Mindfulness-Based Interventions for Caregivers (Parents) of Children With Cerebral Palsy

2022 ◽  
pp. 127-143
Author(s):  
Nandini Sharma ◽  
S. Z. H. Zaidi ◽  
Syed Sajid Husain Kazmi
Keyword(s):  
Cerebral Palsy ◽  
Perceived Stress ◽  
Stress Reduction ◽  
Mental State ◽  
Children With Disabilities ◽  
Well Being ◽  
Present Moment ◽  
Children With Cerebral Palsy ◽  
Bodily Sensations ◽  
Mindfulness Based Stress Reduction

Families of children with disabilities often experience high levels of stress associated with taking care of a child with disability. The perceived stress by the caregivers may often lead to negative outcomes in day-to-day functioning for caregivers themselves as well as the child. Mindfulness as an element of consciousness has been acknowledged to promote positivity and well-being among individuals. It is a mental state achieved by focusing one's awareness on the present moment, while calmly acknowledging and accepting one's feelings, thoughts, and bodily sensations. This chapter focuses on the application of mindfulness-based therapies for caregivers (parents) of children with cerebral palsy. This chapter also entails in detail therapeutic techniques like Mindfulness-Based Stress Reduction (MBSR), its in-depth description, background, and applications as an effective approach for the intervention of caregivers.

A Promising Practice: School-Based Mindfulness-Based Stress Reduction for Children with Disabilities

2017 ◽  
Vol 20 (2) ◽  
pp. 56-66
Author(s):  
Wendy W. Fuchs ◽  
Nancy J. Mundschenk ◽  
Brian Groark
Keyword(s):  
Stress Reduction ◽  
Children With Disabilities ◽  
Well Being ◽  
Future Research ◽  
Social Emotional ◽  
School Based ◽  
Promising Practice ◽  
Adults And Children ◽  
Mindfulness Based Stress Reduction ◽  
Definition Of

Abstract Adults and children around the world are experiencing unhealthy levels of stress. More specifically, the stress levels that children report can have detrimental effects on their social-emotional, physical and academic well-being. Schools are in a unique position to not only address the causes of stress in children's lives, but to also provide strategies to reduce stress. Mindfulness-Based Stress Reduction (MBSR) is one approach that schools can use to teach children how to acknowledge and deal with everyday stressors. This article aims to provide a definition of stress, describe MBSR, and provide a review of the current literature on MBSR studies with children. Additionally, the authors suggest implications for school-based mindfulness approaches to reduce the stress of children with disabilities, and recommendations for future research.

scholarly journals Evaluating the Effects of Mindfulness-Based Stress Reduction on Cognitive Function and Well-being in Caregivers of Persons with Dementia and Related Neurodegenerative Diseases

2021 ◽  
Author(s):  
Sasha Mallya
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Cognitive Function ◽  
Perceived Stress ◽  
Stress Reduction ◽  
Psychosocial Functioning ◽  
Well Being ◽  
Control Group ◽  
Mindfulness Based Stress Reduction

Approximately 14.9% of Canadians aged 65 and older are living with cognitive impairment, including dementia, which means that there is likely an equal or even greater number of Canadians involved in their care. Relative to non-caregivers, caregivers of persons with dementia typically show more cognitive difficulties (e.g., executive function, memory), and report increased perceived stress, depression, and poor quality of life. The first aim of this dissertation was to compare caregivers’ cognitive and psychological function with that of non-caregiving older adults. The second aim was to assess whether a standardized mindfulness-based stress reduction (MBSR) intervention could improve cognitive function and well-being in caregivers, compared to a psychoeducational control group. In Study 1, 57 older adult caregivers completed an assessment of cognitive and psychosocial functioning. Their performance was compared with that of 97 healthy, non-caregiving older adults who completed a similar battery of measures. It was hypothesized that caregivers would show decreased performance on measures of cognitive function, as well as significantly poorer psychosocial outcomes relative to the non-caregiver group. In Study 2, caregivers were randomized into an eight week MBSR program (n = 33) or a psychoeducation control group (n = 24). At post-program, all participants completed a re-assessment of cognitive and psychosocial functioning. Results of Study 1 showed that relative to non-caregivers, caregivers made significantly more errors on a measure of cognitive flexibility, generated fewer words on measures of phonemic fluency and semantic fluency, and learned significantly fewer words on a list learning task. Caregivers also reported significantly more stress and depressive symptoms, and reported lower quality of life. Results of Study 2 showed that post-intervention cognitive performance did not significantly differ as a function of group assignment. However, participants in the MBSR group showed a significantly larger reduction in depression and perceived stress relative to controls. Results of this RCT provide preliminary evidence for the selective benefits of MBSR relative to psychoeducation in a group of older caregivers of individuals with dementia.

