scholarly journals Chronic Disease Self Management Using a Social Networking PHR/UHR

2020 ◽  
Author(s):  
Jeremy S. Kagan
Keyword(s):  
Chronic Disease ◽  
Social Networking ◽  
Access Point ◽  
Interface Layer ◽  
Diagnostic Information ◽  
Patient Portal ◽  
Potential Solution ◽  
Management Tools ◽  
Diagnostic Data ◽  
Holding Back

This viewpoint paper presents a potential solution to the “information islands” that are holding back PHR/UHR from becoming truly effective diagnostic information care management tools for patients especially those who suffer from chronic diseases. The solution involves integrating patient portal with a diagnostic data interface layer to create a single access point for caregivers and patients.

scholarly journals Use of Social Networking Sites by Lis Research Scholar of Gauhati University

2020 ◽  
Vol 9 (3) ◽  
pp. 227-230
Keyword(s):  
Social Networking ◽  
Social Networking Sites ◽  
Information Technologies ◽  
Secondary Data ◽  
Access Point ◽  
Social Networking Site ◽  
Primary Data ◽  
Research Activities ◽  
Research Scholar ◽  
Observation Method

Purpose: The library works as an access point of information, knowledge and services to fulfill the requirement of learning research activities of its users. In the modern age, information technologies become the gateway of knowledge access. Various social networking sites have been progressedin addiction to development of computer technology as well as meet the users with their changing needs. Thus social networking site become the tool of connect people for common purpose. The people of today’s world vastly use SNS in their daily life. Libraries have improved their collection and services in electronic form with rapid growth of ICT. SNS helps the library to work as a user friendly center. This paper describes the different use of SNS by LIS Research scholar, their purposes and effectiveness of SNS forenhancing library services. Methodology: The primary data for this study has been collected through questionnaire, interview and observation method from LIS Research scholar of Gauhati University. The secondary data has been imported from the research article, paper published in different journal, conference proceedings and from books and Wikipedia. Findings: Social Networking sites can be used as an effective way for access information and knowledge for their research and academic purpose. It will be helpful for library professional to provide different kinds of information with least time.

scholarly journals P232 Assessing effectiveness and patient perceptions of a novel electronic medical record for the management of inflammatory bowel disease

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S281-S281
Author(s):  
P Kaazan ◽  
T Li ◽  
W Seow ◽  
J Bednarz ◽  
J Pipicella ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Chronic Disease ◽  
Medical Record ◽  
Electronic Medical Record ◽  
Medical Records ◽  
Data Capture ◽  
Patient Portal ◽  
Specific Data ◽  
Qualitative Feedback ◽  
Inflammatory Bowel

Abstract Background There is an increasing prevalence of chronic disease worldwide, resulting in multiple management challenges. Inflammatory bowel disease (IBD) is an exemplar chronic disease requiring optimal longitudinal coordinated care. We propose that Crohn’s Colitis Care (CCCare), a novel IBD-specific electronic medical record intended to improve IBD care is effective and acceptable to patients. We aimed to assess both the effectiveness of CCCare for data capture and patients’ acceptability of CCCare. Methods Methods: The study was conducted at two tertiary Australian hospitals with dedicated IBD services: Royal Adelaide Hospital and Liverpool Hospital. The effectiveness of CCCare was examined by comparing IBD-specific data completeness between pre-existing medical records and CCCare. Acceptability was assessed with quantitative and qualitative feedback through the CCCare patient portal and with standardized paper-based questionnaires administered to a convenience sample of IBD clinic patients in two unmatched pre-CCCare and post-CCCare exposure cohorts. Descriptive statistics and multivariable regression models were applied to specifically examine overall ratings of CCCare acceptability using a 10-point numeric scale; factors associated with acceptability before exposure to the system and whether exposure or security concerns influenced its acceptability. Results In all 73 cases reviewed, there was data gain when using structured CCCare fields compared to IBD documentation in usual medical records. Acceptability assessment through the patient portal feedback of 287 patients showed that the majority were very likely to recommend it to others (score, 8.56 ± 2.2 on a scale of 0–10). Common themes of concern among the 22 respondents with qualitative feedback were related to the novelty and limited experience of CCCare. Study questionnaires indicated that the overall acceptability in the combined cohort (n=310) was very high (8.4 ± 2.1; scale of zero to ten) with more than three-quarters of patients rating acceptability as at least 8 out of 10. Self-reported information technology (IT) literacy was positively associated with acceptability. Exposure had a small positive affect on acceptability while the level security concerns had little impact on acceptability. Conclusion The IBD-specific electronic medical record CCCare is effective in facilitating enhanced completeness of IBD-specific data capture in comparison to pre-existing medical records. It is highly acceptable to patients, especially those with reasonable IT literacy. Patient concerns about privacy and security of EMRs did not significantly influence acceptability.

