scholarly journals Development and psychometric properties of the general public's attitudes toward advance care directives scale in Portugal

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Carlos Laranjeira ◽  
Maria dos Anjos Dixe ◽  
Luís Gueifão ◽  
Lina Caetano ◽  
Rui Passadouro ◽  
...  

Background: To date, no instrument in Portugal has evaluated the attitudes of the population about advance care directives. This paper describes the development and testing of the General Public's Attitudes Toward Advance Care Directives (GPATACD) Scale.Design and Methods: Methodological study.  The development of the instrument was based on a literature review, updated in 2018. Face and content validity were verified by an expert panel and piloted among six participants. Data were collected in an online survey of 1024 Portuguese adults. The obtained data were analyzed using Varimax rotation, while the reliability was evaluated by calculating Cronbach’s alpha.Results: The scale achieves good Item-Content Validity Index (I-CVI) values, between 0.89 and 1.00, and scale-CVI values of 0.91. A principal component analysis generated four dimensions with 26 items as a final scale, with overall Cronbach’s alpha of 0.848.Conclusions: The findings demonstrate that the scale is valid and reliable as a vehicle for assessment of the general public's attitudes toward advance care directives.

2001 ◽  
Vol 89 (3) ◽  
pp. 499-509 ◽  
Author(s):  
Jerôme Gilliard ◽  
Marilou Bruchon-Schweitzer

We administered a 42-item smoking behaviour questionnaire to 150 adult smokers (75 men and 75 women), 18 to 70 years old ( M = 37.1 yr., SD = 12.2). A principal component analysis of their responses followed by varimax rotation yielded four factors accounting for about 52% of the total variance: dependence, social integration, regulation of negative affect, and hedonism. Some sociodemographic and dispositional characteristics of the smokers predict these four dimensions. The predictors of each smoking dimension are quite different for male and female smokers.


2019 ◽  
Vol 6 (1) ◽  
pp. 31-38
Author(s):  
Suhaila Haron ◽  
Aini Suzana Ariffin ◽  
Durrishah Idrus

Measuring and evaluating nurses’ performance are vital to identify areas for improvement in maintaining quality of service delivery and ensuring sustainability of current practices. This study attempts to examine the content validity of the nurses’ performance scale. It is also aimed to achieve acceptable criteria for content validity of this instrument. Construct and content domain of nurses’ performance were identified followed by items generation and instrument formation. Subsequently, assessments of content validity were performed based on content validity Index (CVI), Inter-rater agreement percentage (IRA%) and modified Kappa statistic. Two level of judgement were performed using the lay expert panel and research expert panel. Criteria were established based on these indices as basis for item reduction process. Pilot study was conducted on 50 respondents to assess the internal consistency using Cronbach’s alpha value of finalized NPQ instrument. 71 items are yielded during developmental stage of instrument to measure four dimensions of nurses’ performance. Assessment of content validity based on lay and research expert judgement resulting in elimination of 27 items (38%). Computed modified Kappa statistic further supplemented that the remaining 44 items as ‘excellent’. As for conclusion, NPQ instrument has attain acceptable criteria of content validity assessment utilized in this study and therefore proved its potential for further research


2013 ◽  
Vol 47 (5) ◽  
pp. 1076-1082 ◽  
Author(s):  
Jose Wicto Pereira Borges ◽  
Thereza Maria Magalhaes Moreira ◽  
Malvina Thais Pacheco Rodrigues ◽  
Ana Celia Caetano de Souza ◽  
Daniele Braz da Silva

The objective of the study was to validate the content of the dimensions that constituted nonadherence to treatment of arterial systemic hypertension. It was a methodological study of content validation. Initially an integrative review was conducted that demonstrated four dimensions of nonadherence: person, disease/treatment, health service, and environment. Definitions of these dimensions were evaluated by 17 professionals, who were specialists in the area, including: nurses, pharmacists and physicians. The Content Validity Index was calculated for each dimension (IVCi) and the set of the dimensions (IVCt), and the binomial test was conducted. The results permitted the validation of the dimensions with an IVCt of 0.88, demonstrating reasonable systematic comprehension of the phenomena of nonadherence.


