Harnessing novel data sources to understand patients’ perspectives (Preprint)

2022 ◽  
Author(s):  
Richardae Araojo ◽  
Christine Lee ◽  
Christine Merenda ◽  
Anne Hammer ◽  
Michelle Tarver
Keyword(s):  
Social Media ◽  
Minority Health ◽  
Disease Burden ◽  
Unmet Needs ◽  
Data Sources ◽  
Decision Making Process ◽  
Electrical Nerve Stimulation ◽  
Social Media Platforms ◽  
Proper Diagnosis ◽  
Radiological Health

UNSTRUCTURED Patient perspectives are central to the U.S. Food and Drug Administration’s benefit-risk decision-making process in the evaluation of medical products. Traditional channels of communication may not be comfortable for all patients and consumers. Social media websites have increasingly been recognized by researchers as a means to gain insights on patients’ views about treatment and diagnostic options, the healthcare system, and their experiences living with their conditions. Utilizing multiple patient perspective data sources offers the FDA the opportunity to capture diverse patient voices and experiences with chronic pain. The FDA Office of Minority Health and Health Equity (OMHHE) and the Center for Devices and Radiological Health (CDRH) worked with INSPIRE (Clinica Health, Inc.) to conduct a pilot study exploring posts from INSPIRE’s own patient platform and several social media platforms to gain insights into the key challenges and barriers faced by chronic pain patients (CPPs). The most common topics discussed among CPPs were disease burden, support and advocacy needs, and proper diagnosis. The two most frequently discussed treatments were opioids or narcotics, and devices such as transcutaneous electrical nerve stimulation (TENS) machines and spinal cord stimulators. Success in pain reduction was tempered by concerns of stigmatization regarding opioid addiction and dependency. The study illustrates how social listening data may provide valuable insights into diverse patient perspectives, preferences, and unmet needs, especially for conditions that may be perceived as stigmatizing.  

New Data Sources and Presidential Campaigns

2021 ◽  
pp. 000276422110216
Author(s):  
Efe Sevin
Keyword(s):  
Social Media ◽  
Digital Media ◽  
Political Communication ◽  
Presidential Elections ◽  
Positive Outcome ◽  
The United States ◽  
Data Sources ◽  
Presidential Campaigns ◽  
Political Advertisements ◽  
Social Media Platforms

Social media has an undeniable role in presidential campaigns. Starting with Barack Obama’s first presidential campaign in 2008, on one hand, scholars and practitioners have embraced the potential and importance of these platforms. The 2016 presidential elections, on the other hand, raised concerns about social media’s role in democratic processes as debates about how the platforms can sow misinformation have become mainstream. I argue that there has been a positive outcome of such debates: new data sources. Understanding their role—and their probable potential to do “harm”—social media platforms have worked toward increasing transparency in the political advertisements they carry. From Snapchat to Facebook, transparency reports share detailed information on how political groups, including presidential nominees, have utilized their platforms, targeted audiences, and disseminated calls-to-action. In this article, I argue that these transparency attempts will be invaluable data resources for political communication scholars to better explain how voter choice and candidate positioning work within digital media ecology. I answer four sample research questions about 2020 Presidential Elections in the United States to demonstrate the potential of these data sets in shedding light on how issues, identities, and time-relevant variables change political advertising in presidential campaigns.

scholarly journals Temporal and textual analysis of social media on collective discourses during the Zika virus pandemic

2019 ◽  
Author(s):  
May Oo Lwin ◽  
Jiahui Lu ◽  
Anita Sheldenkar ◽  
Ysa Marie Cayabyab ◽  
Zi Han Yee Andrew ◽  
...  
Keyword(s):  
Social Media ◽  
News Media ◽  
Public Discourse ◽  
Textual Analysis ◽  
Data Sources ◽  
Future Research ◽  
The Public ◽  
Social Media Platforms ◽  
Health Event ◽  
The Government

Abstract Background While existing studies have investigated the role of social media on health-related communication, little is known about the potential differences between different users groups on different social media platforms in responses to a health event. This study sets out to explore the online discourse of governmental authorities and the public in Singapore during the recent Zika pandemic in 2016. Methods Social media data were extracted from Facebook and Twitter using retroactive keyword sourcing of the word “Zika” to search for posts and a location filter of “Singapore”. Government posts, public posts, and replies to these original posts were included in the temporal and textual analysis. Results Overall, Facebook contained more government and individual content whereas Twitter had more content from news media accounts. Though the relative volume of Zika content from different data sources paralleled the peaks and troughs of Zika activities across time, discourses from different data sources differed in their temporal patterns, such that the public discourse died down faster than the government discourse after the outbreak was declared. In addition, the content of discourses differed among data sources. While government discourse included factual information of the disease, public discourse contained more elements of care such as worry about the risks to pregnant women, and elements of community such as well-wishes to each other. Conclusions Our study demonstrates the temporal and content differences between user groups and social media platforms in social media conversations during the Zika pandemic. It suggests that future research should examine the collective discourse of a health event by investigating social media discourses within varied sources rather than focusing on a singular social media platform and by one particular type of user.

