scholarly journals Conventional Rehabilitation Therapy Versus Telerehabilitation in Cardiac Patients: A Comparison of Motivation, Psychological Distress, and Quality of Life

2019 ◽  
Vol 16 (3) ◽  
pp. 512 ◽  
Author(s):  
Helle Spindler ◽  
Kasper Leerskov ◽  
Katrine Joensson ◽  
Gitte Nielsen ◽  
Jan Andreasen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Self Care ◽  
Autonomous Motivation ◽  
Lifestyle Changes ◽  
Cardiac Patients ◽  
Initial Increase ◽  
Care Technology

Telerehabilitation (TR) has gained attention as a promising rehabilitation format. Our study examined how patients responded to TR and whether it provided adequate support for their lifestyle changes and self-care efforts when compared to conventional rehabilitation (CR). Cardiac patients (n = 136) were randomly assigned to a TR or CR group. The TR group was provided with relevant health care technology for a period of three months, and both groups filled in questionnaires on their motivation for lifestyle changes and self-care psychological distress, and quality of life at 0, 3, 6, and 12 months. Patients in both groups were found to be equally motivated for lifestyle changes and self-care (p < 0.05) and they experienced similar levels of psychological distress and quality of life. TR is comparable to conventional rehabilitation in motivating patients, preventing psychological distress and improving quality of life. Although we observed an initial increase in autonomous motivation in the telerehabilitation group, this positive difference in motivation does not last over time. As such, neither rehabilitation format seems able to ensure long-term motivation. Therefore, TR may serve as a viable replacement for conventional rehabilitation when considered relevant. Further research is needed to enhance long-term motivation, and maybe telerehabilitation can help to achieve this.

The long-term impact of preoperative psychological distress on functional outcomes, quality of life, and patient satisfaction after total knee arthroplasty

2020 ◽  
Vol 102-B (7) ◽  
pp. 845-851 ◽  
Author(s):  
Graham S. Goh ◽  
Ming Han Lincoln Liow ◽  
You Wei Adriel Tay ◽  
Jerry Yongqiang Chen ◽  
Sheng Xu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Psychological Distress ◽  
Functional Outcomes ◽  
Knee Score ◽  
Sf 36 ◽  
Total Knee

Aims While patients with psychological distress have poorer short-term outcomes after total knee arthroplasty (TKA), their longer-term function is unknown. We aimed to 1) assess the influence of preoperative mental health status on long-term functional outcomes, quality of life, and patient satisfaction; and 2) analyze the change in mental health after TKA, in a cohort of patients with no history of mental health disorder, with a minimum of ten years’ follow-up. Methods Prospectively collected data of 122 patients undergoing primary unilateral TKA in 2006 were reviewed. Patients were assessed pre- and postoperatively at two and ten years using the Knee Society Knee Score (KSKS) and Function Score (KSFS); Oxford Knee Score (OKS); and the Mental (MCS) and Physical Component Summary (PCS) which were derived from the 36-Item Short-Form Health Survey questionnaire (SF-36). Patients were stratified into those with psychological distress (MCS < 50, n = 51) and those without (MCS ≥ 50, n = 71). Multiple regression was used to control for age, sex, BMI, Charlson Comorbidity Index (CCI), and baseline scores. The rate of expectation fulfilment and satisfaction was compared between patients with low and high MCS. Results There was no difference in the mean KSKS, KSFS, OKS, and SF-36 PCS at two years or ten years after TKA. Equal proportions of patients in each group attained the minimal clinically important difference for each score. Psychologically distressed patients had a comparable rate of satisfaction (91.8% (47/51) vs 97.1% (69/71); p = 0.193) and fulfilment of expectations (89.8% vs 97.1%; p = 0.094). The proportion of distressed patients declined from 41.8% preoperatively to 29.8% at final follow-up (p = 0.021), and their mean SF-36 MCS improved by 10.4 points (p < 0.001). Conclusion Patients with poor mental health undergoing TKA may experience long-term improvements in function and quality of life that are comparable to those experienced by their non-distressed counterparts. These patients also achieved a similar rate of satisfaction and expectation fulfilment. Undergoing TKA was associated with improvements in mental health in distressed patients, although this effect may be due to residual confounding. Cite this article: Bone Joint J 2020;102-B(7):845–851.

scholarly journals A Personalized eHealth Intervention for Lifestyle Changes in Patients With Cardiovascular Disease: Randomized Controlled Trial (Preprint)

2019 ◽  
Author(s):  
Eva Rosalinde Broers ◽  
Willem Johan Kop ◽  
Johan Denollet ◽  
Jos Widdershoven ◽  
Mart Wetzels ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cardiovascular Disease ◽  
Behavior Change ◽  
Treatment Effects ◽  
Intervention Group ◽  
Behavioral Flexibility ◽  
Lifestyle Changes ◽  
Long Term Treatment

