scholarly journals Stigma in the Social Life among Mothers Having Children with Intellectual Disabilities: Challenges and Suggestions

2016 ◽  
Vol 3 (3) ◽  
Author(s):  
Rajesh Kumar Mourya ◽  
R. N. Singh ◽  
Ashok Rai

This study examined the role of severity of children’s intellectual disability and perceived stigma in restriction in social life among the parents of such children .The correlational research design was used for this purpose. The sample for the study consisted of fifty one mother having intellectually disabled children of varying degree, aged between 3 to 15 years. The participants were sampled from different rehabilitation centers and special schools at Varanasi. They were administered Personal Care Assessment Form, Perceived Stigma Scale and Restriction of Social Life Scale. Correlation analysis was applied to see the relationship which revealed that the child’s activity limitation is significantly positively associated with stigma and restriction in social life. Stigma was also significantly positively associated with restricted social life. This paper highlights the growing need for interventions that include both behavioral and psychosocial components to better address needs of families of children with intellectual disability. It is concluded that there exists a need for future research on culturally sensitive parent training as well as on potentially efficient group-based parent education programs for families of children with moderate to profound intellectual disability.

1997 ◽  
Vol 67 (3) ◽  
pp. 339-369 ◽  
Author(s):  
Jean Cheng Gorman ◽  
Lawrence Balter

The recent growth of culturally sensitive parent education programs necessitates an evaluative look at their effectiveness. This article critically reviews the quantitative literature on culturally sensitive parent education programs, discussing issues of research methodology and program efficacy in producing change among ethnic-minority parents and their children. Culturally sensitive programs for African American and Hispanic families are described in detail Quantitative studies of culturally sensitive programs are critiqued against existing literature on the effectiveness of traditional parent education programs. Main conclusions include the prevalence of flaws in research methodology, which may contribute to the finding of somewhat lower efficacy of these programs in comparison to standard programs. Although efficacy studies of programs for Native American and Asian American parents could not be found, efforts to serve these populations are also described. Recommendations for future research are proposed.


2019 ◽  
Vol 18 (1) ◽  
pp. 179-192
Author(s):  
Shaista Naz ◽  
Nasir Sulman

The study has been emphasized that adequate behavioral parents made by parents with children with intellectual disability disorder (IDD) is essential for healthy development of these children. The parental behavioral practices of the 150 families of normal children have been used as comparison with the 150 families having a child with IDD. Participants of the study have been selected from three special schools of Karachi. The structured interview procedure was adopted and at the end of printed schedule a blank page was left to write down about any information which was not covered in the questionnaire. The findings demonstrated that there are differences between fathers and mothers in their behavioral practices towards children with IDD. It seems that future research in Pakistan must be directed toward a better understanding of the differential behavioral practices demonstrated by both mother and father.


2020 ◽  
Vol 29 (2) ◽  
pp. 890-902
Author(s):  
Lynn Kern Koegel ◽  
Katherine M. Bryan ◽  
Pumpki Lei Su ◽  
Mohini Vaidya ◽  
Stephen Camarata

Purpose The purpose of this systematic review was to identify parent education procedures implemented in intervention studies focused on expressive verbal communication for nonverbal (NV) or minimally verbal (MV) children with autism spectrum disorder (ASD). Parent education has been shown to be an essential component in the habilitation of individuals with ASD. Parents of individuals with ASD who are NV or MV may particularly benefit from parent education in order to provide opportunities for communication and to support their children across the life span. Method ProQuest databases were searched between the years of 1960 and 2018 to identify articles that targeted verbal communication in MV and NV individuals with ASD. A total of 1,231 were evaluated to assess whether parent education was implemented. We found 36 studies that included a parent education component. These were reviewed with regard to (a) the number of participants and participants' ages, (b) the parent education program provided, (c) the format of the parent education, (d) the duration of the parent education, (e) the measurement of parent education, and (f) the parent fidelity of implementation scores. Results The results of this analysis showed that very few studies have included a parent education component, descriptions of the parent education programs are unclear in most studies, and few studies have scored the parents' implementation of the intervention. Conclusions Currently, there is great variability in parent education programs in regard to participant age, hours provided, fidelity of implementation, format of parent education, and type of treatment used. Suggestions are made to provide both a more comprehensive description and consistent measurement of parent education programs.


Crisis ◽  
2017 ◽  
Vol 38 (3) ◽  
pp. 202-206 ◽  
Author(s):  
Karl Andriessen ◽  
Dolores Angela Castelli Dransart ◽  
Julie Cerel ◽  
Myfanwy Maple

Abstract. Background: Suicide can have a lasting impact on the social life as well as the physical and mental health of the bereaved. Targeted research is needed to better understand the nature of suicide bereavement and the effectiveness of support. Aims: To take stock of ongoing studies, and to inquire about future research priorities regarding suicide bereavement and postvention. Method: In March 2015, an online survey was widely disseminated in the suicidology community. Results: The questionnaire was accessed 77 times, and 22 records were included in the analysis. The respondents provided valuable information regarding current research projects and recommendations for the future. Limitations: Bearing in mind the modest number of replies, all from respondents in Westernized countries, it is not known how representative the findings are. Conclusion: The survey generated three strategies for future postvention research: increase intercultural collaboration, increase theory-driven research, and build bonds between research and practice. Future surveys should include experiences with obtaining research grants and ethical approval for postvention studies.