scholarly journals Evaluating the Effects of Mindfulness-Based Stress Reduction on Cognitive Function and Well-being in Caregivers of Persons with Dementia and Related Neurodegenerative Diseases

2021 ◽  
Author(s):  
Sasha Mallya
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Cognitive Function ◽  
Perceived Stress ◽  
Stress Reduction ◽  
Psychosocial Functioning ◽  
Well Being ◽  
Control Group ◽  
Mindfulness Based Stress Reduction

Approximately 14.9% of Canadians aged 65 and older are living with cognitive impairment, including dementia, which means that there is likely an equal or even greater number of Canadians involved in their care. Relative to non-caregivers, caregivers of persons with dementia typically show more cognitive difficulties (e.g., executive function, memory), and report increased perceived stress, depression, and poor quality of life. The first aim of this dissertation was to compare caregivers’ cognitive and psychological function with that of non-caregiving older adults. The second aim was to assess whether a standardized mindfulness-based stress reduction (MBSR) intervention could improve cognitive function and well-being in caregivers, compared to a psychoeducational control group. In Study 1, 57 older adult caregivers completed an assessment of cognitive and psychosocial functioning. Their performance was compared with that of 97 healthy, non-caregiving older adults who completed a similar battery of measures. It was hypothesized that caregivers would show decreased performance on measures of cognitive function, as well as significantly poorer psychosocial outcomes relative to the non-caregiver group. In Study 2, caregivers were randomized into an eight week MBSR program (n = 33) or a psychoeducation control group (n = 24). At post-program, all participants completed a re-assessment of cognitive and psychosocial functioning. Results of Study 1 showed that relative to non-caregivers, caregivers made significantly more errors on a measure of cognitive flexibility, generated fewer words on measures of phonemic fluency and semantic fluency, and learned significantly fewer words on a list learning task. Caregivers also reported significantly more stress and depressive symptoms, and reported lower quality of life. Results of Study 2 showed that post-intervention cognitive performance did not significantly differ as a function of group assignment. However, participants in the MBSR group showed a significantly larger reduction in depression and perceived stress relative to controls. Results of this RCT provide preliminary evidence for the selective benefits of MBSR relative to psychoeducation in a group of older caregivers of individuals with dementia.

scholarly journals Evaluating the effects of mindfulness-based stress reduction on cognitive function and well-being in caregivers of persons with dementia and related neurodegenerative diseases

2021 ◽  
Author(s):  
Sasha Mallya
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Cognitive Function ◽  
Perceived Stress ◽  
Stress Reduction ◽  
Psychosocial Functioning ◽  
Well Being ◽  
Control Group ◽  
Mindfulness Based Stress Reduction

Approximately 14.9% of Canadians aged 65 and older are living with cognitive impairment, including dementia, which means that there is likely an equal or even greater number of Canadians involved in their care. Relative to non-caregivers, caregivers of persons with dementia typically show more cognitive difficulties (e.g., executive function, memory), and report increased perceived stress, depression, and poor quality of life. The first aim of this dissertation was to compare caregivers’ cognitive and psychological function with that of non-caregiving older adults. The second aim was to assess whether a standardized mindfulness-based stress reduction (MBSR) intervention could improve cognitive function and well-being in caregivers, compared to a psychoeducational control group. In Study 1, 57 older adult caregivers completed an assessment of cognitive and psychosocial functioning. Their performance was compared with that of 97 healthy, non-caregiving older adults who completed a similar battery of measures. It was hypothesized that caregivers would show decreased performance on measures of cognitive function, as well as significantly poorer psychosocial outcomes relative to the non-caregiver group. In Study 2, caregivers were randomized into an eight week MBSR program (n = 33) or a psychoeducation control group (n = 24). At post-program, all participants completed a re-assessment of cognitive and psychosocial functioning. Results of Study 1 showed that relative to non-caregivers, caregivers made significantly more errors on a measure of cognitive flexibility, generated fewer words on measures of phonemic fluency and semantic fluency, and learned significantly fewer words on a list learning task. Caregivers also reported significantly more stress and depressive symptoms, and reported lower quality of life. Results of Study 2 showed that post-intervention cognitive performance did not significantly differ as a function of group assignment. However, participants in the MBSR group showed a significantly larger reduction in depression and perceived stress relative to controls. Results of this RCT provide preliminary evidence for the selective benefits of MBSR relative to psychoeducation in a group of older caregivers of individuals with dementia.

