scholarly journals The family caregiver in the face of the sick near death oncological end of life

2011 ◽  
Vol 5 (2) ◽  
pp. 399 ◽  
Author(s):  
Isabel Maria Tarico Bico Correia ◽  
Gilson de Vasconcelos Torres

ABSTRACTObjective: to understand the process of mourning of the families face the patient oncological on end of life. Method: this is an exploratory study, kind case study, from qualitative approach, with discourse analysis of the subject, from the point of departure: As family reacts to the proximity of death and how it renders the mourning? Harvesting data was conducted through interviews recorded ten family members accompanying cancer patients in terminal stage in domicile. Before starting the study, the relatives have been informed about the theme, the objectives, purpose and the possible usefulness of same. Results: after analysis of the interviews have emerged the following categories: Preparation, beginning of the end and the patient's Perception. In each category the subcategories inferred in the analysis. Conclusion: given the proximity of death, the family want to stay with the patient. On the other hand, the patient expresses wish to die at home. The grieving process initially manifests itself with the expression of feelings, which are predominantly: revolt and sadness. The funeral rituals are of extreme importance for the development of the grieving process. Descriptors: terminally ill; family caregivers; bereavement and death.RESUMOObjetivo: compreender o processo de luto dos familiares face ao doente oncológico em fim de vida. Método: estudo de caso, exploratório, de abordagem qualitativa, com análise do discurso dos sujeitos, a partir da questão de partida: Como reage a família perante a proximidade da morte e como se processa o luto? A colheita de dados foi realizada por meio de entrevistas gravadas a dez familiares que acompanhavam doentes oncológicos em fase terminal no domicilio. Antes de iniciar o estudo, os familiares foram informados sobre o tema, os objetivos, a finalidade e a possível utilidade do mesmo. Resultados: após a análise das entrevistas surgiram as seguintes categorias: Preparação, Início do Fim e Percepção do doente. Em cada categoria as subcategorias inferidas na análise. Conclusão: face à proximidade da morte, o familiar deseja permanecer junto do doente. Por outro lado, o doente manifesta o desejo de morrer em casa. O processo de luto numa fase inicial, manifesta-se com a expressão de sentimentos, que são predominantemente: a revolta e a tristeza. Os rituais fúnebres são de extrema importância para o desenvolvimento do processo de luto. Descritores: doente terminal; familiar cuidadores; luto e morte.RESUMENObjetivo: entender el proceso de duelo de los familiares frente al paciente Oncológico en final de vida. Método: case study, enfoque cualitativo, exploratorio, con análisis de discurso del sujeto, desde  la pergunta inicial: como reacciona la família a la proximidad de la muerte y cómo se procesa el luto? Los datos de explotación se recorreron através de enquestas grabadas de diez miembros de la familia que acompaña a los pacientes de cáncer en fase terminal en el domicilio. Antes de empezar el estudio, los familiares han sido informados sobre el tema, los objetivos, propósitos y de su posible utilidad. Resultados: después del análisis de las entrevistas han surgido las siguientes categorías: Preparación, comienzo del final y la percepción del paciente. En cada categoría las subcategorías inferidas en el análisis. Conclusión: dada la proximidad de la muerte, la familia desea permanecer con el paciente. Por otro lado, el paciente expresa su deseo de morir en su casa. El inicio del proceso de duelo se manifiesta con la expresión de sentimientos, que son predominantemente: revuelta y tristeza. Los rituales funerarios son de extrema importancia para el desarrollo del proceso de duelo. Descriptores: enfermos; familiares proveedores de atención médica; duelo y muerte.

2022 ◽  
Vol 43 ◽  
Author(s):  
Beatriz Helena Naddaf Camilo ◽  
Taynnara Caroline Serafim ◽  
Natália Rejane Salim ◽  
Álida Maria de Oliveira Andreato ◽  
Júlia Rudzinski Roveri ◽  
...  

ABSTRACT Objectives: To know the experiences of nurses in neonatal intensive care units in the face of the process of communicating bad news to the family of newborns in palliative care. Methods: Study with a descriptive qualitative approach, in which 17 professionals participated. Data were collected through a semi-structured interview script, from December/2018 to February/2019, and submitted to content analysis. Results: Four theoretical categories emerged, with 11 subcategories inserted: meanings attributed to bad news; nursing as a support for the family; difficulties in dealing with the process of communicating bad news; nursing and involvement with the family’s suffering. Final considerations: The challenges to deal with the situation are related to lack of preparation, impotence, and subjectivities. The results broaden knowledge on the subject and enable the improvement of nursing care in this context.


