scholarly journals Illness Narratives and Facebook: Living Illness Well

Humanities ◽  
2019 ◽  
Vol 8 (2) ◽  
pp. 106 ◽  
Author(s):  
Katrina Hinson ◽  
Ben Sword

Earlier scholarship provides important insights into the relationship of individual stories and narratives. Interactions with healthcare professionals and the healthcare system can often subsume the individual’s authority/agency. The patient’s narrative often gets lost in the elaborate web of doctor visits, referrals, medical records, case notes, etc. Online spaces such as Facebook, however, provide individuals with a platform through which they can understand, craft, and communicate their own personal illness narratives. Realizing this, this paper examines how the narratives of illness shared in illness-related Facebook groups help individuals make sense out of the disruption caused by their personal experience while residing in the ‘kingdom of the ill.’ To observe the construction and communication of these narratives, the researchers observed the activity of an online pulmonary embolism and deep-vein thrombosis survivor support group for one year. In this online space, individuals gained agency and authority in the construction of their own illness narratives. The findings of the research demonstrated both the importance of narrative in an individual’s health/illness journey as well as the need to further explore avenues that establish and bolster patient agency within the medical system.

2012 ◽  
Vol 94 (2) ◽  
pp. e55-e56 ◽  
Author(s):  
SJ Kruger

This case report describes the delayed diagnosis of inflammatory breast cancer following initial presentation with a subclavian/axillary deep vein thrombus. The relationship of thrombosis and cancer is discussed and the typical presentation of inflammatory breast cancer described. Understanding the relationship between thromboembolism and cancer is crucial to support the early diagnosis of breast cancer, which can present insidiously. The literature is reviewed, highlighting the improving prognosis of this rare condition and the current preferred treatment modalities.


2020 ◽  
pp. 25-39
Author(s):  
Р.Н. Слонимская

В статье рассматриваются взаимоотношения выдающихся музыкальных деятелей русской культуры Владимира Владимировича Щербачёва и Николая Карловича Метнера. Фактический материал анализируется на основе писем Щербачёва к жене, Марии Илларионовне, написанных в период командировки 1922-1923 годов в Пильниц под Дрезденом. В письмах раскрывается атмосфера музыкальной культуры Германии этого периода (в том числе постановка в Дрезденской опере Бориса Годунова Модеста Петровича Мусоргского). Подробно описывается процесс работы Щербачёва над партитурой монументального симфонического полотна Второй симфонии на стихи Александра Блока и приводится мнение Метнера о ней. Раскрываются музыкально-эстетические позиции Щербачёва и Метнера в отношении разных сторон техники сочинения, педагогики, исполнительского искусства. Одна из ключевых проблем сохранение традиции и радикальное новаторство, вызывавшее у Метнера весьма сложную реакцию. В целом, письма музыкантов дают возможность воссоздать живой и органичный облик двух композиторов разных творческих ориентаций, но искренне переживающих за музыкальное искусство. В конце статьи представлена роль Щербачёва в становлении ленинградской школы композиции. The article considers the relationship of outstanding music figures of the Russian culture VladimirV.Scherbachev and NikolayK.Medtner. The analyzed factual material is based on Scherbachevs letters to his wife Maria Illarionovna, written during a one-year trip to Pilnitz on the Elbe near Dresden 19221923. The letters reveal the atmosphere of musical culture of Germany of this period (including the production of Boris Godunov by Mussorgsky in the Dresden opera house). The author gives a detailed description of the process of Scherbachevs work on the score of the monumental symphonic canvas the Second Symphony on the poems by A.Blok, and Medtners opinion about it. In general, the letters of the two musicians give us an opportunity to recreate living and organic image of the two composers possessing different creative bearings, but sincerely worried about the music art.


2017 ◽  
Vol 24 ◽  
Author(s):  
Rukmini Pande ◽  
Swati Moitra

Online media or participatory fandom has long been theorized as a unique creative and communicative space for women. Further, scholarly work has highlighted the possibility of it functioning as a space that is conducive to the articulation of queerness—both through transformative work and participant identity. However, this theorization has failed to account for the differential operations of these spaces when they are forced to deal with issues of race and racism. This essay argues that this is a significant blind spot as fannish spaces cannot but negotiate with the multiple loci of privilege and intersectional concerns that underpin their functioning. It therefore proposes a significant intervention in the study of the same, drawing our attention to the historically queer and oft-sidelined fannish spaces of femslash fandoms. This analysis seeks to locate the ways in which such queer spaces grapple with critiques of misogyny and homophobia in popular cultural texts and online spaces, as well as the problematics of race and racial identity within such spaces, focusing on the queer fan community built around the relationship of Regina Mills and Emma Swan, eponymously known as Swan Queen, in the television show Once Upon a Time (2011–).


2020 ◽  
Vol 22 (Supplement_2) ◽  
pp. ii114-ii114
Author(s):  
Omar Bushara ◽  
Alexander Guzner ◽  
Kirsten Burdett ◽  
Patrick Murday ◽  
Matias Pollevick ◽  
...  