scholarly journals The Development of a Screening Tool to Identify and Classify Nonadherence in Inflammatory Bowel Disease

2019 ◽  
Vol 1 (3) ◽  
Author(s):  
Aria Zand ◽  
Audrey Nguyen ◽  
Zack Stokes ◽  
Welmoed van Deen ◽  
Courtney Reynolds ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Chronic Disease ◽  
Chronic Disease Management ◽  
Screening Tool ◽  
Predictive Performance ◽  
Patient Specific ◽  
Management Tools ◽  
Patient Reported ◽  
Screening Question ◽  
Inflammatory Bowel

Abstract Background Medication nonadherence is a challenge in chronic disease management. Tools that can both determine adherence levels and analyze patient-specific reasons for nonadherence are lacking. Methods Our tool was developed using 23 patient-reported items and its predictive performance was compared with the most widely used instrument in the literature. Results One hundred thirty-three IBD patients were included, 44 (33%) were nonadherent and 89 (67%) were adherent. Our screening question, with 87% sensitivity and 64% specificity, was followed by a 9-item survey for patients qualified as nonadherent. Conclusions Quantifying reasons for nonadherence can lead to more effective and personalized interventions for nonadherent patients.

Patients’ Attitudes Toward an Online Patient Portal for Communicating Laboratory Test Results; how patient characteristics affect usability and self-efficacy: Real-World Study Using the eHealth Impact Questionnaire (Preprint)

2020 ◽  
Author(s):  
Rosian Tossaint-Schoenmakers ◽  
Marise Kasteleyn ◽  
Annelijn Goedhart ◽  
Anke Versluis ◽  
Esther Talboom-Kamp
Keyword(s):  
High Education ◽  
Chronic Disease ◽  
Laboratory Test ◽  
Self Efficacy ◽  
Patient Characteristics ◽  
Patient Portal ◽  
Test Results ◽  
Highly Educated ◽  
Laboratory Test Results ◽  
Motivation And Confidence

BACKGROUND Patient portals are promising tools to increase patient involvement and empowerment in managing their health. To optimally facilitate patients, laboratory test results should be explained in easy language. Patient characteristics affect the usage of portals and the user satisfaction. OBJECTIVE This study aims to assess the effect of patient characteristics (gender, age, education and chronic disease) on the self-efficacy and perceived usability of an online patient portal that communicates diagnostic test results. METHODS We used the online-administered eHealth Impact Questionnaire (eHIQ) to explore patients’ attitudes toward the portal. Patients visiting the portal were asked to complete the questionnaire and to answer questions regarding gender, age, education and chronic disease. The subscale ‘information and presentation’ of the eHIQ assessed the usability of the patient portal and the subscale ‘motivation and confidence to act’ assessed self-efficacy to determine whether patients were motivated to act on the presented information. Age, gender, education and chronic disease were the determinants to analyze the effect on usability and self-efficacy. RESULTS The questionnaire was completed by 748 respondents, of 428 (57.2 %) were female, 423 (56.6%) highly educated and 509 (68%) had no chronic disease. The mean age was 58.5 years (SD 16.4). Higher age, high education and asthma/ COPD were significant determinants for decreased usability; respectively, B=-.094, (95% CI (-1,147 to 0.042), P<0.001, B=-2.512 (95% CI -4.791 to -0.232), P=.031 and B =-3.630 (95% CI -6.545 to -0.715), P=.015. High education was also a significant determinant for self-efficacy B=-3.521 (95% CI -6.469 to -0.572, P=.019). Other determinants were not significant. CONCLUSIONS This study showed that the usability of the portal decreased with age, if a user was highly educated or had asthma/ COPD. Patients’ motivation and confidence to act on the presented information decreased with age. The results portal is not tailored for different groups. Further research should investigate which factors from a patient perspective are essential to tailor the portal for different groups, and how a result portal can be optimally integrated within the daily practice of a doctor.

