scholarly journals Psychometric Evaluation of the Shared Care Instrument in a Sample of Home Health Care Family Dyads

2005 ◽  
Vol 13 (3) ◽  
pp. 175-191 ◽  
Author(s):  
Margaret D. Sebern
Keyword(s):  
Home Health Care ◽  
Family Caregiving ◽  
Family Members ◽  
Reliability And Validity ◽  
Psychometric Evaluation ◽  
Shared Care ◽  
Naturalistic Inquiry ◽  
Negative Effects ◽  
Care Family ◽  
Survey Questionnaires

Researchers have studied negative effects of caregiving on a family caregiver; however, less is known about positive aspects of exchanging assistance for both members of a family caregiving dyad. In a previous naturalistic inquiry the author indentified a basis for studying caregiving interactions was a construct called shared care. The three components of shared care identified in the naturalistic inquiry were communication, decision making, and reciprocity. The Shared Care Instrument (SCI) was developed to measure the construct. The purpose of this study was to assess the psychometric properties of the SCI, and to assess its construct and criterion-related validity. A sample of home care family dyads (110 patients and 109 family members) returned usable survey questionnaires. Results indicated the Cronbach’s alphas for the patient group for the SCI subscales ranged from .78 to .84, and .77 to .79 for family members. Factor analysis supported the underlying theoretical basis and factor structure of the SCI. Criterion-related validity was also supported. Therefore, the results of this study provide initial evidence for the reliability and validity of the SCI for use with family caregiving dyads. The findings support the need for additional testing of the SCI.

Development and Psychometric Evaluation of the Caregiver Reciprocity Scale II

2000 ◽  
Vol 8 (2) ◽  
pp. 179-191 ◽  
Author(s):  
Ann K. Carruth ◽  
Catherine Holland ◽  
Laura Larsen
Keyword(s):  
Family Caregiving ◽  
Convergent Validity ◽  
Goodness Of Fit ◽  
Discriminant Validity ◽  
Reliability And Validity ◽  
Psychometric Evaluation ◽  
Measurement Model ◽  
Entire Family ◽  
Additional Support ◽  
Correlation Estimate

Caregiver reciprocity is the collective affective and behavioral expression of exchanges given and received between a caregiver and care receiver, and among family members. This psychometric investigation was designed to further examine the reliability and validity of the revised Caregiver Reciprocity Scale II (CRSII). Items were rewritten to reflect valued exchanges and balance among the entire family network, including spouses. An alpha of .83 for Warmth and Regard; .73 for Intrinsic Rewards of Giving; .83 for Love and Affection; and .75 for Balance Within Family Caregiving indicated acceptable internal consistency. The study, conducted with 176 spouse or adult children caregivers, provides additional support for the conceptual model of the four-factor solution. Construct validity was supported by the standardized factor loadings and goodness-of-fit indices obtained from confirmatory factor analysis. The results of the analysis of the measurement model, taken as a whole, demonstrate that the CRS II has adequate psychometric properties. Model parsimony was supported by an AGFI of .87, combined with an adjusted chisquare between 1.0 to 3.0. All but two item loadings were greater than .50. This, combined with the fact that all standardized loadings were twice the standardized errors and t-values were greater than 2.0, contributes to concluding that convergent validity was strong. Discriminant validity, evaluated by variance extracted estimates, and confidence interval (± two standard errors) around the correlation estimate between factors, was adequate. This study provided evidence to support the reliability and validity of the CRS II.

scholarly journals Utilization of social media peer support groups among family caregivers of patients with dementia

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 805-805
Author(s):  
Mary Dioise Ramos
Keyword(s):  
Social Media ◽  
Family Caregivers ◽  
Support Groups ◽  
Family Caregiving ◽  
Healthcare Providers ◽  
Reliability And Validity ◽  
Psychosocial Health ◽  
Negative Effects ◽  
Term Care

