scholarly journals The Relationship Between Religion, Illness and Death in Life Histories of Family Members of Children With Life-Threatening Diseases

2010 ◽  
Vol 18 (2) ◽  
pp. 156-162 ◽  
Author(s):  
Regina Szylit Bousso ◽  
Taís de Souza Serafim ◽  
Maira Deguer Misko
Keyword(s):  
Qualitative Study ◽  
Oral History ◽  
Life Histories ◽  
Family Members ◽  
Three Dimensions ◽  
Methodological Framework ◽  
Power Development ◽  
Healing Power ◽  
Life Threatening ◽  
The Relationship

This qualitative study aimed to get to know the relationship between the experiences of families of children with a life-threatening disease and their religion, illness and life histories. The methodological framework was based on Oral History. The data were collected through interviews and the participants were nine families from six different religions who had lived the experience of having a child with a life-threatening disease. The interviews, held with one or two family members, were transcribed, textualized and, through their analysis, the Vital Tone was elaborated, representing the moral synthesis of each narrative. Three dimensions of spirituality were related to illness and death in their life histories: a Higher Being with a healing power; Development and Maintenance of a Connection with God and Faith Encouraging Optimism. The narratives demonstrated the family's search to attribute meanings to their experiences, based on their religious beliefs.

Family succession, professionalization and internationalization: a study of Brazilian family businesses

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Augusto Dalmoro Costa ◽  
Aurora Carneiro Zen ◽  
Everson dos Santos Spindler
Keyword(s):  
Family Business ◽  
Family Members ◽  
Secondary Data ◽  
Family Businesses ◽  
Three Dimensions ◽  
Content Type ◽  
The Family ◽  
Two Generations ◽  
Internationalization Strategies ◽  
The Relationship

PurposeThe purpose of this paper is to investigate the relationship between family succession, professionalization and internationalization in family businesses within the Brazilian context.Design/methodology/approachThe paper presents a multiple-case study method with three Brazilian family businesses that have at least two generations of the owning family involved in the business and an international presence of at least three years. In-depth interviews and secondary data were undertaken with family and non-family members of each case.FindingsThe authors' results show that a family business can boost its internationalization by introducing both succession planning and professionalization on international activities. As family members tend to be more risk-averse and focused on keeping the family business within the family, professionalization is a way of improving the firm's ability to expand internationally. This process tends to lead to lower performance by the firm for the first few months or the first year after the investment, but afterward, international performance tends to grow exponentially.Originality/valueOnly a few studies have been concerned on the relationship of these three dimensions. Thus, the research takes into account that professionalization and succession lead family businesses to improve their internationalization strategies.

Interspecies Parenting: How Pet Parents Construct Their Roles

2018 ◽  
Vol 43 (2) ◽  
pp. 96-119 ◽  
Author(s):  
Nicole Owens ◽  
Liz Grauerholz
Keyword(s):  
Qualitative Study ◽  
Family Members ◽  
Cultural Narratives ◽  
Family Change ◽  
Raising Children ◽  
Family Form ◽  
Child Relationship ◽  
Human Animal ◽  
The Relationship

This qualitative study explores a widespread contemporary family form, the interspecies family, to understand how people who count their cats and dogs as family members describe this process of becoming and maintaining family. We focus on one aspect of interspecies families—pet parenting. We find that even though individuals say their pets are family, not all consider themselves to be parents or engaged in pet parenting. Participants with human children differed somewhat from those without human children, suggesting that family form shapes pet parenting experiences. Childless participants draw heavily from larger cultural narratives surrounding parenting to construct the parent–pet child relationship. Those with younger human children talk about the relationship primarily from a place of difference, while those with older human children construct the relationship in similar ways to childless individuals and emphasize similarities between raising children and pets. This study contributes to the literature on family change and human–animal relationships within households.

scholarly journals Living with pain: the experience of children and adolescents in palliative care

2014 ◽  
Vol 48 (spe) ◽  
pp. 67-73 ◽  
Author(s):  
Camila Amaral Borghi ◽  
Lisabelle Mariano Rossato ◽  
Elaine Buchhorn Cintra Damião ◽  
Danila Maria Batista Guedes ◽  
Ellen Maria Reimberg da Silva ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Children And Adolescents ◽  
Oral History ◽  
Pain Control ◽  
Limiting Factor ◽  
Methodological Framework ◽  
Effective Management ◽  
Structured Interviews ◽  
Daily Pain

A qualitative study was conducted with semi-structured interviews with the aim of understanding the experience of children and adolescents under palliative care when managing pain daily and how they describe the intensity, quality and location of pain. We used Piaget’s theory of cognitive development as a theoretical framework and oral history as a methodological framework. We found four themes: describing pain; seeking a life closer to normality, despite pain and disease; using a variety of alternatives for pain control; and living with damaged physical appearance. Although pain is a limiting factor in the lives of children and adolescents, we found that they faced their daily pain and still had a life beyond pain and illness. In addition, we highlight the relevance of nurses’ understanding that effective management of pain in children is essential for a normal life and less suffering.

