Using Text Mining to Compare Research to Practice in the Use of a Social Networking Platform for Pain Management of Genetic Disorders

2020 ◽  
Vol 10 (2) ◽  
pp. 1-21
Author(s):  
Sadaf Ashtari ◽  
Joseph Taylor ◽  
Sorio Boit
Keyword(s):  
Social Media ◽  
Pain Management ◽  
Text Mining ◽  
Genetic Disorders ◽  
The United States ◽  
Academic Literature ◽  
Online Discussion Forum ◽  
Social Media Platforms ◽  
Critical Portion ◽  
Scholarly Inquiry

Social media allows for the creation of communities of interest around a wide variety of medical conditions; one example of which is pain management. Pain management is a critical portion of the overall healthcare system, as evidenced by the pervasive opioid crisis in the United States. One population that struggles with pain management is communities that experience genetic disorders. The goal of this paper is to examine the findings of the extant academic literature regarding pain management for genetic disorders on social media and compare it with the actual posting of people on social media in regard to their chronic pain and pain management. The authors used text mining techniques of the Brandwatch application to analyze the users' posts on different social media platforms such as online discussion forum, blog, Tumblr, Twitter, YouTube, etc. The analysis demonstrates differences in the focus of scholarly inquiry regarding social media with user practice in relation to the topic of pain management.

Kim Kardashian: the Leader of the Influencers

2019 ◽  
Author(s):  
Laila Fariha Zein ◽  
Adib Rifqi Setiawan
Keyword(s):  
Social Media ◽  
The United States ◽  
Armenian Genocide ◽  
The Public ◽  
Self Defense ◽  
Global Commerce ◽  
The World ◽  
Social Media Platforms ◽  
International Issues ◽  
Global Influence

In today’s world, it is easier and easier to stay connected with people who are halfway across the world. Social media and a globalizing economy have created new methods of business, trade and socialization resulting in vast amounts of communication and effecting global commerce. Like her or hate her, Kimberly Noel Kardashian West as known as Kim Kardashian has capitalized on social media platforms and the globalizing economy. Kim is known for two things: famous for doing nothing and infamous for a sex tape. But Kim has not let those things define her. With over 105 million Instagram followers and 57 million Twitter followers, Kim has become a major global influence. Kim has travelled around the world, utilizing the success she has had on social media to teach make-up master classes with professional make-up artist, Mario Dedivanovic. She owns or has licensed several different businesses including: an emoji app, a personal app, a gaming app, a cosmetics line, and a fragrance line. Not to be forgotten, the Kardashian family show, ‘Keeping Up with the Kardashians’ has been on the air for ten years with Kim at the forefront. Kim also has three books: ‘Kardashian Konfidential’, ‘Dollhouse’, and ‘Selfish’. With her rising social media following, Kim has used the platforms to show her support for politicians and causes, particularly, recognition of the Armenian genocide. Kim also recently spoke at the Forbes’ women’s summit. Following the summit, Kim tweeted out her support for a recent movement on Twitter, #freeCyntoiaBrown which advocated for a young woman who claimed to have shot and killed the man who held her captive as a teenage sex slave in self-defense. Kim had her own personal lawyers help out Cyntoia on her case. Kim has also moved beyond advocating for issues within the confines of the United States. As mentioned earlier, she is known for advocating for recognition of the Armenian genocide. In the last two years, her show has made it a point to address the Armenian situation as it was then and as it is now. Kim has been recognized as a global influencer by others across the wordl. We believe Kim has become the same as political leaders when it comes to influencing the public. Kim’s story reveals that the new reality creates a perfect opportunity for mass disturbances or for initiating mass support or mass disapproval. Although Kim is typically viewed for her significance to pop culture, Kim’s business and social media following have placed her deep into the mix of international commerce. As her businesses continue to grow and thrive, we may see more of her influence on international issues and an increase in the commerce from which her businesses benefit.

