Parent lonely in bringing a child with disability

2020 ◽  
Vol 29 ◽  
pp. 191-205
Author(s):  
Joanna Szumiło
Keyword(s):  
Children With Disabilities ◽  
Do So ◽  
Child With A Disability

The article presents the issue concerning the characteristics of the feeling of loneliness of parents bringing up a child with a disability. This paper outlines the problem of loneliness, presented factors supporting parents of children who are not fully able to do so. The issues of experiencing the stages of coming to terms with the diagnosis of a child's disability were discussed and an attempt to determine the degree of loneliness among parents of children with disabilities.

Family Work and Families with Children with Disabilities

1988 ◽  
Vol 13 (3) ◽  
pp. 3-7 ◽  
Author(s):  
Debra K. Blumel
Keyword(s):  
Children With Disabilities ◽  
High Stress ◽  
Continuing Care ◽  
Generic Model ◽  
Family Assessment ◽  
Family Work ◽  
The Past ◽  
Families With Children ◽  
Child With A Disability ◽  
At Home

AbstractAs the deinstutionalization process sees more children with disabilities placed at home with their families, families are experiencing burdens and stress in their continuing care lifestyle.This paper presents a generic model of family assessment derived from the structural approach to family therapy. It also draws upon the accumulated knowledge base concerning effects on family of a child with a disability which has developed over the past twenty years. Skill and knowledge are then combined in the presentation of a case example which demonstrates family assessment in a family with a child with a disability. The technique of family sculpting as it was used during the assessment is presented.This paper supports the development and assertive provision of family work services to families who can be identified as potential high stress families simply by virtue of having a child with a disability at home.

scholarly journals Odkrywanie przez rodziców adopcyjnych i zastępczych odmienności dziecka wynikającej z niepełnosprawności. Studium fenomenograficzne

2018 ◽  
pp. 11-33
Author(s):  
Katarzyna Ćwirynkało ◽  
Urszula Bartnikowska
Keyword(s):  
Qualitative Research ◽  
Foster Parents ◽  
Children With Disabilities ◽  
Disabled Children ◽  
Place Of Residence ◽  
Foster Family ◽  
Research Project ◽  
Foster Families ◽  
The Difference ◽  
Child With A Disability

A certain percentage of disabled children are not raised in their biological families. It happens more and more often that the place of residence of such a child is not an institution but the adoptive or foster family. Increased prevalence of this type of families makes the study of this area of functioning of children with disabilities more and more important. The paper covers the issue of dealing with a child’s difference by their adoptive/foster parents. The difference has its source e. g. in a disability. The empirical part of the article is the result of qualitative research conducted with parents from 20 adoptive/foster families that raise a child with a disability (this is a part of a broader research project conducted by the authors with these families). The analysis of the interviews shows the ways to discover the otherness, the difference of the child, the ways to accept this otherness, and the importance they ascribe to the otherness of the child.

scholarly journals Historical perspectives on studying families of children with disabilities: A case for critical research

2013 ◽  
Vol 33 (3) ◽  
Author(s):  
Priya Lalvani ◽  
Lauren Polvere
Keyword(s):  
Narrative Inquiry ◽  
Research Methodology ◽  
Qualitative Methodology ◽  
Children With Disabilities ◽  
Medical Model ◽  
Critical Research ◽  
Disability Theory ◽  
Historical Perspectives ◽  
Sociocultural Perspectives ◽  
Child With A Disability

<p>Historically, research on families of children with disabilities has been framed by the medical model, which views disability as a biological deficit, necessarily associated with burden and grief.&nbsp; This body of research does not acknowledge the sociocultural contexts in which the meaning of disability is embedded, or the manner in which deficit-based hegemonic discourses shape the familial experience of having a child with a disability. &nbsp;In this paper, we problematize the medicalization of the phenomenon of disability and resulting research inquiries.&nbsp; We propose the use of narrative inquiry, theoretically grounded in sociocultural perspectives, as a critical research methodology for situating the lives of these families in cultural and sociopolitical contexts.&nbsp; Narrative inquiries complicate conclusions drawn from the medical model and contribute to new insights on the ways in which interpretations of having a child with a disability are mutually negotiated between individuals and society. &nbsp; &nbsp;&nbsp;<strong>&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;&nbsp;</strong></p> <p><strong>Keywords:&nbsp; </strong>families; children with disabilities; narrative inquiry; disability studies; critical disability theory; qualitative methodology</p><p>&nbsp;</p>

scholarly journals The TACL Model: A Framework for Safeguarding Children with a Disability in Sport

