Children with cerebral palsy: Family and parent demographic characteristics and family strengths in Greece and Italy

2020 ◽  
pp. 135910531990027
Author(s):  
Assimina Tsibidaki
Keyword(s):  
Cerebral Palsy ◽  
Data Collection ◽  
Well Being ◽  
Demographic Characteristics ◽  
Self Report ◽  
Family Strengths ◽  
Biological Child ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
High Sense

The study focuses on families raising a child with cerebral palsy to investigate family strengths and their association with family and parent demographic characteristics in Greece and Italy. Participants were 120 parents raising a biological child with cerebral palsy. Data collection used a self-report questionnaire and the Family Strengths Inventory. According to the findings, families share a high sense of family strengths, which is mainly represented in the high sense of ‘pride’ and ‘accord’. In addition, demographic characteristics seem to be important predictors of well-being and strengthen parents and families raising a child with cerebral palsy.

Factors Associated with Well-Being of Family Caregivers of Children with Cerebral Palsy in Bangkok

2020 ◽  
Vol 103 (11) ◽  
pp. 1214-1219
Keyword(s):  
Social Support ◽  
Cerebral Palsy ◽  
Family Caregivers ◽  
Self Efficacy ◽  
Well Being ◽  
Personal Factors ◽  
Burden Of Care ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
The Mean

Objective: This correlational study was conducted to investigate the factors related to the well-being of family caregivers of children with cerebral palsy (CP). Materials and Methods: Seventy-five participants meeting the inclusion criteria were family caregivers of children with CP in Bangkok. Data were collected using structured interviews following eight questionnaires including personal factors of children with CP and their family caregivers, knowledge of CP, beliefs of rehabilitation, perceived self-efficacy in care, the burden of care, social support, and well-being of family caregivers. Data were analyzed using descriptive statistics, Pearson product moment correlation, Spearman rank order correlation, and chi-square test. Results: Findings showed that the mean age (±SD) of children with CP was of 11.0±4.2 years. The perceived self-efficacy in care and social support were significantly positively correlated with the well-being of the family caregivers (p<0.05, 0.01, 0.05, respectively) while the mean the burden of care was significantly negatively associated with the well-being of the family caregivers (p<0.01). Conclusion: The important keys of caring for children with CP should be to provide the knowledge of care and self-support, the social support, and perceived self-efficacy in care of family caregivers to enhance their confidence to solve problems and reduced care burden resulting in the well-being of the family caregivers for children with CP. Keywords: Factors, Well-being, Family caregivers, Children with cerebral palsy

scholarly journals Menjadi Ibu Tiri untuk Anak Cerebral Palsy

INKLUSI ◽  
2019 ◽  
Vol 6 (2) ◽  
pp. 211
Author(s):  
Diah Astuti
Keyword(s):  
Cerebral Palsy ◽  
Data Collection ◽  
Nuclear Family ◽  
Extended Family ◽  
Family Data ◽  
Structuralist Theory ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
The Creation ◽  
Harmonious Family

This study aims to determine how the experience of being a good stepmother for children with cerebral palsy (CP children). With the stigma of a stepmother who tends to be negative, is it still possible to be a good stepmother for a CP child? In answering this question, the writer uses Talcot Parson's functionalism-structuralist theory to see the fulfillment of certain conditions for the creation of a stable/harmonious family. Data collection is done by interview and observation techniques. This research concludes that stepmothers are not always bad, not ideal, or evil-tempered. The determinants of how a stepmother is accepted are inseparable from the background of her life and acceptance and support from the family, both the nuclear family or extended family.[Penelitian ini bertujuan untuk mengetahui bagaimana pengalaman menjadi ibu tiri yang baik bagi anak dengan cerebral palsy (anak CP). Dengan stigma ibu tiri yang cenderung negatif, masih mungkinkah menjadi ibu tiri yang baik bagi seorang anak CP? Dalam menjawab pertanyaan tersebut, penulis menggunakan teori fungsionalisme-strukturalis dari Talcot Parson untuk melihat pemenuhan syarat tertentu demi terciptanya keluarga yang stabil/harmonis. Pengumpulan data dilakukan dengan teknik wawancara dan observasi. Penelitian ini menyimpulkan bahwa ibu tiri tidak selalu buruk, tidak ideal, atau berperangai jahat. Adapun faktor penentu bagaimana ibu tiri diterima tidak terlepas dari latar belakang kehidupannya dan penerimaan dan dukungan dari keluarga, baik keluarga inti atau keluarga besar.]

