scholarly journals Care Burden and Related Factors on the Caregivers of Patients Receiving Service from Hemodialysis Unit

2021 ◽  
Author(s):  
Mucahit AKCIN ◽  
Mahcube CUBUKCU
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Demographic Data ◽  
Hemodialysis Patients ◽  
Related Factors ◽  
Care Burden ◽  
Hemodialysis Unit ◽  
Sf 36 ◽  
The Mean

Introduction Caregivers of hemodialysis patients may experience stress, depression, fatigue, and decreased quality of life. This study aimed to examine the caregiver burden and related factors in patients’ caregivers under dialysis treatment. Method Our study was conducted between February and April 2019 in the Hemodialysis Unit of our Hospital Internal Diseases Clinic. Eighty-three people providing primary care to patients who had received hemodialysis service for at least three months were included in the study. The socio-demographic data of the caregivers were recorded. Care burden was evaluated by Zarit Burden Interview (ZBI) and dependency status with Katz Activities of Daily Living (ADL) instrument. Quality of life was evaluated with the 36-Item Short Form Survey (SF-36). Results The mean age of 183 caregivers included in the study was 46.35 ± 24.20 years; 67.5% of them were female. The mean ZBI score of the caregivers was 32.5 ± 14.4. Care burden was observed to be absent or very mild in 20.5% of the caregivers, mild-moderate in 57.8%, moderate-heavy in 19.3%, and heavy in 2.4%. The care burden was higher in those who felt insufficient to provide care or did not receive help from other family members for patient care (p<0.05). Besides, if the hemodialysis frequency was more than three times a week, the care burden was higher (p=0.003). Care burden was higher in functionally dependent patient (p=0.013). ZBI was negatively correlated with the SF-36 subscales, except for the physical function subscale (p<0.05). Conclusion The care burden was high in primary caregivers of hemodialysis patients. The care burden was higher in caregivers of patients with bedridden, high frequency of hemodialysis, and low quality of life. In addition to hemodialysis patients’ routine treatment, it may be appropriate to develop support groups and new care approaches for caregivers to reduce the care burden.

scholarly journals Self-Reported Musculoskeletal Disorders and Quality of Life in Supermarket Cashiers

2020 ◽  
Vol 17 (24) ◽  
pp. 9256
Author(s):  
Fahad Saad Algarni ◽  
Hatem Askar Alkhaldi ◽  
Hamayun Zafar ◽  
Shaji John Kachanathu ◽  
Abdullah M. Al-Shenqiti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Risk Factors ◽  
Short Form ◽  
Demographic Data ◽  
Body Region ◽  
Related Factors ◽  
Convenience Sample ◽  
Sf 36 ◽  
Supermarket Cashiers

Supermarket cashiers face a significant amount of stress, including time constraints, mental pressure, and physical demands that require repetitive movements. The job description of a supermarket cashier involves work-related risk factors that may lead to musculoskeletal disorder (MSD) symptoms. This study aimed to investigate supermarket cashiers to determine the prevalence of MSD symptoms and their quality of life. Data were collected from a convenience sample of supermarket cashiers working in Saudi Arabia. Information included direct questions on pain in the previous 12 months, demographic data, and health- or occupation-related factors. Moreover, data was collected based on the 36-item short form survey (SF-36), and descriptive statistics were computed. A total of 193 supermarket cashiers participated in this study. The sample included 140 men (72.5%) and 53 women (27.5%), with a mean age of 27.2 ± 6.4 years. The majority of the participants (90%) had MSD symptoms in at least one body region, with the neck (66.84%) and lower back (65.80%) constituting the most prominent regions. The mean SF-36 scores were higher in participants without pain compared to participants with pain in all domains, except for the physical functioning domain. The high prevalence of MSD symptoms among young cashiers suggest the need for additional investigations to determine the risk factors of these disorders. Additionally, this study recommends preventive procedures to reduce the prevalence of MSD symptoms among cashiers.

