scholarly journals Care Coordination Needs of Families of Children with Down Syndrome: A Scoping Review to Inform Development of mHealth Applications for Families

Children ◽  
2021 ◽  
Vol 8 (7) ◽  
pp. 558
Author(s):  
Beth Skelton ◽  
Kathleen Knafl ◽  
Marcia Van Riper ◽  
Louise Fleming ◽  
Veronica Swallow
Keyword(s):  
Down Syndrome ◽  
Scoping Review ◽  
Care Coordination ◽  
Information Needs ◽  
Personal Health Record ◽  
Specific Information ◽  
Care Providers ◽  
Children With Down Syndrome ◽  
Scoping Reviews ◽  
Mhealth Apps

Care coordination is a critical component of health management aimed at linking care providers and health-information-involved care management. Our intent in this scoping review was to identify care coordination needs of families of children with Down syndrome (DS) and the strategies they used to meet those needs, with the goal of contributing to the evidence base for developing interventions by using an mHealth application (mHealth apps) for these families. Using established guidelines for scoping reviews, we searched five databases, yielding 2149 articles. Following abstract and full-text review, we identified 38 articles meeting our inclusion criteria. Studies incorporated varied in regard to research designs, samples, measures, and analytic approaches, with only one testing an intervention by using mHealth apps. Across studies, data came from 4882 families. Common aspects of families’ care coordination needs included communication and information needs and utilization of healthcare resources. Additional themes were identified related to individual, family, and healthcare contextual factors. Authors also reported families’ recommendations for desirable characteristics of an mHealth apps that addressed the design of a personal health record, meeting age-specific information needs, and ensuring access to up-to-date information. These results will further the development of mHealth apps that are tailored to the needs of families with a child with DS.

scholarly journals Family Variables and Quality of Life in Children with Down Syndrome: A Scoping Review

2021 ◽  
Vol 18 (2) ◽  
pp. 419
Author(s):  
Anna Lee ◽  
Kathleen Knafl ◽  
Marcia Van Riper
Keyword(s):  
Quality Of Life ◽  
Down Syndrome ◽  
Scoping Review ◽  
Personal Development ◽  
Well Being ◽  
Future Research ◽  
Cross Sectional ◽  
Children With Down Syndrome ◽  
Family Variables

The purpose of this scoping review was to identify the family and child quality of life variables that have been studied in relation to one another in children with Down syndrome, the frequency with which different relationships have been studied, and the extent to which family variables were the focus of the research aims. A literature search was conducted to find studies published between January 2007 and June 2018. The initial search yielded 2314 studies; of these, 43 were selected for a final review. Researchers most often addressed family resources and family problem-solving and coping concerning child personal development and physical well-being. Little attention to child emotional well-being was observed, with none considering family appraisal of child emotional well-being. The relationship between family variables and child QoL rarely was the primary focus of the study. Methodologically, most reviewed studies used cross-sectional designs, were conducted in North America and based on maternal report. From future research considering the issues found in this review, healthcare providers can obtain an in-depth understanding of relationships between children and family variables.

scholarly journals An assessment of scoping review reporting within paramedicine: A scoping review

2020 ◽  
Vol 17 ◽  
Author(s):  
Brett Williams ◽  
Bronwyn Beovich
Keyword(s):  
Scoping Review ◽  
Literature Search ◽  
Methodological Approach ◽  
Grey Literature ◽  
Specific Information ◽  
Emergency Medical Service Personnel ◽  
Scoping Reviews ◽  
Scoping Studies ◽  
Full Text Screening