scholarly journals Temporal and textual analysis of social media on collective discourses during the Zika virus pandemic

2020 ◽  
Author(s):  
May Oo Lwin ◽  
Jiahui Lu ◽  
Anita Sheldenkar ◽  
Ysa Marie Cayabyab ◽  
Andrew Yee Zi Han ◽  
...  
Keyword(s):  
Social Media ◽  
News Media ◽  
Public Discourse ◽  
Textual Analysis ◽  
Data Sources ◽  
Future Research ◽  
The Public ◽  
Social Media Platforms ◽  
Health Event ◽  
The Government

Abstract Background: While existing studies have investigated the role of social media on health-related communication, little is known about the potential differences between different users groups on different social media platforms in responses to a health event. This study sets out to explore the online discourse of governmental authorities and the public in Singapore during the recent Zika pandemic in 2016. Methods: Social media data were extracted from Facebook and Twitter using retroactive keyword sourcing of the word “Zika” to search for posts and a location filter of “Singapore”. Government posts, public posts, and replies to these original posts were included in the temporal and textual analysis. Results: Overall, Facebook contained more government and individual content whereas Twitter had more content from news media accounts. Though the relative volume of Zika content from different data sources paralleled the peaks and troughs of Zika activities across time, discourses from different data sources differed in their temporal patterns, such that the public discourse died down faster than the government discourse after the outbreak was declared. In addition, the content of discourses differed among data sources. While government discourse included factual information of the disease, public discourse contained more elements of care such as worry about the risks to pregnant women, and elements of community such as well-wishes to each other. Conclusions: Our study demonstrates the temporal and content differences between user groups and social media platforms in social media conversations during the Zika pandemic. It suggests that future research should examine the collective discourse of a health event by investigating social media discourses within varied sources rather than focusing on a singular social media platform and by one particular type of users.

MOBILE SOCIAL MEDIA

2018 ◽  
Vol 8 (3) ◽  
pp. 8
Author(s):  
PHILIP ADEBO
Keyword(s):  
Social Media ◽  
Mobile Apps ◽  
Social Revolution ◽  
Social Media Platforms ◽  
The Way

The emergence of mobile connectivity is revolutionizing the way people live, work, interact, and socialize. Mobile social media is the heart of this social revolution. It is becoming a global phenomenon as it enables IP-connectivity for people on the move. Popular social media platforms such as Facebook, Twitter, and MySpace have made mobile apps for their users to have instant access from anywhere at any time. This paper provides a brief introduction into mobile social media, their benefits, and challenges.

Representasi Feminisme dalam Video Klip ‘Nightmare’ oleh Halsey

Koneksi ◽  
2020 ◽  
Vol 4 (2) ◽  
pp. 338
Author(s):  
Faiz Zulia Maharany ◽  
Ahmad Junaidi
Keyword(s):  
Qualitative Research ◽  
Social Media ◽  
Data Collection ◽  
Mass Communication ◽  
Video Clip ◽  
Charles Sanders Peirce ◽  
Patriarchal Culture ◽  
The Social ◽  
Social Media Platforms ◽  
Barrier Wall

