scholarly journals Meeting a cancer patient in pain: stories of difficulties

Author(s):  
Daniela Leone ◽  
Stefania Anania ◽  
Ivan Fossati ◽  
Claudio Cassardo ◽  
Vittorina Zagonel ◽  
...  

Current literature only partially explored the physician’s experience of being with a cancer patient in pain. The aim of the study was to explore the internal representation of physicians specialized in oncology and pain medicine of a challenging meeting with a cancer patient in pain. Using a written open narrative format, 46 physicians specialized in oncology and pain medicine were asked to tell “the story of a challenging meeting with a patient who was in pain”. The narrations were analysed in accordance to Interpretative Phenomenological Analysis. Three main categories were identified each with sub-themes: (1) “Non-written stories”; (2) “Written stories”; (3) “Family members”. The study showed the difficulty to be patient centered, in a context in which the pain is central, forbidding a relation between human beings. The family members, a third party, could be an interesting medium to consent a possible, and difficult, human relation.

2003 ◽  
Vol 12 (2) ◽  
pp. 196-200 ◽  
Author(s):  
INSOO HYUN

Over the past decade or so, the predominant patient-centered ethos in American bioethics has come under attack by critics who claim that it is morally deficient in certain respects, particularly when viewed in the context of acute-care decisionmaking. One line of criticism has been that the current ethic of patient autonomy gives an individual competent patient far too much decisional authority over the terms of his own treatment so that the patient is at complete liberty to neglect the ways in which his medical decisions can drastically and negatively affect the lives of other family members. Given that family members must help shoulder the financial, emotional, and rehabilitative burdens involved in the patient's care, it has been argued that they too have a legitimate interest in choosing what sort of medical treatment the patient eventually receives. Another closely related line of criticism is that the prevailing focus on patient autonomy gives short shrift to the moral significance of the family as a genuine community. Echoing a view of the person advanced by most communitarian political theorists, some commentators have argued that the patient comes to the clinic so thoroughly embedded in a complex web of familial relationships and obligations that it does not make sense to identify him as the only person in the family to make decisions about treatment.


KIRYOKU ◽  
2018 ◽  
Vol 2 (1) ◽  
pp. 11
Author(s):  
Fajria Noviana

Pets as  human substitute in Japanese family. This study aims to describe the Japanese society's view of pets, especially in relation to the substitution of the position of family members, especially children, in a family. This is in line with the emergence of a phenomenon whereby the presence of children in the family has been replaced by pets, especially for those who choose not to have children or elderly citizens. The method used is analytical descriptive method and literature study. From the analysis results, it is known that the presence of pets in lieu of the presence of friends, family members, even biological child (human substitute) for some Japanese is a necessity. On the one hand, this can be seen as something positive because it raises human awareness in animals. But on the other hand, this can be interpreted as a decrease in the quantity and quality of interaction among human beings, which in the long term can affect a person's ability to show empathy to others.Keywords: pet; pet attachment; human substitute


1975 ◽  
Vol 6 (2) ◽  
pp. 81-94 ◽  
Author(s):  
Loma Feigenberg

The author describes the approach he has developed both to provide support to the individuality of the terminally ill cancer patient, and to deepen our understanding of dying and death. This approach emerged through his experiences first as a radiotherapist, then as a psychiatrist serving in the same medical facility. It is vital in this approach to offer one's self exclusively to the patient in a flexible, trusting, and confidential relationship. Similarities and differences with conventional psychotherapy are discussed. The typical course of these contacts is described, along with the considerations that have led to one kind of decision-making as compared with another. Among the specific topics encompassed are indications and contraindications for establishing and maintaining contact, hope, truth-telling, responsiveness to changes in the patient's condition, and relationship with family members. Objectives of working with the terminally ill are explored, with particular emphasis given on support of the patient's dignity and individuality.


