scholarly journals Recommendations to Improve Physical Activity Prescription for the Cystic Fibrosis Population: An Irish Perspective

2020 ◽  
Author(s):  
Nicola Hurley ◽  
Bróna Kehoe ◽  
Noel McCaffrey ◽  
Karen Redmond ◽  
Lydia Cullen ◽  
...  
Keyword(s):  
Physical Activity ◽  
Cystic Fibrosis ◽  
Online Survey ◽  
Continuing Professional Development ◽  
Therapeutic Modality ◽  
Plain Language ◽  
Patient Centered ◽  
Cystic Fibrosis Population ◽  
Almost All

Abstract Background: Physical activity (PA) is a well-established therapeutic modality for the maintenance and improvement of long-term health in cystic fibrosis (CF). Healthcare professionals (HCP) are considered credible and well-placed messengers for the delivery of PA advice. Limited research exists investigating the extent of PA prescription within CF care. This study aimed to identify Irish HCP i) knowledge and practice of, and ii) motivators and barriers to PA prescription, and iii) proposed strategies to optimize PA promotion and prescription in CF populations.Methods: HCP from six designated CF centres in Ireland and members of the national physiotherapy CF clinical interest group were invited to participate. Following an expression of interest, each HCP (n=81) received an email containing the plain language statement and link to the online survey. 48 HCP (physiotherapists n=24, other n=24) completed the 30-item investigator-developed survey, which included multiple choice single answer, matrix style and open-ended questions.Results: Most HCP (81%) acknowledged that discussing PA with CF patients was part of their professional role. Almost all physiotherapists (95%) reported having sufficient knowledge regarding PA prescription, compared to 17% of other HCP. All physiotherapists reported discussing PA at every patient interaction, with 81% employing the current consensus guidelines, compared to 33% and 5% of other HCP, respectively. Among the most common barriers reported by HCP to recommending PA to their CF patients were; lack of motivation and compliance among patients to adhere to PA advice, limited availability of PA programmes to refer their patients to, limited time with patients during clinic visits and a lack of knowledge regarding PA prescription for CF care. Three-quarters of HCP reported a need to improve PA services for CF patients in Ireland.Conclusion: As people with CF are living longer, it is imperative that HCP are expanding their scope of practice to include discussions around PA at every patient visit. Formal educational opportunities in the form of continuing professional development programmes are warranted for CF HCP to optimize long-term patient management and outcomes. There is also a need to develop patient-centered and evidence-based PA programmes underpinned by theories of behaviour change to enhance motivation and compliance among CF patients.

scholarly journals Recommendations to improve physical activity prescription for the cystic fibrosis population: an Irish perspective

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Nicola Hurley ◽  
Bróna Kehoe ◽  
Noel McCaffrey ◽  
Karen Redmond ◽  
Lydia Cullen ◽  
...  
Keyword(s):  
Physical Activity ◽  
Cystic Fibrosis ◽  
Online Survey ◽  
Continuing Professional Development ◽  
Therapeutic Modality ◽  
Plain Language ◽  
Patient Centered ◽  
Cystic Fibrosis Population ◽  
Almost All

Abstract Background Physical activity (PA) is a well-established therapeutic modality for the maintenance and improvement of long-term health in cystic fibrosis (CF). Healthcare professionals (HCP) are considered credible and well-placed messengers for the delivery of PA advice. Limited research exists investigating the extent of PA prescription within CF care. This study aimed to identify Irish HCP i) knowledge and practice of, and ii) motivators and barriers to PA prescription, and iii) proposed strategies to optimize PA promotion and prescription in CF populations. Methods HCP from six designated CF centres in Ireland and members of the national physiotherapy CF clinical interest group were invited to participate. Following an expression of interest, each HCP (n = 81) received an email containing the plain language statement and link to the online survey. 48 HCP (physiotherapists n = 24, other n = 24) completed the 30-item investigator-developed survey, which included multiple choice single answer, matrix style and open-ended questions. Results Most HCP (81%) acknowledged that discussing PA with CF patients was part of their professional role. Almost all physiotherapists (95%) reported having sufficient knowledge regarding PA prescription, compared to 17% of other HCP. All physiotherapists reported discussing PA at every patient interaction, with 81% employing the current consensus guidelines, compared to 33 and 5% of other HCP, respectively. Among the most common barriers reported by HCP to recommending PA to their CF patients were; lack of motivation and compliance among patients to adhere to PA advice, limited availability of PA programmes to refer their patients to, limited time with patients during clinic visits and a lack of knowledge regarding PA prescription for CF care. Three-quarters of HCP reported a need to improve PA services for CF patients in Ireland. Conclusion As people with CF are living longer, it is imperative that HCP are expanding their scope of practice to include discussions around PA at every patient visit. Formal educational opportunities in the form of continuing professional development programmes are warranted for CF HCP to optimize long-term patient management and outcomes. There is also a need to develop patient-centered and evidence-based PA programmes underpinned by theories of behaviour change to enhance motivation and compliance among CF patients.