BACKGROUND Behavior change methods involving new ambulatory technologies may improve lifestyle and cardiovascular disease outcomes. OBJECTIVE This study aimed to provide proof-of-concept analyses of an intervention aiming to increase (1) behavioral flexibility, (2) lifestyle change, and (3) quality of life. The feasibility and patient acceptance of the intervention were also evaluated. METHODS Patients with cardiovascular disease (N=149; mean age 63.57, SD 8.30 years; 50/149, 33.5% women) were recruited in the <i>Do Cardiac Health Advanced New Generation Ecosystem (Do CHANGE)</i> trial and randomized to the <i>Do CHANGE</i> intervention or <i>care as usual</i> (CAU). The intervention involved a 3-month behavioral program in combination with ecological momentary assessment and intervention technologies. RESULTS The intervention was perceived to be feasible and useful. A significant increase in lifestyle scores over time was found for both groups (<i>F</i><sub>2,146.6</sub>=9.99; <i>P</i>&lt;.001), which was similar for CAU and the intervention group (<i>F</i><sub>1,149.9</sub>=0.09; <i>P</i>=.77). Quality of life improved more in the intervention group (mean 1.11, SD 0.11) than CAU (mean −1.47, SD 0.11) immediately following the intervention (3 months), but this benefit was not sustained at the 6-month follow-up (interaction: <i>P</i>=.02). No significant treatment effects were observed for behavioral flexibility (<i>F</i><sub>1,149.0</sub>=0.48; <i>P</i>=.07). CONCLUSIONS The Do CHANGE 1 intervention was perceived as useful and easy to use. However, no long-term treatment effects were found on the outcome measures. More research is warranted to examine which components of behavioral interventions are effective in producing long-term behavior change. CLINICALTRIAL ClinicalTrials.gov NCT02946281; https://www.clinicaltrials.gov/ct2/show/NCT02946281

Health-related quality of life for glioblastoma short and long-term survivors receiving treatment with TTfields.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. 2055-2055
Author(s):  
Joshua David Palmer ◽  
Po-Ya Chuang ◽  
Gordon Chavez ◽  
Bruce CM Wang ◽  
Christina Proescholdt
Keyword(s):  
Quality Of Life ◽  
Self Care ◽  
Usual Activity ◽  
Five Dimensions ◽  
Patient Reported ◽  
The Impact ◽  
Eq Vas ◽  
Time Since Diagnosis

2055 Background: The aim of this study was to administer the first large-scale, international survey eliciting real-world patient-reported quality-of-life (QoL) for patients with newly diagnosed and long-term glioblastoma (GBM) currently receiving treatment with TTFields. Methods: A survey was designed and mailed to 2,815 patients actively using TTFields for treatment of GBM in the United States (US, n = 2,182) and Europe (EU, n = 633). The survey included 1) demographic information, 2) patient-reported clinical information and 3) EuroQol’s EQ-5D-5L and EQ visual analogue scale (EQ-VAS) surveys. Univariate and multivariate analyses were performed on five dimensions (mobility, self-care, usual activity, pain/discomfort, anxiety/depression) of the EQ-5D-5L and EQ-VAS to understand the impact of patient demographics and clinical characteristics on QOL. Results: A total of 1,106 patients were included (39.3% response rate) with 782 and 324 responses in the US and EU, respectively. The median time from diagnosis was 14 mos (range, 0-301 mos) and ≥24 mos in 28.4% of patients. Patients were mostly male (62.3%) with a mean age of 58.5 (SD = 12.5) and 69.3% had stable disease. Mean EQ-VAS was 68.2 for all patients and was significantly higher for those with > 15 months since diagnosis compared to < 15 months since diagnosis (p = 0.008). There were significantly fewer problems reported on self-care ( p = 0.04) and usual activity ( p = 0.007) in patients with a longer time since diagnosis in the univariate analysis. In the multivariate analysis, patients with a longer time since diagnosis reported significantly better EQ-VAS ( p = 0.04). The effect size in the multivariate analysis for time since diagnosis on EQ-VAS was higher in the progressed subgroup ( p = 0.17) compared to the broader sample (0.08). The EQ-VAS and all five dimensions including mobility, self-care, usual activity, pain/discomfort, and anxiety/depression were improved for stable patients compared to progressed patients in the univariate and multivariate analyses. However, when stratified by progression status, progressed patients with longer time from diagnosis had significantly fewer reported problems with mobility ( p = 0.04), self-care ( p = 0.004) and usual activity ( p = 0.008), and significantly better self-rated health status ( p = 0.02). Conclusions: GBM survivors receiving TTFields reported significantly improved health status over time since diagnosis. Long-term survival with TTFields does not have a detriment in patient reported quality of life, in fact with longer time from diagnosis QOL significantly improves. This is true for patients with stable and progressed disease. Future prospective clinical trials are needed to further study the impact of our treatment and tumor progression on patient QOL.