2020 ◽  
Vol 9 (4) ◽  
pp. 48
Author(s):  
Daniel J. A. Rhind ◽  
Jamie McDermott
Keyword(s):  
Action Plan ◽  
Good Practice ◽  
Rugby Union ◽  
Qualitative Survey ◽  
Key Stakeholders ◽  
Promising Practice ◽  
Individualized Approach ◽  
Inductive Thematic Analysis ◽  
Do So ◽  
Child With A Disability

This study represents the first investigation of how children with a disability can be safeguarded in Rugby Union. In study 1, a questionnaire containing quantitative questions was completed by 389 safeguarding volunteers regarding their experiences of working with a child with a disability in their role. Descriptive statistics revealed that 76% of this sample had worked with a child with a disability in Rugby Union and that 28% continue to do so on a weekly basis. In study 2, a qualitative survey was completed by 329 safeguarding volunteers and interviews were conducted with a geographically representative sample of 14 Safeguarding Officers. This study focused on developing a model of promising practice with respect to safeguarding children with a disability in Rugby Union. Based on an inductive thematic analysis of the qualitative survey and interview data, the TACL model was developed: Trigger (creating a system that sensitively identifies children with a disability), Action Plan (creating an individualized approach such that the child is effectively included and protected), Communicate (ensuring that all key stakeholders are informed about the plan) and Learn (ensuring that cases of good practice are identified and disseminated). The name TACL (pronounced tackle) was chosen to promote proactive strategies and to provide a label relevant to the language of Rugby Union. These strategies are proposed as the basis for the safeguarding of children with a disability.

Relacje małżeńskie w opinii rodziców adopcyjnych i zastępczych wychowujących dziecko z niepełnosprawnością

2017 ◽  
Vol 2 (36) ◽  
pp. 75-88
Author(s):  
Urszula Bartnikowska ◽  
Katarzyna Ćwirynkało
Keyword(s):  
Children With Disabilities ◽  
Adoptive Parent ◽  
Depth Information ◽  
Foster Families ◽  
Adoptive Family ◽  
Raising Children ◽  
Involved Parents ◽  
The Relationship ◽  
Child With A Disability

Raising a child with a disability is a challenge for many parents. So is raising a child in a foster/adoptive family. In both cases, parents have to deal with unusual situations that may weaken or strengthen their relationship with each other. Dealing with fulfilling the role of a foster/adoptive parent of a child with a disability can be a challenge which may affect the relationship between the spouses. Available literature does not provide, however, much in-depth information on foster families raising children with disabilities. The article presents the results of qualitative research whose aim was to show the relationship between adoptive/foster parents raising children with disabilities. The study involved parents from 20 adoptive and foster families.

In Search of Equivalent Social Participation: What do Caregivers of Children with Disabilities Desire Regarding Inclusive Recreational Facilities and Playgrounds?

2019 ◽  
Vol 22 (2) ◽  
pp. 66-76 ◽  
Author(s):  
Tina L. Stanton-Chapman ◽  
Eric L. Schmidt
Keyword(s):  
Social Participation ◽  
Children With Disabilities ◽  
Family Members ◽  
Recreational Facilities ◽  
Recreational Facility ◽  
The Family ◽  
Child With A Disability

Abstract The purpose of the current study was to examine what caregivers with children who have disabilities desire regarding inclusive recreational facilities and playgrounds for their children, the constraints that affect their recreational opportunities for the family as a whole, and the dream recreational facilities and playgrounds that would support families in overcoming social participation constraints. This study involved 491 caregivers. Results showed that caregivers (a) take their families to recreational facilities and visit them often, (b) indicated that their child with a disability could not fully participate in the facility's offerings, (c) felt that recreational facilities and playgrounds were not appropriate for their child with a disability, and (d) dreamed of a recreational facility and playground that met the needs of all family members. Results and implications are discussed by disability category.

scholarly journals Gender beliefs and family responsibilities as predictors of conflict and enrichment in parents of children with disabilities