'Nightmare' is the title of a video clip belonging to a singer and singer called Halsey, in which the video clip is explained about the figure of women who struggle against patriarchal culture which has been a barrier wall for women to get their rights, welfare and the equality needed they get. This research uses descriptive qualitative research methods. Data collection techniques are done through documentation, observation and study of literature. Then, analyzed using Charles Sanders Peirce's semiotics technique. The results of this study show the fact that signs, symbols or messages representing feminism in the video, 'Nightmare' clips are presented through scenes that present women's actions in opposing domination over men and sarcastic sentences contained in the lyrics of the song to discuss with patriarchy. Youtube as one of the social media platforms where the 'Nightmare' video clip is uploaded is very effective for mass communication and for conveying the message contained in the video clip to the viewing public.‘Nightmare’ adalah judul video klip milik musisi sekaligus penyanyi yang bernama Halsey, dimana pada Video klipnya tersebut menceritakan tentang figur perempuan-perempuan yang berusaha melawan budaya patriarki yang selama ini telah menjadi dinding penghalang bagi perempuan untuk mendapatkan hak-haknya, keadilan dan kesetaraan yang seharusnya mereka dapatkan. Penelitian ini menggunakan metode penelitian kualitatif deskriptif. Teknik pengumpulan data dilakukan melalui dokumentasi, observasi dan studi kepustakaan. Kemudian, dianalisis menggunakan teknik semiotika milik Charles Sanders Peirce. Hasil penelitian ini menunjukan bahwa terdapat tanda-tanda, simbol atau pesan yang merepresentasikan feminisme di dalam video klip ‘Nightmare’ yang dihadirkan melalui adegan-adegan yang menyajikan aksi perempuan dalam menolak dominasi atas laki-laki dan kalimat-kalimat sarkas yang terkandung dalam lirik lagunya untuk ditujukan kepada patriarki. Youtube sebagai salah satu platform media sosial dimana video klip ‘Nightmare’ diunggah sangat efektif untuk melakukan komunikasi massa dan untuk menyampaikan pesan yang terkandung di dalam video klip tersebut kepada masyarakat yang menonton.

Kim Kardashian: the Leader of the Influencers

2019 ◽  
Author(s):  
Laila Fariha Zein ◽  
Adib Rifqi Setiawan
Keyword(s):  
Social Media ◽  
The United States ◽  
Armenian Genocide ◽  
The Public ◽  
Self Defense ◽  
Global Commerce ◽  
The World ◽  
Social Media Platforms ◽  
International Issues ◽  
Global Influence

In today’s world, it is easier and easier to stay connected with people who are halfway across the world. Social media and a globalizing economy have created new methods of business, trade and socialization resulting in vast amounts of communication and effecting global commerce. Like her or hate her, Kimberly Noel Kardashian West as known as Kim Kardashian has capitalized on social media platforms and the globalizing economy. Kim is known for two things: famous for doing nothing and infamous for a sex tape. But Kim has not let those things define her. With over 105 million Instagram followers and 57 million Twitter followers, Kim has become a major global influence. Kim has travelled around the world, utilizing the success she has had on social media to teach make-up master classes with professional make-up artist, Mario Dedivanovic. She owns or has licensed several different businesses including: an emoji app, a personal app, a gaming app, a cosmetics line, and a fragrance line. Not to be forgotten, the Kardashian family show, ‘Keeping Up with the Kardashians’ has been on the air for ten years with Kim at the forefront. Kim also has three books: ‘Kardashian Konfidential’, ‘Dollhouse’, and ‘Selfish’. With her rising social media following, Kim has used the platforms to show her support for politicians and causes, particularly, recognition of the Armenian genocide. Kim also recently spoke at the Forbes’ women’s summit. Following the summit, Kim tweeted out her support for a recent movement on Twitter, #freeCyntoiaBrown which advocated for a young woman who claimed to have shot and killed the man who held her captive as a teenage sex slave in self-defense. Kim had her own personal lawyers help out Cyntoia on her case. Kim has also moved beyond advocating for issues within the confines of the United States. As mentioned earlier, she is known for advocating for recognition of the Armenian genocide. In the last two years, her show has made it a point to address the Armenian situation as it was then and as it is now. Kim has been recognized as a global influencer by others across the wordl. We believe Kim has become the same as political leaders when it comes to influencing the public. Kim’s story reveals that the new reality creates a perfect opportunity for mass disturbances or for initiating mass support or mass disapproval. Although Kim is typically viewed for her significance to pop culture, Kim’s business and social media following have placed her deep into the mix of international commerce. As her businesses continue to grow and thrive, we may see more of her influence on international issues and an increase in the commerce from which her businesses benefit.

“I’ll Take a Shot for Every Like I Get on This Status”: Posting Alcohol- related Facebook Content Predicts Drinking Outcomes

2018 ◽  
Author(s):  
Erin Corwin Westgate ◽  
Kristen Lindgren
Keyword(s):  
Social Media ◽  
Alcohol Use ◽  
Pacific Northwest ◽  
Alcohol Use Disorders ◽  
Drinking Motives ◽  
The Pacific ◽  
Social Media Platforms ◽  
And Coping ◽  
Drinking Outcomes ◽  
Alcohol Related Problems

