scholarly journals Sacred Memories: Creative Art Therapy for Children in Grief

2021 ◽  
Author(s):  
◽  
Shona Lowson

<p>This paper explores the creative opportunities children might have to attend to their emotions and feelings following the death of a parent, grandparent or close friend. It presents the position that often children are left out of the process of caring for an adult when they are terminally ill and that has long term psychological implications. It also suggests that this has antecedents for the white New Zealand culture that were noted historically. Hospice palliative care services in New Zealand identify the need to be proactive in their holistic care for the family when a person is dying and this care must include the family which invariably includes children. In this research the author describes a personal journey that has shaped her current work as a hospice practice manager. She has chosen to highlight a neglected aspect in services in New Zealand. The writer explores literature in psychological aspects of removing children from the dying room, creative therapies and the importance of sacred memories for the living child to be enfolded in through their life. The need to create memory that will embrace the child as a cloak enfolds them in their crisis stimulated the writer to offer a text in the personal narrative form. This text is presented in this form to enable other clinicians to access their own memories as survivors of grief in their own families. Through enabling children and family to explore the importance of relating in the palliative phase of a person’s life journey it is suggested that doors open that build good memories for the survivors. I regard my specific form of interest as pursuing the idea of building memory creative ‘corners’ and fun experiences for children at my work. The reasons why such an experience would be beneficial now and in the future for children and their families will be the focus for conducting my literature research. Children were important in the final days of her father’s life. He directed the family to accept the roles he saw would be theirs. Memories became their treasures.</p>

2021 ◽  
Author(s):  
◽  
Shona Lowson

<p>This paper explores the creative opportunities children might have to attend to their emotions and feelings following the death of a parent, grandparent or close friend. It presents the position that often children are left out of the process of caring for an adult when they are terminally ill and that has long term psychological implications. It also suggests that this has antecedents for the white New Zealand culture that were noted historically. Hospice palliative care services in New Zealand identify the need to be proactive in their holistic care for the family when a person is dying and this care must include the family which invariably includes children. In this research the author describes a personal journey that has shaped her current work as a hospice practice manager. She has chosen to highlight a neglected aspect in services in New Zealand. The writer explores literature in psychological aspects of removing children from the dying room, creative therapies and the importance of sacred memories for the living child to be enfolded in through their life. The need to create memory that will embrace the child as a cloak enfolds them in their crisis stimulated the writer to offer a text in the personal narrative form. This text is presented in this form to enable other clinicians to access their own memories as survivors of grief in their own families. Through enabling children and family to explore the importance of relating in the palliative phase of a person’s life journey it is suggested that doors open that build good memories for the survivors. I regard my specific form of interest as pursuing the idea of building memory creative ‘corners’ and fun experiences for children at my work. The reasons why such an experience would be beneficial now and in the future for children and their families will be the focus for conducting my literature research. Children were important in the final days of her father’s life. He directed the family to accept the roles he saw would be theirs. Memories became their treasures.</p>


Author(s):  
Cheryl Ann Thaxton ◽  
Diana Jacobson ◽  
Heather Murphy ◽  
Tracey Whitley

The nurse is an essential interdisciplinary partner in the delivery of family- and patient-centered palliative care for families faced with perinatal or newborn loss in the labor and delivery (L&D) unit and in the neonatal intensive care unit (NICU). Early identification and referral of the family to perinatal and neonatal palliative care services is paramount. Improving nursing communication with the family, advocating for the family, and providing supportive nursing care, which includes physical and psychological symptom management, are emphasized. The L&D unit is an area in which patients can experience both joy and loss; it is imperative that L&D nurses receive education about palliative care in the event of maternal complications and/or congenital anomalies that lead to the death of a newborn. Principles of essential individualized, compassionate, and culturally competent palliative care interventions are reviewed using patient and family exemplars.


Children ◽  
2018 ◽  
Vol 5 (7) ◽  
pp. 97 ◽  
Author(s):  
Wei Chin ◽  
Tiina Jaaniste ◽  
Susan Trethewie

Siblings of children with life limiting conditions (LLC) are an important part of the broader family system and require consideration in the holistic care of the family. There can be considerable variation in the functioning and adjustment of these siblings. The current paper explores the resilience paradigm, particularly in the context of siblings of children with LLC and serious medical conditions. The potential impact of children living with a seriously ill brother or sister will be overviewed, and a range of functional outcomes considered. Factors contributing to sibling resilience are detailed, including individual, family, and broader external and social factors. Given the limited research with siblings of children with LLC, literature has also been drawn from the siblings of children with serious and/or chronic medical conditions. Implications for clinical practice and future research are considered. Pediatric palliative care services may be well placed to contribute to this body of research as they have commonly extended relationships with the families of children with LLC, which span across the child’s disease trajectory.