2021 ◽  
Vol 57 (2) ◽  
pp. 1-19
Author(s):  
Monika Parchomiuk
Keyword(s):  
Functional Status ◽  
Children With Disabilities ◽  
Parental Beliefs ◽  
Family Responsibilities ◽  
Family Work ◽  
Gender Beliefs ◽  
Work Conflict ◽  
Family Work Conflict ◽  
Child With A Disability

This study examined the contribution of parental beliefs, the scope of involvement in family responsibilities, and the sense of being burdened with these responsibilities in shaping the results of conflict and enrichment in the roles of parents of children with disabilities, while keeping the child’s functional status in mind. We analysed data from 168 respondents, including 99 mothers and 69 fathers of children with disabilities. Beliefs, sense of burden with household and family responsibilities, and the child’s functional status had an influence on family-work conflict. The parent’s gender, beliefs, the child’s functional status, sense of burden with responsibilities towards the child with a disability, and the scope of involvement in household and family responsibilities were important for enrichment.

Mothers Who Care

1991 ◽  
Vol 12 (2) ◽  
pp. 211-228 ◽  
Author(s):  
RANNVEIG TRAUSTADOTTIR
Keyword(s):  
Qualitative Study ◽  
Children With Disabilities ◽  
Family Studies ◽  
Complex Phenomenon ◽  
Child With A Disability

Based on a qualitative study of families of children with disabilities, this article examines the role of gender in caring for a child with a disability. Findings reveal caring as a complex phenomenon that has at least three meanings: (a) “caring for,” which refers to the caregiving work, (b) “caring about,” referring to the love, and (c) “the extended caring role,” when mothers of children with disabilities extend their caring to a broader societal concern. The findings, which suggest that the responsibilities for caring are still ascribed on the basis of gender, are discussed in relation to traditional disability family studies and the situation of women in today's society.

Holding replication studies to mainstream standards of evidence

2018 ◽  
Vol 41 ◽  
Author(s):  
Duane T. Wegener ◽  
Leandre R. Fabrigar
Keyword(s):  
Replication Studies ◽  
Replication Research ◽  
Standards Of Evidence ◽  
Do So

AbstractReplications can make theoretical contributions, but are unlikely to do so if their findings are open to multiple interpretations (especially violations of psychometric invariance). Thus, just as studies demonstrating novel effects are often expected to empirically evaluate competing explanations, replications should be held to similar standards. Unfortunately, this is rarely done, thereby undermining the value of replication research.

Electron Microscopy of a Herpesvirus Isolated from Marek's Disease in Duck and Chicken Embryo Fibroblast Cultures

1968 ◽  
Vol 26 ◽  
pp. 222-223 ◽  
Author(s):  
Keyvan Nazerian
Keyword(s):  
Inclusion Bodies ◽  
Chicken Embryo Fibroblast ◽  
Marek's Disease ◽  
Marek’S Disease ◽  
Duck Embryo Fibroblast ◽  
Multinucleated Cells ◽  
Viral Particles ◽  
Infected Cells ◽  
And Control ◽  
Do So

A herpes-like virus has been isolated from duck embryo fibroblast (DEF) cultures inoculated with blood from Marek's disease (MD) infected birds. Cultures which contained this virus produced MD in susceptible chickens while virus negative cultures and control cultures failed to do so. This and other circumstantial evidence including similarities in properties of the virus and the MD agent implicate this virus in the etiology of MD.Histochemical studies demonstrated the presence of DNA-staining intranuclear inclusion bodies in polykarocytes in infected cultures. Distinct nucleo-plasmic aggregates were also seen in sections of similar multinucleated cells examined with the electron microscope. These aggregates are probably the same as the inclusion bodies seen with the light microscope. Naked viral particles were observed in the nucleus of infected cells within or on the edges of the nucleoplasmic aggregates. These particles measured 95-100mμ, in diameter and rarely escaped into the cytoplasm or nuclear vesicles by budding through the nuclear membrane (Fig. 1). The enveloped particles (Fig. 2) formed in this manner measured 150-170mμ in diameter and always had a densely stained nucleoid. The virus in supernatant fluids consisted of naked capsids with 162 hollow, cylindrical capsomeres (Fig. 3). Enveloped particles were not seen in such preparations.

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