scholarly journals Evaluating the effects of mindfulness-based stress reduction on cognitive function and well-being in caregivers of persons with dementia and related neurodegenerative diseases

2021 ◽  
Author(s):  
Sasha Mallya
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Cognitive Function ◽  
Perceived Stress ◽  
Stress Reduction ◽  
Psychosocial Functioning ◽  
Well Being ◽  
Control Group ◽  
Mindfulness Based Stress Reduction

Approximately 14.9% of Canadians aged 65 and older are living with cognitive impairment, including dementia, which means that there is likely an equal or even greater number of Canadians involved in their care. Relative to non-caregivers, caregivers of persons with dementia typically show more cognitive difficulties (e.g., executive function, memory), and report increased perceived stress, depression, and poor quality of life. The first aim of this dissertation was to compare caregivers’ cognitive and psychological function with that of non-caregiving older adults. The second aim was to assess whether a standardized mindfulness-based stress reduction (MBSR) intervention could improve cognitive function and well-being in caregivers, compared to a psychoeducational control group. In Study 1, 57 older adult caregivers completed an assessment of cognitive and psychosocial functioning. Their performance was compared with that of 97 healthy, non-caregiving older adults who completed a similar battery of measures. It was hypothesized that caregivers would show decreased performance on measures of cognitive function, as well as significantly poorer psychosocial outcomes relative to the non-caregiver group. In Study 2, caregivers were randomized into an eight week MBSR program (n = 33) or a psychoeducation control group (n = 24). At post-program, all participants completed a re-assessment of cognitive and psychosocial functioning. Results of Study 1 showed that relative to non-caregivers, caregivers made significantly more errors on a measure of cognitive flexibility, generated fewer words on measures of phonemic fluency and semantic fluency, and learned significantly fewer words on a list learning task. Caregivers also reported significantly more stress and depressive symptoms, and reported lower quality of life. Results of Study 2 showed that post-intervention cognitive performance did not significantly differ as a function of group assignment. However, participants in the MBSR group showed a significantly larger reduction in depression and perceived stress relative to controls. Results of this RCT provide preliminary evidence for the selective benefits of MBSR relative to psychoeducation in a group of older caregivers of individuals with dementia.

Perception of Mothers among Cerebral Palsy Children with Disabilities in Tamil Nadu, India

2020 ◽  
Vol 11 (3) ◽  
pp. 3349-3354
Author(s):  
Elanchezhian Chinnavan ◽  
Swarna kumari P
Keyword(s):  
Cerebral Palsy ◽  
Health Status ◽  
Parental Stress ◽  
Tamil Nadu ◽  
Children With Disabilities ◽  
Community Support ◽  
Well Being ◽  
Study Data ◽  
Cronbach’S Alpha ◽  
Cronbach's Alpha

The purpose of the study is to check the perception of mothers of cerebral palsy children with disabilities in Tamil Nadu. Data, from India, on perceptions about Cerebral palsy disability are scant. This study explored mother’s knowledge, social well-being and awareness of treatment rendered. During the development of the questionnaire, review of the literature has been primarily made; during developing the questionnaire personal and social values were considered. The questionnaire was emerged with 9 themes, Knowledge of disability condition, Parental stress, Community support, Child ability, Mothers Confidence, Improvement, Health status, Benefits & Belief. Data were collected from mothers of both male and female children with cerebral palsy aged between 1 to 18 years. 220 mothers, averaged 33.44 + 6.14years, of children with CP were randomly selected for this study. Data was collected from mothers attending rehabilitation centers from different institution and special schools in Tamil Nadu. Mothers can hold both a fatalistic view of disability and a belief in the course of disability.The raw data was tabulated and analyzed by using SPSS 17 version software. Cronbach’s Alpha was calculated, the results showed that its Cronbach’s Alpha was extremely good (r=0.96). Our results suggest that there is significance difference with in the mother’s perception towards types of disability in Parental stress, child’s ability, mother’s confidence, improvement, health status, benefits and belief.Mothers should be motivated to maximize rehabilitation services in order to improve their children’s functional capacity. The appreciation of this phenomenon could move towards a model for the delivery of rehabilitation that integrates and harmonizes such beliefs.