Abstract BACKGROUND Glioblastoma (GBM) is the most common primary malignant brain tumor and carries a very poor prognosis. Recent data report a negative association between the incidence of GBM and atopic disease. The underlying immunologic mechanisms of protection and the associated potential biomarkers are unclear. The aim of this retrospective study is to assess the relationship of eosinophil count to GBM risk by collecting eosinophil count in GBM patients with and without existing atopic disease. METHODS This is a retrospective study of 790 patients diagnosed with GBM from 2009–2019. Of those patients, 140 had laboratory values at least one year prior to diagnosis. Chart review was used to exclude patients with lymphoma, leukemia, other cancers, myelodysplastic syndromes, and unconfirmed drug, food, and adhesive reactions. 14 patients with chart-confirmed allergic rhinitis, asthma, or eczema and 47 controls were found. Wilcoxon rank sum test was used to compare the two groups. RESULTS The two groups did not differ in pre-diagnostic eosinophil counts (p=0.426). The two groups also did not differ in pre-diagnostic basophil, lymphocyte, neutrophil, or monocyte counts. Pre-diagnostic eosinophil to lymphocyte, monocyte to lymphocyte, and neutrophil to lymphocyte ratios also did not differ between the two groups. There were no other quantitative differences that would suggest a difference in immune cell profile. CONCLUSIONS In our study, the subset of GBM patients with atopic disease did not significantly differ in eosinophil count or other white blood cell subtypes when compared to GBM patients without atopic disease. Given that atopic disease is a known protective factor, and our atopic patients with GBM had normal eosinophil counts, we conclude that underlying immunologic factors such as eosinophilia may be protective from GBM as opposed to simply the presence of atopic disease. Prospective analysis to best understand eosinophil count as a surrogate for GBM risk is warranted.


2018 ◽  
Vol 3 (3) ◽  
pp. 78-84 ◽  
Author(s):  
James R. Berstock ◽  
James R. Murray ◽  
Michael R. Whitehouse ◽  
Ashley W. Blom ◽  
Andrew D. Beswick

Twenty randomized controlled trials comprising 1893 primary total knee replacements were included in this review. The subvastus approach conferred superior results for mean difference (MD) in time to regain an active straight leg raise (1.7 days, 95% confidence interval [CI] 1.0 to 2.3), visual analogue score for pain on day one (0.8 points on a scale out of 10, 95% CI 0.2 to 1.4) and total range of knee movement at one week (7°, 95% CI 3.2 to 10.7). The subvastus approach also resulted in fewer lateral releases (odds ratio 0.4, 95% CI 0.2 to 0.7) and less peri-operative blood loss (MD 57 mL, 95% CI 10.5 to 106.4) but prolonged surgical times (MD 9.7 min, 95% CI 3.9 to 15.6). There was no difference in Knee Society Score at six weeks or one year, or the rate of adverse events including superficial or deep infection, deep vein thrombosis or knee stiffness requiring manipulation under anaesthesia. This review demonstrates evidence of early post-operative benefits following the subvastus approach with equivalence between approaches thereafter. Cite this article: EFORT Open Rev 2018;3:78-84. DOI: 10.1302/2058-5241.3.170030.


2009 ◽  
Vol 36 (10) ◽  
pp. 2298-2301 ◽  
Author(s):  
RAJIV GANDHI ◽  
FAHAD RAZAK ◽  
PEGGY TSO ◽  
J. RODERICK DAVEY ◽  
NIZAR N. MAHOMED

Objective.We asked if patients with metabolic syndrome undergoing total knee replacement (TKR) have an increased risk for symptomatic deep vein thrombosis (DVT) at 3 months followup.Methods.We reviewed 1460 patients from our joint registry undergoing primary, unilateral TKR between 1998–2006. Demographic variables of age, sex, comorbidity, and education were retrieved. Metabolic syndrome was defined as body mass index above 30 kg/m2, diabetes, hypertension, and hypercholesterolemia. Logistic regression was used to examine the relationship of metabolic syndrome on the incidence of DVT.Results.The overall incidence of symptomatic DVT was 4.4% (65/1460). Patients with metabolic syndrome had an increased incidence of DVT compared to those without metabolic syndrome (15.5% vs 3.4%). Adjusted analysis showed that the risk of symptomatic DVT in patients with metabolic syndrome was 3.2 times [odds ratio 3.2, 95% CI (1.0,15.4), p = 0.04] the risk in those without metabolic syndrome.Conclusion.Hospital protocols developed for prophylactic anticoagulation following TKR should give special consideration to patients with metabolic syndrome.


1998 ◽  
Vol 2 (3) ◽  
pp. 40-47 ◽  
Author(s):  
Carol Picard, ◽  
Caryl Sickul, ◽  
Shannon Natale,

This paper examines the relationship of suffering, the need for care, and the healing power of aesthetics in human science. The authors live in the world of art and healing as scholars, educators, performers, and healers. In examining suffering in a cooperative mode of inquiry, the authors reflected on aesthetic works of suffering and beauty, as well as science, nursing literature, and illness narratives. Implications for nursing practice, education, and research are discussed. Recommendations for the possibilities of healing art in hospitals will be addressed as a restorative process in postmodern healthcare. The hospitals have been described as concentrated centers of human suffering, very much in need of its healing sister, art.


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