Aim This study aimed to examine the quality of published paramedic scoping reviews against pre-existing frameworks to assess the extent to which they fulfil the requirements of this methodological approach. Subsequently, recommendations will be presented regarding improvements for future paramedic scoping reviews. Methods A scoping review was conducted guided by the PRISMA Extension for Scoping Reviews. A literature search was performed in six electronic databases as well as the grey literature to identify previous scoping reviews that focussed on paramedic or emergency medical service personnel. Relevant data were extracted from included articles and presented in narrative and tabular formats. Results The literature search initially identified 475 articles, of which 20 remained after title/abstract and full-text screening. There was a general increase in the number of studies published over time, the majority of articles (80%) had conducted their scoping review utilising published frameworks, and 75% of first authors were paramedics. Although many areas of these reports comply with published guidelines, there was an overall lack of consistency in the specific information included, the level of detail of that information, and the location of information within the reports. Conclusion All paramedic scoping studies should be reported with the use of a published framework to enable standardisation in the reporting, thus facilitating understanding, reproducibility, and utility. The PRISMA Extension for Scoping Reviews provides a checklist and thorough explanations of each step in the reporting process and is recommended for use with all future paramedic scoping reviews.

scholarly journals Impact of Telemedicine Use by Oncology Physicians on the Patient and Informal Caregiver Experience of Receiving Care: Protocol for a Scoping Review in the Context of COVID-19

10.2196/25501 ◽  
2020 ◽  
Vol 9 (12) ◽  
pp. e25501
Author(s):  
Maclean Thiessen ◽  
Andrea Michelle Soriano ◽  
Hal John Loewen ◽  
Kathleen Margaret Decker
Keyword(s):  
Health Care Providers ◽  
Scoping Review ◽  
Information Needs ◽  
Informal Caregivers ◽  
Cochrane Library ◽  
Future Research ◽  
Care Providers ◽  
Summary Table ◽  
Care Protocol ◽  
The Impact

Background During the COVID-19 pandemic, the use of telemedicine by oncology physicians in Manitoba, Canada, has increased to limit the risk of exposure to the virus for both patients and health care providers. It is not clear how telemedicine impacts the information needs of patients or the experience of receiving cancer care. Objective The objective of this study is to describe how the use of telemedicine impacts the information needs and experience of patients with cancer and their informal caregivers (ie, family and friends) and identify directions for future research. Methods This review will include all studies addressing telemedicine in the cancer context including those using quantitative, qualitative, and mixed methods approaches. This scoping review will be conducted using the methodology described by the Joanna Briggs Institute. In collaboration with a librarian scientist specializing in health sciences, a comprehensive search will be undertaken to identify and retrieve relevant reports published in English from 1990 to the present. Databases searched will include MEDLINE, CINAHL, EMBASE, Scopus, Cochrane Library, and PsycINFO. Data will be extracted by two independent reviewers, synthesized, and reported in a summary table and in a narrative format describing what has been reported regarding the impact of telemedicine by physicians in oncology on the experience of patients and their informal caregivers and their receipt of information. Results The results from this scoping review are expected to be available by late spring 2021. Conclusions The results from this scoping review will be useful for informing practice as well as directing future research, both in the context of COVID-19 and beyond. International Registered Report Identifier (IRRID) PRR1-10.2196/25501

scholarly journals Impact of Telemedicine Use by Oncology Physicians on the Patient and Informal Caregiver Experience of Receiving Care: Protocol for a Scoping Review in the Context of COVID-19 (Preprint)

2020 ◽  
Author(s):  
Maclean Thiessen ◽  
Andrea Michelle Soriano ◽  
Hal John Loewen ◽  
Kathleen Margaret Decker
Keyword(s):  
Health Care Providers ◽  
Scoping Review ◽  
Information Needs ◽  
Informal Caregivers ◽  
Cochrane Library ◽  
Future Research ◽  
Care Providers ◽  
Summary Table ◽  
Care Protocol ◽  
The Impact

