Caregiver Burden among Parents of Hearing Impaired and Intellectually Disabled Children in Pakistan

2020 ◽  
Author(s):  
Imran Haider SYED ◽  
Waqar Ahmed AWAN ◽  
Unaiza Batool SYEDA
Keyword(s):  
Caregiver Burden ◽  
Sampling Technique ◽  
Rehabilitation Medicine ◽  
Hearing Impaired ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Impaired Children ◽  
Hearing Impaired Children

Background: Caregiver burden is a multidimensional response to physical, psychological, emotional, social and financial stressors, usually associated with the experience of caring and can be objective or subjective. The objective of current study was to explore the caregiver burden among parents of hearing impaired and intellectually challenged children in Pakistan. Methods: A Comparative cross sectional survey was conducted on n=162 parents of hearing impaired (HI) and intellectually challenged (IC) children from July 2018 to February 2019. Convenient sampling technique was used to collect the data from Parents of hearing impaired and intellectually challenged children with age range 1-16 years in National Institute of Rehabilitation Medicine and Al-Farabi Special Education Institute Islamabad. Caregiver Burden Inventory was used to assess the caregiver burden. Results: The results showed a greater need for respite and other services in both groups. Parents of intellectually challenged children need more respite and other services as compared to hearing impaired children (60.62±11.43 ver. 45.74±11.20, p<0.001). A total of 3 (4.0%) parents of hearing impaired children reported rare need for respite and other services, 32(42.7%) reported sometimes and 40(53.3%) reported frequent need. On the other hand 12(13.8%) parents of intellectually disabled children reported sometimes, 66(75.9%) reported quite frequently and 9(10.3%) nearly always a greater need for respite and other services. Conclusion: The parents of hearing impaired or intellectually challenged children face significant burden of their disabled child. In addition, due to cognitive deficits that lead to behavioural abnormalities the parents of intellectually challenged children face more burden and stress.

MY CHILD’S DISABILITY AND ME”: IMPACT OF CHILD DISABILITY ON MATERNAL QUALITY OF LIFE AND COPING STRATEGY

2021 ◽  
Vol 23 (07) ◽  
pp. 1406-1418
Author(s):  
Shreya Chaudhary ◽  
Keyword(s):  
Quality Of Life ◽  
Coping Strategies ◽  
Visually Impaired ◽  
Hearing Impaired ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
And Coping ◽  
Impaired Children ◽  
Hearing Impaired Children

The birth of differently-abled child brings huge impact on the life of parents. This condition results in adverse impact on quality of life of parents. The study examined the components of quality of life and coping strategies of mothers of children with visual impairment, hearing impairment, locomotor disability, and intellectual disability. This was a cross-sectional, ex-post facto research study. The statistical population included the mothers of differently abled children. 200 mothers of differently-abled children participated in the study. WHOQOL-BREF and Coping strategies scale was used for data collection. Findings revealed that the quality of life has statistically significant difference among the mothers of visually impaired, hearing-impaired children and mothers of locomotor disabled and intellectually disabled children. The mothers of visually impaired and hearing-impaired children use approach coping more than the mothers of intellectually disabled and locomotor disabled children. The avoidance coping is used more by mothers of locomotor disabled children followed by mothers of intellectually disabled children. Efficient social skill training programs should be provided to enhance their social network and quality of life. The professionals should also assess the needs, potential problems of mothers and integrate effective strategies with the treatment of their children.

scholarly journals Awareness of parents of hearing-impaired children about the importance of speech-language therapeutic interventions

2021 ◽  
Vol 15 (2) ◽  
pp. 63-66
Author(s):  
Nazia Sheikh ◽  
Bareera Saeed ◽  
Atia Ur Rehman ◽  
Sikander Ghayas Khan ◽  
Maddhia Tufail
Keyword(s):  
Speech Therapy ◽  
Sampling Technique ◽  
Cross Sectional Study ◽  
Hearing Impaired ◽  
Therapeutic Interventions ◽  
Cross Sectional ◽  
Active Involvement ◽  
Parental Awareness ◽  
Impaired Children ◽  
Hearing Impaired Children