Relationship between caregiver related factors and their proxy report of quality of life of children with cerebral palsy in Kano City, Nigeria

2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Umaru Muhammad Badaru ◽  
O O Ogwumike ◽  
A Fatai Adeniyi ◽  
A I Naziru
Keyword(s):  
Quality Of Life ◽  
Marital Status ◽  
Rank Order ◽  
Demographic Data ◽  
Well Being ◽  
Cross Sectional Survey ◽  
Related Factors ◽  
Proxy Report ◽  
The Mean

Background: Caregivers have intimate knowledge of their children and can provide reliable information on their quality of life (QoL). Objective: This study assessed the factors that could influence caregiver report of QoL of children with Cerebral Palsy.Methods: The cross-sectional survey recruited 30 caregivers and children diagnosed with CP using purposive sampling technique. QoL was assessed with CP-QoL questionnaire, depression with Patient Health Questionnaire (PHQ-9) and functional level with Gross Motor Function Classification System (GMFCS). Socio-demographic data and perceived stress were assessed with a pro-forma. The data were summarised with descriptive statistics and analysed with Spearman Rank Order correlation at alpha level of 0.05. Results: The mean age of caregivers and that of children with CP were 34.40 ± 7.02 years and 7.23 ± 2.08 years respectively. The mean QoL score was 60.06±4.27. The ‘social well-being and acceptance’ (75.07 ± 9.52) and ‘Access to services’ (66.65±7.87) domains have the highest mean scores. Marital status has significant relationship with proxy report of children’s overall QoL (Rho=0.40; P<0.05) and caregiver depression (Rho=-0.414; P<0.05). Conclusion: Children with CP in Kano City have moderate QoL. Proxy report of overall QoL was significantly related to marital status with married caregivers’ more likely to report better QoL. Child’s functional status, caregivers’ age and their level of income have also influenced the proxy report of some QoL domains. Researchers should always endeavor to compare parents’ and children’s reports in order to obtain a more accurate measure of children’s QoL.

Hemodialysis and peritoneal dialysis—health-related quality of life: systematic review plus meta-analysis

2021 ◽  
pp. bmjspcare-2021-003182
Author(s):  
Samira Raoofi ◽  
Fatemeh Pashazadeh Kan ◽  
Sima Rafiei ◽  
Zahra Hoseinipalangi ◽  
Sepide Rezaei ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Meta Analysis ◽  
Health Condition ◽  
Factors Affecting ◽  
Sf 36 ◽  
Wide Range ◽  
Health Related ◽  
The Mean

BackgroundPatients with end-stage renal disease undergoing haemodialysis experience a variety of stressors leading to decreased level of quality of life (QoL). Thus, in this study, we aimed to review the current literature and identify factors affecting the health-related QoL (HRQoL) in these patients.MethodsA total of 147 studies were extracted from databases of Web of Science, PubMed, Scopus, Google Scholar, and Embase published between January 2000 and December 2020. Data were analysed using R software and results were reported with reference to Preferred Reporting Items for Systematic Reviews and Meta-Analyses standards.ResultsA total of 623 728 patients undergoing dialysis participated in 147 studies in which QoL was assessed by means of two valid questionnaires, including Short-Form 36 (SF-36) and Kidney Disease Quality of Life (KDQOL)-short form V.1.3. Total HRQoL score for patients undergoing dialysis measured by KDQOL was 64.25 (95% CI 55.67 to 72.82). Based on SF-36, the mean score of mental health items was higher than the mean score of physical health condition. Furthermore, meta-regression based on the geographical place of residence revealed that the highest QoL in patients was observed in Japan, 66.96 (95% CI 63.65 to 70.28) and Brazil, 58.03 (95% CI 53.45 to 62.6).ConclusionStudies conducted on HRQoL among patients undergoing dialysis recommend useful strategies to clinicians, letting them assess patients’ QoL in terms of a wide range of physical, mental and environmental aspects.

