scholarly journals Assessment of quality of life and physical and mental health in children and adolescents with coeliac disease compared to their healthy peers

2019 ◽  
Vol 147 (5-6) ◽  
pp. 301-306
Author(s):  
Bilјana Stojanovic ◽  
Rasa Medovic ◽  
Nela Djonovic ◽  
Zoran Lekovic ◽  
Dragan Prokic ◽  
...  

Introduction/Objective. Strict gluten-free diet for life is the only treatment for patients with coeliac disease. Limited selection of food options can affect their quality of life and cause problems in acceptance by their peers. The aim was to examine the subjective quality of life experience in children and adolescents with coeliac disease and to obtain a comprehensive representation of physical and mental impairments and social functioning compared to their healthy peers. Methods. The study was conducted as a cross-sectional study. It included 116 respondents aged 5?18 years with coeliac disease and 116 healthy children of similar age and sex. A Serbian version of Pediatric Quality of Life Inventory (PedsQL) was used to measure the quality of life in children. Descriptive statistics were calculated to analyze all results, while t-test was used to compare them. Results. The mean value of total PedsQL score was lower in the coeliac disease patients (75.89 ? 20.35) than in the controls (86.35 ? 11.13). Additionally, the experimental group reported lower all PedsQL Scale scores than the control group in the domains of psychosocial, school, social, and emotional functioning. However, there was no statistically significant difference on the physical health scale. These results were the same in all age groups among both males and females. Conclusions. The disturbance of health-related quality of life in children and adolescents with coeliac disease is significant and the quality of life is lower if compared to their healthy peers.

Author(s):  
Sandra Tapiņa ◽  
Kristīne Vasīte ◽  
Valda Bebre-Putka ◽  
Elza Gārša ◽  
Ingrīda Rumba-Rozenfelde

Abstract In Latvia, no studies on the quality of life (QoL) of healthy children have been conducted. Determining the quality of life of children is an essential part of evaluating the health status of children. The subjective assessment of the individuals about their quality of life provides an opportunity to evaluate the quality of life of the population in the public health sector. The aim of this cross-sectional study was to evaluate the quality of life of healthy children and adolescents in Latvia in the age group from 8 to 18, as well as to compare the answers between children and their parents living in Latvia. This study also gave an opportunity to compare the results of children and their parents living in Europe. Quality of life measurements were obtained using the KIDSCREEN-52 questionnaire, which was filled out by 100 healthy children/adolescents and 100 of their parents/guardians. The quality-of-life questionnaire consisted of ten dimensions. When evaluating the quality of life of children and adolescents by gender, no statistically significant difference was found in Latvia (p > 0.05). There was no statistically significant difference (p > 0.05) between children of 8 to 11 years of age and children of 12 to 18 years of age. A statistically significant difference was found between the 8 to 11 and 12 to 18-year-old groups of young healthy children in some dimensions. In the response dimensions, self-perception (“SEL”) and emotions (“EMO”), their QoL was significantly higher (p < 0.05) in the age group from 12 to 18 years healthy children than in the age group of 8 to 11 years. Differences in child/adolescent quality of life results between Latvia and Europe were not statistically significantly different in all 10 HRQoL dimensions (p > 0.05).


2018 ◽  
Vol 6 (8) ◽  
pp. 1413-1418 ◽  
Author(s):  
Samaneh Kouzegaran ◽  
Parisa Samimi ◽  
Hamid Ahanchian ◽  
Maryam Khoshkhui ◽  
Fatemeh Behmanesh