BACKGROUND During the COVID-19 pandemic, the use of telemedicine by oncology physicians in Manitoba, Canada, has increased to limit the risk of exposure to the virus for both patients and health care providers. It is not clear how telemedicine impacts the information needs of patients or the experience of receiving cancer care. OBJECTIVE The objective of this study is to describe how the use of telemedicine impacts the information needs and experience of patients with cancer and their informal caregivers (ie, family and friends) and identify directions for future research. METHODS This review will include all studies addressing telemedicine in the cancer context including those using quantitative, qualitative, and mixed methods approaches. This scoping review will be conducted using the methodology described by the Joanna Briggs Institute. In collaboration with a librarian scientist specializing in health sciences, a comprehensive search will be undertaken to identify and retrieve relevant reports published in English from 1990 to the present. Databases searched will include MEDLINE, CINAHL, EMBASE, Scopus, Cochrane Library, and PsycINFO. Data will be extracted by two independent reviewers, synthesized, and reported in a summary table and in a narrative format describing what has been reported regarding the impact of telemedicine by physicians in oncology on the experience of patients and their informal caregivers and their receipt of information. RESULTS The results from this scoping review are expected to be available by late spring 2021. CONCLUSIONS The results from this scoping review will be useful for informing practice as well as directing future research, both in the context of COVID-19 and beyond. INTERNATIONAL REGISTERED REPORT PRR1-10.2196/25501

scholarly journals Barriers and facilitators for implementation of electronic consultations (eConsult) to enhance specialist access to care: a scoping review protocol

BMJ Open ◽  
2018 ◽  
Vol 8 (9) ◽  
pp. e022733 ◽  
Author(s):  
Mohamed A Osman ◽  
Kara Schick-Makaroff ◽  
Stephanie Thompson ◽  
Robin Featherstone ◽  
Liza Bialy ◽  
...  
Keyword(s):  
Access To Care ◽  
Scoping Review ◽  
Grey Literature ◽  
Primary Care Providers ◽  
Barriers And Facilitators ◽  
Cochrane Library ◽  
Care Providers ◽  
Adoption And Implementation ◽  
Scoping Reviews ◽  
Study Characteristics

IntroductionElectronic consultations (eConsult), asynchronous exchanges of patient health information at a distance, are increasingly used as an option to facilitate patient care and collaboration between primary care providers and specialists. Although eConsult has demonstrated success in increasing efficiency in the referral process and enhancing access to care, little is known about the factors influencing its wider adoption and implementation by end users. In this paper, we describe a protocol to conduct a scoping review of the literature on the barriers and facilitators to a wider adoption and implementation of eConsult service.Methods and analysisThis scoping review will be based on the framework pioneered by Arksey and O’Malley and later developed by Levacet al. We will use the guidance for scoping reviews developed by the Joanna Briggs Institute to report our findings. In addition to several electronic databases (Medline, Embase, Cochrane Library, CINAHL, EBSCOhost and PsycINFO) studies will be identified by including relevant grey literature. Two reviewers will independently screen titles and full texts for inclusion. Studies reporting on barriers and/or facilitators in settings similar to eConsult will be included. Data on study characteristics and key barriers and facilitators will be extracted. Data will be analysed thematically and classified using the Quadruple Aim framework.Ethics and disseminationApproval by research ethics board is not required since the review will only include published and publicly accessible data. Review findings will be used to inform future studies and the development of practice tools to support the wider adoption and success of eConsult implementation. We plan to publish our findings in a peer-reviewed journal and develop a useful and accessible summary of the results.

scholarly journals Effect of a Digital Precision Public Health Intervention for Care Coordination During Covid-19 Pandemic in Australia: A Real World Study

2021 ◽  
Author(s):  
Andre Q Andrade ◽  
Jean-Pierre Calabretto ◽  
Nicole L Pratt ◽  
Lisa M Kalisch-Ellett ◽  
Vanessa T LeBlanc ◽  
...  
Keyword(s):  
Public Health ◽  
Primary Care ◽  
Continuity Of Care ◽  
Care Coordination ◽  
Real World ◽  
Primary Care Providers ◽  
Patient Specific ◽  
Specific Information ◽  
Care Providers ◽  
Precision Public Health