scholarly journals Clinical Profiles and Socio-Demographic Characteristics of Adults with Specific Learning Disorder in Northern Greece

2021 ◽  
Vol 11 (5) ◽  
pp. 602
Author(s):  
Eleni Bonti ◽  
Sofia Giannoglou ◽  
Marianthi Georgitsi ◽  
Maria Sofologi ◽  
Georgia-Nektaria Porfyri ◽  
...  
Keyword(s):  
Adult Population ◽  
Relevant Literature ◽  
Well Being ◽  
Demographic Characteristics ◽  
Self Report ◽  
Learning Disorder ◽  
Northern Greece ◽  
Everyday Functioning ◽  
Specific Learning Disorder ◽  
Specific Learning

The manifestation of Specific Learning Disorder (SLD) during adulthood is one of the least examined research areas among the relevant literature. Therefore, the adult population with SLD is considered a “rare” and “unique” population of major scientific interest. The aim of the current study was to investigate, describe, and analyze the clinical, academic, and socio-demographic characteristics, and other everyday functioning life-skills of adults with SLD, in an attempt to shed more light on this limited field of research. The overall sample consisted of 318 adults, who were assessed for possible SLD. The diagnostic procedure included self-report records (clinical interview), psychometric/cognitive, and learning assessments. The main finding of the study was that SLD, even during adulthood, continues to affect the individuals’ well-being and functionality in all of their life domains. There is an ongoing struggle of this population to obtain academic qualifications in order to gain vocational rehabilitation, as well as a difficulty to create a family, possibly resulting from their unstable occupational status, their financial insecurity, and the emotional/self-esteem issues they usually encounter, due to their ongoing learning problems. Moreover, the various interpersonal characteristics, the comorbidity issues, and the different developmental backgrounds observed in the clinical, academic, personal, social, and occupational profiles of the participants, highlight the enormous heterogeneity and the continuum that characterizes SLD during adulthood. We conclude that there is an imperative need for further research and the construction of more sufficient tools for the assessment and diagnosis of SLD during adulthood, which will take into account the developmental challenges and milestones in a series of domains, in order to assist this “vulnerable” population with their life struggles.

scholarly journals The Move & PLAY Study: An Example of Comprehensive Rehabilitation Outcomes Research

2010 ◽  
Vol 90 (11) ◽  
pp. 1660-1672 ◽  
Author(s):  
Doreen J. Bartlett ◽  
Lisa A. Chiarello ◽  
Sarah Westcott McCoy ◽  
Robert J. Palisano ◽  
Peter L. Rosenbaum ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Data Collection ◽  
Outcomes Research ◽  
Service Providers ◽  
World Health ◽  
International Classification Of Functioning ◽  
Rehabilitation Outcomes ◽  
Children With Cerebral Palsy ◽  
Comprehensive Rehabilitation

This perspective article provides an example of a study planned using guidelines for comprehensive rehabilitation outcomes research, an approach that is believed to give service providers meaningful evidence to support practice. This line of investigation has been guided by the World Health Organization's International Classification of Functioning, Disability and Health. The short title of a study under way is Move & PLAY (Movement and Participation in Life Activities of Young Children). The article briefly describes the conceptual model, provides guidelines on how indicators and measures are selected, alludes to the details of selected measures, and describes processes of preparing for data collection, including obtaining ethics approval, preparing data collection booklets, training assessors and interviewers, and sampling. The aim of this investigation is to gain a better understanding of the multiple child, family, and service factors associated with changes in mobility, self-care, and play of preschool children with cerebral palsy as a result of using this research method. Comprehensive rehabilitation outcomes research holds promise in providing evidence that supports the complexities of planning rehabilitation services with clients with chronic conditions, such as children with cerebral palsy.

