scholarly journals The Interactive Web-Based Program MSmonitor for Self-Management and Multidisciplinary Care in Persons With Multiple Sclerosis: Quasi-Experimental Study of Short-Term Effects on Patient Empowerment

10.2196/14297 ◽  
2020 ◽  
Vol 22 (3) ◽  
pp. e14297
Author(s):  
Peter Joseph Jongen ◽  
Gezien ter Veen ◽  
Wim Lemmens ◽  
Rogier Donders ◽  
Esther van Noort ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Self Efficacy ◽  
Multidisciplinary Care ◽  
Self Management ◽  
Control Group ◽  
Short Term ◽  
Quasi Experimental ◽  
Program Components

Background Empowerment helps persons with a chronic disease to self-manage their condition and increase their autonomy and participation. MSmonitor (Curavista bv) is an interactive Web-based program for self-management and multidisciplinary care in multiple sclerosis (MS). It includes, among others, short questionnaires on fatigue (Modified Fatigue Impact Scale-5 [MFIS-5]) and health-related quality of life (HRQoL, Leeds Multiple Sclerosis Quality of Life [LMSQoL]); long questionnaires on disabilities, perception of disabilities (Multiple Sclerosis Impact Profile), and HRQoL (Multiple Sclerosis Quality of Life-54); a Medication and Adherence Inventory and an Activity Diary. The combination MFIS-5, LMSQoL, and Medication and Adherence Inventory constitutes the Quick Scan. Objective This study aimed to investigate the short-term effects of MSmonitor on empowerment in patients with MS. Methods We conducted a quasi-experimental study in a general hospital. Of the 180 patients with MS, 125 were eligible, 30 used MSmonitor, and 21 participated in the study (mean age 45.4 years, SD 10.2 years). A total of 24 eligible patients who did not use MSmonitor constituted the control group (mean age 49.3 years, SD 11.4 years). At baseline and at 4 months, we assessed self-efficacy (Multiple Sclerosis Self-Efficacy Scale [MSSES]), participation and autonomy (Impact on Participation and Autonomy [IPA] questionnaire), and self-management (Partners In Health [PIH] questionnaire). Differences between time points and groups were tested with paired t tests and χ² tests. Results In the MSmonitor group, follow-up values remained unchanged for MSSES control (P=.19), MSSES function (P=.62), IPA limitations (P=.26), IPA problems (P=.40), PIH recognition and management of symptoms (P=.52), PIH adherence to treatment (P=.80), and PIH coping (P=.73), whereas the PIH knowledge score had improved (mean 27.8, SD 1.7 vs mean 28.7, SD 2.0; P=.02). The overall utilization rate of the program components was 83% and that of the Quick Scan was 95%. In the control group, all outcomes had remained unchanged. Conclusions The results suggest that for first-time users of the MSmonitor program and their health care providers, it may not be justified to expect a short-term improvement in empowerment in terms of self-efficacy, self-management, autonomy, or participation. Furthermore, a lack of effect on empowerment is not because of nonusage of the program components.

scholarly journals Self-Efficacy Training Improved The Quality of Life for Cancer Patients Undergoing Chemotherapy

2020 ◽  
Vol 12 (4) ◽  
pp. 118
Author(s):  
Agustina Boru Gultom ◽  
Indrawati Indrawati
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Self Efficacy ◽  
Control Group ◽  
P Value ◽  
Anova Test ◽  
Group Data ◽  
Post Test ◽  
Quasi Experimental

The survival of cancer patients is often short despite receiving therapy, but it really depends on various things including those that play an important role is the ability of patients to improve their life status in dealing with illnesses and therapy through increased self-efficacy because self-efficacy of cancer patients often experience reduction due to cancer and the therapy it undergoes. The pre–test and  the first post -test and also  the second post-test research design in the form of self-efficacy training of cancer patients undergoing chemotherapy used  a quasi-experimental design without a control group. Data analysis used dependent t test and repeat ANOVA test. There were significant effects and differences in self-efficacy training on the quality of life of cancer patients undergoing chemotherapy with the  p value dependent test was 0,000 and the repeat ANOVA test was p value 0,000. The uses of structured self-efficacy training be one of the considerations of nursing interventions to improve the quality of life of cancer patients undergoing chemotherapy.