scholarly journals Recommendations to Improve Physical Activity Prescription for the Cystic Fibrosis Population: An Irish Perspective

2020 ◽  
Author(s):  
Nicola Hurley ◽  
Bróna Kehoe ◽  
Noel McCaffrey ◽  
Karen Redmond ◽  
Lydia Cullen ◽  
...  
Keyword(s):  
Physical Activity ◽  
Cystic Fibrosis ◽  
Online Survey ◽  
Continuing Professional Development ◽  
Therapeutic Modality ◽  
Plain Language ◽  
Patient Centered ◽  
Cystic Fibrosis Population ◽  
Almost All

Abstract Background: Physical activity (PA) is a well-established therapeutic modality for the maintenance and improvement of long-term health in cystic fibrosis (CF). Healthcare professionals (HCP) are considered credible and well-placed messengers for the delivery of PA advice. Limited research exists investigating the extent of PA prescription within CF care. This study aimed to identify Irish HCP i) knowledge and practice of, and ii) motivators and barriers to PA prescription, and iii) proposed strategies to optimize PA promotion and prescription in CF populations.Methods: HCP from six designated CF centres in Ireland and members of the national physiotherapy CF clinical interest group were invited to participate. Following an expression of interest, each HCP (n=81) received an email containing the plain language statement and link to the online survey. 48 HCP (physiotherapists n=24, other n=24) completed the 30-item investigator-developed survey, which included multiple choice single answer, matrix style and open-ended questions.Results: Most HCP (81%) acknowledged that discussing PA with CF patients was part of their professional role. Almost all physiotherapists (95%) reported having sufficient knowledge regarding PA prescription, compared to 17% of other HCP. All physiotherapists reported discussing PA at every patient interaction, with 81% employing the current consensus guidelines, compared to 33% and 5% of other HCP, respectively. Among the most common barriers reported by HCP to recommending PA to their CF patients were; lack of motivation and compliance among patients to adhere to PA advice, limited availability of PA programmes to refer their patients to, limited time with patients during clinic visits and a lack of knowledge regarding PA prescription for CF care. Three-quarters of HCP reported a need to improve PA services for CF patients in Ireland.Conclusion: As people with CF are living longer, it is imperative that HCP are expanding their scope of practice to include discussions around PA at every patient visit. Formal educational opportunities in the form of continuing professional development programmes are warranted for CF HCP to optimize long-term patient management and outcomes. There is also a need to develop patient-centered and evidence-based PA programmes underpinned by theories of behaviour change to enhance motivation and compliance among CF patients.

scholarly journals Recommendations to Improve Physical Activity Prescription for the Cystic Fibrosis Population: An Irish Perspective

2020 ◽  
Author(s):  
Nicola Hurley ◽  
Bróna Kehoe ◽  
Noel McCaffrey ◽  
Karen Redmond ◽  
Lydia Cullen ◽  
...  
Keyword(s):  
Physical Activity ◽  
Cystic Fibrosis ◽  
Health Care Professionals ◽  
Online Survey ◽  
Continuing Professional Development ◽  
Therapeutic Modality ◽  
Cystic Fibrosis Population ◽  
Clinical Interest ◽  
Almost All

