation confirmed that among victims, females were more prone than males to experience cyberstalking (respectively, 65% and 35%), with females experiencing a higher percentage of more than one form of cyberstalking behavior than males. Young adult male victims used the internet principally for online gaming, and for this activity, they experienced more cyberstalking behavior than females. In most cases, the perpetrator was a male, and the victim–cyberstalker relationship was a friendship or an acquaintance. For the coping strategies adopted, the findings indicated that the victims were more prone to use avoidance tactics than proactivity behavior and passivity strategies. Young adults involved in this investigation mainly used avoidance tactics to cope with the stressful situation, which implies that they preferred to decrease the use of the internet or stop online contact than collect evidence and try to contact and reason with the cyberstalker or increase the misuse of alcohol of psychotropic substances. Moreover, females were less prone to use proactive behavior than expected. Our findings suggested that males were more prone than females to adopt passivity strategies, while females were more prone to adopt avoidance tactics. Moreover, the data showed that proactivity behavior was adopted more in the case of online contacts and online identity fraud, while passivity strategies were adopted in the case of online threats. Conclusion: Findings from this investigation show the importance of improving the knowledge about the coping strategies that could be suggested to victims and the impact on their psychological health.


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