scholarly journals Pet Ownership and Multiple Sclerosis during COVID-19

2021 ◽  
Vol 18 (23) ◽  
pp. 12683
Author(s):  
Holly Oliver-Hall ◽  
Elena Ratschen ◽  
Christopher R. Tench ◽  
Helen Brooks ◽  
Cris S. Constantinescu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Life Satisfaction ◽  
Self Efficacy ◽  
Social Roles ◽  
Control Group ◽  
Apparent Difference ◽  
Pet Ownership ◽  
Long Term Conditions

Background: Multiple sclerosis (MS) is associated with lower quality of life, reduced social participation, and decreased self-efficacy. The COVID-19 pandemic has had documented effects on the health and wellbeing of people with and without MS. Previous research has demonstrated the positive impact pets can have for people living with long-term conditions. Objectives: To explore the rates of pet ownership and pet attachment in people living with MS and pet ownership associations with quality of life, satisfaction with social roles, and self-efficacy scores; and to explore the effects of the COVID-19 outbreak on people’s perceived relationships with their pets. Materials and Methods: A postal questionnaire was distributed to members of a local MS Register and a control group of people without MS. The questionnaire assessed quality of life, satisfaction with social roles, self-efficacy, the perceived roles of pets, and pet-related concerns experienced during the COVID-19 pandemic. Results: No apparent difference in attachment to pets was found between the patient and control groups. Pet ownership and level of attachment were not associated with differences in quality of life or self-efficacy scores in people living with MS. Using multiple regression analysis, pet ownership was associated with a decrease in satisfaction with participation in social roles, but with the estimated effect being small compared to having a diagnosis of MS or being unemployed. Most participants reported that pets had positive roles during the pandemic, and the most reported pet-related concern was access to veterinary treatment. Conclusion: Pet owners both with and without MS reported subjective benefits to their wellbeing from pet ownership during COVID-19, although analysis suggested that pet ownership was associated with a reduction in satisfaction with social roles. The study had several limitations and suggestions are made for future work.

scholarly journals The impact of brief lifestyle self-management education for the control of seizures

2019 ◽  
Vol 28 (6) ◽  
pp. 348-354 ◽  
Author(s):  
Karen-leigh Edward ◽  
Mark Cook ◽  
John Stephenson ◽  
Jo-Ann Giandinoto
Keyword(s):  
Quality Of Life ◽  
Medication Adherence ◽  
Self Efficacy ◽  
Satisfaction With Life ◽  
Self Management ◽  
Control Group ◽  
Management Intervention ◽  
The Impact ◽  
Psychological Quality Of Life

Aim: this study examined a brief lifestyle self-management intervention, based on self-determination theory, to manage seizure frequency, and its effects on health-related quality of life and resilience in people with epilepsy aged over 18 years. Background: most people with epilepsy can identify factors that may trigger seizures and may try to avoid these; however, education from clinicians on this varies. Design: a cohort study with control design. Method: sixty participants were purposively sampled and allocated to an intervention or a control group. Results: moderate correlations were found, particularly between: resilience and satisfaction with life; medication adherence and psychological quality of life; and psychological quality of life and satisfaction with life. The mean seizure occurrences between the control and intervention groups were 12.71 (SD 24.55) and 6.76 (SD 13.40) respectively after the intervention. While the study was not powered to assess this, the intervention may be most effective regarding medication adherence and physical health quality of life. Conclusion: the relationship between self-efficacy and seizure management appeared to be strengthened by the programme. This study is the first known to measure resilience in relation to lifestyle self-management for seizure control in people with epilepsy. Relevance to practice: nurses are well placed to work with patients' strengths towards self-efficacy and potentially resilient coping.

scholarly journals Evaluation of a Fatigue Self-Management Program for People with Multiple Sclerosis

2016 ◽  
Vol 18 (3) ◽  
pp. 116-121 ◽  
Author(s):  
Hilda Mulligan ◽  
Amanda Wilkinson ◽  
Amelia Barclay ◽  
Hayley Whiting ◽  
Christelle Heynike ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Self Efficacy ◽  
Short Form ◽  
Small Sample Size ◽  
Management Program ◽  
Small Sample ◽  
Self Report ◽  
Self Management