Abstract Background: Emergencies disproportionally affect vulnerable populations. The COVID-19 pandemic affected older patients with co-morbidities both directly due to more severe infection and indirectly by affecting care provision. To promote continuity of care, public health professionals require tools to quickly and precisely coordinate with primary care providers. This study evaluated whether digital interventions powered by current existing infrastructure are more effective than conventional interventions in promoting primary care appointments during the COVID-19 pandemic. Methods: We developed a digital intervention delivered by secure messaging and compared it to a post delivered intervention to promote continuity of care for vulnerable veterans during COVID-19 in a real world, non-randomised, interventional study. The study was implemented as part of the Veterans’ MATES program, an Australian Government Department of Veterans’ Affairs program to promote improvements in health care for veterans. The intervention provided patient specific information to general practitioners (GPs) to support continuity of care, alongside mailed education to veterans. The intervention key messages were to maintain regular contact with care providers and to continue to adhere to health plans. The intervention took place in April 2020, during the first weeks of COVID-19 social distancing rules in Australia. The main outcome was time to first appointment with the primary general practitioner (GP) measured using a Cox proportional hazards model.Results: GPs received digital messaging for 51,052 veterans and post messaging for 26,859 veterans. The proportion of patients seeing their primary GP during the three months following intervention was higher in the digital group (77.8%) than the post group (61.5%) (p<0.01). Being in the digital group was associated with earlier appointments. Conclusion: Current infrastructure coupled with innovative solutions is effective in promoting care coordination at scale during national emergencies, opening up new perspectives for precision public health initiatives.

scholarly journals Use of menstruation and fertility app trackers: a scoping review of the evidence

2020 ◽  
pp. bmjsrh-2019-200488 ◽  
Author(s):  
Sarah Earle ◽  
Hannah R Marston ◽  
Robin Hadley ◽  
Duncan Banks
Keyword(s):  
Scoping Review ◽  
Pregnancy Prevention ◽  
Research Literature ◽  
Evidence Based ◽  
Scoping Reviews ◽  
Health Tracking ◽  
Mobile Health Applications ◽  
Development Evaluation ◽  
Mhealth Apps ◽  
Health Applications

IntroductionThere has been a phenomenal worldwide increase in the development and use of mobile health applications (mHealth apps) that monitor menstruation and fertility. Critics argue that many of the apps are inaccurate and lack evidence from either clinical trials or user experience. The aim of this scoping review is to provide an overview of the research literature on mHealth apps that track menstruation and fertility.MethodsThis project followed the PRISMA Extension for Scoping Reviews. The ACM, CINAHL, Google Scholar, PubMed and Scopus databases were searched for material published between 1 January 2010 and 30 April 2019. Data summary and synthesis were used to chart and analyse the data.ResultsIn total 654 records were reviewed. Subsequently, 135 duplicate records and 501 records that did not meet the inclusion criteria were removed. Eighteen records from 13 countries form the basis of this review. The papers reviewed cover a variety of disciplinary and methodological frameworks. Three main themes were identified: fertility and reproductive health tracking, pregnancy planning, and pregnancy prevention.ConclusionsMotivations for fertility app use are varied, overlap and change over time, although women want apps that are accurate and evidence-based regardless of whether they are tracking their fertility, planning a pregnancy or using the app as a form of contraception. There is a lack of critical debate and engagement in the development, evaluation, usage and regulation of fertility and menstruation apps. The paucity of evidence-based research and absence of fertility, health professionals and users in studies is raised.

scholarly journals Rare, epilepsy-related disorder including intellectual disability – A scoping review of caregivers’ identified information needs

2021 ◽  
pp. 174462952110023
Author(s):  
Merete Kristin Tschamper ◽  
Silje Systad
Keyword(s):  
Intellectual Disability ◽  
Scoping Review ◽  
Information Exchange ◽  
Information Needs ◽  
Medical Information ◽  
Specific Information ◽  
Term Care ◽  
Related Disorder ◽  
Formal Caregivers