A survey of Instagram users with asthma to evaluate the acceptability of a planned clinical trial intervention (Preprint)

2020 ◽  
Author(s):  
Kerry Spitzer ◽  
Brent Heineman ◽  
Marcella Jewell ◽  
Michael Moran ◽  
Peter Lindenauer
Keyword(s):  
United States ◽  
Social Media ◽  
Health Care Providers ◽  
College Education ◽  
The United States ◽  
Survey Study ◽  
Care Providers ◽  
Healthy Behaviors ◽  
Social Media Platforms ◽  
Hispanic White

BACKGROUND Asthma is a chronic lung disease that affects nearly 25 million individuals in the United States. There is a need for more research into the potential for health care providers to leverage existing social media platforms to improve healthy behaviors and support individuals living with chronic health conditions. OBJECTIVE In this study, we assess the willingness of Instagram users with poorly controlled asthma to participate in a pilot study that uses Instagram as a means of providing social and informational support. In addition, we explore the potential for adapting photovoice and digital storytelling to social media. METHODS A survey study of Instagram users living with asthma in the United States, between the ages of 18 to 40. RESULTS Over 3 weeks of recruitment, 457 individuals completed the pre-survey screener; 347 were excluded. Of the 110 people who were eligible and agreed to participate in the study, 82 completed the study survey. Respondents mean age was 21(SD = 5.3). Respondents were 56% female (n=46), 65% (n=53) non-Hispanic white, and 72% (n=59) had at least some college education. The majority of respondents (n = 66, 81%) indicated that they would be willing to participate in the study. CONCLUSIONS Among young-adult Instagram users with asthma there is substantial interest in participating in a study that uses Instagram to connect participants with peers and a health coach in order to share information about self-management of asthma and build social connection.

scholarly journals 1414. #Vaccine Twitter Influencers: is it Just About Reach and Followers?

2020 ◽  
Vol 7 (Supplement_1) ◽  
pp. S714-S715
Author(s):  
Jean-Etienne Poirrier ◽  
Theodore Caputi ◽  
John Ayers ◽  
Mark Dredze ◽  
Sara Poston ◽  
...  
Keyword(s):  
United States ◽  
Social Media ◽  
Standard Deviation ◽  
Small Proportion ◽  
The United States ◽  
Research Support ◽  
Policy Makers ◽  
Media Messages ◽  
Social Media Platforms ◽  
The Impact

Abstract Background A small number of powerful users (“influencers”) dominates conversations on social media platforms: less than 1% of Twitter accounts have at least 3,000 followers and even fewer have hundreds of thousands or millions of followers. Beyond simple metrics (number of tweets, retweets...) little is known about these “influencers”, particularly in relation to their role in shaping online narratives about vaccines. Our goal was to describe influential Twitter accounts that are driving conversations about vaccines and present new metrics of influence. Methods Using publicly-available data from Twitter, we selected posts from 1-Jan-2016 to 31-Dec-2018 and extracted the top 5% of accounts tweeting about vaccines with the most followers. Using automated classifiers, we determined the location of these accounts, and grouped them into those that primarily tweet pro- versus anti-vaccine content. We further characterized the demographics of these influencer accounts. Results From 25,381 vaccine-related tweets available in our sample representing 10,607 users, 530 accounts represented the top 5% by number of followers. These accounts had on average 1,608,637 followers (standard deviation=5,063,421) and 340,390 median followers. Among the accounts for which sentiment was successfully estimated by the classifier, 10.4% (n=55) posted anti-vaccine content and 33.6% (n=178) posted pro-vaccine content. Of the 55 anti-vaccine accounts, 50% (n=18) of the accounts for which location was successfully determined were from the United States. Of the 178 pro-vaccine accounts, 42.5% (n=54) were from the United States. Conclusion This study showed that only a small proportion of Twitter accounts (A) post about vaccines and (B) have a high follower count and post anti-vaccine content. Further analysis of these users may help researchers and policy makers better understand how to amplify the impact of pro-vaccine social media messages. Disclosures Jean-Etienne Poirrier, PhD, MBA, The GSK group of companies (Employee, Shareholder) Theodore Caputi, PhD, Good Analytics Inc. (Consultant) John Ayers, PhD, GSK (Grant/Research Support) Mark Dredze, PhD, Bloomberg LP (Consultant)Good Analytics (Consultant) Sara Poston, PharmD, The GlaxoSmithKline group of companies (Employee, Shareholder) Cosmina Hogea, PhD, GlaxoSmithKline (Employee, Shareholder)

scholarly journals GOVERNANCE OF THE FACEBOOK PRIVACY CRISIS

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Lawrence J. Trautman
Keyword(s):  
United States ◽  
New York ◽  
Social Media ◽  
Audit Committee ◽  
New York Times ◽  
The United States ◽  
Front Page ◽  
Select Committee ◽  
The New York Times ◽  
Social Media Platforms

