scholarly journals Psychological evaluation of adult burn survivors: a pilot study

2019 ◽  
Vol 6 (12) ◽  
pp. 4428
Author(s):  
Silvana Kurian ◽  
Sebastian Padickaparambil ◽  
Joseph Thomas ◽  
N. C. Sreekumar ◽  
Alphy Rose James

Background: Survivors of disfiguring burn injury often become social handicaps. Therefore, it is of utmost importance to understand their perception of body image, their coping skills, their appraisals about social support and self-monitoring behaviour in social situations and explore the factors that can promote better psychological adjustment.Methods: Using a single group cohort design, a sample of 18 individuals with burn injury, were recruited through purposive sampling. Personal data sheet, self-monitoring scale (SMS) and satisfaction with appearance scale (SWAP) were administered when the patients were admitted post-injury. Social support appraisal scale (SSA), coping with burns questionnaire along with SMS and SWAP were administered at one-month post-discharge.Results: The findings indicated that gender and education played a significant role in body image, coping, social support appraisal and self-monitoring behaviours. Further, higher scores on coping strategies were associated with better body satisfaction.Conclusions: The findings indicate the need to look into the variables of coping, body image, social support, self-monitoring behaviours of burns patients and the need to develop interventions for improving their quality of life. A mixed-method study design for better understanding of the psychosocial factors impacting adjustment post-burn injury would be beneficial. Although a larger cohort needs to be studied for understanding the impact of these factors, one may already notice definite indicators that are risk factors that may lead to poorer psycho-social wellbeing of burn victims and potential areas where interventions may be effective.

2020 ◽  
Vol 41 (Supplement_1) ◽  
pp. S127-S128
Author(s):  
Olivia Stockly ◽  
Audrey E Wolfe ◽  
Nicole S Gibran ◽  
Colleen M Ryan ◽  
Jeffrey C Schneider

Abstract Introduction Gender differences in pediatric burn outcomes are not well-known. Long-term physical and mental health outcomes, in addition to school status, serve as important markers in recovery for school-aged burn survivors. This study aimed to assess the impact of gender on school status and health outcomes in pediatric burn survivors. Methods Data from pediatric burn survivors, age 8–17 years at time of injury that are participating in the Burn Model System National Database (2015–2019) were analyzed. Descriptive statistics were generated for demographic and clinical characteristics. Scores on the seven subscales of the PROMIS-25 (physical function, anxiety, depression, fatigue, peer support, pain interference, and pain intensity) and school status at 12 months post-injury were examined. All demographic, clinical, and outcome data were compared by gender using Chi-square tests of association and two-sample t-tests for categorical and continuous variables, respectively. Results A total of 104 individuals (76 male, 28 female) were included in the demographic analysis. Additionally, 60 individuals had complete PROMIS-25® data at 12 months post-injury and were included in analysis. Demographic and clinical characteristics including age at time of burn injury, race/ethnicity, burn etiology, burn location and burn size did not differ by gender. No differences were found in PROMIS-25® subscales (p=0.22–0.87; Table 1) or school status by gender. Nearly 80% of male and female burn survivors were in school at 12-months post-injury (76.6% male vs. 88.2% female; p=0.307). Conclusions In this study, burn survivors between the ages of 8 and 17 years old did not experience any differences in long-term PROMIS-25® outcomes or school status at 12 months post-injury based on gender. Applicability of Research to Practice Preliminary data suggest similar physical, mental, and school outcomes for school aged children based on gender. A more robust examination of long-term pediatric outcomes and school status are needed in the future.


2016 ◽  
Vol 22 (13) ◽  
pp. 1755-1766 ◽  
Author(s):  
Kirsty Garbett ◽  
Diana Harcourt ◽  
Heather Buchanan

This study uses blog analysis, a new and novel technique, to explore the positive outcomes experienced by burn survivors. This study examined 10 burn survivor blogs to offer a unique, longitudinal insight into burn survivor recovery. Using thematic analysis, three themes emerged: shift in self-perception, enhanced relationships and a change in life outlook. Many of these themes contained stories and experiences unique to a traumatic burn injury, suggesting that standardised trauma scales are not effectively measuring the impact of a burn in this population. Reflections on blog analysis are discussed, along with a recommendation that health researchers utilise the vast amount of data available from online blogs.