scholarly journals Aspek Psikologis pada Layanan Keperawatan Pasien Kanker Payudara: A Systematic Review

2020 ◽  
Vol 11 ◽  
pp. 25
Author(s):  
Yulia Indah Permata Sari ◽  
Waluyo Waluyo ◽  
Tria Anisa Firmanti ◽  
Sholihin Sholihin ◽  
Roby Aji Permana
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Psychological Distress ◽  
Psychosocial Factors ◽  
Psychological Functioning ◽  
Psychological Adaptation ◽  
Stressful Experience ◽  
Anxiety Depression

Background: Breast Cancer can be a traumatic and stressful experience for women but there are wide-ranging differences in the ways in which women respond and adapt to breast cancer. Purpose: to examines which sociodemographic, disease-related, and psychosocial factors predict psychological adaptation to breast cancer. Method: The database used to identify suitable articles obtained from Scopus, Pubmed, CINAHL and Science Direct was limited from 2011-2019, English, and fulltext articles. The literature review used the keywords “psychological, adaptation, breast cancer”. In searching articles used “AND”. Results: 31 articles met the inclusion criteria. Consistent sociodemographic and disease-related variables predictors of adaptation were income, fatigue, cancer stage, and physical functioning. Psychosocial factors, particularly optimism and trait-anxiety, as well as perceived social support, coping strategies, and initial levels of psychological functioning were found to be predictive of later depressive and anxiety symptoms, psychological distress and quality of life for women with breast cancer, in predictable ways. Conclusion: The majority of studies showed a significant relationship between psychosocial factors and psychological adaptation. These results pount to specific sociodemographic, disease-related, and psychosocial factors that can help to identify women at the time of diagnosis who are at risk for long-term psychological challenges so they can be reffered for psychological support that targets their specific needs and can improve their quality of life and mood, and decrease indicators of anxiety, depression and psychological distress. Keywords: psychological; adaptation; breast cancer ABSTRAK Latar Belakang: Kanker payudara dapat menjadi pengalaman yang traumatis dan juga menimbulkan stress bagi wanita, tetapi ada banyak perbedaan cara wanita merespons dan beradaptasi dengan kanker payudara. Tujuan: Untuk menguji faktor-faktor sosiodemografi, hal-hal terkait penyakit, dan faktor psikososial yang memprediksi adaptasi psikologis terhadap kanker payudara. Metode: Database digunakan untuk mengidentifikasi artikel yang sesuai diperoleh dari Scopus, PubMed, CINAHL, dan Science Direct terbatas untuk tahun 2011 hingga 2019, bahasa Inggris dan teks lengkap. Tinjauan literatur menggunakan kata kunci “psikologis, adaptasi, kanker payudara”. Dalam pencarian artikel menggunakan “AND”. Hasil: 31 artikel memenuhi kriteria inklusi. Variabel-variabel sosiodemografi dan hal-hal terkait penyakit yang menjadi prediktor adaptasi adalah pendapatan, kelelahan, stadium kanker dan fungsi fisik. Faktor-faktor psikososial, terutama optimisme dan kecemasan, serta dukungan sosial yang dirasakan, strategi koping, dan tingkat awal fungsi psikologis ditemukan menjadi prediksi gejala depresi dan kecemasan, tekanan psikologis dan kualitas hidup untuk wanita dengan kanker payudara. Kesimpulan: Sebagian besar penelitian menunjukkan hubungan yang signifikan antara faktor psikososial dan adaptasi psikologis. Hasil ini sesuai dengan faktor-faktor sosiodemografi, hal-hal terkait penyakit dan faktor psikososial dapat membantu mengidentifikasi wanita pada saat diagnosis yang berisiko terhadap tantangan psikologis jangka panjang sehingga mereka mendapatkan dukungan psikologis yang dapat meningkatkan kualitas hidup dan suasana hati mereka, dan mengurangi indikator kecemasan, depresi dan tekanan psikologis. Kata kunci: psikologis; adaptasi; kanker payudara

scholarly journals Complementary treatment comparison for chronic pain management: A randomized longitudinal study