Stress factors and quality of life in adult hemodialysis patients

2017 ◽  
Vol 6 (4) ◽  
Author(s):  
Camelia SOPONARU ◽  
Ancuta BOJIAN ◽  
Magdalena IORGA
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Well Being ◽  
Physical Symptoms ◽  
Stress Factors ◽  
Related Factors ◽  
Sf 36 ◽  
Access Problems ◽  
Food And Water Intake

The aim of the study is to investigate the influence of physiological and psychosocial stress on the quality of life (QoL) in a group of hemodialysis (HD) patients from our center. Materials and methods: A number of 70 patients were included in the study. We used the Hemodialysis Stressors Scale, in order to estimate the stress level, and the Short Form-36 (SF-36) Health Survey Questionnaire, to evaluate the QoL. Results: The M for age = 54.5 ± 11.7 years and 38.6% were men. Patients with a low level of stress had significantly higher physical health (M = 53,52; p = 0.04) and mental health (M = 51,61; p <0.01) scores. The disease-related factors that induced the highest level of stress were the physical symptoms (1.67 ± 0.68), the food and water intake restrictions (1.64 ± 0.76), the vascular access problems (1.44 ± 0.83), the daily activity limitations (1.22 ± 0.72), the dependence on the medical staff (1.14 ± 0.74). Socio-economical and demographical factors had no effect on stress and QoL. Conclusions:  The study prove the importance of stress for the QoL in HD patients. Efforts should be undertaken to minimize stress factors. Keywords: Dialysis; stress; physical well-being; psychological well-being; quality of life;

Two Sides of the Same Coin: The Positive and Negative Impact of Spiritual Religious Coping on Quality of Life and Depression in Dialysis Patients

2017 ◽  
Vol 36 (4) ◽  
pp. 332-340 ◽  
Author(s):  
Luciano Magalhães Vitorino ◽  
Renata de Castro e Santos Soares ◽  
Ana Eliza Oliveira Santos ◽  
Alessandra Lamas Granero Lucchetti ◽  
Jonas Preposi Cruz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Depressive Symptoms ◽  
Religious Coping ◽  
Depressive Symptomatology ◽  
Short Form ◽  
Hemodialysis Patients ◽  
Sf 36 ◽  
Two Sides

Background: Studies have shown that spiritual/religious beliefs are associated with mental health and health-related quality of life (HRQoL). However, few studies evaluated how spiritual/religious coping (SRC) could affect hemodialysis patients. Objectives: The present study investigated the role of SRC behaviors on HRQoL and depressive symptoms in hemodialysis patients. Design and Participants: This was cross-sectional study with 184 patients. Patients completed the Beck Depression Inventory, Brief SRC Scale, Medical Outcomes Study 36-Item Short-Form Health Survey (SF-36), and a Sociodemographic and Health Characterization Questionnaire. Results: From 218 patients, 184 (84.4%) were included (53.8% male with a median age of 55.9 years). Negative SRC, but not positive SRC, was associated with depressive symptoms. Positive SRC presented significant effects in SF-36 pain and physical and social functioning. On the other hand, negative SRC exhibited significant effects in SF-36 role emotional, energy/fatigue, pain, and physical functioning. Conclusion: SRC influences the mental health and HRQoL in Brazilian hemodialysis patients in two distinct ways. If used positively, it may have positive outcomes. However, if used negatively, it may lead to dysfunctional consequences such as greater depressive symptomatology and affect HRQoL. Health professionals must be aware of these “two sides of the same coin.”

Quality of Life and Depression in Caregivers of Patients with Cancer

2017 ◽  
Vol 41 (S1) ◽  
pp. S653-S653
Author(s):  
I. Feki ◽  
S. Hentati ◽  
R. Sallemi ◽  
M. Moala ◽  
J. Masmoudi
Keyword(s):  
Quality Of Life ◽  
Elderly Patients ◽  
Short Form ◽  
University Hospital ◽  
Related Factors ◽  
Cross Sectional ◽  
Old Patients ◽  
Patients With Cancer ◽  
Sf 36