2014 ◽  
Vol 2 (1) ◽  
Author(s):  
Kellie Hodder ◽  
Anna Chur-Hansen ◽  
Andrea Parker

There is evidence that social support is important for the development and mainte- nance of body image satisfaction for people who have sustained burn injuries. This qualitative study explored the specific mechanisms by which social support impacts the body image satisfaction of burn survivors, drawing on nine participants’ in depth accounts. Participants were recruited through a burns unit at a public hospital in South Australia. Interviews were conducted with nine female burn survivors aged between 24 and 65 (mean age 44.6). Participants described their perceptions about their appearance post burn and their social support experiences. Four themes were identified: acceptance, social comparison, talking about appearance concerns, and the gaze of others. Results indicate that for these participants, social support was an important factor in coming to terms with changes in appearance, specifically support that helps to minimise feelings of difference. Unhelpful aspects of social support were also identified included feeling that suffering was being dismissed and resenting the perceived expectation from supports to be positive. Social supports are important to consider in relation to body image for those working with people who have survived burn injuries.


2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S164-S164
Author(s):  
Brad Jackson ◽  
Kerry Mikolaj ◽  
Trudy Boulter ◽  
Nichole F Mayer

Abstract Introduction 2020 brought numerous challenges for burn survivors and their families. This project assessed the impact of two major global / national phenomena, specifically the impact of a) COVID-19 and b) local / community / national actions around racism and policing on child and youth burn survivors and their families. Methods Our burn camp program moved to a virtual format for 2020. Campers (ages 8 – 18) and their caregivers / parents completed questionnaires about their year, rating and specifying the personal impacts of these phenomena. They rated how their year has been overall and selected “what has helped you get through tough times”. 47 campers and 47 caregivers / parents participated. Results: Impact of COVID-19 The majority of youth rated the impact of COVID-19 as “somewhat” to “highly” (78%), while the majority of caregivers rated “somewhat” (64%). Campers and caregivers identified the following impacts most often and to similar degrees: Online school/virtual learning, Friends/Social, Sports/Activities, Quarantine, Isolation, Worries, Quality time with family. Caregivers also highlighted: Getting creative at home and Uncertainties. Impact of local / community / national actions around racism and policing on you and your family The majority of campers and caregivers rated the impact as “Somewhat”, “Very Little” or “Not Impacted” (86%), although participants rating higher impact also provided moving personal experiences. What has helped you get through tough times this year Over 85% of campers and caregivers / parents rated their year overall as “OK” or “Pretty Good”. Campers and caregivers endorsed Family, Friends, Faith, and What I learned recovering from my burn injury as factors helping them get through tough times. Conclusions Children, youth, and families who have experienced a burn injury report both negative and positive impacts from the global and national phenomena of COVID-19 and local / community / national actions around racism and policing. Not all youth and families are equally impacted. Family and friends were the greatest sources of support during tough times. One burn survivor family indicated that what they learned recovering from burn injury has helped them through this challenging year – “I have learned to just adapt and change because anything can happen at any point.” Most burn survivors and their families indicate the year has been “OK” or “pretty good”. Connection through burn camp provided the opportunity to share the impacts, but also the strengths and resiliencies in our burn community.


2020 ◽  
Vol 10 (1) ◽  
Author(s):  
Wayne T. Muraoka ◽  
Jose C. Granados ◽  
Belinda I. Gomez ◽  
Susannah E. Nicholson ◽  
Kevin K. Chung ◽  
...  