BACKGROUND: Asthma is the most prevalent chronic disease in the pediatric age group. The disease affects different aspects of the children's lives, such as physical, emotional, social and educational aspects. Thus, more focus has been on the quality of life in these patients rather than the duration of their illness in recent years.AIM: This study examined the different aspects of quality of life in asthmatic children for the first time in this geographic area.METHODS: The study was cross-sectional conducted in 2015-2016. The asthmatic group was 100 patients aged 8 to 12 admitted to the Asthma and Allergy Clinic of Ghaem Hospital (as) in Mashhad with the control group composed of 100 healthy children of the same age and gender. The standard questionnaire pedsQLTM was used for comparing the quality of life of children in the two groups. Statistical analysis was SPSS23 with P-value less than 0.05, which was statistically significant.RESULTS: In each group, 58 patients were boys, and 42 were girls. In a comparison of the quality of life of children, the asthma group with a mean total score of Peds QL 20.99 ± 12.54 compared to the healthy children with a mean total score of Peds QL of 8.8 ± 5.41 had a lower quality of life (P < 0.001). Moreover, regarding various aspects of quality of life asthma group had a lower quality of life in physical performance, emotional performance and performance in school (P < 0.001). Nonetheless, there was no significant difference between the two groups considering social function (P = 0.267). Examining the relationship between Peds QL score of patients with asthma with various variables was indicative of the fact that Peds QL scores were significantly correlated with the gender of the patients, showing better quality of life in the girls (P = 0.001).CONCLUSION: The results indicated that children with asthma have a significantly lower quality of life compared with healthy children of the same age. Also, in examining the different aspects of quality of life, these children had a lower quality of life in physical performance, emotional performance, and performance at school, and were at the level as that of healthy children only in social performance.


2021 ◽  
Vol In Press (In Press) ◽  
Author(s):  
Farhad Abolnezhadian ◽  
Soheila Sabzali ◽  
Seyed Mohammadreza Mirkarimi

Background: Asthma is identified as the most prevalent chronic non-communicable childhood illness at any age worldwide, mainly affecting health, functioning, and pediatric quality of life (PedsQL) dimensions in children. Objectives: The current study aimed to evaluate the status of the PedsQL in asthmatic children versus healthy controls for the ultimate goal of developing childhood asthma community-based integrated preventive and management programs. Methods: This analytic cross‐sectional study was carried out on 96 children participants with asthma and 95 healthy children, aged eight to twelve years, from January to December 2019. The different aspects of quality of life (QoL) and demographic characteristics of all subjects with the same age and gender were examined using the standardized disease-specific PedsQL questionnaire (consisting of 23 items) and the personal information questionnaire, respectively. The P < 0.05 criterion was set as the significance threshold. Results: The outcomes of patients’ responses associated with the PedsQL subscale showed significantly lower mean scores in children with controlled asthma compared to healthy children (P < 0.001). This model covered physical, emotional (significantly lower mean scores), psychological, and social effects in addition to school functions, showing statistically significant differences between the two groups (P < 0.001). In contrast to physical and school-related activities, lesser social status, emotional characteristics, and an overall score of QoL were significantly associated with poor QoL in lower-income children (P < 0.001). No significant difference was found between the two groups regarding sex, maternal educational level, or family income, but the two groups were significantly different in terms of paternal educational level and smoking (P < 0.05). Conclusions: It was found that asthma had profound unfavorable effects on patients’ healthy lifestyles and activities, mostly concerning daily physical activities, socio-emotional functioning, intellectual performance, school productivity, and psychological harmonization.


2020 ◽  
Author(s):  
Marjane Cardoso ◽  
Caroline Jacoby Schmidt ◽  
Gabriela Motter ◽  
Gabrielle Costa Borba ◽  
Tatiana Helena Rech ◽  
...  

Abstract Background : people with Cystic Fibrosis (CF) have progressive limitation to physical exercise and reduced daily living activities. Regular physical activity (PA) and exercise contribute to the quality of live of people with CF. The objective of this study was to evaluate level of PA , lung function and functional capacity in children and adolescents diagnosed with CF and compare them with those of healthy children and adolescents. Methodology: the study had a cross-sectional design with a control group. Patients with CF were followed at the Children’s Pneumology Outpatient Clinic, and were matched for age and sex with healthy controls from a local public school. The evaluations included daily step count, the shuttle walk test and spirometry. Results: 70 children and adolescents were evaluated, 35 diagnosed with CF and 35 healthy controls. The overall mean age was 11.6±2.9 years. There was no significant difference in level of PA between the patient and control groups. Gender analysis revealed no significant difference in level of PA between the groups or within the CF group. The CF group values were significantly lower than the control group for BMI (p=0.04), percentage of predicted FEV 1 and FEV 1 Z-score (p=0.02 and p=0.010). Conclusion: In this sample, children and adolescents with CF had the same level of PA as their healthy peers. Boys and girls with CF had similar level of PA when stratified by sex, as well as when compared to healthy peers of the same gender. Differences were observed between BMI, FEV 1 and some functional capacity test variables between the groups.