In November 2018, The New York Times ran a front-page story describing how Facebook concealed knowledge and disclosure of Russian-linked activity and exploitation resulting in Kremlin led disruption of the 2016 and 2018 U.S. elections, through the use of global hate campaigns and propaganda warfare. By mid-December 2018, it became clear that the Russian efforts leading up to the 2016 U.S. elections were much more extensive than previously thought. Two studies conducted for the United States Senate Select Committee on Intelligence (SSCI), by: (1) Oxford University’s Computational Propaganda Project and Graphika; and (2) New Knowledge, provide considerable new information and analysis about the Russian Internet Research Agency (IRA) influence operations targeting American citizens.By early 2019 it became apparent that a number of influential and successful high growth social media platforms had been used by nation states for propaganda purposes. Over two years earlier, Russia was called out by the U.S. intelligence community for their meddling with the 2016 American presidential elections. The extent to which prominent social media platforms have been used, either willingly or without their knowledge, by foreign powers continues to be investigated as this Article goes to press. Reporting by The New York Times suggests that it wasn’t until the Facebook board meeting held September 6, 2017 that board audit committee chairman, Erskin Bowles, became aware of Facebook’s internal awareness of the extent to which Russian operatives had utilized the Facebook and Instagram platforms for influence campaigns in the United States. As this Article goes to press, the degree to which the allure of advertising revenues blinded Facebook to their complicit role in offering the highest bidder access to Facebook users is not yet fully known. This Article can not be a complete chapter in the corporate governance challenge of managing, monitoring, and oversight of individual privacy issues and content integrity on prominent social media platforms. The full extent of Facebook’s experience is just now becoming known, with new revelations yet to come. All interested parties: Facebook users; shareholders; the board of directors at Facebook; government regulatory agencies such as the Federal Trade Commission (FTC) and Securities and Exchange Commission (SEC); and Congress must now figure out what has transpired and what to do about it. These and other revelations have resulted in a crisis for Facebook. American democracy has been and continues to be under attack. This article contributes to the literature by providing background and an account of what is known to date and posits recommendations for corrective action.

Local emergency management social media use during the COVID-19 pandemic

2021 ◽  
Vol 19 (7) ◽  
pp. 83-97
Author(s):  
Sean Hildebrand, PhD ◽  
Brandon Waite, PhD
Keyword(s):  
Social Media ◽  
Emergency Management ◽  
Disaster Preparedness ◽  
The United States ◽  
The Body ◽  
Special Issue ◽  
Emergency Managers ◽  
The Social ◽  
Social Media Platforms ◽  
The Times

The purpose of this special issue of the Journal of Emergency Management is to assess the state of disaster preparedness, response, mitigation, and recovery during the COVID-19 pandemic. This article adds to this discussion by examining the results of a national survey of emergency managers in the United States regarding the social media platforms they use to communicate information related to the COVID-19 pandemic, how proficient they feel using them, and what value they see in these technologies during the times of crisis. The authors’ findings help make sense of government responses to the pandemic, as well as contribute to the body of literature on communication and emergency management more broadly. Furthermore, their findings have important implications for emergency management practitioners and educators. 

Is Snapchat Discover really a news platform? News snacking from social media and users’ knowledge of current affairs

2021 ◽  
Vol 00 (00) ◽  
pp. 1-23
Author(s):  
Jayeon Lee
Keyword(s):  
Social Media ◽  
Negative Relationship ◽  
The United States ◽  
Journalism Studies ◽  
Soft News ◽  
Current Affairs ◽  
Social Media Platforms ◽  
The Media ◽  
The Impact ◽  
Negative Predictor