scholarly journals Focus Section Health IT Usability: Applying a Task-Technology Fit Model to Adapt an Electronic Patient Portal for Patient Work

2018 ◽  
Vol 09 (01) ◽  
pp. 174-184 ◽  
Author(s):  
Sana Ali ◽  
Juana Romero ◽  
Kevin Morrison ◽  
Baria Hafeez ◽  
Jessica Ancker
Keyword(s):  
Chronic Disease ◽  
Health Information ◽  
Information Management ◽  
Health Information Management ◽  
Clear Understanding ◽  
Patient Portal ◽  
Patient Needs ◽  
User Testing ◽  
Patient Work ◽  
Task Technology Fit

Objectives Although electronic patient portals are offered by most health care organizations, poor usability and poor fit to patient needs may pose barriers to adoption. We collaborated with an academic hospital to conduct iterative user evaluation of a newly deployed portal designed to deliver inpatient data upon hospital discharge. Methods Three evaluators applied heuristic usability evaluation and conducted 23 individual user testing sessions with patients with chronic disease or managing the care of family members with chronic disease. Evaluation and development/improvement were conducted iteratively. User testing and analysis of qualitative data were both conducted from the perspective of a task-technology fit framework, to assess the degree of fit between the portal and patient work. Results Ability to complete health information management tasks, perceived usability, and positive comments from users improved over the course of the iterative development. However, patients still encountered significant difficulties accomplishing certain tasks such as setting up proxy accounts. The problems were most severe when patients did not start with a clear understanding of tasks that they could accomplish. In exploring the portal, novice users frequently described anecdotes from their own medical history or constructed fictional narratives about a hypothetical patient. Conclusion Chronic illness imposes a significant workload on patients, and applying a task-technology framework for evaluation of a patient portal helped improve the portal's fit to patient needs. However, it also revealed that patients often lack a clear understanding of tasks that would help them accomplish personal health information management. Portal developers may need to educate patients about types of patient work involving medical centers, in a way that developers of clinical information systems do not need to do. An approach to doing this might be to provide narratives about hypothetical patients.

scholarly journals Use of social media for cancer prevention through neighborhood social cohesion: feasibility study protocol (Preprint)

2021 ◽  
Author(s):  
Ingrid Oakley-Girvan ◽  
Lauren C Houghton ◽  
Cheryl Jones ◽  
Jessica L Watterson ◽  
Marley P. Gibbons ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Social Networking ◽  
Low Socioeconomic Status ◽  
Social Cohesion ◽  
Low Income ◽  
Free Time ◽  
Structured Interviews ◽  
Post Intervention ◽  
Individual Level ◽  
Low Income Mothers

UNSTRUCTURED Social cohesion is associated with healthier behaviors and better health outcomes, and therefore may offer a mechanism for promoting better health. Low socioeconomic status communities face higher rates of chronic disease, due to both community and individual level factors. Therefore, this study aims to leverage social cohesion to promote healthier behaviors and prevent chronic disease in a low SES community. This protocol outlines the study methodology for a pilot study to assess the feasibility of an intervention (Free Time For Wellness, or FT4W) using a social networking platform (NextDoor) with mothers living in an urban, low-income community to improve social cohesion and to promote healthy behaviors. The study will involve three phases: I) co-designing the intervention with mothers in the neighborhoods of interest, II) implementing the intervention with community leaders through the social networking platform, and III) evaluating the intervention’s feasibility. Phase I of the study will include qualitative data collection and analysis from in-depth, semi-structured interviews and a co-design group session with mothers. Phases II and III of the study include a pre- and post-intervention survey of participating mothers. Neighborhood-level data on social cohesion will also be collected to enable comparison of outcomes between neighborhoods with higher and lower baseline social cohesion. Ultimately, this study aims to: 1) determine barriers and facilitators to finding free time for wellness among a population of low-income mothers in order to inform the co-design process, and 2) implement and study the feasibility of an intervention that leverages social cohesion to promote physical activity in a community of low-income mothers. The results of this study will provide preliminary feasibility evidence to inform a larger effectiveness trial, and will further our understanding of how social cohesion might influence wellbeing.

