Daily life experiences of families determine the service delivery needs of children with disabilities; views of parents and service providers from three districts in Sri Lanka

Author(s):  
Samanmali P. Sumanasena ◽  
K. Arulmoli ◽  
S.R. Sampan ◽  
M. Wickenden

AbstractParents and service providers are the key care providers for children with disabilities (CWD) and understand their living circumstances best. These children are often invisible and face many challenges to full participation within their own communities. A qualitative phenomenological action research was carried out in three districts of Sri Lanka to explore the perspectives of parents and the service providers on the needs of CWD and how those were met by the present services. This qualitative study included interviews with families, and focus group discussions with service providers. Data was analyzed using a manual thematic analysis. The parents and service providers identified the needs under three main themes. The need for activity and participation, education and rehabilitation. The parents related the needs to the practical daily experiences of families while service providers identified these based on their experiences and knowledge about the medical conditions. Parents identified the public health midwife as the best first contact primary health care worker to coordinate services. The families from Sri Lanka defined initiatives to accomplish a service delivery model which would enable better inclusion of the children in community life.

2014 ◽  
Vol 2014 ◽  
pp. 1-4 ◽  
Author(s):  
Wendy V. Norman ◽  
Barbara Hestrin ◽  
Royce Dueck

Background. Providing equitable access to the full range of reproductive health services over wide geographic areas presents significant challenges to any health system. We present a review of a service provision model which has provided improved access to abortion care; support for complex issues experienced by women seeking nonjudgmental family planning health services; and a mechanism to collect information on access barriers. The toll-free pregnancy options service (POS) of British Columbia Women’s Hospital and Health Centre sought to improve access to services and overcome barriers experienced by women seeking abortion.Methods. We describe the development and implementation of a province-wide toll-free telephone counseling and access facilitation service, including establishment of a provincial network of local abortion service providers in the Canadian province of British Columbia from 1998 to 2010.Results. Over 2000 women annually access service via the POS line, networks of care providers are established and linked to central support, and central program planners receive timely information on new service gaps and access barriers.Conclusion. This novel service has been successful in addressing inequities and access barriers identified as priorities before service establishment. The service provided unanticipated benefits to health care planning and monitoring of provincial health care related service delivery and gaps. This model for low cost health service delivery may realize similar benefits when applied to other health care systems where access and referral barriers exist.


2016 ◽  
Vol 5 (1) ◽  
Author(s):  
Lieketseng Ned ◽  
Theresa Lorenzo

Background: The capacity of service providers in the public sector to deliver inclusive services is essential to implement strategies that will allow the full participation of disabled youth in development opportunities in the rural context. Objective: The article sets to describe the capacity of service providers in facilitating participation of disabled youth in economic development opportunities. Method: An instrumental, embedded single case study informed the research design. The sample consisted of five disabled youth, four family members as well as six service providers. Data was gathered through in-depth individual interviews and focus group discussions. Data analysis was done inductively and thematically. In the discussion, the interpretation used organisational capacity elements as a framework. Findings: The theme on service providers indicates their understanding of disability as still a multifaceted and a challenging issue with different orientations to service delivery based on understanding of impairment and disability. There is a dominant focus on impairment and negative attitudes. Discussion: An asset building approach could facilitate awareness of capacities of disabled youth and thus shift negative attitudes to an enabling attitude. The vague strategies for youth and women that are described as inclusive are a misrepresentation of the reality of experiences of disabled youth. Conclusion: An appreciative process of facilitating a holistic understanding of the needs of disabled people is needed to assist service providers to reconceptualise disability within an expansive framework.


2020 ◽  
Author(s):  
Mesele Damte Argaw ◽  
Thandisizwe Redford Mavundla ◽  
Kassa Daka Gidebo

Abstract Malaria is one of the most important public health problems in Ethiopia contributing to significant patient morbidity and mortality. Prompt diagnosis and effective malaria case management-through public, private and community health facilities has been one of the key malaria prevention, control and elimination strategies. The objective of this study was to evaluate perceptions of adult malaria patients and healthcare provider on quality of malaria management at private sector outpatient facilities. An exploratory, descriptive, contextual, qualitative research methodology was conducted with 101 participants (i.e. 33 in-depth interviews and ten Focus Group Discussions with 68 discussants). All interview and Focus Group Discussions were audio recorded, transcribed verbatim and analysed using eight steps of Tesch (1990). During data analysis a single theme, two categories and six sub categories were emerged, namely (1) Perceived quality of malaria management at outpatient facilities; (a) essential resources ; (a1) safe outpatient services; (a2) antimalarial drugs and supplies; (a3) health workers; (b) factors influencing service utilization ; (b1) Physical accessibility; (b2) “Art of care’’; and (b3) efficient malaria diagnosis and treatment services. Finally, enhancing good governance and stewardship of the public sector to tap the potential of private sector, build the service providers capacity and empowering the community on seeking early medical and safety were recommended.


