scholarly journals The role of hope for health professionals in rehabilitation: A qualitative study on unfavorable prognosis communication

PLoS ONE ◽  
2019 ◽  
Vol 14 (10) ◽  
pp. e0224394
Author(s):  
Mirjam Amati ◽  
Nicola Grignoli ◽  
Sara Rubinelli ◽  
Julia Amann ◽  
Claudia Zanini
Keyword(s):  
Qualitative Study ◽  
Health Professionals

scholarly journals The role of grandparents of children with cancer in the hospital

2021 ◽  
Vol 74 (5) ◽  
Author(s):  
Leticia Bottcher Dias ◽  
Ana Márcia Chiaradia Mendes-Castillo
Keyword(s):  
Qualitative Study ◽  
Thematic Analysis ◽  
Health Professionals ◽  
Hospitalized Children ◽  
Spiritual Support ◽  
Children With Cancer ◽  
The Family ◽  
Hybrid Framework ◽  
Being There

ABSTRACT Objective: To understand the role of grandparents of hospitalized children with cancer. Methods: In a qualitative study, we interviewed eleven grandparents of children with cancer hospitalized at a referral center for pediatric oncology in São Paulo. The data were analyzed using the Hybrid Framework of Thematic Analysis. Results: Six themes were found to describe the role of grandparents in this context: Being the family’s support, Sharing love to my child and my grandchild, Being there for my child and my grandchild, Offering spiritual support to my child and my grandchild, Making an effort to be able to manage my own feelings and Balancing the demands of hospitalization with available resources. Final considerations: The findings show the significance of the grandparents’ role in this experience and emphasize the value of being considered, by health professionals, as part of the family and care.

The experience of facilitating debriefing after simulation: A qualitative study

2020 ◽  
Vol 36 (3) ◽  
pp. 51-60
Author(s):  
Rachel Macdiarmid ◽  
◽  
Stephen Neville ◽  
Shelaine Zambas ◽  
◽  
...  
Keyword(s):  
Health Care ◽  
Qualitative Study ◽  
Health Professionals ◽  
Essential Role ◽  
Care Setting ◽  
Knowing How ◽  
Know How ◽  
Individual Interviews ◽  
Insight Into

Research suggests that debriefing is the most important component of simulation. Debriefing is the time when participants think over and reflect on what happened during the simulated experience. The aim of this research is to gain insight into the experience of facilitating debriefing following a simulated experience in a tertiary health care setting. This qualitative study was guided by phenomenology, as developed by Heidegger and Gadamer, and included 10 health professionals (nurses, doctors, and a midwife) debriefing simulation experiences. Data were collected through individual interviews and analysed through iterative re-writing and the generation of three stories as getting started; supporting the debrief to unfold, and knowing how to end. This study affirmed the role of the facilitator in debriefing following simulated experiences. The facilitator’s role includes leading the dialogue beyond “talk” and into “learning”. The art of asking a question, working with silence, and enabling learning all require skill. Through experience, facilitators learn to respond to whatever unfolds in the session. This study contributed detail of what facilitators do to draw out thinking, which confirmed their essential role. Facilitators cannot prepare a script for debriefing beforehand but must rely on their debriefing know-how to respond in each debrief. The facilitator’s know-how is therefore central to debriefing following simulated experiences.

scholarly journals When to break the news and whose responsibility is it? A cross-sectional qualitative study of health professionals’ views regarding disclosure of BRCA genetic cancer risk

BMJ Open ◽  
2020 ◽  
Vol 10 (2) ◽  
pp. e033127
Author(s):  
Alison Luk Young ◽  
Phyllis N Butow ◽  
Katherine M Tucker ◽  
Claire E Wakefield ◽  
Emma Healey ◽  
...  
Keyword(s):  
Mental Health ◽  
At Risk ◽  
Qualitative Study ◽  
Health Professionals ◽  
Rural Areas ◽  
Life Stage ◽  
Tertiary Care ◽  
Cross Sectional ◽  
The Ideal