2019 ◽  
Vol 29 (8) ◽  
pp. 1082-1087 ◽  
Author(s):  
Line M. Holst ◽  
Jonas B. Kronborg ◽  
Lars Idorn ◽  
Jesper V. Bjerre ◽  
Niels Vejlstrup ◽  
...  

AbstractObjective:To describe the impact of CHD surgery in early childhood on quality of life in children aged 10–16 years with surgically corrected Ventricular Septal Defect, Transposition of the Great Arteries, and Tetralogy of Fallot.Method:A cross-sectional survey study of quality of life survey on 161 children and adolescents aged 10–16 years with surgically corrected Ventricular Septal Defect, Transposition of the Great Arteries, and Tetralogy of Fallot. The international Paediatric Quality of Life 4.0 quality of life questionnaires were applied and collected for assessment from patients and parents. The endpoints were total, physical, emotional, social, and school quality of life scores.Results:The quality of life total and school scores was significantly lower in children with CHD than their healthy peers. There was no significant difference in quality of life between the three CHD groups. All three CHD groups had a significantly lower total (7.7–13.2%, p<0.001) and school scores (21.1–31.6%, p<0.001) than the control group. The tetralogy of Fallot group was the only group that had significantly lower scores in the physical subscale (p<0.001) than the controls.Conclusion:Children and adolescents with surgically corrected CHD show losses in quality of life in total and school scores compared to healthy controls. The tetralogy of Fallot group was the only CHD group that had significantly lower physical score than the controls.


2013 ◽  
Vol 2 (2) ◽  
pp. 49-53
Author(s):  
Fatemeh Bahramnezhad ◽  
Ahmad Ali Asadi Noughabi ◽  
Pouya Farokhnezhad Afshar ◽  
Simin Marandi

Background: Guidelines recommend that exercise training can beconsidered for medically stable outpatients with heart failure; thus, this study sought to determine the effect of exercise on quality of life in patients with heart failure.Patients and Methods: In this cross sectional study 160 patients were included and divided into 2 groups (n=80). Intervention group performed the exercise (poly striding), 30 minutes three times a week, for 8 weeks. After 8 weeks, the exercises have not been followed for six months; SF36 Questionnaire was filled to assess the quality of life for the individuals in both groups in three steps: before the intervention, and 3 and 6 months after. After completion of questionnaires, quality of life was compared between the two groups and all the data were analyzed using descriptive and inferential statistics.Results: The mean ages of the intervention and control groups were 61.65±17.5 and 64.116±17.4 years, respectively. Control group had significant decrease in quality of life at different stages of the study. Quality of life was significantly better in the intervention group comparing to the control group three months after the intervention despite the lack of significant difference before the intervention and after 6 months.Conclusion: Results showed a positive effect of exercise on quality of life in patients but the failures and lack of continuity did not improve the overall quality of life of patients as compared with their condition before the exercise. Overall, regular exercise is recommended for these patients.


2018 ◽  
Vol 4 ◽  
pp. 3-13
Author(s):  
Yuriy Dumanskiy ◽  
Oleksandr Bondar ◽  
Oleksandr Tkachenko ◽  
Evhenii Stoliachuk ◽  
Vasilii Ermakov