Background: The importance of parental involvement of hearing-impaired children in their child's speech therapy cannot be denied.  The current study aimed to determine parental awareness and involvement in the Speech-language therapeutic interventions of hearing-impaired children. Subjects and methods: This was a cross-sectional study design, and a purposive sampling technique was used. Data were collected from 45 parents (male=32, female=13) of hearing-impaired children whose children received speech therapy from special education centers and schools of Gujranwala. The duration of the study was nine months, from June 2019 to February 2020. A related questionnaire was developed with the literature, and expert opinions (Cronbach's α=0.894) were used to assess parental awareness and involvement in speech therapeutic interventions. Data entered and analyzed by SPSS version 23. Descriptive statistics were used to describe demographic variables (age, gender) of the participants. Frequency and percentage were used to access the awareness and involvement of the parents of hearing-impaired children. Results: Parental awareness survey showed that a total of 15 (33.3%) parents, both mother, and father, strongly agreed, and 24 (53.3%) agreed that speech therapy would be beneficial for their child. And results related to parents' involvement showed that 21 (46.7%) parents, both mother, and father, agreed, and 15 (33.3%) strongly agreed on their child's active involvement in speech therapy plans. Conclusions: The study concluded that most parents understand the importance of parental awareness and involvement in the therapeutic intervention of hearing-impaired children.

scholarly journals Caregivers’ burden among parents of children with Cerebral Palsy

2021 ◽  
Vol 3 (1) ◽  
pp. 52-55
Author(s):  
Humaira Shamim Kiani ◽  
Anam Aftab ◽  
Saima Waqar ◽  
Syed Alamdar Hussain ◽  
Qudsia Naqvi ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Caregiver Burden ◽  
Emotional Health ◽  
Sampling Technique ◽  
Rehabilitation Medicine ◽  
P Value ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Children With Cerebral Palsy ◽  
Convenience Sampling

Introduction: Caregivers help a person in those actions which cannot be performed by an individual independently; a person’s personal needs, environmental barriers that hinders an individual’s abilities etc. This ultimately puts an increased burden on the caregiver. This study was conducted to determine the levels of caregivers’ burden among the parents of children with cerebral palsy. Material & Methods: A cross-sectional survey was conducted on 298 parents of children with cerebral palsy. Non-probability convenience sampling technique was used to collect data from the parents coming to the National Institute of Rehabilitation Medicine, Islamabad. The parents of children with cerebral palsy who were having auditory, cognitive or visual impairment were excluded from this study. Demographic information form and Caregiver Burden Inventory were used for the data collection. The data was analysed through IBM SPSS version 21 and results were presented in the form of frequency, percentages and mean ± sd with p-value wherever needed. Results: the result of this study showed a greater need for respite and other services for caregivers of children with cerebral palsy. The overall Caregiver Burden Inventory score was 45.19 ± 11.9. Out of the total included participants, 163 (54.33%) participants sometimes needed relief, 116 (36.67%) needed frequent need for relief and other services while 19 (6.33%) of the included parents rarely needed relief and other services. Conclusion: Majority of the caregivers of children with cerebral palsy needed relief and other services (compromise the growth, physical and emotional health and social relationship) to manage caregivers’ burden.

scholarly journals A STUDY TO EXPLORE PRESENCE OF SOCIAL SKILLS AMONG HEARING IMPAIRED STUDENTS

2019 ◽  
Keyword(s):  
Social Skills ◽  
Proper Time ◽  
Sampling Technique ◽  
Hearing Impaired ◽  
Survey Method ◽  
Statistical Measures ◽  
Significant Difference ◽  
Impaired Children ◽  
Hearing Impaired Children ◽  
Hearing Impaired Students

Present study attempted to explore presence of social skills among hearing impaired students taking education from government special education schools and to compare different level of social skills based on different demographic variables. It is a descriptive study in nature and survey method is used to collect the data. Population of study is hearing impaired children living in division Faisalabad and Lahore. Sample of N=200 hearing impaired students are selected through convenient sampling technique. Responses of social skills are taken from mothers as mothers have better knowledge of proficiencies of their hearing impaired children’s social skills. Children’s age group was 05-20 years. Age range of mothers was 25-55 years. Social skills checklist was used to as tool of the study for collection of data. It is a mixed method approach and statistical measures were made via frequency distribution, t-test and ANOVA. Results of current study clearly depicted that 82% hearing impaired students have low level of social skills and 18% hearing impaired students have best level of social skills. Current study also find out that there is significant difference in social skills of students on the basis of living area and children age and there is no significant difference in presence of social skills in hearing impaired students based on mother’s working status (house wife and job holders) and mothers education level. Study also demonstrated that there was positive correlation among presence of social skills in hearing impaired students and their age. The study concluded that teachers should focus on individual differences while teaching social skills to hearing impaired children and should adopt different teaching methods and teaching strategies for every student. It was also recommended that job holder mothers should manage their time table and must spare their proper time for their special children to make them beneficial and socially adjusted child of community.

scholarly journals Aetiology and Hearing Status of Children under 12 years in a School for Hearing Impaired