2019 ◽  
pp. 119-134
Author(s):  
Alisa Savetamal ◽  
Kristin Edwards

Burn injury can be a life-changing event for many patients, requiring prolonged hospitalization, multiple operative procedures, and extensive physical rehabilitation after hospital discharge. For the burn team, the challenges of caring for burn injuries are compounded by the psychosocial needs of the patients, many of whom have underlying medical, psychiatric, or substance abuse problems or some combination of all of these. Integrating palliative care services into the burn team is a valuable adjunct for the patients, families, and care teams involved in burn injury. Palliative care provides a framework for considering not only the acute needs of the burn patient but also the other underlying issues that may affect the patient’s hospital course, recovery, and long-term goals.


2000 ◽  
Vol 7 (4) ◽  
pp. 314-326 ◽  
Author(s):  
Simon Woods ◽  
Kinta Beaver ◽  
Karen Luker

This article is based on the findings of a study that elicited the views of terminally ill patients ( n = 15), their carers ( n = 10) and bereaved carers ( n = 19) on the palliative care services they received. It explores the range of ethical issues revealed by the data. Although the focus of the original study was on community services, the participants frequently commented on all aspects of their experience. They described some of its positive and negative aspects. Of concern was the reported lack of sensitivity to the role of the family among health professionals. The family, as carers, service users and advocates, represent a challenge to professional boundaries and the ethical norms of confidentiality and best interest. The accounts reveal the complexity of the ethical issues that characterize terminal care, issuing specific ethical challenges to nurses and other health professionals involved in this field.


Author(s):  
Наталья Юрьевна Макеева

Представлены результаты эмпирического исследования социально-психологического благополучия подростков, в семье которых за последние 1,5 года произошли ненормативные кризисные ситуации: смерть одного из родителей, развод родителей, один из родителей попал в места заключения, тяжелая болезнь одного из родителей, попадание подростка под опеку или в замещающую семью по причине лишения родителей родительских прав. Результаты исследования указывают на необходимость социально-психологической помощи подросткам, имеющим тяжелобольного родителя. Актуальная продолжительная травматичная ситуация страдания от болезни родителя отрицательно сказывается на их психоэмоциональном состоянии и негативно отражается на социально-психологическом благополучии . Presents the results of empirical research of socio-psychological well-being of adolescents in the family which for the last 1,5 years there was a non-normative crises: death of a parent, divorce of parents, one parent was in detention, a serious illness of one of the parents, the hit teen under guardianship or in a foster family because of deprivation of parental rights. The results of the study indicate the need for social and psychological assistance to teenagers who have a seriously ill parent. The actual, long-term traumatic situation of suffering from a parent's illness negatively affects their psychoemotional state and negatively affects their socio-psychological well-being.


2011 ◽  
pp. 126-128
Author(s):  
Anne McAuliffe

I have a friend, who, alongside her family, struggled with her father’s illness for over two years. He travelled a slow and difficult road towards the end of his life. He was diagnosed with a chronic respiratory illness a few years ago, with a life expectancy of six months. The mainstay of their support was the family GP and infrequent visits to the Consultant. When palliative care was suggested by a friend, as a support, their response was ‘but he hasn’t got cancer’. After a little encouragement and a speedy referral, the local community palliative care team came into their home and he and his family’s journey became a more peaceful and managed one. Their journey was transformed, not because palliative care services altered his diagnosis in any way, but because they supported the patient and his family in dealing with the present and immediate future. Palliative care services assisted ...


2017 ◽  
Vol 23 (3) ◽  
pp. 331
Author(s):  
Dhritiman Datta ◽  
Gautam Majumdar ◽  
Shiromani Debbarma ◽  
Badan Janapati ◽  
AmitKumar Datta

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 127-127
Author(s):  
Constance Dahlin ◽  
Joshua Nyambose ◽  
Gail Merriam ◽  
Cherline Gene

127 Background: The CDC comprehensive cancer initiatives value comprehensive quality care within its mission and program development. Currently, over 75% of hospitals in the United States have palliative care services for cancer patients (CAPC 2011). In order to promote access to quality palliative care in the community outside the hospital, an evaluation is essential. The CDC model of comprehensive cancer care and prevention control structure is an appropriate mechanism to perform such an evaluation. From 2014-2015, the Massachusetts Comprehensive Cancer and Prevention Control Network Palliative Care Workgroup performed a survey to hospitals, home health agencies, hospices, long term care facilities, and community providers to determine palliative care services available to cancer patients across the state. Methods: Using the National Consensus Project for Quality Palliative Care Clinical Practice Guidelines, a robust palliative survey tool was created by the Massachusetts Comprehensive Cancer and Prevention Control Palliative Care Workgroup. It was individualized to each of the following settings - hospitals, home health organizations, hospices, skilled nursing facilities, and community health agencies. Follow-up telephonic key informant interviews regarding palliative care services were conducted within the various settings, service organizations, and insurers. Results: The results of qualitative and quantitative data will be concluded in August. Initial results reveal significant disparities in access to palliative care across by geography and setting of care. Hospices and hospitals had the most access to palliative care services. Long term care settings and community health settings had the least access. Conclusions: Data reveals disparities in palliative care access within Massachusetts by geography, race, and setting of cancer care. This data will serve as the basis of regional networks to promote better access to palliative care for cancer patients across all settings. It is hoped this evaluation process will serve as a model for other states to perform a similar evaluation.


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