Impact of family demands and family strengths and capabilities on family well-being and adaptation after critical injury

1998 ◽  
Vol 7 (5) ◽  
pp. 383-392 ◽  
Author(s):  
JS Leske ◽  
MK Jiricka
Keyword(s):  
Problem Solving ◽  
Family Members ◽  
Well Being ◽  
Family Strengths ◽  
Family Adaptation ◽  
Convenience Sample ◽  
The Family ◽  
Family Demands ◽  
Index Family ◽  
Critical Injury

BACKGROUND: Increases in demands on patients' family members that are not reduced by family strengths may contribute to decreases in family adaptation and complicate patients' recovery after trauma. The purpose of this study was to examine family demands (prior stressors and severity of patients' injuries) and family strengths and capabilities (hardiness, resources, coping, and problem-solving communication) associated with outcomes of family well-being and adaptation. METHODS: A multivariate, descriptive design based on the Resiliency Model of Family Stress was used. A convenience sample of family members (N = 51) of adult patients participated within the first 2 days of critical injury. Family demands were measured with the Family Inventory of Life Events and Changes and the Acute Physiology, Age, and Chronic Health Evaluation III. Family strengths were measured with the Family Hardiness Index, Family Inventory of Resources for Management, Family Crisis Oriented Personal Evaluation Scale, and Family Problem Solving Communication Index. Family adaptation outcomes were measured with the Family Well Being Index and Family Adaptation Scale. RESULTS: Increases in family demands were significantly related to decreases in family strengths and family adaptation. Family demands scores accounted for 40% of the variance in family well-being scores. The only significant family strength variable influencing family adaptation was problem-solving communication. CONCLUSIONS: Increases in family demands seem to be an important indicator of the amount of assistance a family may need. Interventions that help mobilize family strengths, such as problem-solving communication, may be effective in promoting the adaptation of families of critically injured patients.

scholarly journals The Design and Development of the Father-Child Instrument (FCI) for Assessing the Characteristics of Fathers’ Availability and Engagement With Their Preschool Children

2009 ◽  
Vol 4 (2) ◽  
pp. 145-156 ◽  
Author(s):  
Nina Halme ◽  
Marja-Terttu Tarkka ◽  
Eija Paavilainen ◽  
Tapio Nummi ◽  
Päivi Åstedt-Kurki
Keyword(s):  
Health Care ◽  
Preschool Children ◽  
Data Collection ◽  
Health Care Research ◽  
Well Being ◽  
Design And Development ◽  
Care Research ◽  
The Family ◽  
Child Involvement ◽  
Health And Well Being

Despite the fact that father—child involvement has extensive effects on the health and well-being of the family, there is a paucity of research on fathers’ presence in health care research. The design and development of an instrument for assessing the characteristics of fathers’ availability and engagement with their preschool-aged children in Finland is presented. Data collection was undertaken in two separate periods involving 263 and 821 fathers. Results indicate that the father—child instrument (FCI) is ready for use in research seeking to assess fathers’ availability and engagement with their preschoolers. Further research is nonetheless required to assess the potential for a more sensitive interaction and for the generalization of the FCI.

scholarly journals Perceived childhood emotional parentification is associated with Machiavellianism in men but not in women

2016 ◽  
Vol 47 (1) ◽  
pp. 136-140 ◽  
Author(s):  
András Láng
Keyword(s):  
Gender Differences ◽  
Gender Role ◽  
Family Environment ◽  
Family Of Origin ◽  
Well Being ◽  
Coping Mechanisms ◽  
Self Report ◽  
Gender Role Socialization ◽  
Role Socialization ◽  
The Family

Abstract Recent research has revealed several developmental aspects of Machiavellianism. In this study, we explored the potential relationship between perceived parentification in the family of origin and Machiavellianism in adulthood. Three hundred and ninety five Hungarian adults (282 women) completed self-report measures of parentification and Machiavellianism. Results showed that emotional parentification and children’s unacknowledged efforts to contribute to the well-being of their families were associated with Machiavellianism - but only in men. Machiavellian tactics and worldview are proposed as possible coping mechanisms with the neglectful and unpredictable family environment. Gender differences in the results are explained in terms of gender role socialization and men’s and women’s different susceptibility for different forms of psychopathology.

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