2019 ◽  
Vol 6 (2) ◽  
pp. 175-182
Author(s):  
Nova Erlina Yaumas ◽  
Syafrimen Syafril

Students in the Department of Guidance and counseling are prospective education counselors who need to be given information about the use of internet technology that is good and right. The attitude of student responsibility needs to be known by educators so that educators can provide services to instill the attitude of student responsibility in the use of internet technology. This study aims to see the responsible attitude of prospective counselors in the use of internet technology in students of Guidance and Counseling. Research conducted through a qualitative approach, which refers to the case study research design. Potential Guidance and Counseling teachers who are also prospective counselors at the Faculty of Tarbiyah and teacher training at UIN Raden Intan Lampung became the subject of research. The research data were analyzed in a descriptive thematic way using Nvivo software. The results showed that there were still students who were not responsible for utilizing internet technology properly. Educators must provide motivation and direct students to have a more responsible attitude to use the Internet as a student's responsibility


Phronimon ◽  
2018 ◽  
Vol 16 (1) ◽  
pp. 29-38 ◽  
Author(s):  
Johan Strijdom

The cognitive linguist George Lakoff has argued that in the human brain two concepts of the family are mapped onto two contrasting political concepts, which reveal two kinds of systemic morality: a hierarchical, strict and disciplining father morality of conservatives on the one hand, and an egalitarian, nurturing parent morality of progressives or liberals on the other. Taking Lakoff’s thesis as point of departure, I offer a critical comparison of social-political uses of the concept of “home” in the early Roman Empire and Pauline Christianity. For this case study I engage primarily with the work of John Dominic Crossan, a prominent scholar of early Christianity within its Jewish and Greco-Roman contexts. Although “home” does not constitute the focus of his analysis, a close reading of his oeuvre does allow us to identify and highlight this as a crucial theme in his work. The focus will be on the patriarchal home under Greco-Roman imperial conditions as model of the imperial system, the Pauline egalitarian concept of the Christian home and house churches, and the deutero-Pauline return to the imperial model. By comparing these case studies from another epoch and another culture, thevalidity of Lakoff’s thesis will be tested and our understanding of the concepts “liberal” and “conservative” will be enriched.


2021 ◽  
Vol 13 (3) ◽  
pp. 1705-1714
Author(s):  
Chusnul Muali ◽  
Moh Rofiki ◽  
Hasan Baharun ◽  
Zamroni Zamroni ◽  
Lukman Sholeh

This study aims to describe Sufistic-based Kiai leadership's role in shaping Santri character at the Pesantren Nurul Jadid Paiton Probolinggo. This research is a case study qualitative approach, with Kiai as the subject. We collected data using interview, documentation, and observation techniques, then analyzed using reduction techniques, presenting data, and drawing conclusions. The results showed that the Sufistic-based Kiai's leadership had an essential role in fostering the character of the Santri. The study results indicate that the Sufistic-based Kiai leadership has a vital role in promoting the surface of the Santri. Kiai is a person who gives influence in building character with Uswah (Modelling). This study also found that the factors that influence low morale are that Santri has a common understanding of the latest technological developments. In Sufistic-based leadership, there are four things that a leader must possess: 1) The Tawasuth, 2) The nature of I'tidal, 3) The Tawazun, and 4) The Tasamuh.


Author(s):  
Muhammad Nuryanto

The research aimed to examine (1) the anxiety experienced by Pattani Students when they first mingled with Kembangarum residents, (2) the anxiety management used by Pattani Students, (3) the model of intercultural communication between Pattani students and Kembangarum residents. The type of the research used in this study is a case study. While the approach was qualitative approach. Data collection techniques used were in-depth interviews and participatory observation. The subject of the study is Pattani students and Kembangarum residents. The findings showed there was a cultural shock experienced by Pattani students when they first lived in Kembangarum. The cultural shock resulted in anxiety and uncertainty when they communicate with the locals. To overcome this anxiety, Pattani students used Gudykunst’s three anxiety management, those are the self-concept, motivation and, reaction to the locals. The communication model used by Pattani students was intercultural approaches by prioritizing dialectics and interpretation of community behavior.


2019 ◽  
Vol 4 (3) ◽  
pp. 35-44
Author(s):  
Rahmatul Yulia Syaputri ◽  
Irdamurni Irdamurni

Every parent who has a child would want to nurture and educate him, as well as families who have limitations or have special needs, especially in deaf families, this study explains the profile of deaf families who live in the Bungung Bay Subdistrict of Kabung Bay, the family numbered seven people, among them there was a father, mother and five other children and all of them were hearing impaired, living in remote and without electricity. This family lives with various limitations, including hearing and economic limitations, they live independently and help one another. This research will reveal the family tree, faktors causing disability, environmental perception and interaction of the deaf family in the environment. This research uses a case study method with a qualitative approach. the results show that this family is a very friendly and polite family with everyone. while the faktors that cause disability are due to hereditary faktors and are supported by environmental faktors. this is because this family lives in a remote place and far from the community. people's perception of this family is very good and they communicate using oral language and gestures to everyone. 