scholarly journals Leveraging Electronic Health Records to Improve Management of Noncommunicable Diseases at Primary Healthcare Centres in Saudi Arabia: A Qualitative Study

2020 ◽  
Author(s):  
Ahmed Hazazi ◽  
Andrew Wilson
Keyword(s):  
Chronic Disease ◽  
Electronic Health Records ◽  
Primary Healthcare ◽  
Noncommunicable Diseases ◽  
Patient Portal ◽  
Structured Interviews ◽  
Health Records ◽  
Public And Private ◽  
Patient Documentation ◽  
Electronic Health

Abstract Background: Electronic Health Records (EHRs) can contribute to the earlier detection and better treatment of chronic diseases by improving accuracy and accessibility of patient data. The Saudi Ministry of Health implemented an EHR system in all primary health care clinics (PHCs) as part of measures to improve their performance in managing chronic disease. This study examined the perspective of physicians on the current scope and content of NCDs management at PHCs including the contribution of the EHR system. Methods: Semi-structured interviews were conducted with 22 physicians working in chronic disease clinics at PHCs covering a range of locations and clinic sizes. The participants were selected based on their expertise using a combination of purposive and convenience sampling. The interviews were transcribed, analyzed and coded into the key themes. Results: Physicians indicated that the availability of the EHR helped organise their work and positively influenced NCDs patient encounters in their PHCs. They emphasised the multiple benefits of EHR in terms of efficiency, including the accuracy of patient documentation and the availability of patient information. Shortcomings identified included the lack of a patient portal to allow patients to access information about their health and lack of capacity to facilitate multi-disciplinary care for example through referral to allied health services. Access to the EHR was limited to MOH primary healthcare centres and clinicians noted that patients also received care in private clinics and hospitals. Conclusion: While well regarded by clinicians, the EHR system impact on patient care at chronic disease clinics is not being fully realised. Enabling patient access to their EHR would be help promote self-management, a core attribute of effective NCD management. Co-ordination of care is another core attribute and in the Saudi health system with multiple public and private providers, this may be substantially improved if the patients EHR was accessible wherever care was provided. There is also a need for enhanced capacity to support improving patient’s nutrition and physical activity.

scholarly journals Role of Social Media in Diabetes Management in the Middle East Region: Systematic Review (Preprint)

2017 ◽  
Author(s):  
Turki Alanzi
Keyword(s):  
Social Media ◽  
Middle East ◽  
Social Networking ◽  
Diabetes Management ◽  
Management Tools ◽  
East Region ◽  
Use Of Social Media ◽  
The Impact ◽  
Social Networking Tools ◽  
Middle East Region

BACKGROUND Diabetes is a major health care burden in the Middle East region. Social networking tools can contribute to the management of diabetes with improved educational and care outcomes using these popular tools in the region. OBJECTIVE The objective of this review was to evaluate the impact of social networking interventions on the improvement of diabetes management and health outcomes in patients with diabetes in the Middle East. METHODS Peer-reviewed articles from PubMed (1990-2017) and Google Scholar (1990-2017) were identified using various combinations of predefined terms and search criteria. The main inclusion criterion consisted of the use of social networking apps on mobile phones as the primary intervention. Outcomes were grouped according to study design, type of diabetes, category of technological intervention, location, and sample size. RESULTS This review included 5 articles evaluating the use of social media tools in the management of diabetes in the Middle East. In most studies, the acceptance rate for the use of social networking to optimize the management of diabetes was relatively high. Diabetes-specific management tools such as the Saudi Arabia Networking for Aiding Diabetes and Diabetes Intelligent Management System for Iraq systems helped collect patient information and lower hemoglobin A1c (HbA1c) levels, respectively. CONCLUSIONS The reviewed studies demonstrated the potential of social networking tools being adopted in regions in the Middle East to improve the management of diabetes. Future studies consisting of larger sample sizes spanning multiple regions would provide further insight into the use of social media for improving patient outcomes.