Background: Fatigue is one of the most common and debilitating symptoms of multiple sclerosis (MS). The program “Minimise Fatigue, Maximise Life: Creating Balance with Multiple Sclerosis” (MFML) was created in New Zealand because of the lack of a fatigue management program for people with MS in that country. This program aims to empower individuals with MS to manage their own symptoms of fatigue. The objective of this study was to evaluate the MFML fatigue self-management program. Methods: Self-report questionnaires were used to measure impact of fatigue (5-item Modified Fatigue Impact Scale), self-efficacy (MS Self-efficacy Scale), and quality of life (12-item Short Form Health Status Survey [SF-12]) 1 month before (T1), at commencement of (T2) (to investigate the stability of questionnaire scores before the intervention), and at the end of (T3) the 6-week group-based program. Increased self-efficacy and quality of life scores and a decrease in reported impact of fatigue were the anticipated primary outcomes, with participants acting as their own controls. Results: Twenty-five women (aged 37–63 years) participated. Stability of scores for all the questionnaires was evidenced between T1 and T2. After the intervention (T3), scores showed a significant improvement in self-efficacy and impact of fatigue, with large effect sizes, but no change in either the physical or mental component summary of the SF-12. Conclusions: Despite the small sample size, this study showed an organized approach to the management of fatigue for people living with MS, and its outcomes demonstrated benefits for participants.

scholarly journals The Effect of Skill-based Sexual Enhancement Counseling Program in Quality of life in Women with Multiple Sclerosis–a quasi-experimental study

2020 ◽  
Author(s):  
Negin Sayari ◽  
Katayon Vakilian ◽  
Zohre Khalajinia ◽  
Seyyed Amir Hejazi ◽  
Mostafa Vahedian
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Intervention Group ◽  
Control Group ◽  
Medical Procedure ◽  
Care Providers ◽  
Counseling Program ◽  
Significant Difference ◽  
Quasi Experimental

Abstract Background: Multiple sclerosis (MS) is one of the world’s most common neurologic disorders and the leading cause of neurologic disability in young adults. This study aimed to investigate skill-based sexual enhancement counseling on Quality of Life (QLI) of women with Multiple Sclerosis.Methods: the present study is a quasi-experimental design with two groups. Forty-two patients with multiple sclerosis and their spouses (N=88) voluntarily participated in this study based on the inclusion and exclusion criteria. After obtaining the written consent forms, the couples were randomly assigned in two groups. The subjects in the intervention group (N=22 couples) received the skill-based sexual enhancement counseling program in six sessions (each for 90 minutes). The control group just received routine medical procedure during this period. Both groups completed three stages of pretest-posttest, and the standard MSQOL54 questionnaire 3 months later. Data were analyzed by SPSS-20 using descriptive and inferential statistics (repeated measures ANOVA, chi-square, Friedman and t-test).Results: The results showed that the participants' overall quality of life in the intervention group in pretest was 55.32±9.140 which increased to 73.89± 13.39 in posttest and to 92.59±20.45, 3 months later. Also, the physical quality of life showed a significant difference between the two groups 3 months after the intervention (P <0.05). There was a significant difference between the two groups in psychological quality of life, too. The subscales of physical and mental QLI such as sexual satisfaction, sexual function, emotional wellbeing, social function and energy in post-test and follow-up were significantly different (P<0.05).Conclusions: According to the findings, skill-based sexual enhancement counseling program is effective in quality of life enhancement. Therefore, it is recommended to health care providers to use enhancement program alongside the other rehabilitation and medical services to improve the patients' quality of life.

scholarly journals EFFECT OF A WORKBOOK IN HEALTH EDUCATION ON SELF-EFFICACY AND QUALITY OF LIFE OF PATIENTS WITH CORONARY HEART DISEASE