BackgroundMost elderly patients, with cancer are cared for, by a family member who may be affected by various stressors that can influence their health and quality of life (QOL).ObjectivesTo explore depression, quality of life and its related factors among caregivers of elderly patients with cancer.MethodologyThis is a descriptive and analytical cross-sectional study including 40 primary caregivers of old patients aged 65 or older, with cancer in oncologic radiotherapy service in university hospital Habib Bourguibain Sfax, Tunisia. The short form health survey (SF-36) and Beck inventory (13 items) were used to assess respectively QOL and depression.ResultsThe average age of caregivers was 44.62 years. The sex ratio (M/F) was 0.9. Most of caregivers (75%) had impaired QOL (score ˂ 66.7). The two main components of SF-36 were altered with a standard score of 45 for the physical component and 41.1 for mental component. According to Beck inventory, Depression was present in 67.6% of cases. Impaired QOL of life was significantly correlated with somatic illnesses in the caregiver (P = 0.016), advanced stage of cancer (P = 0.01), financial difficulties (P = 0.04), the non-cohabitation with the patient before the disease (P = 0.031) and depression (P = 0.00).ConclusionAccording to our study, caregiving can have a negative effect on the caregiver's mental and physical health. Assistance and information from healthcare professionals are the key to improving the ability of caregivers to cope with caring for older patients with cancer.Disclosure of interestThe authors have not supplied their declaration of competing interest.

scholarly journals AB0064 EVALUATION OF QUALITY OF LIFE IN RHEUMATOID ARTHRITIS USING SF-36 AND HAQ SCALES

2021 ◽  
Vol 80 (Suppl 1) ◽  
pp. 1063.1-1063
Author(s):  
M. Brahem ◽  
M. Hassayoun ◽  
H. Hachfi ◽  
R. Sarraj ◽  
M. Ardhaoui ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rheumatoid Arthritis ◽  
Disease Activity ◽  
Short Form ◽  
Bodily Pain ◽  
Global Score ◽  
Sf 36 ◽  
The Mean ◽  
The Impact

Background:The assessment of health-related quality-of-life (HRQoL) in rheumatoid arthritis (RA) is becoming a common tool in clinical practice. The medical outcomes survey short form 36 (SF- 36) is one of the most widely used tools for measuring HRQoL in RA as well as the HAQ scale.Objectives:The aim of our study is to evaluate the impact of the RA in the quality of life (QoL) of our patients using the SF-36 and the HAQ questionnaires.Methods:This is a cross-sectional study during a period of the year 2020, including 70 patients followed in the department of Rheumatology in Mahdia, Tunisia. All patients were diagnosed with RA based in ACR 1987/EULAR 2010. We evaluated for each patient, the mean global scale and the eight domains of SF-36 (physical functioning (PF), role physical (RP), bodily pain (BP), general health (GH), vitality (VT), a social functioning (SF), role emotional (RE) and mental health (MH)), scored from 0 (worst) to 100 (best).Results:Our study included 70 patients (59 females/11males) with an age ranged from 21 to 76 years. The mean age was 54 ± 12 years. The mean duration of the disease was 11 ± 10 years [1-40]. The mean number of tender joints was 9.7 ±9.4 and swollen joints were 4.2 ±6.1. The mean disease activity score (DAS28) was 4.6 ±1.9 [1.2-8.4]. The mean HAQ score was 1.5±1.3, 47.1% of patients had specific joint deformations, 82.9% had radiologic involvement and 31.4% had osteoporosis. The biologic analysis showed that the mean ESR was 46.7 ± 30.5 and the CRP was 15.8 ±23.3. Rheumatoid factors were positive in 42.9% of cases, the ACPA were positive in 50% of cases. 84.3% of RA patients were treated by methotrexate, 4.3% were treated by salazopyrin and 11.4% were treated by biologic treatments.The SF-36 global score was 50.4 ± 26.3 [15.3-92.8]. 46 patients (65.7% of cases) had impaired QoL (SF-36<66.7). The means of different domains (PF, RP, BP, GH, VT, SF, RE, MH) were respectively 51; 41.4; 51.4; 50; 51.2; 57.7; 41.9; 59.2. The most severely impacted domains were the RP and RE.Our study showed a significant correlation between the SF-36 global score and the number of tender joints (p=0.002), the DAS28 (p=0.017) and the HAQ(p=0.000).Conclusion:Our study showed that 65.7% of RA patients presented impaired QoL (SF-36<66.7), which is associated with high disease activity. So it’s important to jugulate the disease, in order to ameliorate the quality of life of our patients.References:[1]Matcham, F., Scott, IC, Rayner, L., Hotopf, M., Kingsley, GH, Norton, S.,… Steer, S. (2014). L’impact de la polyarthrite rhumatoïde sur la qualité de vie évalué à l’aide du SF-36: une revue systématique et une méta-analyse. Séminaires sur l’arthrite et les rhumatismes, 44 (2), 123-130. doi: 10.1016 / j.semarthrit.2014.05.001.Disclosure of Interests:None declared

