scholarly journals Multidimensional Symptom Burden among Patients with Hemodialysis in Indonesia

2021 ◽  
Vol 9 (2) ◽  
pp. 159
Author(s):  
Hinin Wasilah ◽  
Dhea Natashia ◽  
Chen- Hui Huang ◽  
Hsing- Mei Chen ◽  
Miaofen Yen
Keyword(s):  
Descriptive Analysis ◽  
Psychological Symptom ◽  
Symptom Burden ◽  
Physical Symptom ◽  
Descriptive Study ◽  
One Dimension ◽  
Convenience Sample ◽  
Referral Hospitals ◽  
Multiple Symptoms

Patients with hemodialysis commonly experience multiple symptoms. Most of the previous studies analyzedthe symptoms as one dimension such as the severity dimension. Conducting the comprehensive symptomassessment among patients with hemodialysis is necessary to gain a better understanding of the symptom burden.The aim of this study was to identify symptom burden among patients with hemodialysis comprehensively.This study was a descriptive study. A convenience sample of 320 patients undergoing hemodialysis was recruitedfrom the dialysis units at two referral hospitals in Indonesia (Fatmawati Hospital and Cipto MangunkusumoNational Hospital). Indonesian Version of Chronic Kidney Disease – Symptom Burden Index (CKD-SBI) wasused. For the data analysis, descriptive analysis was used. Total 320 subjects were collected. This study foundthat lack of energy was the highest physical symptom burden under 4 dimensions: occurrence 269 (84.0%),severity (mean = 4.28, SD = 3.08), distress (mean = 4.42, SD = 3.09), and frequency (mean = 4.41, SD = 3.27).Furthermore, decreased interest in sex was the highest psychological symptom burden under for dimensions:occurrence 210 (65.6%), severity (mean = 3.39, SD = 3.38), distress (mean = 2.92, SD = 2.99), frequency(mean = 3.70, SD = 3.65). Lack of energy and decreased interest in sex were consistently the highest symptomburden among patients with hemodialysis. Creating appropriate interventions and managing the symptomsexperienced by patients with hemodialysis comprehensively is very important to improve their quality of life.

scholarly journals Quality of life in a real-world study of patients with metastatic colorectal cancer treated with trifluridine/tipiracil

2020 ◽  
Vol 27 (5) ◽  
Author(s):  
W.Y. Cheung ◽  
P. Kavan ◽  
A. Dolley
Keyword(s):  
Quality Of Life ◽  
Colorectal Cancer ◽  
Metastatic Colorectal Cancer ◽  
Real World ◽  
Symptom Burden ◽  
Physical Symptom ◽  
Activity Impairment ◽  
Cross Sectional ◽  
Patient Reported

Background Quality of life (qol) is important for oncology patients, especially for those with late-stage disease. The present study was initiated to address the lack of published prospective data about the qol benefits of trifluri­dine/tipiracil (tfd/tpi) compared with best supportive care (bsc) in patients with refractory metastatic colorectal cancer (mcrc). Methods This prospective, cross-sectional, non-interventional study used multidimensional validated scales to evaluate patient-reported qol in two study cohorts of patients and also to measure differences in mcrc-related symptoms and pain in a real-world clinical setting. Results Our findings demonstrate that patients with refractory mcrc report better overall qol when treated with tfd/ tpi than with bsc alone. In that population, statistically significant differences in mean qol measures favoured tfd/tpi over bsc for physical symptom distress, psychological distress, activity impairment, overall valuation of life, and symptomatology. The overall better qol for patients receiving tfd/tpi implies that treatment was well tolerated and was associated with a lower symptom burden. No significant differences for pain were observed between the groups. Conclusions This study suggests that tfd/tpi is a well-tolerated option for the treatment of patients with refractory mcrc, showcasing the value of capturing real-world qol data in routine clinical practice.

Moving palliative care upstream for patients diagnosed with head and neck cancers.