Objective:This study investigated whether self-reports of alcohol-related postings on Facebook by oneself or one’s Facebook friends were related to common motives for drinking and were uniquely predictive of self-reported alcohol outcomes (alcohol consumption, problems, and cravings).Method:Pacific Northwest undergraduates completed a survey of alcohol outcomes, drinking motives, and alcoholrelated Facebook postings. Participants completed the survey online as part of a larger study on alcohol use and cognitive associations. Participants were randomly selected through the university registrar’s office and consisted of 1,106 undergraduates (449 men, 654 women, 2 transgender, 1 declined to answer) between the ages of 18 and 25 years (M = 20.40, SD = 1.60) at a large university in the Pacific Northwest. Seven participants were excluded from analyses because of missing or suspect data.Results:Alcohol-related postings on Facebook were significantly correlated with social, enhancement, conformity, and coping motives for drinking (all ps < .001). After drinking motives were controlled for, self–alcohol-related postings independently and positively predicted the number of drinks per week, alcohol-related problems, risk of alcohol use disorders, and alcohol cravings (all ps < .001). In contrast, friends’ alcohol-related postings only predicted the risk of alcohol use disorders (p < .05) and marginally predicted alcohol-related problems (p = .07).Conclusions:Posting alcohol-related content on social media platforms such as Facebook is associated with common motivations for drinking and is, in itself, a strong predictive indicator of drinking outcomes independent of drinking motives. Moreover, self-related posting activity appears to be more predictive than Facebook friends’ activity. These findings suggest that social media platforms may be a useful target for future preventative and intervention efforts.

Opportunities for Qualitative Analysis of Social Media Platforms in Dietetic Research and Practice

2020 ◽  
pp. 1-5
Author(s):  
Meghan Lynch ◽  
Irena Knezevic ◽  
Kennedy Laborde Ryan
Keyword(s):  
Social Media ◽  
Low Cost ◽  
Online News ◽  
News Article ◽  
Discussion Forums ◽  
Research And Practice ◽  
The Public ◽  
Related Data ◽  
Social Media Platforms ◽  
Article Comment

To date, most qualitative knowledge about individual eating patterns and the food environment has been derived from traditional data collection methods, such as interviews, focus groups, and observations. However, there currently exists a large source of nutrition-related data in social media discussions that have the potential to provide opportunities to improve dietetic research and practice. Qualitative social media discussion analysis offers a new tool for dietetic researchers and practitioners to gather insights into how the public discusses various nutrition-related topics. We first consider how social media discussion data come with significant advantages including low-cost access to timely ways to gather insights from the public, while also cautioning that social media data have limitations (e.g., difficulty verifying demographic information). We then outline 3 types of social media discussion platforms in particular: (i) online news article comment sections, (ii) food and nutrition blogs, and (iii) discussion forums. We discuss how each different type of social media offers unique insights and provide a specific example from our own research using each platform. We contend that social media discussions can contribute positively to dietetic research and practice.

Coming out of the closet? Audience reactions to the heteronormative disruptive advertising

2020 ◽  
Vol 3 (2) ◽  
pp. 75-102
Author(s):  
Ramasela Semang L. Mathobela ◽  
Shepherd Mpofu ◽  
Samukezi Mrubula-Ngwenya
Keyword(s):  
Social Media ◽  
Human Rights ◽  
Coming Out ◽  
Gender Issues ◽  
Qualitative Approach ◽  
Positive Development ◽  
Global Trend ◽  
Social Media Platforms ◽  
The Media

An emerging global trend of brands advertising their products through LGBTIQ+ individuals and couples indicates growth of gender awareness across the globe. The media, through advertising, deconstructs homophobia and associated cultures through the use of LGBTIQ+s in commercials. This qualitative research paper centres the advancement of debates on human rights and social media as critical in the interaction between corporates and consumers. The Gillette, Chicken Licken‘s Soul Sisters and We the Brave advertisements were used to critically analyse how audiences react to the use of LGBTIQ+ characters and casts through comments posted on the brands‘ social media platforms. Further, the paper explored the role of social media in the mediation of significant gender issues such as homosexuality that are considered taboo to engage in. The paper used a qualitative approach. Using the digital ethnography method to observe comments and interactions from the chosen advertisement‘s online platforms, the paper employed queer and constructionist theories to deconstruct discourses around same-sex relations as used in commercials, especially in quasiconservative. The data used in the paper included thirty comments of the brands customers and audiences obtained from Twitter, Facebook and YouTube. The paper concludes there are positive development in human rights awareness as seen through advertisements and campaigns that use LGBTIQ+ communities in a positive light across the world.

Sign in / Sign up

Export Citation Format

Share Document