2019 ◽  
Vol 24 (6) ◽  
pp. 689-696 ◽  
Author(s):  
LaVerne W. Thompson ◽  
Kathryn D. Bass ◽  
Justice O. Agyei ◽  
Hibbut-Ur-Rauf Naseem ◽  
Elizabeth Borngraber ◽  
...  

OBJECTIVETraumatic brain injury is a major sequela of nonaccidental trauma (NAT) that disproportionately affects young children and can have lasting sequelae. Considering the potentially devastating effects, many hospitals develop parent education programs to prevent NAT. Despite these efforts, NAT is still common in Western New York. The authors studied the incidence of NAT following the implementation of the Western New York Shaken Baby Syndrome Education Program in 1998.METHODSThe authors performed a retrospective chart review of children admitted to our pediatric hospital between 1999 and 2016 with ICD-9-CM and ICD-10-CM codes for types of child abuse and intracranial hemorrhage. Data were also provided by the Safe Babies New York program, which tracks NAT in Western New York. Children with a diagnosis of abuse at 0–24 months old were included in the study. Children who suffered a genuine accidental trauma or those with insufficient corroborating evidence to support the NAT diagnosis were excluded.RESULTSA total of 107 children were included in the study. There was a statistically significant rise in both the incidence of NAT (p = 0.0086) and the incidence rate of NAT (p = 0.0235) during the study period. There was no significant difference in trendlines for annual NAT incidence between sexes (y-intercept p = 0.5270, slope p = 0.5263). When stratified by age and sex, each age group had a distinct and statistically significant incidence of NAT (y-intercept p = 0.0069, slope p = 0.0374).CONCLUSIONSDespite educational interventions targeted at preventing NAT, there is a significant rise in the trend of newly reported cases of NAT, indicating a great need for better injury prevention programming.


2021 ◽  
pp. 107755952199417
Author(s):  
Katherine R. Brendli ◽  
Michael D. Broda ◽  
Ruth Brown

It is a common assumption that children with disabilities are more likely to experience victimization than their peers without disabilities. However, there is a paucity of robust research supporting this assumption in the current literature. In response to this need, we conducted a logistic regression analysis using a national dataset of responses from 26,572 parents/caregivers to children with and without disabilities across all 50 states, plus the District of Columbia. The purpose of our study was to acquire a greater understanding of the odds of victimization among children with and without intellectual disability (ID), while controlling for several child and parent/adult demographic correlates. Most notably, our study revealed that children with ID have 2.84 times greater odds of experiencing victimization than children without disabilities, after adjusting for the other predictors in the model. Implications for future research and practice are discussed.


2008 ◽  
Vol 5 (1-2) ◽  
pp. 191-236 ◽  
Author(s):  
Michelle A. Johnson ◽  
Susan Stone ◽  
Christine Lou ◽  
Jennifer Ling ◽  
Jennette Ciaassen ◽  
...  

1983 ◽  
Vol 16 (3) ◽  
pp. 209-219 ◽  
Author(s):  
Russell A. Ward ◽  
Harold Kilburn

Community access can be expected to have an important influence on the life satisfaction of the aged because of age-linked restrictions in social life space. Such access may be less important for older blacks, however, as a consequence of lifelong “ghettoization.” These hypotheses are tested using national survey data. Community mobility is found to have a stronger association with life satisfaction for older whites, while having only an indirect effect through social interaction for older blacks. Directions for future research are suggested.


Anthropology ◽  
2021 ◽  

Animal sanctuaries are human-created spaces for the protection and care of animals rescued from conditions of violence, exploitation, neglect, or abuse by other humans. The contemporary institution of the animal sanctuary originated with the first sanctuaries established in the United States by animal protection activists in the early 1980s. Since then, activists have established hundreds more throughout the world. Individual sanctuaries typically focus their efforts on specific kinds of animals corresponding to the ways in which they are used or commodified by humans, such as farmed animals, companion animals, or wild animals used in entertainment and biomedical research, although others may focus on a specific species of animal, such as chimpanzees, horses, wolves, or elephants. Animal sanctuaries are a novel subject of ethnographic inquiry in anthropology and related social sciences, so “sanctuary studies” is currently a nascent but growing topical area of research. Despite the relatively small body of literature focused on animal sanctuaries, anthropologists and other social scientists investigating sanctuaries and related endeavors, such as wildlife rehabilitation centers, have already provided valuable insights into why and how humans have chosen to care for rescued or endangered animals and the new kinds of institutions and political ecological relationships that are generated by these practices, highlighting the varied and, at times, conflicting ideas about care, ethics, value, species difference, and animal subjectivity and agency that inform sanctuary work. This pioneering literature forms a rich foundation for future research.


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