2020 ◽  
Vol 22 (1) ◽  
pp. 36-39
Author(s):  
Abu Naser Md Jamil ◽  
Kamrul Hassan Tarafder ◽  
Mohammad Wakilur Rahman ◽  
Raju Barua ◽  
Naseem Yesmin ◽  
...  
Keyword(s):  
Hearing Loss ◽  
Cross Sectional Study ◽  
Hearing Impaired ◽  
Deaf Children ◽  
Sectional Study ◽  
Profound Hearing Loss ◽  
Cross Sectional ◽  
Hearing Status ◽  
Impaired Children ◽  
Hearing Impaired Children

Objective: To assess degree, type and cause of hearing loss in children under 12 years of age in preschool for hearing impaired children. Methods: This cross sectional study was carried out in children of integrated preschool for hearing impaired children (IPSHIC) of SAHIC, Mohakhali, Dhaka, from September 2010 to March 2011. 50 deaf children were included with age 3-12 years and clinically detected hearing impairment. Data were collected by detailed history, clinical examination and audiometric findings and result were expressed in table form. Results: Most of the children presented with bilateral profound hearing loss and majority of patients presented with sensorineural type of hearing loss. Family history positive in 36% cases and consanguineous marriage were found in 34%.Commonest causes of deafness was infection. Conclusion: Early detection with universal neonatal screening should be practiced in our country and early rehabilitation reveals better out come. Bangladesh J Otorhinolaryngol; April 2016; 22(1): 36-39

scholarly journals Hearing-impaired Children and Adults in Need of Cochlear Implant- A Hospital Based Cross-sectional Study

2021 ◽  
Author(s):  
Malik MD Islahuddin ◽  
Rajeev Kumar Nishad ◽  
Mangal Singh
Keyword(s):  
Cochlear Implants ◽  
Hearing Aids ◽  
Cochlear Implantation ◽  
Hearing Threshold ◽  
Uttar Pradesh ◽  
Cross Sectional Study ◽  
Hearing Impaired ◽  
Cross Sectional ◽  
Impaired Children ◽  
Hearing Impaired Children

Introduction: Hearing is essential to learn language and speech and to develop cognitive skills. According to World Health Organisation (WHO), world-wide approximately 350 million people have hearing disorder. The performance of some moderately severe hearing-impaired adults and children using hearing aids is poorer than that of even profoundly hearing-impaired individuals using cochlear implants with advanced speech processing strategies. Aim: To find out the appropriate candidates in need of cochlear implantation in Prayagraj district of Uttar Pradesh, India. Materials and Methods: This cross-sectional study was conducted on hearing impaired patients attending Ear Nose Throat (ENT) Out Patient Department (OPD) of tertiary health care center in Prayagraj Uttar Pradesh from August 2011 to July 2012. The study population consisted of 95 patients categorised into four groups (pre-lingual children and adults, post-lingual children and adults) who presented with the chief complaints of impaired hearing and delayed speech. A detailed history, clinical and other relevant systemic examination and investigations were done. Patients were subjected to free field audiometry, pure tone audiometry and Brainstem-Evoked Response Audiometry (BERA) for assessment of hearing threshold level. Patients used hearing aid for six months and after hearing aid use, their hearing threshold and speech discrimination scores were estimated. Patients, whose aided score on open-set sentence test was less than 50%, were selected as candidate for cochlear implants, as they were not significantly benefited by hearing aids. Results: Out of the 95 cases, 48 were found to be suitable for cochlear implantation, which formed 50.5% of the study group. Pre-lingual hearing impaired adults had the highest percentage i.e., 86.7%, fulfilling the criteria for cochlear implantation followed by pre-lingual children, in whom 46.7% fell in this category. A 26.7% of postlingual children and 20% of postlingual adults were found suitable for cochlear implantation. Conclusion: The pre-lingual hearing impaired children and adults are more in need for cochlear implantation than the postlingual hearing-impaired children and adults. Approximately, 134,501 cases were estimated to be, in need of cochlear implantation in Prayagraj district based on the census estimate of 2011.

scholarly journals A STUDY TO EXPLORE PRESENCE OF SOCIAL SKILLS AMONG HEARING IMPAIRED STUDENTS

2019 ◽  
Vol 2 (02) ◽  
pp. 01-09
Author(s):  
Abid Masood Khan
Keyword(s):  
Social Skills ◽  
Proper Time ◽  
Sampling Technique ◽  
Hearing Impaired ◽  
Survey Method ◽  
Statistical Measures ◽  
Significant Difference ◽  
Impaired Children ◽  
Hearing Impaired Children ◽  
Hearing Impaired Students