ObjectivesDisclosure of a hereditary condition in the family poses notable challenges for patients who often seek the assistance of genetic health professionals (GHPs). This study aimed to investigate GHPs’ opinions about the ideal time for disclosure to offspring and their responsibility to at-risk relatives.DesignCross-sectional qualitative study.SettingGenetic familial cancer clinics related to mostly secondary and tertiary care hospitals and centres in urban, regional and rural areas across all states of Australia.ParticipantsGHPs (N=73) including clinical geneticists, genetic counsellors, medical specialists, nurses, surgeons and mental health specialists (eg, psychiatrists, psychologists) who had worked with BRCA1 and BRCA2 families for an average of 9 years.ResultsFocus groups and interviews were transcribed and analysed thematically. GHPs perceived that life stage, maturity, parents’ knowledge and capacity to disseminate information influenced parent–offspring disclosure. In general, GHPs recommended early informal conversations with offspring about a family illness. GHPs considered that facilitation of disclosure to relatives using counselling strategies was their responsibility, yet there were limitations to their role (eg, legal and resource constraints). Variability exists in the extent to which genetic clinics overcome challenges to disclosure.ConclusionsGHPs’ views on the ideal time for the disclosure of genetic risk are generally dependent on the patient’s age and relative’s ability to disclose information. A responsibility towards the patient and their at-risk relative was widely accepted as a role of a GHP but views vary depending on legislative and specialty differences. Greater uniformity is needed in genetic procedural guidelines and the role of each discipline (eg, geneticists, genetic counsellors, oncologists, nurses and mental health specialists) in genetic clinics to manage disclosure challenges.

scholarly journals Ethical Issues Linked to the Development of Telerehabilitation: A Qualitative Study

2021 ◽  
Vol 13 (1) ◽  
Author(s):  
Marin Guy ◽  
Alexandra Blary ◽  
Joel Ladner ◽  
Maxime Gilliaux
Keyword(s):  
Qualitative Study ◽  
Health Professionals ◽  
Free Choice ◽  
Ethical Issues ◽  
Ethical Framework ◽  
Public Authorities ◽  
The Public ◽  
Universal Accessibility ◽  
Significant Health

While telerehabilitation (TR) makes it possible to respond to many significant health system problems, TR still gives rise to debates, particularly concerning ethical issues. This qualitative study collected the opinions of stakeholders with varied profiles. A guided interview focused on discerning strategies that might foster the ethical deployment of TR. Such strategies were found to be linked to the decision-making of the public authorities, the role of scientific and professional bodies, the training of health professionals, and the management of patient information. Ethical issues relating to the development of TR included universal accessibility, patients’ free choice, respect of privacy, and professional confidentiality. The ethical development of TR can be fostered by the provision of information to stakeholders as well as reminding practitioners of the ethical framework that regulates medical practice.

scholarly journals Different Caregiver, Different Collaboration

2020 ◽  
Vol 14 (1) ◽  
Author(s):  
Helle Rønn-Smidt ◽  
Janet K Shim ◽  
Amber Fitzsimmons ◽  
Kristian Larsen ◽  
Hanne Pallesen
Keyword(s):  
Qualitative Study ◽  
Health Professionals ◽  
Brain Injuries ◽  
Health Capital

The quality of the collaboration between health professionals and caregivers is of great significance to outcome and recovery. Severe brain injuries after a stroke can leave patients unable to communicate their needs and wishes with health professionals, in which case the role of the caregiver(s) becomes even more important. This position is highly differentiated, and there are substantial variations in how caregivers participate in the collaboration. Using the Bourdieusian concept of cultural health capital, we aimed to develop a broader understanding of the role played by the patient’s caregiver and how inequality is produced in the encounter with professionals. This qualitative study was conducted from 2014 to 2018. We observed the meetings and interactions between caregivers and health professionals during patients’ neurorehabilitation after a stroke, and we interviewed caregivers and health professionals on their experiences during this period. Constructing three different caregiver types—the proactive, the persistent, and the deferential—we discovered different ways of interacting and different attitudes related to cultural health capital, which provided the caregiver with more or fewer opportunities to participate in a dialogue and negotiation on behalf of the patient.

scholarly journals The role of health professionals in promoting the uptake of fall prevention interventions: a qualitative study of older people's views

2011 ◽  
Vol 40 (6) ◽  
pp. 724-730 ◽  
Author(s):  
A. Dickinson ◽  
K. Horton ◽  
I. Machen ◽  
F. Bunn ◽  
J. Cove ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Health Professionals ◽  
Fall Prevention ◽  
Prevention Interventions
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