Abstract Caring for a family member with dementia is particularly challenging. Unpaid family caregivers provide a significant amount of the care for aging relatives, and they provide the vast majority of long-term care. Family caregiving often results in negative effects, which compromises the caregiver’s physical and psychosocial health. Social media support groups are an increasingly common venue for family caregivers supporting patients with dementia to exchange emotional, informational, and instrumental support. This study examined the utilization of social media support groups among family caregivers of patients with dementia during the pandemic. Using deductive thematic analysis, the use of social media support groups of family caregivers provide link to social interaction as a means when social distancing is enforced due to the pandemic. Family caregivers use social media support groups to share their personal experience, express their mood and feelings, offer prayers and positive quotes, keep up with the current events, gather information, and share feedback about dementia care services. Awareness of the potential advantages that social media support groups offer, healthcare providers can encourage family caregivers to use social media support groups as an empowering and practical platform. Further research is required about the long term benefit from social media support groups and the reliability and validity of the information that the family caregivers can get from the group.

Digital Home Health Care: Culture-Specific Observations in Saudi Arabia (Preprint)

2020 ◽  
Author(s):  
Abdulaziz A Alodhayani ◽  
Marwah Mazen Hassounah ◽  
Fatima R Qadri ◽  
Noura A Abouammoh ◽  
Zakiuddin Ahmed ◽  
...  
Keyword(s):  
Health Care ◽  
Saudi Arabia ◽  
Home Health Care ◽  
Health Program ◽  
Digital Health ◽  
Local Population ◽  
Family Members ◽  
Cultural Factors ◽  
Home Health ◽  
Design And Implementation

BACKGROUND There is growing evidence of the need to consider cultural factors in the design and implementation of digital health interventions. However, there is still inadequate knowledge pertaining to what aspects of the Saudi Arabian culture need to be considered in the design and implementation of digital health programs, especially in the context of home health care services for chronically and terminally ill patients. OBJECTIVE This study aims to explore the specific cultural factors relating to patients and their caregivers from the perspective of physicians, nurses, and trainers that have influenced the pilot implementation of Remotely Accessible Healthcare At Home (RAHAH); a connected health program in the Home Health Care Department at King Saud University Medical City, Riyadh, Saudi Arabia. METHODS A qualitative study design was adopted to conduct a focus group discussion (FGD) in July 2019 using a semi-structured interview guide with 3 female and 4 male participants working as nurses, family physicians, and information technologists. Qualitative data obtained were analyzed using a thematic framework analysis. RESULTS Two categories emerged from the FGD that influenced the experiences of digital health program intervention: (1) culture-related factors including language and communication, cultural views on using cameras during consultation, non-adherence to online consultations, and family role and commitment (2) caregiver characteristics in telemedicine that includes their skills and education and electronic literacy. Participants of this study revealed that indirect contact with the patients and their family members may work as a barrier to proper communication through RAHAH. CONCLUSIONS We recommend exploring the use of interpreters in digital health, creating awareness among the local population regarding privacy in digital health, and actively involving the direct family members with the healthcare providers.

scholarly journals Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
R. Shah ◽  
F. M. Ali ◽  
A. Y. Finlay ◽  
M. S. Salek
Keyword(s):  
Quality Of Life ◽  
Family Members ◽  
Unmet Need ◽  
Reliability And Validity ◽  
Chronic Health Condition ◽  
Family Quality Of Life ◽  
Good Reliability ◽  
Huge Impact ◽  
The Impact