Children with cerebral palsy: Family and parent demographic characteristics and family strengths in Greece and Italy

2020 ◽  
pp. 135910531990027
Author(s):  
Assimina Tsibidaki
Keyword(s):  
Cerebral Palsy ◽  
Data Collection ◽  
Well Being ◽  
Demographic Characteristics ◽  
Self Report ◽  
Family Strengths ◽  
Biological Child ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
High Sense

The study focuses on families raising a child with cerebral palsy to investigate family strengths and their association with family and parent demographic characteristics in Greece and Italy. Participants were 120 parents raising a biological child with cerebral palsy. Data collection used a self-report questionnaire and the Family Strengths Inventory. According to the findings, families share a high sense of family strengths, which is mainly represented in the high sense of ‘pride’ and ‘accord’. In addition, demographic characteristics seem to be important predictors of well-being and strengthen parents and families raising a child with cerebral palsy.

Rolling out a mindfulness-based stress reduction intervention for parents of children with ADHD: a feasibility study

2020 ◽  
pp. 1-8
Author(s):  
R. Rice ◽  
A. Ni Bhearra ◽  
K. Kilbride ◽  
C. Lynch ◽  
F. McNicholas
Keyword(s):  
Stress Reduction ◽  
Parental Stress ◽  
Well Being ◽  
Children With Adhd ◽  
Hyperactivity Disorder ◽  
The Social ◽  
Strengths And Difficulties ◽  
Mindfulness Based Stress Reduction ◽  
Frequent Reason

Background: Attention-deficit/Hyperactivity Disorder (ADHD) is the single most frequent reason for attendance at Child and Adolescent Mental Health Services (CAMHS) in Ireland. Research has suggested that parents of children with ADHD experience more parenting stress than parents of non-clinical controls, yet routine treatment for ADHD rarely addresses parental well-being. Mindfulness-based interventions (MBIs) have been found to result in a reduction in parental stress. Method: An adapted Mindfulness-Based Stress Reduction (MBSR) intervention was delivered to parents (n = 23) of children with ADHD recruited from CAMHS and ADHD Ireland. Results: Following the intervention a significant improvement was documented within the social relationships domain of quality of life (WHOQOL-BREF) and a significant reduction on the child hyperactivity scale of the Strengths and Difficulties (SDQ) questionnaire. Conclusion: This pilot study suggests that an MBSR intervention is both feasible and effective for parents whose children have ADHD. Larger scale studies need to be conducted before inclusion in routine CAMHS.

Mindfulness-based stress reduction for people with chronic diseases

2010 ◽  
Vol 16 (3) ◽  
pp. 200 ◽  
Author(s):  
Monika Merkes
Keyword(s):  
Quality Of Life ◽  
Chronic Diseases ◽  
Stress Reduction ◽  
Well Being ◽  
Multiple Chemical Sensitivity ◽  
Self Report ◽  
Original Research ◽  
Mindfulness Based Stress Reduction ◽  
The Impact

Mindfulness-based stress reduction (MBSR) is a structured group program that uses mindfulness meditation to improve well-being and alleviate suffering. This article reviews the impact of MBSR for people with chronic diseases. The review includes original research that was published in English and peer-reviewed and reported outcomes for adults with chronic diseases who had participated in an MBSR program. Fifteen studies were identified. Outcomes related to mental and physical health, well-being, and quality of life. The studies included different research designs, and used self-report and physiological outcome measures. Participants’ clinical diagnoses included fibromyalgia, chronic pain, rheumatoid arthritis, type 2 diabetes, chronic fatigue syndrome, multiple chemical sensitivity, and cardiovascular diagnoses. All 15 studies found that participation in an MBSR program resulted in improvements. No negative change was reported between baseline and follow up. Outcomes in regard to specific variables were difficult to compare and equivocal. Overall, positive change predominated. Chronic diseases are associated with a range of unwelcome psychological and physical consequences. Participation in an MBSR program is likely to result in coping better with symptoms, improved overall well-being and quality of life, and enhanced health outcomes. As an adjunct to standard care, MBSR has potential for much wider application in Australian primary care settings.

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