2020 ◽  
Vol 38 (29_suppl) ◽  
pp. 227-227
Author(s):  
Tamara M Day
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Head And Neck ◽  
Symptom Burden ◽  
Psychosocial Distress ◽  
Head And Neck Cancers ◽  
Improve Quality ◽  
Convenience Sample

227 Background: Adults with cancer face complex treatment choices and symptom burden that impact their quality of life. Goals of palliative care (PC) are to reduce symptom burden and improve quality of life. Strong evidence exists that PC helps reduce symptom burden, decreases hospital utilization, and improve quality of life. Yet, PC remains underutilized, especially in the context of cancer care. Methods: This descriptive longitudinal study evaluated whether use of a psychosocial distress screening tool would help identify patients eligible for PC. A convenience sample of adults with diagnosis of head and neck cancers presenting to an otolaryngology clinic, located in the cancer center of a Midwestern academic health system, were screened for eligibility for PC referral. If eligible, the provider was notified and introduced PC to the patient. Upon acceptance, a PC referral was ordered. The project consisted of baseline (n = 61) and follow-up chart reviews (n = 60) of patients seen in clinic during over a 3-month period. Results: We found an increase in PC referrals from 14.6% at baseline to 30.8% in follow-up, a 227% increase. Psychosocial distress screenings increased from 5% at baseline to 45% in follow-up, an increase of 200%. Of patients who received a PC referral, 85.6% accepted. There were statistically significant differences found between the pre- and post-intervention groups for marital status, χ2 (3) = 9.67, ( p = .02); and cancer stage χ2 (4) = 21.35, ( p = .00) with increased referrals for married patients at higher cancer stages in the prospective group. Conclusions: This study has shown physicians maybe more likely to offer PC referrals based on cancer stages, and not based on psychosocial distress symptoms. Potential barriers to early referral to PC were identified and could serve as useful information for future studies.

scholarly journals Penerapan Prinsip Good Governance Terhadap Kualitas Pelayanan Publik

2020 ◽  
Vol 1 (2) ◽  
pp. 273-287
Author(s):  
Listriyanti Palangda ◽  
Joubert M Dame
Keyword(s):  
Statistical Analysis ◽  
Public Services ◽  
Good Governance ◽  
Descriptive Analysis ◽  
Descriptive Study ◽  
Sampling Techniques ◽  
Analysis Technique ◽  
Quantitative Descriptive ◽  
Descriptive Statistical Analysis

This study aims to determine the application of the principles of good governance, the quality of public services, and the effect of applying the principles of good governance on the quality of public services at the Makassar City Land Office. This research is a quantitative descriptive study using incidental sampling techniques. The data was collected by using a questionnaire, conducting interviews, observation, and documentation. The data analysis technique used is descriptive statistical analysis and inferential statistics (product moment correlation test) using the SPSS 18 application. The results of the descriptive analysis show that the application of the principles of good governance and the quality of public services at the Makassar City Land Office belongs to the good category in terms of indicator measuring the variable. The result of the product moment correlation analysis shows that the effect of the application of the principles of good governance governance on the quality of public services is 0.790, which is positive, which means that the level of influence is in the strong category.

scholarly journals Symptom Burden of Patients with Haematological Malignancy

2021 ◽  
Vol 46 (3) ◽  
pp. 196-203
Author(s):  
Syeda Subrina Siddika ◽  
Md Anisur Rahman ◽  
AKM Mynul Islam ◽  
Syeda Tasfia Siddika ◽  
Khursheda Akhtar ◽  
...  
Keyword(s):  
Family Income ◽  
Haematological Malignancy ◽  
Symptom Control ◽  
Psychological Symptom ◽  
Symptom Burden ◽  
Physical Symptoms ◽  
Symptom Distress ◽  
Cross Sectional ◽  
Multiple Symptoms ◽  
Distress Scale