scholarly journals Documenting the untold histories of late-diagnosed autistic adults: a qualitative study protocol using oral history methodology

BMJ Open ◽  
2020 ◽  
Vol 10 (5) ◽  
pp. e037968
Author(s):  
Elizabeth Pellicano ◽  
Wenn Lawson ◽  
Gabrielle Hall ◽  
Joanne Mahony ◽  
Rozanna Lilley ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Research Ethics ◽  
Oral History ◽  
Life Histories ◽  
Institutional Research ◽  
Autism Diagnosis ◽  
Human Research Ethics ◽  
Autistic People ◽  
Autistic Adults ◽  
Oral History Interview

IntroductionReceiving a diagnosis of autism in adulthood is increasingly common for a subset of individuals who were either misdiagnosed in childhood or missed out on a diagnosis altogether. This qualitative study, coproduced with autistic people, invites late-diagnosed autistic adults to share their life histories to (1) understand better the consequences of living without a diagnosis, (2) elucidate what precipitates an autism diagnosis in mid-to-late adulthood and (3) identify the perceived impact of receiving that diagnosis.Methods and analysisOral histories have been a successful way to uncover overlooked and marginalised voices. We therefore adopt qualitative, oral history methodology in this study to understand these adults’ experiences, especially of living in an era when autism was not well known. We will recruit 24 participants who will (1) have been born before 1975, (2) have received a clinical, autism diagnosis after the age of 35, (3) be English-speaking and (4) have spent most of their childhood and adulthood living in Australia. Participants will take part in four sessions, including the main, qualitative, oral history interview, through a range of possible formats to facilitate inclusion. The interview data will be analysed using reflexive thematic analysis.Ethics and disseminationThe protocol has received institutional research ethics approval from Macquarie University’s Human Research Ethics Committee (Ref.: 52019556310562). This study will yield understanding of the life experiences of autistic adults, especially middle-aged and older Australians, should inform more effective diagnostic practices and provide insight into the key factors that might promote resilience and enhance quality of life in autistic people. The findings will be disseminated to academic and clinical audiences through journal articles and conference presentations and to the autistic and autism communities through accessible reports. The interviews will also be prepared for digital archiving, which will enable ongoing access for future generations and communities.

scholarly journals “Health does not discuss trans bodies”: Oral History of transsexuals and transvestites

2020 ◽  
Vol 73 (suppl 6) ◽  
Author(s):  
Mariana Rigolon ◽  
Diene Monique Carlos ◽  
Wanderlei Abadio de Oliveira ◽  
Natalia Rejane Salim
Keyword(s):  
Health Services ◽  
Oral History ◽  
Life Histories ◽  
Life Stories ◽  
Qualitative Approach ◽  
Gender And Sexuality ◽  
Methodological Framework ◽  
The Family ◽  
History Of ◽  
Oral History Interviews

ABSTRACT Objectives: to understand the life stories and itineraries of transvestites and transsexuals in health services. Methods: study with a qualitative approach, anchored in the methodological framework of Oral History. Interviews were conducted and thematically analyzed. Results: two themes emerged: 1) gender and sexuality in life stories; and 2) the trajectories in health services. These revealed the challenges in the process of recognizing gender identity before the family and society. The reports show the dilemmas that transsexuals and transvestites face in health care, which ends up generating the removal of this population from services. Final Considerations: it has been demonstrated that Oral History can increase knowledge, especially about life histories and trajectories in the health services of transvestites and transsexuals; in addition, information was offered that can assist managers and health professionals in making decisions or caring for these people.

The next generation: Experiences of higher educated Turkish-Dutch on The Hague labour market

2014 ◽  
Vol 11 (2) ◽  
pp. 206-217
Author(s):  
Karijn G. Nijhoff
Keyword(s):  
Higher Education ◽  
Qualitative Study ◽  
Labour Market ◽  
Education System ◽  
Minority Groups ◽  
Personal Characteristics ◽  
Market Positioning ◽  
The Hague ◽  
The Relationship ◽  
Dutch City

This paper explores the relationship between education and labour market positioning in The Hague, a Dutch city with a unique labour market. One of the main minority groups, Turkish-Dutch, is the focus in this qualitative study on higher educated minorities and their labour market success. Interviews reveal that the obstacles the respondents face are linked to discrimination and network limitation. The respondents perceive “personal characteristics” as the most important tool to overcoming the obstacles. Education does not only increase their professional skills, but also widens their networks. The Dutch education system facilitates the chances of minorities in higher education through the “layering” of degrees. 

scholarly journals Psychological contract breach and voluntary turnover among newcomers: the role of supervisor trustworthiness and negative affectivity

2021 ◽  
pp. 1-21
Author(s):  
Émilie Lapointe ◽  
Christian Vandenberghe
Keyword(s):  
Psychological Contract ◽  
Negative Affectivity ◽  
Voluntary Turnover ◽  
Three Dimensions ◽  
Psychological Contract Breach ◽  
Contract Breach ◽  
Indirect Relationship ◽  
Relationship Of ◽  
The Relationship