Abstract Background: Physical activity (PA) is a well-established therapeutic modality for the maintenance and improvement of long-term health in cystic fibrosis (CF). Health care professionals (HCP) play a significant role in the promotion of PA behaviours. Limited research exists investigating the extent of PA prescription within CF care. This study aimed to identify Irish HCP i) knowledge and practice of prescribing PA, ii) motivation and barriers of PA prescription; and iii) proposed strategies to optimize PA promotion and prescription in CF populations.Methods: 48 HCP (physiotherapists n=24, other n=24) from six CF centers in Ireland and members of the national physiotherapy clinical interest group completed a 30-item online survey. Results: Most HCP (81%) acknowledged that discussing PA with CF patients was part of their professional role. Almost all physiotherapists (95%) reported having sufficient knowledge regarding PA prescription, compared to 17% of other HCP. All physiotherapists reported discussing PA at every patient interaction, with 81% employing the current consensus guidelines, compared to 33% and 5% of other HCP, respectively. Among the most common barriers reported by HCP to prescribing PA to their CF patients were; lack of motivation and compliance among patients to adhere to PA advice, limited availability of PA programmes to refer their patients to, limited time with patients during clinic visits, lack of knowledge regarding PA prescription for CF care, and patients’ health status deeming PA inappropriate. Three-quarters of HCP reported a need to improve PA services for CF patients in Ireland.Conclusion: As people with CF are living longer, it is imperative that HCP are expanding their scope of practice to consistently include discussions around PA at every patient visit, as physical fitness has been shown to be a key predictor of longevity and quality of life in patients with CF. Formal educational opportunities in the form of continuing professional development programmes, with respect to PA prescription for CF populations, are warranted for CF HCP to optimize long-term patient management and outcomes. There is also a need to introduce or enhance motivational interviewing during patient interactions, to elicit positive PA behaviour change.

scholarly journals How can we relieve gastrointestinal symptoms in people with cystic fibrosis? An international qualitative survey

2020 ◽  
Vol 7 (1) ◽  
pp. e000614
Author(s):  
Sherie Smith ◽  
Nicola Rowbotham ◽  
Gwyneth Davies ◽  
Katie Gathercole ◽  
Sarah J Collins ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Online Survey ◽  
Gastrointestinal Symptoms ◽  
Daily Lives ◽  
Web Based ◽  
Qualitative Survey ◽  
Gi Symptoms ◽  
James Lind Alliance ◽  
Adults And Children ◽  
Almost All

IntroductionRelieving gastrointestinal (GI) symptoms was identified as a ‘top ten’ priority by our James Lind Alliance Priority Setting Partnership in cystic fibrosis (CF). We conducted an online survey to find out more about the effect of GI symptoms in CF.MethodsWe co-produced an online survey distributed to the CF community via web-based platforms. The survey consisted of open and closed questions designed to help us learn more about the effects of GI symptoms for people with CF (pwCF). We analysed the data using descriptive statistics and thematic analysis. We promoted the survey via social media and web-based platforms which allowed respondents from any country to take part. Our participants came from the CF community, including: adults and children with CF, parents and close family of pwCF and healthcare professionals (HCPs) working with pwCF.ResultsThere were 276 respondents: 90 (33%) pwCF, 79 (29%) family, 107 (39%) HCPs. The most commonly reported symptoms by lay respondents were stomach cramps/pain, bloating and a ‘combination of symptoms’. The top three symptoms that HCPs said were reported to them were reduced appetite, bloating and constipation. Almost all (94% (85/90)) HCPs thought medications helped to relieve GI symptoms but only 58% (82/141) of lay respondents agreed.ConclusionsOur survey has shown that GI symptoms among our participants are prevalent and intrude on daily lives of pwCF. There is a need for well-designed clinical studies to provide better evidence for management of GI symptoms and complications.

scholarly journals Change in physical activity and stress during COVID-19 in a sample of older adults with exercise habits

2021 ◽  
Vol 15 (2) ◽  
pp. 6-16
Author(s):  
Petr Vajda ◽  
Kateřina Strašilová ◽  
Lenka Svobodová
Keyword(s):  
Physical Activity ◽  
Older Adults ◽  
Perceived Stress ◽  
Online Survey ◽  
Protective Factor ◽  
Exercise Habits ◽  
Perceived Change ◽  
Relationship Of ◽  
The Relationship