Present study attempted to explore presence of social skills among hearing impaired students taking education from government special education schools and to compare different level of social skills based on different demographic variables. It is a descriptive study in nature and survey method is used to collect the data. Population of study is hearing impaired children living in division Faisalabad and Lahore. Sample of N=200 hearing impaired students are selected through convenient sampling technique. Responses of social skills are taken from mothers as mothers have better knowledge of proficiencies of their hearing impaired children’s social skills. Children’s age group was 05-20 years. Age range of mothers was 25-55 years. Social skills checklist was used to as tool of the study for collection of data. It is a mixed method approach and statistical measures were made via frequency distribution, t-test and ANOVA. Results of current study clearly depicted that 82% hearing impaired students have low level of social skills and 18% hearing impaired students have best level of social skills. Current study also find out that there is significant difference in social skills of students on the basis of living area and children age and there is no significant difference in presence of social skills in hearing impaired students based on mother’s working status (house wife and job holders) and mothers education level. Study also demonstrated that there was positive correlation among presence of social skills in hearing impaired students and their age. The study concluded that teachers should focus on individual differences while teaching social skills to hearing impaired children and should adopt different teaching methods and teaching strategies for every student. It was also recommended that job holder mothers should manage their time table and must spare their proper time for their special children to make them beneficial and socially adjusted child of community.

scholarly journals COMPARISION OF ARTICULATION AMONG CHILDREN USING DIGITAL AND NON DIGITAL HEARING AIDS

2012 ◽  
Vol 29 (1-2) ◽  
Author(s):  
Shaista Majid
Keyword(s):  
Language Learning ◽  
Hearing Aids ◽  
Sampling Technique ◽  
Binaural Hearing ◽  
Hearing Impaired ◽  
Internal Variables ◽  
Digital Hearing Aids ◽  
Significant Difference ◽  
Impaired Children ◽  
Hearing Impaired Children

Hearing aids have been used successfully and efficiently for many decades for rehabilitation of hearing impaired children. In present era, advancement in technologies has brought varieties hearing aids that enable hearing impaired children to utilize their residual hearing efficiently for speech and language learning. Recently two types of hearing aids are available according to amplification circuitry, i.e. analog and digital. The present study was aimed at comparing articulation of children using digital hearing aids (DHA) with analog, the non-digital hearing aids (AHA) users. A sample of thirty Children with Hearing Impairment, fifteen DHA users and fifteen AHA users, with age range from 8 to 13 years was selected by purposive sampling technique to participate in the study. Picture Articulation Test with the subjective assessment technique was used to assess the articulation of children from speech sample taken in response to picture stimuli. The results showed that both groups of children with DHA and AHA demonstrated the presence of articulation errors. In children using DHA the intelligibility was significantly better than that of AHA users. Significantly children using AHA presented phonetic and phonological errors, but no significant difference found in articulation among male and female children, children with mono aural and binaural hearing aid fittings, and children with different amplification periods. A detailed analysis of articulation with a larger sample of children using both types of hearing aids with more considerations of external and internal variables is recommended in future to further clarify the issue

Systematic Modification of Parental Input to Train Language Symbols

1981 ◽  
Vol 12 (1) ◽  
pp. 4-12 ◽  
Author(s):  
Barbara Culatta ◽  
Donna Horn
Keyword(s):  
Language Learning ◽  
Meaningful Use ◽  
Hearing Impaired ◽  
Specific Language ◽  
Parental Input ◽  
Language Exposure ◽  
Therapy Sessions ◽  
Impaired Children ◽  
Hearing Impaired Children ◽  
At Home

This study attempted to maximize environmental language learning for four hearing-impaired children. The children's mothers were systematically trained to present specific language symbols to their children at home. An increase in meaningful use of these words was observed during therapy sessions. In addition, as the mothers began to generalize the language exposure strategies, an increase was observed in the children's use of words not specifically identified by the clinician as targets.

Equivalent Noise Dose Obtained Through Hearing Aids in the Classrooms of Hearing-Impaired Children

1990 ◽  
Vol 21 (3) ◽  
pp. 147-150
Author(s):  
Ronald A. Wilde
Keyword(s):  
Hearing Aids ◽  
High Gain ◽  
Hearing Impaired ◽  
Deaf Children ◽  
Impaired Children ◽  
Very High ◽  
Hearing Impaired Children

A commercial noise dose meter was used to estimate the equivalent noise dose received through high-gain hearing aids worn in a school for deaf children. There were no significant differences among nominal SSPL settings and all SSPL settings produced very high equivalent noise doses, although these are within the parameters of previous projections.

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