Background: Haematological malignancy and its treatment produce multiple symptoms that significantly distress patients and impair function. Symptoms caused by treatment may delay treatment or lead to premature treatment termination and residual treatment-related symptoms often complicate post treatment rehabilitation. When treatment is no longer possible, symptom control becomes the focus of cancer care. Objectives: The study was aimed to determine the symptom burden of the haematological malignancy patients. Methods: A cross sectional study was conducted from July 2015 to June 2016 among the haematological malignancy patients. A total of 316 haematological malignancy adult (age ≥18 years) patients were purposively selected from haematology department of two tertiary level of hospitals in Dhaka city. Face to face interviews were taken from the diagnosed haematological malignancy patients admitted in the hospital and attending outdoor using questionnaire based on symptom distress scale (SDS). Results: Mean age was 39 years and most of the patients suffering from Acute Leukemia 162(51.3%). Mean monthly family income was around 22235 taka and 120(37.9%) patients were unemployed. Patients with haematological malignancy had a considerable physical and psychological symptom burden which ranged from 94.3% for fatigue to 8.5% for difficulty in concentration. Physical symptoms such as fatigue 127 (40.2%), change in appetite 86 (27.2%), pain1 81 (25.6%), insomnia44 (13.9%) caused severedistress and psychological symptoms include change in appearance 37 (11.7%) and outlook 33 (10.4%) were sever distressing. Significant association (p<0.001) was to be found between occupation and symptom distress where 82 (68.4%) unemployed and 51 (66.3%) housewife had moderate/sever symptom distress. Respondents who managed their treatment expenditure by loan and asset sell 11 (84.6%) had significant(p=0.004) moderate/sever distress. Patients having less than one month of diagnosis 47(72.3%) and admitted in inpatient 114 (66.6%) had significant higher moderate/sever symptom distress(p=0.03) and (p<0.001) respectively. Conclusion: Patients with haematological malignancy were likely to have multiple symptoms and comprehensive symptom assessment was suggested throughout. The introduction of supportiveor palliative care services during times of increased symptom burden may assist haematologists and other careers in the management of their patient’s distress and quality of life. Bangladesh Med Res Counc Bull 2020; 46(3): 196-203

Who's Talking Online? A Descriptive Analysis of Gender & Online Communication

2008 ◽  
pp. 3529-3539
Author(s):  
Taralynn Hartsell
Keyword(s):  
Online Community ◽  
Descriptive Analysis ◽  
Online Communication ◽  
Descriptive Study ◽  
Graduate Course ◽  
Descriptive Model ◽  
Student Activity ◽  
Online Comments ◽  
Discussion Threads

This preliminary descriptive study investigated the association between gender and online communication and involved participants from an online graduate course. The study implemented a descriptive model in that “student involvement” was assessed by tabulating and recording the quantity and quality of student activity in the discussion threads. Quantity was recorded by the amount of times students posted online comments and the number of words that women and men used to make their responses. In addition, quality was examined by reviewing the content that women and men made concerning topics under discussion. In the end, a difference between the genders was found in that the amount (quantity) women contributed to the discussions exceeded that contributed by the men. Women were also more inclined to give supportive or encouraging remarks than men, and addressed their classmates by name to promote a sense of online community, all which support previous studies.

scholarly journals Post-acute COVID-19 functional movement disorder

2021 ◽  
Vol 9 ◽  
pp. 2050313X2110393
Author(s):  
Alpana Garg ◽  
Sachin Goyal ◽  
Alejandro P Comellas
Keyword(s):  
Severe Acute Respiratory Syndrome ◽  
Movement Disorder ◽  
Symptom Burden ◽  
Depression And Anxiety ◽  
Functional Movement ◽  
Fluid Analysis ◽  
Multiple Symptoms ◽  
Work Up

Movement disorders are rare compared to other neurological manifestations of COVID-19. Patients who have recovered from acute severe acute respiratory syndrome coronavirus-2 infection continue to have multiple debilitating symptoms months later. We report a case of 54-year-old man who presented with repetitive flexion movement of head which started 2 months after severe acute respiratory syndrome coronavirus-2 infection. Extensive work-up including neurological examination, neuroimaging, cerebrospinal fluid analysis, and electroencephalogram were normal. The self-reported questionnaires for depression and anxiety were suggestive of severe anxiety and depression. The patient continued to have the jerky movements besides cognitive impairment, frequent headaches, intermittent shortness of breath, sleeping difficulties, fatigue, and dizziness at 1-year follow-up. This case highlights the presentation of functional movement disorder as one of the manifestations of underlying neuropsychiatric condition. Our patient had significant effect on quality of life with high symptom burden which further highlights the struggle and unmet needs of the patients with multiple symptoms after severe acute respiratory syndrome coronavirus-2 infection.