Retail and Social Media Marketing

2014 ◽  
pp. 426-448
Author(s):  
Francesca Negri
Keyword(s):  
Social Media ◽  
Social Networking ◽  
Customer Service ◽  
Virtual Worlds ◽  
Social Networking Sites ◽  
New Technologies ◽  
Access Point ◽  
Point Of View ◽  
The Internet ◽  
Managerial Implications

The Internet has revolutionized almost every facet of business and personal life. We are facing a far-reaching revolution, driven by Social Networking Sites (SNSs) where people talk about their life, purchases, and experiences. Mobile devices and tablets are replacing computers as the main access point to the Internet. Customer expectations are rising constantly with the development of new technologies. Social Media comes in many forms: blogs, media sharing sites, forums, review sites, virtual worlds, social networking sites, etc. Social Networking Sites (SNSs), the focus of this chapter, are the most disruptive social media and a key opportunity for business. Most industries recognized in that shift the potential for a more intimate and productive relationship with customers. Nowadays, retailers have no choice in whether they do social media: they only have the choice of how well they do it. Retailers need to convert browsers to buyers, and one-time customers to loyal sharing fans, so that they become advocates in the real and virtual worlds. The shift is deep: from one-way communication to conversation, and from advertising as an interruption to the interactivity in all locations. The originality of the chapter consists on its introduction of the concept of Social Networking Sites (SNSs) as an integration of the retailing marketing mix, defining its role in a marketing strategy, and providing some managerial implications for practitioners. After an introductive overview of the trend adopting a retailer point of view, four are the chapter's cornerstones: opportunities belonging from geolocation; how to plan a social media strategy; a new channel of interaction between customers and retailers: the social customer service; how to face a crisis in a Web 2.0 context. These are four brand new ways to engage consumers. This topic is relatively new and in continuous becoming, and much of interest remains to be said about it. The chapter's approach is to present what the authors believe to be the most relevant for a retailer facing a social networking challenge.

Retail and Social Media Marketing

2018 ◽  
pp. 1185-1208
Author(s):  
Francesca Negri
Keyword(s):  
Social Media ◽  
Social Networking ◽  
Customer Service ◽  
Virtual Worlds ◽  
Social Networking Sites ◽  
New Technologies ◽  
Access Point ◽  
Point Of View ◽  
The Internet ◽  
Managerial Implications

The Internet has revolutionized almost every facet of business and personal life. We are facing a far-reaching revolution, driven by Social Networking Sites (SNSs) where people talk about their life, purchases, and experiences. Mobile devices and tablets are replacing computers as the main access point to the Internet. Customer expectations are rising constantly with the development of new technologies. Social Media comes in many forms: blogs, media sharing sites, forums, review sites, virtual worlds, social networking sites, etc. Social Networking Sites (SNSs), the focus of this chapter, are the most disruptive social media and a key opportunity for business. Most industries recognized in that shift the potential for a more intimate and productive relationship with customers. Nowadays, retailers have no choice in whether they do social media: they only have the choice of how well they do it. Retailers need to convert browsers to buyers, and one-time customers to loyal sharing fans, so that they become advocates in the real and virtual worlds. The shift is deep: from one-way communication to conversation, and from advertising as an interruption to the interactivity in all locations. The originality of the chapter consists on its introduction of the concept of Social Networking Sites (SNSs) as an integration of the retailing marketing mix, defining its role in a marketing strategy, and providing some managerial implications for practitioners. After an introductive overview of the trend adopting a retailer point of view, four are the chapter's cornerstones: opportunities belonging from geolocation; how to plan a social media strategy; a new channel of interaction between customers and retailers: the social customer service; how to face a crisis in a Web 2.0 context. These are four brand new ways to engage consumers. This topic is relatively new and in continuous becoming, and much of interest remains to be said about it. The chapter's approach is to present what the authors believe to be the most relevant for a retailer facing a social networking challenge.

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