Abstract Background A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand the impact of patients' disease on family members across all medical specialities, and appraise existing generic and disease-specific family quality of life (QoL) measures. Methods The databases Medline, EMBASE, CINHAL, ASSIA, PsycINFO and Scopus were searched for original articles in English measuring the impact of health conditions on patients' family members/partner using a valid instrument. Results Of 114 articles screened, 86 met the inclusion criteria. They explored the impact of a relative's disease on 14,661 family members, mostly 'parents' or 'mothers', using 50 different instruments across 18 specialities including neurology, oncology and dermatology, in 33 countries including the USA, China and Australia. These studies revealed a huge impact of patients' illness on family members. An appraisal of family QoL instruments identified 48 instruments, 42 disease/speciality specific and six generic measures. Five of the six generics are aimed at carers of children, people with disability or restricted to chronic disease. The only generic instrument that measures the impact of any condition on family members across all specialities is the Family Reported Outcome Measure (FROM-16). Although most instruments demonstrated good reliability and validity, only 11 reported responsiveness and only one reported the minimal clinically important difference. Conclusions Family members' QoL is greatly impacted by a relative's condition. To support family members, there is a need for a generic tool that offers flexibility and brevity for use in clinical settings across all areas of medicine. FROM-16 could be the tool of choice, provided its robustness is demonstrated with further validation of its psychometric properties.

scholarly journals Psychometric Evaluation of the Perceived Stress Scale in Multiple Sclerosis

2013 ◽  
Vol 2013 ◽  
pp. 1-9 ◽  
Author(s):  
Salene M. Wu ◽  
Dagmar Amtmann
Keyword(s):  
Multiple Sclerosis ◽  
Perceived Stress ◽  
Factor Model ◽  
Reliability And Validity ◽  
Psychometric Evaluation ◽  
General Factor ◽  
Perceived Stress Scale ◽  
Stress Scale ◽  
Two Factors ◽  
Mental And Physical Health

Multiple sclerosis (MS) is a progressive disease characterized by neurological symptoms and sometimes heightened levels of distress. The Perceived Stress Scale (PSS) is often used in MS samples to measure stress but has not been validated in this population. Participants (n=446) completed the PSS as well as measure of depression, anxiety, and mental and physical health. Factor analyses indicated that the general factor of a bifactor model accounted for a large amount of the variance in the 14-item and 10-item versions of the PSS. The 4-item PSS had two factors, the Stress subscale and the Coping subscale, but a one-factor model also fits the data well. Total scores and both subscales had sufficient reliability and validity for all versions of the PSS, although a few items of the 14-item PSS had low item-total correlations. This study supports the use of the total score of the PSS in MS but also suggests that the 10-item PSS had better psychometric properties than the 14-item PSS.

Capturing the Familiness of Family Businesses: Development of the Family Influence Familiness Scale (FIFS)

2017 ◽  
Vol 41 (5) ◽  
pp. 709-742 ◽  
Author(s):  
Hermann Frank ◽  
Alexander Kessler ◽  
Thomas Rusch ◽  
Julia Suess–Reyes ◽  
Daniela Weismeier–Sammer
Keyword(s):  
High Reliability ◽  
Family Members ◽  
Reliability And Validity ◽  
Family Influence ◽  
Factor Analyses ◽  
Confirmatory Factor Analyses ◽  
Proficiency Level ◽  
Confirmatory Factor ◽  
The Family ◽  
And Control

This article develops a familiness scale measuring the family influence on the business via decision premises that express familiness. In three studies, we examine familiness with qualitative and quantitative approaches based on new systems theory. Narrative interviews are employed to generate items. Exploratory and confirmatory factor analyses led to a multidimensional scale (Family Influence Familiness Scale [FIFS]) comprising six dimensions: (1) ownership, management, and control; (2) proficiency level of active family members; (3) sharing of information between active family members; (4) transgenerational orientation; (5) family–employee bond; and (6) family business identity. Results indicate high reliability and validity levels.

scholarly journals Opposing functions of the plant TOPLESS gene family during SNC1-mediated autoimmunity

2020 ◽  
Author(s):  
Christopher M. Garner ◽  
Benjamin J. Spears ◽  
Jianbin Su ◽  
Leland Cseke ◽  
Samantha N. Smith ◽  
...  
Keyword(s):  
Immune System ◽  
Genetic Interaction ◽  
Plant Immunity ◽  
Family Members ◽  
Negative Regulator ◽  
Careful Study ◽  
Negative Effects ◽  
Activating Mutations ◽  
Immune Receptors ◽  
Regulatory Processes