2017 ◽  
Vol 8 (2) ◽  
pp. 113
Author(s):  
Lukman Santoso ◽  
Bustanul Arifin

The issue of violence against wife physically and psychologically, today more frequent in the community. The factual reality shows that domestic violence against wife is a phenomenon that sometimes considered to be prevalent in society. The common assumption must not be separated from social construction in the society that the husband is the head of the family and has full authority to the family members, including his wife. In that context, this study attempts to analyze how the concept of the women protection as victims of domestic violence in Islamic law. In the context of the protection of women in the household, the texts of the Quran give many answers that require embodiment household with ma'ruf relationship in the sense of equal, fair and democratic. It is confirmed that Islamic law carries a mission of<br />protection, which is a mercy for all human beings on earth. It also harmonized with applicable laws protecting women in Indonesia today.<br />Persoalan kekerasan terhadap istri secara fisik maupun psikis, dewasa ini semakin sering terjadi di masyarakat. Realita tersebut secara faktual menunjukkan bahwa kekerasan dalam rumah tangga terhadap istri, merupakan suatu fenomena yang terkadang dianggap lazim di lingkungan masyarakat. Anggapan lazim ini tentunya tidak terlepas dari konstruksi sosial yang berkembang di tengah masyarakat bahwa suami adalah kepala keluarga dan memiliki otoritas penuh terhadap anggota keluarga termasuk isteri. Dalam konteks itu kajian ini berupaya mengupas tentang bagaimana konsep perlindungan terhadap perempuan korban KDRT dalam hukum Islam. Dalam konteks perlindungan perempuan dalam rumah tangga,teks-teks al-Qur’an memberikan banyak jawaban yang mengharuskan perwujudan hubungan rumah tangga secara ma’ruf dalam arti setara, adil dan demokratis. Hal ini menegaskan bahwa hukum Islam membawa misi perlindungan, yaitu sebagai rahmat bagi seluruh manusia di muka bumi. Hal ini juga diharmonisasikan dengan hukum perlindungan perempuan yang berlaku di Indonesia saat ini.


1978 ◽  
Vol 8 (2) ◽  
pp. 203-216 ◽  
Author(s):  
Melvin J. Krant ◽  
Lee Johnston

A study of patterns of communications in families with a terminal cancer patient being treated at three urban institutions revealed that many first-order relatives (spouses, children, siblings) of patients did not have a communication link to the physician, especially if direct communication was not established at the time of diagnosis. Family members were frequently critical of the way information was communicated, yet relied upon the physician's interpretation of the patient's status to form their own opinion of the patient's future. Intra-familial communications regarding illness and dying were frequently discordant and guarded, leading to perceptions that the patient was withdrawing, and fostering a reliance upon the hospital for terminal care. More than half of the family members were uncomfortable visiting the patient in the hospital, experiencing feelings of helplessness, or sensing helplessness in the patients. Bearing the patient's pain was seen as particularly difficult.


2014 ◽  
Vol 30 (4) ◽  
pp. 663-687
Author(s):  
Julien D. Payne

Family law is only one piece of the puzzle as separating and divorcing couples attempt to manage the conflict and deal with the practical problems arising on marriage breakdown. Divorce is a process, not an event. It is multi-faceted. The emotional dynamics of marriage breakdown may require a time consuming therapeutic response but parenting and economic arrangements must be resolved expeditiously. There is a tendency to assume that spouses who are locked in conflict will find themselves in court. In reality, fewer than four per cent of divorces proceed to trial. The costs of litigation are far too high, both financially and emotionally. Most disputes are resolved by negotiation, often with the assistance of lawyers. If negotiations are to bear fruit at a manageable cost to family members, hard bargaining that reflects "a winner take all" mentality must be avoided; principled negotiation, as espoused by Roger Fisher, William Ury and Bruce Patton in Getting To Yes, can generate optimal results for all interested parties, including the children. Recent years have witnessed the growth of mediation, whereby a neutral third party assists family members in searching for consensus on matters in dispute. The mediator controls the process but the family members control the substantive outcome of their deliberations. Mediation is nothing more than structured negotiation where a third party facilitates resolution of the dispute. If a final settlement cannot be reached, one possible option is recourse to private arbitration in which a third party is given the authority to determine the respective rights and obligations of the spouses and their children. It is possible to combine the aforementioned processes for the purpose of reaching a complete settlement of matters in dispute. These processes are complementary to the judicial process and should be closely examined by all families faced by the cataclysmic disruption generated by a failed marriage.