Persons with rare, epilepsy-related disorders often have intellectual disability and need long-term care. Informal and formal caregivers need information in order to care for the persons in a safe way. Aims: The aims of this review were: (1) to obtain an overview of caregiver-reported information needs; and (2) to investigate if there are information needs that are unique for caregivers of persons with rare epilepsies. Method: We followed the scoping review framework outlined by Arksey and O’Malley and the preferred reporting items outlined by PRISMA. Results: Among the 17 articles that met the inclusion criteria, 5 included caregivers of persons with rare epilepsies. Categories of information needs: (1) Medical information; (2) Information on how to cope with emotional distress; (3) Experiential information from peers; and (4) Interdisciplinary information exchange. The need for disorder-specific information seemed particularly important for caregivers of persons with rare epilepsies. Conclusion: There is a need for further studies, particularly on formal caregivers’ information needs.

scholarly journals Citizen-Patient Involvement in the Development of mHealth Technology: Protocol for a Systematic Scoping Review (Preprint)

2019 ◽  
Author(s):  
Jorunn Bjerkan ◽  
Bridget Kane ◽  
Lisbeth Uhrenfeldt ◽  
Marit Veie ◽  
Mariann Fossum
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Mobile Technology ◽  
Scoping Review ◽  
Patient Involvement ◽  
System Development ◽  
Final Report ◽  
Care Providers ◽  
Scoping Reviews ◽  
Mhealth Technology

BACKGROUND The development of mobile technology for information retrieval and communication, both at individual and health organizational levels, has been extensive over the last decade. Mobile health (mHealth) technology is rapidly adapting to the health care service contexts to improve treatment, care, and effectiveness in health care services. OBJECTIVE The overall aim of this scoping review is to explore the role of citizen-patient involvement in the development of mHealth technology in order to inform future interventions. By identifying key characteristics of citizen-patient involvement in system development, we aim to improve digital communication and collaboration between health care providers and citizen-patients, including sharing of health care data. METHODS The systematic scoping review will follow the Joanna Briggs Institute methodology for scoping reviews by searching literature in 3 steps. We will include literature reporting on the public, citizens, and patients participating in the development of mobile technology for health care purposes in MEDLINE, CINAHL, Scopus, EMBASE, and ProQuest Dissertations and Theses. A preliminary search was completed in MEDLINE and Scopus. The screening process will be conducted by 2 of the authors. Data will be extracted using a data extraction tool prepared for the study. RESULTS The study is expected to identify research gaps that will inform and motivate the development of mHealth technology. The final report is planned for submission to an indexed journal in November 2020. CONCLUSIONS To our knowledge, this review will be the first review to provide knowledge about how citizen-patients participate in system developments for mHealth tools and the value that such involvement adds to the system development process. INTERNATIONAL REGISTERED REPORT PRR1-10.2196/16781

scholarly journals Syllabus Mining for Information Literacy Instruction: A Scoping Review

2020 ◽  
Vol 15 (4) ◽  
pp. 83-104
Author(s):  
Kathleen Butler ◽  
Theresa Calcagno
Keyword(s):  
Information Literacy ◽  
Scoping Review ◽  
Information Needs ◽  
Grey Literature ◽  
Specific Information ◽  
Library Instruction ◽  
Journal Articles ◽  
Academic Settings ◽  
Student Learning Objectives ◽  
Student Information

Background - The course syllabus is a roadmap to curriculum development and student learning objectives providing valuable information to assist library instruction. This scoping review examines research that uses syllabus mining to track Information Literacy concepts and skills in academic settings. Objectives - The present study uses a scoping methodology to examine syllabus mining of Information Literacy with the focus of analysis on the methodologies employed in syllabus review and the recommendations from the studies. Design - Searches of databases of literature from librarianship and education, as well as a multidisciplinary database, yielded 325 journal articles. Inclusion criteria specified peer-reviewed articles from any year, and excluded grey literature. After removing duplicates, 2 reviewers screened titles and abstracts and reviewed full text, yielding 17 studies to analyze. Results - Characteristics of the included studies, methodology, and recommendations were charted by two reviewers. All studies reported retrieving information that increased opportunities for collaboration with instructors and targeted engagement with students, and seven themes were identified. Conclusions - Instructional librarians should be encouraged to conduct syllabus studies to increase collaboration with faculty to develop coursework, to meet student information needs in a strategic manner, and to identify discipline-specific Information Literacy concepts.

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