2021 ◽  
Vol 9 (204) ◽  
pp. 1-18
Author(s):  
Gabriela Dantas da Silva

The main topic of this article is to analyze the philosophical contributions on the subject and to criticize the State's actions as an entity that supports this family model. In a second moment, emphasis is given to the philosophical contributions of Immanuel Kant and Aristotle on morals and ethics, extending them to the family and social sphere. The concept of the Eudemonist Family with great Aristotelian influence, as well as some of the main contemporary family entities in brief contextualization, is also presented, to finally address the main problem of this article: the legal challenges of the Eudemonist family in the face of the majority understanding of biological bond as a characterizing element of the family entity. In conclusion, the philosophical nature is of great importance for the understanding of these new conceptions of the family, since the Brazilian legal system did not, in fact, contemplate the experience of society, not giving up texts that were expressly discriminatory and that excluded fundamental rights of individuals.


2021 ◽  
pp. 095042222110493
Author(s):  
Maria de Fátima Cruz ◽  
Mário Franco ◽  
Margarida Rodrigues

Recently, some authors have pointed out that the subject of university–firm collaboration (UFC) in the teaching context has been neglected. To fill this gap, and considering that educational provision is co-created with various stakeholders, this study aims to provide an exploratory characterization of the current state of UFC in the teaching context and to explore UFC as a mechanism for the co-creation of value. A qualitative approach was chosen, through a case study applied to one faculty at a Portuguese university. Data were obtained through documentary analysis and interviews with people in charge of this faculty. The results suggest that collaboration activities in this domain occur, albeit not systematically or in a planned way. The involvement of the current faculty direction in stimulating this collaboration is recognized, and the leaders see this phenomenon as a mechanism for co-creating value between firms and academia. As a practical contribution, the study proposes a set of recommendations to encourage such UFC. The scientific contribution arises from the presentation of a conceptual structure which explores the UFC phenomenon in the teaching context, bringing together the perspectives of collaboration and the co-creation of educational provision, as well as presenting a number of suggestions for future research.


2019 ◽  
pp. bmjspcare-2019-001881 ◽  
Author(s):  
Juan Arnaez ◽  
Nuria Herranz-Rubia ◽  
Alfredo Garcia-Alix

ObjectiveTo explore end-of-life (EoL) decision-making and palliative care in hypoxic-ischaemic encephalopathy (HIE) nationwide.MethodsA cross-sectional national study on moderate-to-severe HIE in newborns ≥35 weeks’ gestational age in 2015, including all 57 level III units that offered hypothermia. Forty-one questions were included to explore how the prognosis is established, as well as timing of the decision-making process, and also how ongoing palliative care is offered.ResultsThe main difficulties in EoL decisions lie in the scarce time to make an early, accurate prognosis. Only 20% shared the neurological prognosis with the parents within 72 hours of life, and in only a third of the centres is the nurse present when the prognostic information is given to the family. Almost 50% do not use protocols to order the EoL process. Practically, all centres (91%) reported taking into account the wishes of the parents. However, in 30% the team does not always reach consensus on how the withdrawal process. Specialised psychological support is available in 54% of the hospitals; in more than 50%, interviews are not arranged to examine the grieving process with parents.ConclusionsThere are four areas for improvement in the comprehensive, multidisciplinary approach to the EoL decision in the patient with HIE: (1) the need for EoL and interdisciplinary palliative care protocols, (2) participation of nurses in the process and improvement in the nurse–physician communication, (3) psychological support for parents involved in the EoL decisions and (4) implementation of strategies to give support during the grieving process.


2018 ◽  
Vol 12 (2) ◽  
Author(s):  
Nisfi Laili Munawaroh ◽  
Nur Azizah

A harmonious family is the most beautiful treasure in the life of the world. A harmonious family can be a wonderful spirit to do everything. But sometimes life in the family will find problems. So that harmonious family atmosphere is often eroded by these problems. Actually, every problem will find the right solution if a family can communicate intensely.This study focuses on family disharmony in terms of communication intensity. This study uses a qualitative approach to the type of case study research. The subjects of this study were DT, WI, LL, SG, LM, ES, and HT. The data presented is obtained by doing field observation directly with the support of interviews to the related subjects. The data is presented in the form of words, then analyzed to be taken conclusion as the result of research.After the researcher conducted the initial observation and found the family who in the disharmonic condition in Karangpucung village, Purwokerto Selatan subdistrict, the writer do deeper observation and interview related to family disharmony in terms of communication intensity.The results showed that the intensity aspects of communication in DT and WI families were: 1) attention during communication, 2) regularity, 3) message width, and 4) message depth. In addition, the intensity of communication factors in DT and WI families are 1) self-image and image of others, 2) psychological atmosphere, 3) physical environment, 4) tendency to lead together, and 5) dislike trust as a telling place between DT and WI


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