2020 ◽  
Vol 25 (8) ◽  
pp. 636-649
Author(s):  
Zhang Xiuxiang ◽  
Xiubin Zhang ◽  
Jo Hockley

Background and aims Globally, two thirds of people with dementia are cared for by their families or friends. Family caregivers’ coping strategies of managing the caregiving burden of dementia have been studied widely in western literature. However, few attempts have been made to explore the experience of family caregivers’ coping strategies in China. The aim of this study was to explore the family caregivers’ coping strategies when caring for people with dementia in one city in the province of Shandong, China. Methods Fourteen family caregivers were individually interviewed, and interpretative phenomenological analysis was used to identify themes within different family members. Results Four key themes were found: (a) being filial; (b) changing self and self-care; (c) seeking help; and (d) having hope and continuing life. Conclusion The study illustrates the different strategies developed by family members in order to cope with their new roles when caring for a relative who has dementia. It shows that cultural belief of filial piety plays a large role across these various coping strategies. It highlights how responsibility has been maintained and influenced by the specific sociocultural context. The results provide a useful foundation for developing interventions that support family caregivers cope with the burden of caring in this population.


2016 ◽  
Vol 3 (1) ◽  
pp. 19 ◽  
Author(s):  
Mukhamad Anieg

<p>Abstract</p><p>Awareness has inspired humans to feel Sufi sm. Various kinds of questions lie about mutasawifi n, including Who am I? Where am I? For what I created? How do I fi ll out alive? What am I looking for? What kind of life I want to pick up after death? If I could go back to my native place safely? And other fundamental questions in human beings. Religion deifying vehicle, Iman deifying fuel, and the man who drove, the religion with the contents of the sentences noble in heart, it was the straight path. Th e way of approaching Him is to continue to multiply zikrullah. Zikir is the parent of worship, then where is the zikir when penetrating into the heart of a clean then it will feel the souls kesufi an true. Hearts (qolbu) can also be likened to building a house. He was surrounded by walls and secured with a gate or gate locked. Only family members and guests who comes who may enter it. While the heart of the deeper (lubb) is a locked room that holds valuable heirlooms belonging to the family. Only a few family members who have the key. So when the door was open means opened the doors of Sufi sm in human beings and to feel the pleasure that can perform worship and all the good deeds that will save people in the world and the hereafter.</p><p><br />Keyword: <em>Sufi sm, qolbu, zikir</em></p>


2021 ◽  
Vol 1 (1) ◽  
pp. 26-33
Author(s):  
Aurelius Fredimento ◽  
Gregorius Sebo Bito ◽  
Berty Sadipun ◽  
John M Balan

The communication media  as a work of human beings reason from time to time has a very rapidly progress together with the growth and the development of new innovations in the world of the digital technology. This progress is a  certainty that must be received by the human beings who are in a strong mind and conscience awareness that communication media is so sophisticated but remains as a means of the development of the human beings civilization. This awareness gradually can be expected to encourage human beings in order to place themselves appropriately as the subject of the  development of the communication media itself through a rational and an accurate filtering process against negative influences that can threaten with human beings civilization. One of the institutions is threatened with the negative  influences of the communicaton media is family. At first the family gets a respected  position as a socialization agent about the values of life is now experiencing decline of function as well as its role because the majority of the family members are now snared because of the negative influences of the communication  media. The sympathetic as well as the  empathetic atmosphere are used to be the first decoration in the  house and now  is just becoming a nice memory but sadden. The fascination  is too axtreme makes each of the family member of the communication media and finally appear some attitudes as well as behaviours that don,t go with the values of solidarity and the family as well. At last, this problem lets grow as well  as develop without striving for preventive and curative of the various social elements. This meant preparing a show of a destruction of the generation in the future. Therefore, the whole sides are expected to their involvement to be a foremost line in preventing efforts. On the basis, the Paroki St. Yosef Onekore is also moved at giving the basics  correct of comprehension to the parents in the catechetical activities  that the communication media is actually just a means of using it to proclaim the King of God.


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