Impact of Symptom Prevalence and Symptom Burden on Quality of Life in Patients with Heart Failure

2005 ◽  
Vol 4 (3) ◽  
pp. 198-206 ◽  
Author(s):  
Cheryl Hoyt Zambroski ◽  
Debra K. Moser ◽  
Geetha Bhat ◽  
Craig Ziegler
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Symptom Burden ◽  
Symptom Assessment ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Heart Failure Patients ◽  
Patients With Heart Failure ◽  
Symptom Prevalence

Background: Heart failure is an escalating health problem around the world. Despite significant scientific advances, heart failure patients experience multiple physical and psychological symptoms that can impact the quality of life. Aims: To determine the (1) symptom prevalence, severity, distress and symptom burden in patients with heart failure; (2) impact of age and gender on symptom prevalence, severity, distress and symptom burden; and (3) impact of symptom prevalence and symptom burden on health-related quality of life (HRQOL) in patients with heart failure. Methods: A convenience sample of 53 heart failure patients participated in this descriptive, cross-sectional design. Symptoms and HRQOL were measured using the Memorial Symptom Assessment Scale—Heart Failure and the Minnesota Living with Heart Failure Questionnaire. Results: Patients experienced a mean of 15.1 ± 8.0 symptoms. Shortness of breath and lack of energy were the most prevalent. Difficulty sleeping was the most burdensome symptom. Lower age, worse functional status, total symptom prevalence and total symptom burden predicted 67% of the variance in HRQOL. Conclusion: Patients with heart failure experience a high level of symptoms and symptom burden. Nurses should target interventions to decrease frequency, severity, distress and overall symptom burden and improve HRQOL.

scholarly journals Nicotine use in patients with schizophrenia evaluated by the Fagerström Tolerance Questionnaire: a descriptive analysis from a Brazilian sample

2008 ◽  
Vol 30 (4) ◽  
pp. 350-352 ◽  
Author(s):  
Leonardo Chaves ◽  
Itiro Shirakawa
Keyword(s):  
Smoking Prevalence ◽  
Descriptive Analysis ◽  
Disease Onset ◽  
Descriptive Study ◽  
Demographic Variables ◽  
Smoking Rate ◽  
Convenience Sample ◽  
Brazilian Sample ◽  
Demographic Questionnaire ◽  
Heavy Smokers

OBJECTIVE: This is a descriptive study to determine smoking prevalence rates in a convenience sample of patients with schizophrenia and to describe clinical/demographic variables for nicotine use in this population. METHOD: Patients with schizophrenia were consecutively invited to answer a standard clinical/demographic questionnaire and a questionnaire on smoking habits (Fagerstrom Tolerance Questionnaire). RESULTS: Eighty-three patients were interviewed. The smoking rate was 57.8% (n = 48). Male (68.8%) patients smoked more than females did (31.3%; p = 0.081). Compared to patients who smoked at the time of disease onset, those who only started smoking after disease onset had a lower mean age at the time of disease onset [24 years old (SD = ± 6.8) vs.19 years old (SD = ± 3.9; p = 0.041)]. Patients who preferred high-nicotine content cigarettes (p < 0.01) had higher frequency of smoking inhalation (p < 0.05) and had more urgency to smoke the first cigarette in the morning (p < 0.05). Twenty-seven (56.3%) of smoking patients were heavy smokers (FTQ > 8). CONCLUSIONS: Patients with schizophrenia in our convenience sample smoked in a higher rate compared to the general population in Brazil. Smoking patients were heavy smokers evaluated by the Fagerstrom Tolerance Questionnaire.

Kualitas Hidup Pasien Tuberkulosis Paru yang Mengalami Stigma Diri (Quality of Life Pulmonary Tuberculosis Patients With Self Stigma))

2019 ◽  
Vol 3 (2) ◽  
pp. 17-27
Author(s):  
Yunita Sari
Keyword(s):  
Quality Of Life ◽  
Pulmonary Tuberculosis ◽  
Descriptive Study ◽  
Negative Influence ◽  
Questionnaire Data ◽  
Average Quality ◽  
Tuberculosis Patients ◽  
Pulmonary Tb ◽  
Life Score

Pulmonary tuberculosis (TB) is a chronic disease that can bring about the sufferer's self-stigma and also affect his quality of life. A number of studies report that living with TB has a negative influence on the quality of life of sufferers even with or without self-stigma. The purpose of this study was to identify the quality of life of TB patients who experienced self-stigma. This research is a descriptive study, sample were 31 pulmonary TB patients. Data was collected using a questionnaire. Data analyzed by using frequency distribution and percentage. The researcher first screened TB patients who experienced self-stigma. The results showed that 25 people (80.64%) respondents experienced mild self-stigma. A total of 9 respondents (36%) had a quality of life score in the good category and as many as 16 respondents (64%) had enough category with an average quality of life score is 56.57. While respondents who had moderate self-stigma were 6 people (19.36%) with a good quality of life score was 1 person (16.67%) and enough category quality of life score were 5 people (83.33%) with an average quality of life score is 49.92.

