619 The Impact of Global / National Phenomena on Young Burn Survivors and their Families
Abstract Introduction 2020 brought numerous challenges for burn survivors and their families. This project assessed the impact of two major global / national phenomena, specifically the impact of a) COVID-19 and b) local / community / national actions around racism and policing on child and youth burn survivors and their families. Methods Our burn camp program moved to a virtual format for 2020. Campers (ages 8 – 18) and their caregivers / parents completed questionnaires about their year, rating and specifying the personal impacts of these phenomena. They rated how their year has been overall and selected “what has helped you get through tough times”. 47 campers and 47 caregivers / parents participated. Results: Impact of COVID-19 The majority of youth rated the impact of COVID-19 as “somewhat” to “highly” (78%), while the majority of caregivers rated “somewhat” (64%). Campers and caregivers identified the following impacts most often and to similar degrees: Online school/virtual learning, Friends/Social, Sports/Activities, Quarantine, Isolation, Worries, Quality time with family. Caregivers also highlighted: Getting creative at home and Uncertainties. Impact of local / community / national actions around racism and policing on you and your family The majority of campers and caregivers rated the impact as “Somewhat”, “Very Little” or “Not Impacted” (86%), although participants rating higher impact also provided moving personal experiences. What has helped you get through tough times this year Over 85% of campers and caregivers / parents rated their year overall as “OK” or “Pretty Good”. Campers and caregivers endorsed Family, Friends, Faith, and What I learned recovering from my burn injury as factors helping them get through tough times. Conclusions Children, youth, and families who have experienced a burn injury report both negative and positive impacts from the global and national phenomena of COVID-19 and local / community / national actions around racism and policing. Not all youth and families are equally impacted. Family and friends were the greatest sources of support during tough times. One burn survivor family indicated that what they learned recovering from burn injury has helped them through this challenging year – “I have learned to just adapt and change because anything can happen at any point.” Most burn survivors and their families indicate the year has been “OK” or “pretty good”. Connection through burn camp provided the opportunity to share the impacts, but also the strengths and resiliencies in our burn community.