PLoS ONE ◽  
2021 ◽  
Vol 16 (8) ◽  
pp. e0256001
Author(s):  
Aminata Bicego ◽  
Justine Monseur ◽  
Alain Collinet ◽  
Anne-Françoise Donneau ◽  
Robert Fontaine ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Pain ◽  
Locus Of Control ◽  
Perceived Control ◽  
Self Care ◽  
Physical Quality ◽  
Insomnia Severity

Background In chronic pain, it seems that the effect of cognitive-behavioral therapy (CBT) is boosted when it is combined with hypnosis. The aim of this study was to assess the efficacy of self-hypnosis combined with self-care (i.e., a type of CBT) compared to music/self-care, self-care and psychoeducation/CBT and to evaluate their long-term effects. Methods An open label randomized clinical trial enrolled patients with chronic pain and was carried out at the University Hospital of Liège (Belgium). Patients were randomized into four groups: self-hypnosis/self-care, music/self-care, self-care, psychoeducation/CBT (7 monthly sessions of 2 hours). Two follow-up sessions were delivered at 6- and 12-month. Levels of pain, fatigue intensity, anxiety, depression, insomnia severity, disability, health locus of control, mental and physical quality of life and attitudes (control, disability, harm, emotion, medical cure, medication, solicitude) towards pain were assessed before and after the treatments, and at follow-up. Results 203 patients were randomized: 52 in self-hypnosis/self-care, 59 in music/self-care, 47 in self-care, and 45 in psychoeducation/CBT. No group effect was found. A significant time effect was showed. Directly after the treatment, all groups decreased in pain attitudes and physical quality of life. Perceived control increased. At 6-month, all patients kept their levels of physical quality of life and perceived control, and showed decrease in pain intensity, harm, emotion and medical cure. At 12-month, scores that had change previously remained ameliorated, a decrease in insomnia severity and an increase in internal locus of control were observed. Conclusions The present findings are encouraging as they display long-term beneficial effects of complementary biopsychosocial-based treatments in chronic pain. It seems that patients continued to apply the learnt strategies as improvements were observed one year after the treatments had ended.

scholarly journals QOLP-16. DISTRESSED (D TYPE) PERSONALITY, PREOPERATIVE PSYCHOLOGICAL DISTRESS, COGNITIVE FUNCTIONING, QUALITY OF LIFE, AND TREATMENT OUTCOMES OF GLIOMA PATIENTS: PROSPECTIVE STUDY

2019 ◽  
Vol 21 (Supplement_6) ◽  
pp. vi201-vi201
Author(s):  
Aiste Pranckeviciene ◽  
Ausra Saudargiene ◽  
Vytenis Deltuva ◽  
Arimantas Tamasauskas ◽  
Adomas Bunevicius
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Cognitive Functioning ◽  
Treatment Outcomes ◽  
Neuropsychological Tests ◽  
Low Grade ◽  
Depression And Anxiety ◽  
Who Grade

Abstract BACKGROUND This study aimed to evaluate impact of distressed (D type) personality on preoperative psychological distress, cognitive functioning and quality of life (QoL) as well as short-term and long-term treatment outcomes of glioma patients. METHOD One-hundred and seventy patients (93 men, mean age=51.1±14.5 years) participated in the study. Fifty-four (31.8%) patients were diagnosed with low grade (WHO grade I-II), and 116 (68.2%) with high grade (WHO grade III-IV) tumors. Psychological assessment was performed 2–3 days before surgery using a set of self-report questionnaires (NCCN Distress thermometer, EORTC-QLQ-C30, EORTCQLQ-BN20, HADS, DS-14) and a short battery of neuropsychological tests. Functional status at the discharge was assessed using the GOS. Follow-up period was 40 months. RESULTS Thirty-nine (22.9%) of patients met criteria for D type personality. D-type patients relative to non D-type patients reported significantly worse QoL, higher number tumor related symptoms, greater depression and anxiety symptoms, and demonstrated slowing of psychomotor speed in neuropsychological tests. However, no personality related differences were observed in level of functioning at time of discharge as well as long-term patients’ survival. Path analysis using SEM revealed non-direct impact of D-type personality traits on patients QoL (Chi-square value=16.73, df=13, p=0.212). The model indicated statistically significant indirect effects of D-type Negative Affectivity on QoL (IPC -0.285, 95% CI [-0.386; -0.178], p=0.003) and tumor related symptoms (IPC 0.196, 95% CI [0.117; 0.296], p=0.002) mediated via depression and anxiety. Social Inhibition was also indirectly associated with QoL (IPC -0.047, 95% CI [-0.120; -0.002], p=0.035) and symptoms (IPC 0.033, 95% CI [0.002; 0.097], p=0.032) through depression and anxiety. CONCLUSION D-type personality contributes to impairment of QoL and higher number of reported symptoms in glioma patients via increased susceptibility for depression and anxiety.

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