Author(s):  
David Naya Zuure ◽  
Sarah Nsowah ◽  
James Gbandan Konzabre

The study sought to establish respondents’ views on the attitude of health care providers, perceptions of the quality of medical services provided and indications on the future use of CHPS compound in the Wassa-Amenfi West District. The study employed the cross-sectional survey design within the quantitative research paradigm. Questionnaire was administered to one hundred and fifty community members and analysis was done through frequencies and percentages. The study concluded that respondents had positive views on the attitude of health service providers in the CHPS compound. They were also satisfied with the quality of service delivery at the CHPS compound. Respondents were willing to visit and recommend family members and friends to the facility in the future to access healthcare. It was therefore recommended that medicines and health information should be made available at the compound to enhance quality health delivery at the grass root.


Author(s):  
Diane L. Kendall

Purpose The purpose of this article was to extend the concepts of systems of oppression in higher education to the clinical setting where communication and swallowing services are delivered to geriatric persons, and to begin a conversation as to how clinicians can disrupt oppression in their workplace. Conclusions As clinical service providers to geriatric persons, it is imperative to understand systems of oppression to affect meaningful change. As trained speech-language pathologists and audiologists, we hold power and privilege in the medical institutions in which we work and are therefore obligated to do the hard work. Suggestions offered in this article are only the start of this important work.


2019 ◽  
pp. 54-67
Author(s):  
Toby Long

This paper discusses the evolution of the early childhood education system from excluding children with disabilities to fully including them in a manner emphasizing full participation.  Evidence indicates meaningful participation in everyday activities is necessary for development to occur. The essential elements needed to bring about participation will be presented as well as specific evidence-based strategies used to promote inclusion and participation.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 910-911
Author(s):  
Matthew Yau ◽  
Christine Sheppard ◽  
Jocelyn Charles ◽  
Andrea Austen ◽  
Sander Hitzig

Abstract Community support services are an integral component of aging in place. In social housing, older adult tenants struggle to access these services due to the siloed nature of housing and health services. This study aims to describe the relationship between community support services and social housing for older adults and examine ways to optimize delivery. Data on government-funded community support services delivered to 74 seniors’ social housing buildings in Toronto, Ontario was analyzed. Neighbourhood profile data for each building was also collected, and correlational analyses were used to examine the link between neighbourhood characteristics and service delivery. Fifty-six community agencies provided 5,976 units of services across 17 service categories, most commonly mental health supports, case management and congregate dining. On average, each building was supported by nine agencies that provided 80 units of service across 10 service categories. Buildings in neighbourhoods with a higher proportion of low-income older adults had more agencies providing on-site services (r = .275, p < .05), while those in neighbourhoods with more immigrants (r = -.417, p < .01), non-English speakers (r = -.325, p < .01), and visible minorities (r = -.381, p < .01) received fewer services. Findings point to a lack of coordination between service providers, with multiple agencies offering duplicative services within the same building. Vulnerable seniors from equity-seeking groups, including those who do not speak English and recent immigrants, may be excluded from many services, and future service delivery for seniors should strive to address disparities in availability and access.


Author(s):  
Stephane Shepherd ◽  
Aisling Bailey ◽  
Godwin Masuka

African-Australian young people are over-represented in custody in the state of Victoria. It has been recognized in recent government and stakeholder strategic plans that African-Australian community service providers are well placed to help address the increasing complex needs of at-risk African-Australian youth. However little is known about the capacities of such providers to effectively contend with this growing social concern. In response, this study aimed to explore the perspectives and operational (service delivery and governance) experiences of African-Australian community organizations which provide services to at-risk young people in Victoria. Through a series of in-depth interviews with the leadership of eight key African-Australian service providers, we aimed to identify their perceived strengths, obstacles faced and proposed strategies to realize key objectives. Perspectives on key risk factors for young African-Australian justice system contact were also gathered. Several themes were extracted from the interviews, specifically (i) Risk factors for African-Australian youth justice-involvement (school disengagement, peer delinquency, family breakdown, intergenerational discord, perceived social rejection), (ii) The limitations of mainstream institutions to reduce African-Australian youth justice-involvement (too compliance focused, inflexible, business rather than human-centered, disconnected from communities and families), (iii) The advantages of African-Australian community service providers when working with African-Australian youth (community credibility, client trust, flexibility, culturally responsive), (iv) The challenges faced by African-Australian service providers (lack of funding/resources, professional staff shortages, infrastructural/governance limitations), and (v) “What works” in service provision for at-risk African-Australians (client involvement in program design, African staff representation, extensive structured programming matched with client aspirations, prioritizing relationship building, persistent outreach, mental health and legal literacy for clients and families). Implications for service delivery and social policy are discussed within.


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