2019 ◽  
Vol 5 (6) ◽  
pp. 218-224
Author(s):  
Aan Nuraeni ◽  
Ristina Mirwanti ◽  
Anastasia Anna
Keyword(s):  
Quality Of Life ◽  
Coronary Heart Disease ◽  
Heart Disease ◽  
Health Education ◽  
Self Efficacy ◽  
Intervention Group ◽  
Control Group ◽  
Validity And Reliability ◽  
Quasi Experimental

Background: Coronary Heart Disease (CHD) has a high recurrence in Indonesia. This condition may occur as a result of the failure of compliance with post-acute management following a heart attack by CHD patients. One of the causes is the lack of effective health education.Objective: The aim of this study was to identify the feasibility of the workbook in improving patients’ self-efficacy (SE) and quality of life (QoL).Methods: This research used a quasi-experimental with pretest-posttest control design. A pretest was done to the patients who were treated in the cardiac intensive unit, and a posttest was carried out at the end of the first and second month after the pretest. The population was all post-acute CHD patients who were admitted to the cardiac intensive unit in one of the referral hospitals in West Java, Indonesia. A purposive sampling was used and obtained 39 respondents who were divided into control and intervention groups. The intervention group was given a health education using a workbook, and the control group was given a direct health education. Self-efficacy was measured using a questionnaire developed by the authors, with high validity and reliability. A SF-12 instrument was used for measuring the quality of life.  Data were analyzed using a descriptive quantitative analysis such as mean, Mann Whitney test, and Independent t-test. To estimate the effects of the intervention to QoL and SE, Kruskal Wallis test and One-way ANOVA were used.Results: The results showed that there was an increase in SE and QoL in both groups, either in the posttest 1 or posttest 2. The comparison of QoL in the pretest, posttest I and II obtained p=.452, .741, and .826, while SE between and within groups obtained p = .732, .220, and .009, respectively.Conclusions: Health education using the workbook was significantly more effective to increase SE than QoL of the CHD patients.

scholarly journals Effectiveness of a Blended Care Self-Management Program for Caregivers of People With Early-Stage Dementia (Partner in Balance): Randomized Controlled Trial (Preprint)

2018 ◽  
Author(s):  
Lizzy MM Boots ◽  
Marjolein E de Vugt ◽  
Gertrudis IJM Kempen ◽  
Frans RJ Verhey
Keyword(s):  
Quality Of Life ◽  
Perceived Stress ◽  
Self Efficacy ◽  
Service Use ◽  
Early Stage ◽  
Depression Scale ◽  
Self Management ◽  
Control Group ◽  
Blended Care

BACKGROUND The benefits of electronic health support for dementia caregivers are increasingly recognized. Reaching caregivers of people with early-stage dementia could prevent high levels of burden and psychological problems in the later stages. OBJECTIVE The current study evaluates the effectiveness of the blended care self-management program, Partner in Balance, compared to a control group. METHODS A single-blind randomized controlled trial with 81 family caregivers of community-dwelling people with mild dementia was conducted. Participants were randomly assigned to either the 8-week, blended care self-management Partner in Balance program (N=41) or a waiting-list control group (N=40) receiving usual care (low-frequent counseling). The program combines face-to-face coaching with tailored Web-based modules. Data were collected at baseline and after 8 weeks in writing by an independent research assistant who was blinded to the treatment. The primary proximal outcome was self-efficacy (Caregiver Self-Efficacy Scale) and the primary distal outcome was symptoms of depression (Center for Epidemiological Studies Depression Scale). Secondary outcomes included mastery (Pearlin Mastery Scale), quality of life (Investigation Choice Experiments for the Preferences of Older People), and psychological complaints (Hospital Anxiety and Depression Scale-Anxiety and Perceived Stress Scale). RESULTS A significant increase in favor of the intervention group was demonstrated for self-efficacy (care management, P=.002; service use P=.001), mastery (P=.001), and quality of life (P=.032). Effect sizes were medium for quality of life (d=0.58) and high for self-efficacy care management and service use (d=0.85 and d=0.93, respectively) and mastery (d=0.94). No significant differences between the groups were found on depressive symptoms, anxiety, and perceived stress. CONCLUSIONS This study evaluated the first blended-care intervention for caregivers of people with early-stage dementia and demonstrated a significant improvement in self-efficacy, mastery, and quality of life after receiving the Partner in Balance intervention, compared to a waiting-list control group receiving care as usual. Contrary to our expectations, the intervention did not decrease symptoms of depression, anxiety, or perceived stress. However, the levels of psychological complaints were relatively low in the study sample. Future studies including long-term follow up could clarify if an increase in self-efficacy results in a decrease or prevention of increased stress and depression. To conclude, the program can provide accessible preventative care to future generations of caregivers of people with early-stage dementia. CLINICALTRIAL Netherlands Trial Register NTR4748; http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=4748 (Archived by WebCite at http://www.webcitation.org/6vSb2t9Mg)