Healthcare ◽  
2021 ◽  
Vol 9 (6) ◽  
pp. 648
Author(s):  
Carlos Laranjeira ◽  
Maria dos Anjos Dixe ◽  
Luís Gueifão ◽  
Lina Caetano ◽  
Rui Passadouro ◽  
...  

(1) Background: Evidence shows that facilitated advance decisions can increase the number of meaningful and valid Advance Care Directives (ACDs) and improve the quality of care when End-Of-Life (EOL) is near. Little is known about the awareness and attitudes of Portuguese adults towards ACDs. The present study aims to assess the knowledge, attitudes, and preferences of a sample of Portuguese adults regarding EOL care decisions and ACDs. (2) Methods: A total of 1024 adults were assessed with an online cross-sectional survey collecting information on sociodemographic factors, knowledge, attitudes and preferences regarding advance decisions and EOL care. (3) Results: Participants had a mean age of 40.28 ± 11.41 years. Most were female and had a professional background related to healthcare. While 76.37% of participants had heard of ACDs, only a small percentage (2.34%) had actually ever made an ACD. Knowledge levels were weakly correlated with attitudes regarding ACDs (r = −0.344; p < 0.01). (4) Conclusions: Participants lacked a comprehensive understanding about ACDs, but revealed positive attitudes towards their use and usefulness. Further research can inform efforts to improve ACD engagement in this population. The discussion about ACDs should be part of health promotion education with a focus on planning for a comfortable and peaceful death.


2013 ◽  
Vol 21 (2) ◽  
pp. 148-162 ◽  
Author(s):  
Frode Skorpen ◽  
Arlene A Thorsen ◽  
Christina Forsberg ◽  
Arne W Rehnsfeldt

This article discusses dignity from a Q-methodological study among patients at a psychiatric hospital. The aim of this study is to gain a deeper understanding of the subjective experiences of patients in a psychiatric hospital with respect to dignity. A Q-sample of 51 statements was developed. A total of 15 participants ranked these statements from those they most agreed with to those they most disagreed with. Post-interviews were also conducted. Principal Component Factor Analysis and varimax rotation followed by hand rotation produced the clearest results. Four different viewpoints emerged: being met as equal human being, experience of dignity despite suffering, suffering due to inferior feelings and suffering and fighting for one’s own dignity. There seem to be variations in those with dignity-promoting experiences in Viewpoint 1 and to some extent in Viewpoint 2, to those with dignity-inhibiting experiences in Viewpoints 3 and 4.


2019 ◽  
Vol 48 (Supplement_3) ◽  
pp. iii17-iii65
Author(s):  
Ruth Comber

Abstract Background The legal status of advance care directives (ACDs) in Irish law, as they pertain to current clinical practice, is a relatively new topic to healthcare staff. This project aimed to assess current understanding in non-consultant hospital doctors (NCHDs). Methods An online survey was conducted with NCHDs across a range of disciplines to ascertain current knowledge of the legal parameters of ACDs. Descriptive analysis of data was conducted in Excel. Results The survey was completed by 183 NCHDs. Of respondents 93.99% (n=172) were familiar with the term advance care directive and 41.53% (n=76) had encountered one in clinical practice. Their current legal status in Ireland was not known to 58.47% (n=107). That to be considered legally binding an ACD must be in writing was understood by 63.39%, but 58.47% (n=107) were unsure if a solicitor is required to draft one. Refusal of medical treatment as an application for ACDs was appreciated by 79.78% (n=146), however 38.89% (n=73) erroneously believed medical intervention could be requested in an ACD, with a further 30.6% (n=56) unsure. Current guidance sets out that only specific situations may be contained within an ACD, however 77.6% (n=142) of respondents believed a general stipulation could be documented, 25.14% (n=46) did not know if cognitive function affected the legality of an ACD, 95.08% (n=174) of respondents would attend formal training on ACDs if provided by their place of work. Conclusion Despite being enshrined in current legislation the legal status of advance care directives, their definition and criteria to be considered legally binding are very poorly understood by NCHDs. Guidance and education are crucial to the future protection of both patients and doctors with regards the execution of advanced care directives as prescribed by law.