The role of the media in informing the public has long been a central topic in journalism studies. Given that social media platforms have become today’s major source of news, it is important to understand the impact of social media use on citizens’ knowledge of current affairs. While people get news from multiple platforms throughout the day, most research treats social media as a single entity or examines only one or two major platforms ignoring newer social media platforms. Drawing on news snacking framework, this study investigates how using some of today’s most popular social media platforms predicts users’ current affairs knowledge, with particular attention to Snapchat and its news section Discover. A survey conducted in the United States (N=417) demonstrated that each of the platforms is distinct: Twitter is a strongly positive predictor of knowledge, Facebook a marginally significant negative predictor, Reddit a significantly negative predictor and Instagram not a significant predictor. Overall Snapchat use has no significant association with users’ knowledge of current affairs, whereas Discover use has a negative relationship. Further analysis revealed that mere exposure to Snapchat is positively related to soft-news knowledge and attention to Discover is negatively related to hard-news knowledge.

A Scoping Review of Social Media Sites as a Tool for Clinical Trial Recruitment and Retention (Preprint)

2021 ◽  
Author(s):  
Jarett Anderson ◽  
Austin Hamp ◽  
Michelle Militello ◽  
Ryan Geist ◽  
Jaclyn Anderson ◽  
...  
Keyword(s):  
Clinical Trial ◽  
Social Media ◽  
Clinical Trials ◽  
The United States ◽  
User Engagement ◽  
Trial Recruitment ◽  
Recruitment And Retention ◽  
Social Media Platforms ◽  
Clinical Trial Recruitment ◽  
Media Applications

BACKGROUND Clinical trials are an essential process in discovering new biomedical or behavioral outcomes in disease processes. There are several steps involved in creating a clinical trial. One step, patient recruitment, is often touted as the largest contributor to trial delays, which has financial, scientific, and ethical ramifications. Approximately 1.2 billion dollars in the United States is spent each year on this process and as many as 86% of clinical trials do not meet recruitment targets within their perspective timeframes, and 19% of trials had to be terminated early due to insufficient recruitment and/or patient retention1. Social media is a viable, inexpensive tool that can be utilized to improve both recruitment and retention rates2. To date, platforms such as Facebook, Twitter and others have been widely utilized in recruitment for clinical trials, communication among stakeholders, and educational tools. Social media also has the advantage of reaching populations that otherwise would be more difficult to reach3. A list of these platforms and each of their distinct advantages for clinical trial recruitment can be found in Table 1. This review aims to highlight the unique characteristics of several social media platforms and their advantageous properties in increasing recruitment and retention during clinical trials. OBJECTIVE This narrative review analyzes the current use of several social media sites in clinical trial recruitment and retention. It also offers insight concerning potential uses of these sites that are not currently utilized. METHODS A literature search was performed using PubMed, Google Scholar, and ResearchGate to access and review relevant articles published in peer-reviewed journals concerning social media and its use in clinical trials. Two independent researchers with education and experience in dermatology screened publications to select studies featuring quantitative results concerning social media and clinical trial recruitment. RESULTS 13 social media applications were studied and reviewed. 7 of these social media sites or applications have currently been studied, and their use in complementing traditional recruiting methods such as advertisements in newspapers, health fairs, and direct mailing, has been analyzed and reported. 6 additional social media applications have further been studied, and their potential use within clinical trial research has been additionally analyzed. CONCLUSIONS A large number and variety of social media platforms exist to aid in the recruitment and retention process for clinical trials, many of which can utilize niche features and reach a targeted demographic. Although recruitment remains a barrier for researchers involved in clinical trials, the potential to recruit through social media may be underutilized. Many avenues that exist to improve recruitment have not been leveraged. For example, partnering to create collaborative videos with social media influencers on platforms such as Instagram and Youtube may help to broaden the audience and increase clinical trial enrollments. Creating biomedical educational profiles or channels that discuss details of clinical trials with descriptions of these trials could also be employed to increase the scope of the audience. Reddit, Smart Patients, and Patients Like Me can target difficult-to-reach patient populations due to their use of subgroups, allowing researchers to reach their target audience. Additionally, many of these platforms provide user engagement features that allow users to respond directly to videos or posts and could be used to encourage enrollment by allowing users to react directly to clinical trial advertisements.

scholarly journals Post-Truth: Hegemony on Social Media and Implications for Sustainability Communication