BACKGROUNDː The COVID-19 outbreak forced many states to introduce public health and social measures (PHSM), which may pose an obstacle to performing physical activity (PA).METHODS: This study investigated PA levels and their changes and perceived stress in a sample of 193 participants (aged 71.21 ± 4.87 years) engaged in exercise lessons prior to PSHM. Data were collected via an online survey distributed directly to the participants. The survey included two instruments: the International Physical Activity Questionnaire and the Perceived Stress Scale.RESULTS: The results indicate that sports habits may be a protective factor in staying active and meting PA recommendations. Nevertheless, there were no associations between the number of exercise lessons in the pre-COVID-19 period and PA level or the perceived change in PA during PSHM. Ability to replace the cancelled exercise lesson with PA of similar duration and intensity was negatively associated with PA levels and its change. The PSS-10 score suggests that the sample did not experience a significant increase in perceived stress, but the relationship of this outcome to PA is unclear.CONCLUSIONS: The promotion of alternative PA that could be performed during PHSM and building long-term exercise habits in older adults should be considered. 

scholarly journals An Empirical Research on Study Success in Times of COVID-19 Pandemic – a Case Study

2021 ◽  
pp. 17-35
Author(s):  
Christin Voigt ◽  
◽  
Jonas Kötter ◽  
Natallia Kukharenka ◽  
◽  
...  
Keyword(s):  
Online Learning ◽  
Online Survey ◽  
Influencing Factor ◽  
Study Success ◽  
Path Diagram ◽  
Almost All ◽  
The Impact ◽  
Quantitative And Qualitative Methods

The COVID-19 pandemic and measures to contain it pushed many universities to switch to online learning in the spring of 2020. The changes took place very quickly and it became clear that the long-term consequences of such a transformation are uncertain and require more detailed study. This research attempts to analyze the impact of online learning on study success. This research makes use of a triangulation with quantitative and qualitative methods. Quantitatively, it contains path diagram with various factors that have an impact on the study success at a German university, which is based on a quantitative online survey with 1.529 participants. Qualitatively, 49 interviews were analyzed in order to identify reasons for the risk of failing to achieve study success. The relevance of technology becomes evident in the quantitative analysis, as it manifests itself in almost all categories that affect study success. Moreover, a new influencing factor appeared, the “adaption to digital teaching”, which was often considered important qualitatively.

scholarly journals Adiponectin Expression Is Modulated by Long-Term Physical Activity in Adult Patients Affected by Cystic Fibrosis

2019 ◽  
Vol 2019 ◽  
pp. 1-7 ◽  
Author(s):  
Rita Polito ◽  
Ersilia Nigro ◽  
Ausilia Elce ◽  
Maria Ludovica Monaco ◽  
Paola Iacotucci ◽  
...  
Keyword(s):  
Physical Activity ◽  
Cystic Fibrosis ◽  
Forced Expiratory Volume ◽  
Total Serum ◽  
C Reactive Protein ◽  
Protein Levels ◽  
Reactive Protein ◽  
Inflammatory Status ◽  
Inflammatory Processes

Cystic fibrosis (CF) is a genetic disease characterized by progressive decline of lung function and chronic airway inflammation. Adipose tissue, through adiponectin and leptin, exerts several effects on energy metabolism and inflammatory processes. This study evaluated the levels of adiponectin and leptin in adult healthy subjects, in patients with CF and their correlation with long-term physical activity. CF patients were divided into two groups (sedentary versus active) based on their regular physical activity over 3 years. Anthropometric and serum biochemical profiles of CF patients and controls were evaluated and compared. Total serum adiponectin and leptin levels were measured by ELISA; adiponectin oligomeric profiles were analysed by western blot. Adiponectin levels were significantly higher while leptin levels were lower in patients with CF than in healthy controls. Furthermore, adiponectin was significantly lower in active compared to sedentary CF (p=0.047), while leptin was slightly increased in active compared to sedentary CF. In addition, C-reactive protein levels were significantly lower in active than in sedentary CF patients (p=0.048). Interestingly, only in the active group adiponectin levels were inversely correlated with forced expiratory volume (FEV) 1% decrease/year and FEV1% decrease. Moreover, adiponectin levels negatively correlated with lipid profiles. Our findings indicated that regular, long-term physical activity in CF improves respiratory function, metabolism, and inflammation status. These improvements in patients’ conditions are associated with immunometabolic processes involving adiponectin, leptin, and C-reactive protein. Therefore, we propose that both adipokines may be a useful biomarker in the evaluation of metabolic and inflammatory status in patients with CF.