scholarly journals Frequency of headache among university students and its effect on daily living activities

2021 ◽  
Vol 26 (3) ◽  
pp. 535-538
Author(s):  
Ruhsen Öcal ◽  
Ilkin Iyigündogdu ◽  
Nazli Gursoy Kirnap ◽  
Irem Talu ◽  
Defne Alkislar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
University Students ◽  
Short Form ◽  
Demographic Data ◽  
Depression Scale ◽  
Common Symptom ◽  
Factors Affecting ◽  
Sf 36 ◽  
Characteristic Features

Background & Objective: Headache is a common symptom in the general population. The aim of this study was to investigate the frequency of headache among a university students population in Ankara, Turkey; and to evaluate the factors affecting the headache and the effect of headache on students’ quality of life. Methods: A face-to-face questionnaire was applied to all participants in the study. In the questionnaire, demographic data, personal background and family history of the participants as well as the presence of headache were collected. The characteristic features of the headache, accompanying symptoms and medication use for the headache were evaluated. The 36-Item Short Form Survey (SF-36), Beck depression and Beck anxiety scales were administered to all participants. Results: Three hundred and sixty six university students participated in the study. Three hundred and thirty one participants (90.4%) had experienced headache at least once in their lifetime. Headache was more common in women (p˂0.01). Depression was found in 135 (36.9%) students with the Beck depression scale, and anxiety was found in 236 (64.5%) students with the Beck anxiety scale. There was no relationship between depression or anxiety and the presence of headache (p>0.05). Emotional role difficulties, social function, pain and general health scores were significantly lower on SF-36 in the group with headache (p˂0.05) than without headache. Conclusion: Headache adversely affects the quality of life and is a common symptom among university students, independent of depression and anxiety.

scholarly journals AB0715 THE PREVALENCE OF FIBROMIYALGIA IN PATIENTS WITH FAMILIAL MEDITERRANEAN FEVER AND THE RELATIONSHIP BETWEEN FATIGUE AND QUALITY OF LIFE

2021 ◽  
Vol 80 (Suppl 1) ◽  
pp. 1389.1-1389
Author(s):  
S. Ugurlu ◽  
T. Civi Karaaslan ◽  
Z. Toker Dincer ◽  
E. Tarakci
Keyword(s):  
Quality Of Life ◽  
Familial Mediterranean Fever ◽  
Short Form ◽  
Pearson Correlation ◽  
Fibromyalgia Impact Questionnaire ◽  
Sf 36 ◽  
Mediterranean Fever ◽  
The Mean ◽  
The Relationship