Abstract Fluid resuscitation improves clinical outcomes of burn patients; however, its execution in resource-poor environments may have to be amended with limited-volume strategies. Liver dysfunction is common in burn patients and gut dysbiosis is an understudied aspect of burn sequelae. Here, the swine gut microbiota and liver transcripts were investigated to determine the impact of standard-of-care modified Brooke (MB), limited-volume colloid (LV-Co), and limited-volume crystalloid (LV-Cr) resuscitation on the gut microbiota, and to evaluate its' potential relationship with liver dysfunction. Independent of resuscitation strategy, bacterial diversity was reduced 24 h post-injury, and remained perturbed at 48 h. Changes in community structure were most pronounced with LV-Co, and correlated with biomarkers of hepatocellular damage. Hierarchical clustering revealed a group of samples that was suggestive of dysbiosis, and LV-Co increased the risk of association with this group. Compared with MB, LV-Co and LV-Cr significantly altered cellular stress and ATP pathways, and gene expression of these perturbed pathways was correlated with major dysbiosis-associated bacteria. Taken together, LV-Co resuscitation exacerbated the loss of bacterial diversity and increased the risk of dysbiosis. Moreover, we present evidence of a linkage between liver (dys)function and the gut microbiota in the acute setting of burn injury.


2021 ◽  
Vol 12 ◽  
Author(s):  
Hsin-Tien Hsu ◽  
Chiung-Hui Juan ◽  
Jyu-Lin Chen ◽  
Hsiu-Fen Hsieh

Breast cancer and its treatment are particularly distressing for patients because of their potential impacts on body image. The most difficult phase of cancer treatment is usually the first year after a diagnosis. Cancer patients with strong resilience have the positive attitude, internal strength and external resources needed to cope with the disease and its treatment. This cross-sectional study investigated the mediator roles of hope and social support in the association between body image distress and resilience. A structured questionnaire was used to collect data for a convenience sample of 141 breast cancer patients undergoing treatment in southern Taiwan. Structural equation modeling was used for data analysis. The results showed that the final model had a good fit to the data and accounted for 51% of the total variance in resilience. The model of multiple parallel mediators of resilience revealed that hope and social support had mediator roles in the effect of body image distress on resilience. Hope had an important partial mediating role in the association between body image distress and resilience. Social support also had a partial mediating role in the relationship between body image distress and resilience. Social support did not directly affect resilience and indirectly affected resilience through hope. Psychosocial interventions aimed at reducing the impact of body image distress and increasing resilience in breast cancer patients should focus on cultivating hope and increasing social support, particularly support from family members and health professionals.


2021 ◽  
Author(s):  
Maria Laggner ◽  
Marie-Therse Lingitz ◽  
Dragan Copic ◽  
Martin Direder ◽  
Katharina Klas ◽  
...  

Objectives Burn injuries elicit a unique and dynamic stress response which can lead to burn injury progression. Though neutrophils represent crucial players in the burn-induced immunological events, the dynamic secretion pattern and systemic levels of neutrophil-derived factors have not been investigated in detail so far. Methods Serum levels of neutrophil elastase (NE), myeloperoxidase (MPO), citrullinated histone H3 (CitH3), and complement factor C3a were quantified in burn victims over 4 weeks post injury. Furthermore, the potential association with mortality, degree of burn injury, and inhalation trauma was evaluated. In addition, leukocyte, platelet, neutrophil, and lymphocyte counts were assessed. Lastly, we analyzed the association of neutrophil-derived factors with clinical severity scoring systems. Results Serum levels of NE, MPO, CitH3, and C3a were remarkably elevated in burn victims compared to healthy controls. Leukocyte and neutrophil counts were significantly increased on admission day and day 1, while relative lymphocytes were decreased in the first 7 days post burn trauma. Though neutrophil-derived factors did not predict mortality, patients suffering from 3rd degree burn injuries displayed increased CitH3 and NE levels. Accordingly, CitH3 and NE were elevated in cases with higher abbreviated burn severity indices (ABSI). Conclusions Taken together, our data suggest a role for neutrophil activation and NETosis in burn injuries and burn injury progression. Targeting exacerbated neutrophil activation might represent a new therapeutic option for severe cases of burn injury.