PENGEMBANGAN MEDIA PEMBELAJARAN INTERAKTIF TEKNIK PEMESINAN BUBUT

2020 ◽  
Vol 6 (2) ◽  
pp. 169
Author(s):  
Philip Nababan ◽  
Efendi Napitupulu ◽  
R Mursid
Keyword(s):  
Student Learning ◽  
Learning Outcomes ◽  
Interactive Learning ◽  
Descriptive Analysis ◽  
Student Learning Outcomes ◽  
Field Trials ◽  
Student Responses ◽  
Analysis Techniques ◽  
Qualitative Descriptive

Abstrak: Penelitian ini bertujuan untuk: (1) Mengetahui tanggapan siswa terhadap kualitas media pembelajaran interaktif pada pembelajaran Teknik Pemesinan Bubut. (2) Mengetahui keefektifan media pembelajaran interaktif pada pembelajaran Teknik Pemesinan Bubut pada siswa program keahlian Teknik Pemesinan. Jenis penelitian ini adalah penelitian pengembangan. Data tentang kualitas produk pengembangan ini dikumpulkan dengan angket dan dianalisis dengan teknik analisis deskriptif kualiatatif. Hasil penelitian menunjukkan bahwa; (1) uji ahli materi pelajaran Teknik Pemesinan Bubut berada pada kualifikasi sangat baik (88,92%), (2) uji ahli desain pembelajaran berada pada kualifikasi sangat baik (85,21%), (3) uji ahli rekayasa perangkat lunak berada pada kualifikasi sangat baik (84,03%), (4) uji coba perorangan berada pada kualifikasi sangat baik (88,75%), (5) uji coba kelompok kecil berada pada kualifikasi sangat baik (91,35%) dan (5) uji coba lapangan berada pada kualifikasi sangat baik (88,31%). Hasil pengujian hipotesis membuktikan bahwa terdapat perbedaan antara hasil belajar siswa yang menggunakan media pembelajaran interaktif  dengan hasil belajar siswa yang menggunakan buku teks. Hal ini ditunjukkan dengan hasil pengolahan data diperoleh  thitung sebesar 4,68 dan ttabel sebesar 1,67 pada taraf kepercayaan 95 persen. Maka diperoleh bahwa thitung> ttabel. Disimpulkan bahwa  hasil belajar siswa yang menggunakan media pembelajaran interaktif dengan efektifitas sebesar 72,77 %. lebih tinggi dari hasil belajar siswa yang diajar dengan pembelajaran menggunakan buku teks dengan efektifitas sebesar 62,13%. Kata Kunci: media pembelajaran interaktif, teknik pemesinan bubut Abstract: This study aims to: (1) Determine student responses to the quality of interactive learning media on learning Lathe Machining Techniques. (2) Knowing the effectiveness of interactive learning media on learning of Machining Lathe in students of Machining Engineering expertise program. This type of research is development research. Data about the quality of this development product was collected by a questionnaire and analyzed by qualitative descriptive analysis techniques. The results showed that; (1) Lathe machining engineering subject matter expert test is in very good qualification (88.92%), (2) learning design expert test is in very good qualification (85.21%), (3) software engineering expert test is in in very good qualifications (84.03%), (4) individual trials were in very good qualifications (88.75%), (5) small group trials were in very good qualifications (91.35%) and (5 ) field trials are in very good qualifications (88.31%). Hypothesis testing results prove that there are differences between student learning outcomes using interactive learning media with student learning outcomes using textbooks. This is indicated by the results of data processing obtained by tcount of 4.68 and ttable of 1.67 at a confidence level of 95 percent. Then it is obtained that tcount> ttable. It was concluded that student learning outcomes using interactive learning media with an effectiveness of 72.77%. higher than student learning outcomes taught by learning to use textbooks with an effectiveness of 62.13%. Keywords: interactive learning media, lathe machining techniques

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