In recent years, breast cancer (BC) is the most common cancer pathology and the most common cause of disability among women in developed countries. Finding the most effective ways of interaction between the patient and the doctor creates the preconditions for the necessary analysis of the treatment process from an objective and subjective point of view. Therefore, an important indicator to be taken into account is the quality of life of a patient. To compare the indicators of a comprehensive assessment of the quality of life of patients to the adverse locally advanced forms (LA) of breast cancer before and after systemic intravenous polychemotherapy (SPCTx) and selective endolymphatic polychemotherapy (ELPCTx) in neoadjuvant mode. The study was conducted on the basis of a random analysis of outpatient cards from 112 patients with LA BC T4A-DN0-3M0 who received a comprehensive antitumor treatment on the basis of the Donetsk regional antitumor center and the University Clinic of the Odessa National Medical University from 2000 to 2017, which was proposed a questionnaire at various stages of preoperative treatment. The first (control) group consisted of 65 patients (58 %) with inoperable forms of LA BC, which was performed in neoadjuvant mode by SPCTx. The second (study group) included 47 patients (42 %) with inoperable forms of LA BC, which was performed as a neoadjuvant course ELPCTx. According to the integral indicators of quality of life and quality of health between patients in the control and study groups, there was no statistically significant difference. In a detailed analysis of the indicators of symptomatic scales, the difference between the groups did not exceed the critical. Based on the results of a study conducted among patients receiving endolymphatic chemotherapy in a neoadjuvant mode, the subjective evaluations of treatment in absolute numbers have better reference values without statistical superiority. The study of the integrative indicator of quality of life and its discrete elements is an ergonomic and economical means of heuristic assessment of the health of patients in order to further develop more rational and convenient ways of solving urgent issues of modern oncology by increasing compliance and finding a compromise between the physician and the patient.


2020 ◽  
Vol 10 (1) ◽  
Author(s):  
Aneta Bac ◽  
Magdalena Wróbel ◽  
Katarzyna Ogrodzka-Ciechanowicz ◽  
Edyta Michalik ◽  
Anna Ścisłowska-Czarnecka

Abstract The assessment of the six-week influence of Kinesio Taping combined with a rehabilitation on selected ultrasonography measurements, the level of disability, and the quality of life in patients with rotator cuff lesions. 60 participants were randomly assigned into a taping group (KT combined with a six-week rehabilitating protocol) and a control group (only rehabilitation protocol). In all patients the following assessments were performed twice: USG, UEFI and NHP questionnaires. In the examination of the subacromial space and the subacromial bursa in the taping group, no statistical significance was observed. A statistically significant change in the thickness of the muscles was obtained only for the thickness of the infraspinatus in the taping group. A statistically significant change was obtained in the assessment of tendinopathy only for the supraspinatus muscle in both groups. Within both groups a statistically significant difference was observed in the average UEFI and NHP scores; however, the differences in the scores obtained between the groups were not statistically significant. The use of KT with a rehabilitation program did not yield statistically significantly better results in the improvement of selected shoulder region indicators, the function of the upper limb and the quality of life.


2020 ◽  
Vol 41 (Supplement_2) ◽  
Author(s):  
V Houben ◽  
J.A Snoek ◽  
E Prescott ◽  
N Mikkelsen ◽  
A.E Van Der Velde ◽  
...  

Abstract Background and purpose Although participation in cardiac rehabilitation (CR) improves quality of life (QoL), participation in CR, especially among elderly, is limited. We conducted this study to assess whether mobile home-based CR (mCR) increases QoL in elderly (≥65 years old) patients with coronary artery disease (CAD) or a valvular intervention who decline participation in conventional CR. Methods It is designed as a randomised multi-centre study with two parallel arms. Randomisation assigned patients either to mCR or a control group. mCR Consisted of six months of home-based CR with telemonitoring and coaching. Control-group patients did not receive any form of CR throughout the study period. Quality of life was measured with the SF-36v2 questionnaire at 0, 6 and 12 months. Results A total of 179 patients were included in this study (90 control, 89 mCR). A flowchart of the trial is presented in Figure 1. Patients were predominantly male (81.1%). Baseline characteristics can be found in Table 1. Patients using mCR improved on physical QoL after 6 (p=0.026) and 12 (p=0.008) months. There was no difference on mental QoL for both groups (mCR 6 months p=0.563, 12 months p=0.945; control 6 months p=0.589, 12 months p=0.542). No difference existed in QoL between the mCR and control group (physical: 6 months p=0.070, 12 months p=0.150; mental: 6 months p=0.355, 12 months p=0.625). Conclusion Although there is no significant difference in QoL between the control and mCR group, mCR increases physical QoL after 6 and 12 months in elderly patients who decline participation in conventional CR. Therefore E-Health tools should be considered as an alternative for conventional CR when (elderly) patients decline to participate in conventional CR. Figure 1. Flow chart of all eligible patients Funding Acknowledgement Type of funding source: Public grant(s) – EU funding. Main funding source(s): European Union's Horizon 2020 research and innovation programme


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