scholarly journals Psychosocial Factors That Influence Quality of Life and Potential for Self-Management in Multiple Sclerosis

2010 ◽  
Vol 12 (3) ◽  
pp. 133-141 ◽  
Author(s):  
Judy Ann Wollin ◽  
Gary Fulcher ◽  
Elizabeth McDonald ◽  
Nancy Spencer ◽  
Miranda Y. Mortlock ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Social Support ◽  
Disease Severity ◽  
Perceived Stress ◽  
Self Efficacy ◽  
Disease Duration ◽  
Self Management ◽  
Mediating Variables

Optimizing quality of life (QOL) and self-management in people with multiple sclerosis (MS) is increasingly seen as a worthwhile goal. This study aimed to investigate factors that affect QOL in MS. A large national sample of Australians with MS (n = 1848) generated from the Australian Multiple Sclerosis Longitudinal Study completed a survey addressing disease duration and severity, self-efficacy, depression, perceived stress, social support, QOL, and self-management. We tested a model of self-help in which antecedent variables are influenced by mediating variables, which in turn affects outcome variables. In the current study, the antecedent variables were disease duration and disease severity; the mediating variables were self-efficacy, depression, perceived stress, and social support; and the outcome variables were QOL and self-management. We also tested the hypothesis that disease severity, depression, and perceived stress would correlate inversely with QOL and potential for self-management, whereas self-efficacy and perceived level of social support would correlate positively with QOL and potential for self-management. The results indicated that the antecedent variables did not correlate with the mediating variables, with one exception: a negative correlation was found between disease severity and social support. No correlations were found between social support and QOL or self-management. However, significant correlations were found between depression, self-efficacy, stress, and social support and QOL. No correlations were found between either the antecedent or the mediating variables and self-management. The results confirm previous findings of statistically significant correlations between psychosocial factors and QOL.

scholarly journals Effect of Self-Management Support for Elderly People Post-Stroke: A Systematic Review

Geriatrics ◽  
2020 ◽  
Vol 5 (2) ◽  
pp. 38
Author(s):  
Sedsel Kristine Stage Pedersen ◽  
Susanne Lillelund Sørensen ◽  
Henriette Holm Stabel ◽  
Iris Brunner ◽  
Hanne Pallesen
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Self Efficacy ◽  
Daily Living ◽  
Psychosocial Outcomes ◽  
Self Management ◽  
Control Group ◽  
Management Support ◽  
Management Interventions

A systematic review was undertaken to determine the efficacy of self-management interventions for people with stroke over the age of 65 in relation to psychosocial outcomes. PubMed, Embase, and PsycInfo were searched for randomized controlled clinical trials. Studies were eligible if the included people with stroke had a mean age ≥65 years in both the intervention and control group. Data on psychosocial measurements were extracted and an assessment of methodological quality was undertaken. Due to heterogeneity across the studies, the results were synthesized narratively. Eleven studies were identified. They included different self-management interventions in terms of theoretical rationales, delivery, and content. Seven psychosocial outcomes were identified: i) self-management, ii) self-efficacy, iii) quality of life, iv) depression, v) activities of daily living, vi) active lifestyle, and vii) other measures. Self-management interventions for people with stroke over the age of 65 may be beneficial for self-management, self-efficacy, quality of life, activity of daily living, and other psychosocial outcomes. However, low study quality and heterogeneity of interventions, as well as variation in time of follow-up and outcome measures, limit the possibility of making robust conclusions.

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