scholarly journals Intrinsic and Extrinsic Motives Support Adults’ Regular Physical Activity Maintenance

2018 ◽  
Vol 02 (03) ◽  
pp. E62-E66 ◽  
Author(s):  
Karly Geller ◽  
Kate Renneke ◽  
Sarah Custer ◽  
Grace Tigue
Keyword(s):  
Physical Activity ◽  
Online Survey ◽  
Self Determination Theory ◽  
Regular Physical Activity ◽  
Activity Levels ◽  
Retrospective Reports ◽  
Physical Activity Levels ◽  
Current Sample ◽  
Physical Activity Maintenance

AbstractMotives for physical activity were compared between adults who either successfully or unsuccessfully maintained regular physical activity over the last 10 years. Adults age 28–45 (N=721) completed an online survey, reporting their current physical activity levels and self-determination theory (SDT) motives, as well as their physical activity levels at least 10 years prior. With participants’ current and retrospective reports of their physical activity, four sample subgroups were created, including maintainers, improvers, decliners, and sedentary. ANOVA analyses were used to examine differences in motives between physical activity maintenance groups. Those who successfully maintained regular physical activity (maintainers) reported higher intrinsic and extrinsic motives compared to those who were not regularly active (P<0.05). Interestingly, maintainers reported similar physical activity motives compared to those who reported increased physical activity over time. Among the current sample and consistent with theory, motives for physical activity significantly influenced participants’ long-term maintenance of regular physical activity. Future interventions should consider these constructs to promote sustained physical activity.

scholarly journals A Personalized Patient-Centered Intervention to Empower through Physical Activity the Patient in the Dialysis Center: Study Protocol for a Pragmatic Nonrandomized Clinical Trial

2020 ◽  
Vol 3 (4) ◽  
pp. 83
Author(s):  
Fabio Manfredini ◽  
Nicola Lamberti ◽  
Yuri Battaglia ◽  
Sofia Straudi ◽  
Martino Belvederi Murri ◽  
...  
Keyword(s):  
Physical Activity ◽  
Clinical Outcomes ◽  
Second Phase ◽  
Patient Centered ◽  
Activity Increase ◽  
Dialysis Center ◽  
Supervised Exercise ◽  
Home Based ◽  
The Impact

Sedentariness of patients affected by end-stage kidney disease (ESKD) expose them to high risk of unfavorable clinical outcomes. Exercise training is effective in improving physical function, quality of life (QoL) and long-term outcomes. However, the existing barriers related to patients, programs and dialysis staff limit patient participation and call for new strategies. This pragmatic nonrandomized trial will test the impact on ESKD population of an intervention proposed by an exercise facilitator regularly present in a dialysis center. The patient will be free to choose among three-month walking and/or resistance low-intensity training programs: (a) guided physical activity increase; (b) home-based exercise; (c) in-hospital (pre/post dialysis) supervised exercise; (d) performance assessment only. The first phase will define feasibility and the characteristics and preference of responders. The second phase will evaluate safety and patients’ adherence. Outcome measures will be collected at baseline, after three-month and at six-month follow-up. They will include: aerobic capacity, QoL, gait speed, strength, depression and long-term clinical outcomes (hospitalization and mortality). The trial was approved by the Area-Vasta Emilia-Romagna Centro Ethics Committee with approval number 48/2019. Written informed consent will be obtained from all participants. The results of the study will be presented in international congresses, published in peer-reviewed journals and communicated to the patient community. Registration details: Clinicaltrials.gov NCT04282616 [Registered:24/02/2020].

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