Abstract This article looks at the relationship between psychological contract breach and voluntary turnover among newcomers, using supervisor trustworthiness as a mediator and negative affectivity as a moderator. Relying on data from 243 newcomers, psychological contract breach was found to be negatively related to the three dimensions of supervisor trustworthiness, i.e., ability, benevolence, and integrity. Supervisor integrity further mediated a positive relationship between psychological contract breach and voluntary turnover measured 8 months later. Psychological contract breach interacted with negative affectivity such that it was less negatively related to dimensions of supervisor trustworthiness at high levels of negative affectivity. The indirect relationship of psychological contract breach to voluntary turnover as mediated by supervisor integrity was also weaker at high levels of negative affectivity. We discuss the implications of these findings for research and practice.

scholarly journals Diagnosis of gestational diabetes in Uganda: The reactions of women, family members and health workers

2021 ◽  
Vol 17 ◽  
pp. 174550652110137
Author(s):  
Flavia Zalwango ◽  
Janet Seeley ◽  
Arthur Namara ◽  
Sanjay Kinra ◽  
Moffat Nyirenda ◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Gestational Diabetes ◽  
Gestational Diabetes Mellitus ◽  
Health Workers ◽  
Family Members ◽  
Medical Attention ◽  
Middle Income ◽  
Diabetes Mellitus Diagnosis ◽  
Life Threatening ◽  
Fear And Anxiety

Objectives: In Uganda, as in many other low- and middle-income countries, screening for gestational diabetes mellitus is suboptimal and is rarely embedded in routine antenatal care. We describe the experiences of women in Uganda who underwent screening for gestational diabetes mellitus and were diagnosed with the condition as they navigate both the reaction of family members and their interaction with health workers. Methods: Pregnant women aged 18 years or older and between 24 and 28 weeks of gestation were enrolled from the antenatal clinics at one of the five hospitals between 13 June 2018 and 31 October 2019. Ten women with gestational diabetes mellitus, ten family members and six health workers were purposively selected to take part. Interviews and focus group discussions were used to collect data on the socio-cultural and health system factors that influence timely screening and effective management of gestational diabetes mellitus in Uganda. Data were analysed thematically. Results: Women generally reflected on the importance of gestational diabetes mellitus screening and felt that an early diagnosis helped them to get timely medical attention, and most reported a positive experience of the care provided by health workers. However, women who were diagnosed with gestational diabetes mellitus reported feeling fearful and anxious, and some were worried that the condition might be life-threatening. Many women reported that they were upset and largely unprepared to receive a gestational diabetes mellitus diagnosis. A gestational diabetes mellitus diagnosis not only stirred intense feelings of fear and anxiety in women but also affected their spouses and other family members. Many male partners were sympathetic and willing to provide support. Conclusion: Our findings highlight the need to understand the perceptions and emotions that accompany a gestational diabetes mellitus diagnosis to best support women and their family members. An improved recognition of these factors can inform the development of effective gestational diabetes mellitus screening and management programmes.

scholarly journals Maternal toxoplasmosis and the risk of childhood autism: serological and molecular small-scale studies

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Jamila S. Al Malki ◽  
Nahed Ahmed Hussien ◽  
Fuad Al Malki
Keyword(s):  
Neurodevelopmental Disorders ◽  
Repetitive Behavior ◽  
Saudi Arabian ◽  
Childhood Autism ◽  
Small Scale ◽  
Autistic Children ◽  
High Prevalence ◽  
Life Threatening ◽  
The Relationship ◽  
Delayed Language Development

Abstract Background Toxoplasmosis resulting from infection with the Toxoplasma parasite has become an endemic disease worldwide. Recently, a few studies have reported a high prevalence of Toxoplasmosis infections among Saudi Arabian women. This disease could become life threatening for pregnant women and for immunodeficient people. There is evidence that infections during pregnancy, especially in the early stages, are associated with neurodevelopmental disorders. Autism disorder represents one of the most common neurodevelopmental disorders worldwide; it is associated with delayed language development, weak communication interaction, and repetitive behavior. The relationship between prenatal toxoplasmosis and autism in childhood remains unclear. The present study aims to report a link between maternal toxoplasmosis and autistic offspring among Saudi Arabian women. Method Blood samples (36 maternal, 36 from their non-autistic children, and 36 from their autistic children) were collected for serological and molecular evaluation. Results A toxoplasmosis infection was reported for 33.34% of participants using an ELISA assay (5.56% IgG+/IgM+, 11.11% IgG−/IgM+, and 16.67% IgG+/IgM-); however, a nested PCR assay targeting B1 toxoplasmosis specific genes recorded positive tests for 80.56% of the samples. In addition, the present study detected several points of mutation of mtDNA including NADH dehydrogenase (ND1, ND4) and Cyt B genes and the nDNA pyruvate kinase (PK) gene for autistic children infected with toxoplasmosis. Conclusion Considering previous assumptions, we suggest that a maternal toxoplasmosis infection could have a role in the development of childhood autism linked to mtDNA and nDNA impairment.

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