Background:Familial Mediterranean Fever (FMF) can cause various muscle diseases. Because it is a chronic auto inflammatory disease, painful trigger points may be encountered in the examination due to a decrease in the pain threshold (1-3).Objectives:The aim of this study was to determine the prevalence of Fibromiyalgia in patients with FMF, at the same time to identify the relationship between fatigue and quality of life.Methods:Sixtyseven patients (38 female, 29 male) with FMF were enrolled in the study. They were diagnosed with FMF based on the Livneh diagnostic criteria (4). Fibromyalgia involvement of the patients was evaluated according to the Fibromyalgia Impact Questionnaire (FIQ). Patients with diagnose with other chronic disease were excluded. Fatigue Severity Scale (FSS) was used to evaluate fatigue. Quality of life was evaluated with Short Form-36 (SF-36).Results:Respectively, the mean age, disease duration and body mass index were 34.46±12.69 years, 12.66±7.86 years and 24.96±5.42 kg/m2. In addition, 65% of the patients had no rheumatic disease in their family history. The mean of scores of FIQ was 38.66±25.14, the mean of FSS was 38.07±17.56, the mean of SF-36-PCS was 45.55±10.54 and SF36-MCS was 30.93±17.39. Patients were categorized as mild (n=28), moderate (n=24) and severe (n=15) affected according to their FİQ score. The relationships of scores of FIQ, FSS and SF-36 were demonstrated Table 1.Conclusion:Fibromyalgia symptoms can be seen in FMF. According to our results, it has been shown that patients with moderate and severe symptoms have increased fatigue levels and decreased quality of life. In the light of these results, we can say that also the fibromyalgia symptom of patients with FMF should be considered in the treatment.References:[1]Sari, Ismail; Birlik, Merih; Kasifoglu, Timucin. Familial Mediterranean fever: an updated review. European journal of rheumatology, 2014, 1.1: 21.[2]Alayli G, Durmus D, Ozkaya O, Sen HE, Genc G, Kuru O. Frequency of juvenile fibromyalgia syndrome in children with familial Mediterranean fever: effects on depression and quality of life. Clin Exp Rheumatol 2011; 29: S127-32.[3]Langevitz P, Buskila D, Finkelstein R, Zaks N, Neuman L, Sukenik S, et al. Fibromyalgia in familial Mediterranean fever. J Rheumatol 1994; 21: 1335-7.[4]Bashardoust, Bahman. Familial Mediterranean fever; diagnosis, treatment, and complications. Journal of nephropharmacology, 2015, 4.1: 5.Table 1.The correlations of FIQ, FSS and SF-36 scores.FSSSF-36 PCSSF-36 MCSFIQ-mildmean±sd23.78±14.8853.34±7.0140.98±13.73r0.595**-0.014-0.551**p0.0010.9440.002FIQ-moderatemean±sd45.75±10.8341.09±8.8938.13±9.19r0.053-0.379-0.145p0.8060.0680.498FIQ-severemean±sd52.46±10.1138.13±9.1920.32±15.68r0.622*-0.548*-0.268p0.0130.0350.333-Pearson CorrelationDisclosure of Interests:None declared

scholarly journals Hemodialysis patients perceived exercise benefits and barriers: the association with health-related quality of life

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Mansour Ghafourifard ◽  
Banafshe Mehrizade ◽  
Hadi Hassankhani ◽  
Mohammad Heidari
Keyword(s):  
Quality Of Life ◽  
Kidney Disease ◽  
Short Form ◽  
Pearson Correlation ◽  
Hemodialysis Patients ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Mean

Abstract Background Patients on hemodialysis have less exercise capacity and lower health-related quality of life than healthy individuals without chronic kidney disease (CKD). One of the factors that may influence exercise behavior among these patients is their perception of exercise benefits and barriers. The present study aimed to assess the perception of hemodialysis patients about exercise benefits and barriers and its association with patients’ health-related quality of life. Methods In this cross-sectional study, 227 patients undergoing hemodialysis were randomly selected from two dialysis centers. Data collection was carried out using dialysis patient-perceived exercise benefits and barriers scale (DPEBBS) and kidney disease quality of life short form (KDQOL-SF). Data were analyzed using SPSS software ver. 21. Results The mean score of DPEBBS was 68.2 ± 7.4 (range: 24 to 96) and the mean KDQOL score was 48.9 ± 23.3 (range: 0 to 100). Data analysis by Pearson correlation coefficient showed a positive and significant relationship between the mean scores of DPEBBS and the total score of KDQOL (r = 0.55, p < 0.001). Moreover, there was a positive relationship between the mean scores of DPEBBS and the mean score of all domains of KDQOL. Conclusion Although most of the patients undergoing hemodialysis had a positive perception of the exercise, the majority of them do not engage in exercise; it could be contributed to the barriers of exercise such as tiredness, muscle fatigue, and fear of arteriovenous fistula injury. Providing exercise facilities, encouraging the patients by the health care provider to engage in exercise programs, and incorporation of exercise professionals into hemodialysis centers could help the patients to engage in regular exercise.

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