AbstractRegulation of the plant immune system is important for controlling the specificity and amplitude of responses to pathogens and in preventing growth-inhibiting autoimmunity that leads to reductions in plant fitness. In previous work, we reported that SRFR1, a negative regulator of effector-triggered immunity, interacts with SNC1 and EDS1. When SRFR1 is non-functional in the Arabidopsis accession Col-0, SNC1 levels increase, causing a cascade of events that lead to autoimmunity phenotypes. Previous work showed that some members of the transcriptional co-repressor family TOPLESS interact with SNC1 to repress negative regulators of immunity. Therefore, to explore potential connections between SRFR1 and TOPLESS family members, we took a genetic approach that examined the effect of each TOPLESS member in the srfr1 mutant background. The data indicated that an additive genetic interaction exists between SRFR1 and two members of the TOPLESS family, TPR2 and TPR3, as demonstrated by increased stunting and elevated PR2 expression in srfr1 tpr2 and srfr1 tpr2 tpr3 mutants. Furthermore, the tpr2 mutation intensifies autoimmunity in the auto-active snc1-1 mutant, indicating a novel role of these TOPLESS family members in negatively regulating SNC1-dependent phenotypes. This negative regulation can also be reversed by overexpressing TPR2 in the srfr1 tpr2 background. Thus, this work uncovers diverse functions of individual members of the TOPLESS family in Arabidopsis and provides evidence for the additive effect of transcriptional and post-transcriptional regulation of SNC1.Author SummaryThe immune system is a double-edged sword that affords organisms with protection against infectious diseases but can also lead to negative effects if not properly controlled. Plants only possess an innate antimicrobial immune system that relies on rapid upregulation of defenses once immune receptors detect the presence of microbes. Plant immune receptors known as resistance proteins play a key role in rapidly triggering defenses if pathogens breach other defenses. A common model of unregulated immunity in the reference Arabidopsis variety Columbia-0 involves a resistance gene called SNC1. When the SNC1 protein accumulates to unnaturally high levels or possesses auto-activating mutations, the visible manifestations of immune overactivity include stunted growth and low biomass and seedset. Consequently, expression of this gene and accumulation of the encoded protein are tightly regulated on multiple levels. Despite careful study the mechanisms of SNC1 gene regulation are not fully understood. Here we present data on members of the well-known TOPLESS family of transcriptional repressors. While previously characterized members were shown to function in indirect activation of defenses, TPR2 and TPR3 are shown here to function in preventing high defense activity. This study therefore contributes to the understanding of complex regulatory processes in plant immunity.

Electronic Word-of-Mouth

2014 ◽  
pp. 227-280 ◽  
Author(s):  
Emel Yıldız ◽  
Hasan Ayyıldız
Keyword(s):  
Cultural Values ◽  
Structural Equation ◽  
Word Of Mouth ◽  
Reliability And Validity ◽  
Equation Modeling ◽  
Electronic Word Of Mouth ◽  
Online Forums ◽  
Negative Effects ◽  
Electronic Survey ◽  
Positive Effects

This chapter examines the effects of word-of-mouth motivations and culture on electronic word-of-mouth behavior. This chapter also focuses on the effects of cultural values on electronic word-of-mouth behavior. Within the context of the study, online forums in which consumers write comments have been used. The data was obtained from an electronic survey provided to 561 consumers. The reliability of scales has been tested via the Cronbach's Alfa Method and the validity of scales has been tested by Factor Analysis. After determining the reliability and validity of the scales, research hypotheses were tested by Structural Equation Modeling (SEM) and Multiple Regression Analysis. The findings show that motivation and culture have positive effects on electronic word-of-mouth behavior. This chapter also attempts to explain the effects of cultural values on electronic word-of-mouth behavior, and it is found that while uncertainty avodiance and masculinity have positive effects, individualism and power distance have negative effects on electronic word-of-mouth behavior.

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