2019 ◽  
Vol 11 (7) ◽  
pp. 2120 ◽  
Author(s):  
Cecilia Jaques ◽  
Mine Islar ◽  
Gavin Lord
Keyword(s):  
Social Media ◽  
Critical Discourse Analysis ◽  
Scientific Information ◽  
The United States ◽  
Marxian Theory ◽  
The Public ◽  
Social Media Platforms ◽  
The Public Sphere ◽  
The One ◽  
Science In Society

Contrary to what practice suggests, social media platforms may not be an appropriate forum for communicating with civil society about sustainability issues such as climate change. Misinformation campaigns are distorting the line between fact and falsity on social media platforms, and there has been a profound shift in the way that social media users consume and interact with information. These conditions have been popularly labeled as the post-truth era. Drawing from Neo-Marxian theory, we argue that post-truth can be explained as a new iteration of ideological struggle under capitalist hegemony. We substantiate this claim through a mixed methods investigation synthesizing corpus-assisted lexical analysis and critical discourse analysis to evaluate 900 user-generated comments taken from three articles on socioenvironmental topics published on Facebook by news organizations in the United States. The results showed that the nature of this struggle is tied explicitly to the role of science in society, where the legitimacy of science is caught in a tug-of-war of values between elitism on the one hand and a rejection of the establishment on the other. It follows that presenting truthful information in place of false information is an insufficient means of coping with post-truth. We conclude by problematizing the notion that Facebook is an adequate forum for public dialogue and advocate for a change in strategy from those wishing to communicate scientific information in the public sphere.

Rumors on the Net: A Brackish Suspension of Speech and Hate

2019 ◽  
pp. 174387211988012 ◽  
Author(s):  
Anne Wagner ◽  
Sarah Marusek
Keyword(s):  
United States ◽  
Social Media ◽  
Hate Speech ◽  
Public Memory ◽  
The United States ◽  
Online Social Media ◽  
Cyber Culture ◽  
Social Media Platforms ◽  
The Impact ◽  
Mob Mentality

The legitimacy of public memory and socially normative standards of civility is questioned through rumors that abound on online social media platforms. On the Net, the proclivity of rumors is particularly prone to acts of bullying and frameworks of hate speech. Legislative attempts to limit rumors operate differently in France and throughout Europe from the United States. This article examines the impact of online rumors, the mob mentality, and the politicization of bullying critics within a cyber culture that operates within the limitations of law.

scholarly journals Online paediatric chronic pain management: assessing the needs of UK adolescents and parents, using a cross-sectional survey

2020 ◽  
pp. 204946372094034
Author(s):  
Anna Hurley-Wallace ◽  
Daniel E Schoth ◽  
Suzanne Lilley ◽  
Glyn Williams ◽  
Christina Liossi
Keyword(s):  
Social Media ◽  
Chronic Pain ◽  
Pain Management ◽  
Online Survey ◽  
Interdisciplinary Treatment ◽  
Future Research ◽  
Chronic Pain Management ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Social Media Platforms

Background: Adolescent chronic pain is prevalent, and interdisciplinary treatment is recommended. Although it is well known that technology is a key part of adolescents’ daily lives, there have not been any online, interdisciplinary interventions developed for adolescents with chronic pain in a UK healthcare context. Little is known about how adolescents currently use online resources to manage chronic pain, or what guidance they seek. Methods: Ninety-five participants from the community answered this mixed-methods, online survey (adolescent n = 54, parent n = 41), which assessed the needs of UK-based adolescents for a new online chronic pain management resource. Results: Findings indicated that, at the time of the survey, adolescents frequently used social media platforms, such as Instagram, for chronic pain management. Desired techniques for a new interdisciplinary resource for adolescents included ‘advice on explaining chronic pain to others’ (86.7% of adolescents) and sleep hygiene (82.2% of adolescents), though access to a range of pain management techniques was desired. Qualitative results indicated endorsement of a new programme by adolescents and parents. Conclusions: Adolescents and parents had a positive outlook towards the development of a UK-specific online resource to help manage chronic pain. Such an intervention should aim to be made accessible via the National Health Service. Adolescent use of social media platforms to seek support for chronic pain requires further exploration in future research.

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