2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Neetu Andotra ◽  
Tarsem Lal

The present paper aims at investigating the occupation-wise perception of customers towards access to cooperative banking services. The study is both expressive and evaluative in nature. In order to investigate the perception of customers towards access to cooperative banking services, both primary and secondary data has been collected. The primary data have been collected from 540 customers of cooperative banks operating in three northern states of India i.e J&K, Himachal Pradesh, and Punjab. The technique of factor analysis has been used through SPSS (version 17.00) with Principal Component Analysis along with varimax rotation for summarisation of the total data into minimum factors. Secondary information was collected from published sources i.e books, journals, files, cooperative bulletins, organizational reports, annual drafts of Planning and Statistical Department (Government of J&K, Himachal Pradesh, and Punjab), RBI reports, magazines, and Internet. ANOVA has been applied for data analysis. The results of the study shows that there exits significant means difference between perception of customers towards access to Cooperative banking service.


Author(s):  
Zainab Alimoradi ◽  
Nourossadat Kariman ◽  
Fazlollah Ahmadi ◽  
Masoumeh Simbar ◽  
Hamid AlaviMajd

Abstract Introduction The aim of this study was to design and evaluate the psychometric properties of an instrument for understanding female adolescents’ reproductive and sexual self-care behaviors. Methods A methodological study was conducted. In the qualitative phase, individual in-depth interviews were performed to develop the initial questionnaire. In the quantitative part, the psychometric properties of the questionnaire were evaluated. Findings The initial questionnaire with 128 items was reviewed by the research team and taking into account the cut-off point 1.5 for the item impact and 0.62 for the content validity ratio (CVR), the number of questions fell to 82 items. S-CVR and S-content validity index (CVI) rations were 0.83 and 0.91, respectively. Exploratory factor analysis led to 74 items in seven dimensions. The alpha Cronbach’s coefficient for the whole questionnaire was 0.895 and the intra-cluster correlation coefficient was 0.91. Conclusion The questionnaire developed in this study is reliable and valid for assessing female adolescents’ sexual and reproductive self-care.


2021 ◽  
pp. 003022282110087
Author(s):  
Deb Rawlings ◽  
Megan Winsall ◽  
Lauren Miller-Lewis ◽  
Jennifer Tieman

The study aimed to describe views on Voluntary Assisted Dying (VAD), gleaned through qualitative analysis of participant responses to a set activity, run during the 2018 ‘Dying2Learn’ Massive Open Online Course (MOOC). Data from 508 participants, most of whom identified as health professionals, were analysed using thematic content analysis, and themes generated. A large proportion of participants discussed their personal views related to VAD, specifically around choice, control, dignity, palliative care and dying at home, medical intervention, societal factors, the impact on those left behind, laws and regulations, dying ‘naturally’, advance care directives, and being in pain. In this study, participants had many different views on the act itself, often divisive, but also with common concepts such as respecting the choices and decisions of others.


2021 ◽  
pp. bmjspcare-2020-002619
Author(s):  
Marcus Sellars ◽  
Julien Tran ◽  
Linda Nolte ◽  
Ben White ◽  
Craig Sinclair ◽  
...  

ObjectiveTo describe the Australian adult public’s knowledge and experiences regarding substitute decision-making for medical decisions and their preferences for obtaining information about the substitute decision-maker (SDM) role.MethodsThis is a national cross-sectional online survey of the Australian adult public. The survey examined participants’ advance care planning (ACP) awareness and experience, SDM experiences and preferences for obtaining more information about SDM, and participant knowledge about SDM.ResultsOf 1586 people who opened the survey, 1120 (70.6%) were included in the final sample. 13% (n=142) of participants indicated they had acted as an SDM. A median score of two correct responses out of five showed low to moderate knowledge about the SDM role among all participants, with only 33% reporting awareness of SDM laws existing in Australia. While most (59%) participants ranked a health professional as their preferred source of obtaining information about supporting SDMs, few participants who had been an SDM (n=64, 45%) reported obtaining any support in making medical decisions. The median SDM knowledge scores for people who had discussed ACP (3.0 vs 2.0, U=1 45 222, z=6.910, p<0.001), documented their ACP preferences (3.0 vs 2.0, U=71 984, z=4.087, p<0.001) or acted in the SDM role (3.0 vs 2.0, U=56 353, z=−3.694, p<0.001) were significantly higher compared with those who had not.ConclusionsThe Australian public may have low to moderate knowledge about the SDM role and access only minimal support when making challenging medical decisions.


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