2016 ◽  
Vol 22 (2) ◽  
Author(s):  
Dr. Saira Afzal

“Anything that’s human is mentionable, and anything that is mentionable can be more manageable. The people around can help us know that we are not alone.”  Fred Rogers      In spite of the efforts of public health physicians to prevent burn injury through fire prevention, awareness campaigns and educational programs, still burn injuries continue to present a significant social and financial burden through patient mortality, morbidity, and long  term disability. Life after burns is a continuous struggle to improve quality of life in society, seeking employment to remain functional, acceptance in community without any stigmatization and medical support to combat health problems. Cost of medical care and rehabilitation is enormous and can be avoided through community oriented prevention of burns and later on effective rehabilitation in particular community. The causes and types of burn injuries determine prevention and rehabilitation plans. Especially when burns are associated with violence, terrorism conflicts and fights. The conflicts include inter racial differences; inter religious assassinations, revengeful traditions, attempted murders, honor killings, domestic violence and terrorism in a community.1      The use of acid to produce facial burns in women was witnessed in many rural communities in developing countries.2 The first recorded acid attacks in developing countries occurred in Bangladesh in 1967, followed by India in 1982, and Cambodia in 1993. Since then, research has witnessed an increase in the amount and severity of acid attacks in the region. However, this can be traced to significant underreporting in the 1980s and 1990s, along with a general lack of research for this phenomenon during that period.3 Acid attacks were reported in many parts of the world. Since the 1990s, Bangladesh had been reporting the highest number of attacks and highest incidence rates for women with 3,512 Bangladeshi people acid attacked between 1999 and 2013.3 Although acid attacks occur all over the world, including in Europe and the United States, this type of gender based violence is concentrated in rural communities of India, Bangladesh and Pakistan where the implementation of regulations needs further exploration. In Pakistan, the majority of these attacks occurred in the summer. According to a report, up to 150 attacks on women occurred every year. They also reported that the attacks were often the result in rise of domestic abuse, and the majority of victims were female.4 The gender violence increased the morbidity rates in burns survivors.      The efforts to produce community oriented prevention and rehabilitation of the adult burn survivors and to measure their health outcomes, preventing social isolation, providing social support and better quality of life after burn injury are almost negligible. WHO working groups states that quality of life is an individual perception of their position in life in context of culture and values system which they live in relation to their goals, expectations, standard and concerns.5 Eventual outcome depends on injury severity, individual physical characteristics of patient’s motivation, and social support by family and friends.5 It was documented that large number of people living with burn scars need social support more than healthy people for better quality of life.6      There is a dire need for better understanding of multifaceted determinants of burn injuries and quality of life in adult survivors in the context of society norms and cultural pressures in community settings, in order to plan better preventive strategies to combat this public health problem. Prevention efforts are urgently needed to reduce the rate of these unacceptably high burn injuries, and should be developed on a local level in response to risk factors identified in individual areas. Community oriented prevention and rehabilitation of burns is a cost effective strategy. Community participation, use of appropriate technology, accessibility and equitable distribution of preventive and rehabilitative services are its components. Thus efforts should be directed to decrease sufferings of the burn survivors in society and social support systems should be developed to improve quality of life of burn victims through community oriented prevention and rehabilitation of burns.


2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S79-S80
Author(s):  
Callie Abouzeid ◽  
Audrey E Wolfe ◽  
Gretchen J Carrougher ◽  
Nicole S Gibran ◽  
Radha K Holavanahalli ◽  
...  

Abstract Introduction Among the many challenges burn survivors face, community integration is often difficult and might affect overall satisfaction with life long-term. The purpose of this study is to examine quality of life, based on life satisfaction and community integration, at long-term follow-ups in the burn population. Methods Data from the Burn Model System National Database (1997–2020) were analyzed. Patient-reported outcome measures were collected at discharge with a recall of preinjury status, and at 5, 10, 15, and 20 years after injury. The Satisfaction with Life Scale (SWLS) was used to measure participants’ satisfaction with life and the Community Integration Questionnaire (CIQ) measured level of community integration. A random intercept model was used to fit the data and generate a score trajectory with 95% confidence intervals to demonstrate the changes in scores over time and the impact of the demographic and clinical covariates on the model. SWLS trajectory is depicted in the Figure. Results The study population included 214 adult burn survivors with a mean age of 45.2 years. The population was mainly male (65.9%) and white (77.1%) with a mean burn size of 22.5% and average length of hospital stay of 34.7 days. This study found that SWLS scores decrease over time, but CIQ scores were relatively stable. The CIQ model with additional covariates were not statistically significant and did not improve the fit of the model. Conclusions Satisfaction with life was significantly worse over time. Community integration showed little or no change over the long term.


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