Peer Support and Family Acceptance with Quality of Life of MSM Living With HIV and Antiretroviral

2020 ◽  
Author(s):  
Ina Martiana ◽  
Agung Waluyo ◽  
Sri Yona ◽  
Edianto Edianto
Keyword(s):  
Quality Of Life ◽  
Peer Support ◽  
Peer Group ◽  
Well Being ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Family Acceptance ◽  
Perceived Acceptance ◽  
Living With Hiv

Men who have sex with men (MSM) comprise a population at risk for HIV infection. Quality of Life (QOL) becomes the main goal to lengthen their life span. This study was conducted to determine the relationship between peer support and family acceptance toward QOL of MSM living with HIV and ARV in Medan. A total of 175 respondents were involved in this cross-sectional study that was carried out via purposeful sampling. Data were collected by means of the Perceived Acceptance Scale, Peer Group Caring Interaction Scale, and WHOQOL-HIV BREF. Results showed that QOL was significantly associated with peer support (p= 0.023; OR= 2.070) and family acceptance (p= 0.001; OR= 2.766). Thus, peer support and family acceptance are important variables affecting well-being and QOL of MSM living with HIV and ARV. This finding can be used for the improvement of QOL in PLWH. AbstrakDukungan Sebaya dan Penerimaan Keluarga terhadap Kualitas Hidup LSL dengan HIV dan Antiretroviral. Laki-laki yang berhubungan seks dengan laki-laki (LSL) merupakan populasi yang berisiko terinfeksi HIV. Kualitas hidup (QOL) menjadi tujuan utama untuk memperpanjang umur mereka. Penelitian ini dilakukan untuk mengetahui hubungan dukungan sebaya dan penerimaan keluarga terhadap kualitas hidup LSL yang hidup dengan HIV dan antiretroviral (ARV) di Medan. Sebanyak 175 responden dilibatkan dalam studi cross-sectional yang dilakukan melalui purposive sampling. Data dikumpulkan dengan menggunakan Skala Perceived Acceptance, Skala Interaksi Peduli Peer Group, dan WHOQOL-HIV BREF. Hasil penelitian menunjukkan bahwa kualitas hidup secara signifikan berhubungan dengan dukungan teman sebaya (p = 0,023; OR = 2,070) dan penerimaan keluarga (p = 0,001; OR = 2,766). Dengan demikian, dukungan sebaya dan penerimaan keluarga merupakan variabel penting yang mempengaruhi kesejahteraan dan kualitas hidup LSL yang hidup dengan HIV dan ARV. Temuan ini dapat digunakan untuk peningkatan QOL pada ODHA.Kata Kunci: dukungan sebaya, HIV, kualitas hidup, penerimaan keluarga

scholarly journals A Secondary Analysis of Peer Support and Family Acceptance Among Homosexual Living with HIV and Antiretroviral Therapy: Quality of Life Perspectives

2021 ◽  
Vol 24 (1) ◽  
pp. 1-8
Author(s):  
Ina Martiana ◽  
Agung Waluyo ◽  
Sri Yona ◽  
Edianto Edianto
Keyword(s):  
Quality Of Life ◽  
Antiretroviral Therapy ◽  
Peer Support ◽  
Secondary Analysis ◽  
People Living With Hiv ◽  
Cross Sectional ◽  
Purposive Sampling ◽  
Family Acceptance ◽  
Living With Hiv

Men who have sex with men (MSM) comprise a population at risk for HIV infection. Assessing the Quality of Life (QOL) in MSM might be different than other populations. This study showed a secondary analysis from our previous research. It was needed to understand whether peer support and family acceptance had an impact on QOL of MSM living with HIV and ART (Antiretroviral Therapy). A total of 175 respondents were involved in this cross-sectional study that was carried out with purposive sampling. The questionnaires were translated to Bahasa and tested for validity and reliability. Data questionnaires completed were analyzed. Results showed that peer support was positively correlated with QOL (p= 0.023; OR= 2.070), and also, family acceptance was significantly related to QOL (p= 0.001; OR= 2.766). Thus, peer support and family acceptance are important factors affecting the well-being and QOL of MSM living with HIV and ART. This finding can be used for the improvement of QOL in people living with HIV. Abstrak  Dukungan Sebaya dan Penerimaan Keluarga terhadap Kualitas Hidup Homoseksual dengan HIV dan Terapi Antiretroviral. Laki-laki yang berhubungan seks dengan laki-laki (LSL) merupakan populasi yang berisiko terinfeksi HIV. Menilai kualitas hidup (QOL) pada LSL mungkin berbeda dari populasi lainnya. Penelitian ini merupakan analisis sekunder dari penelitian sebelumnya. Kami menguji apakah dukungan sebaya dan penerimaan keluarga berdampak pada kualitas hidup pada LSL dengan HIV dan ART (terapi antiretroviral). Sebanyak 175 responden dilibatkan dalam studi cross-sectional yang dilakukan melalui purposive sampling. Data kuesioner yang sudah terisi komplit, akan dilakukan analisa. Hasil penelitian menunjukkan bahwa dukungan sebaya berhubungan positif dengan kualitas hidup (p= 0,023; OR= 2,070) dan juga penerimaan keluarga secara signifikan berhubungan dengan kualitas hidup (p= 0,001; OR= 2,766). Dengan demikian, dukungan sebaya dan penerimaan keluarga merupakan variabel penting yang mempengaruhi kesejahteraan dan kualitas hidup LSL yang hidup dengan HIV dan ART. Temuan ini dapat digunakan untuk peningkatan QOL pada orang dengan HIV. Kata Kunci: dukungan sebaya, HIV, kualitas hidup, penerimaan keluarga

Quality of life in multiple sclerosis patients in Spain

2002 ◽  
Vol 8 (6) ◽  
pp. 527-531 ◽  
Author(s):  
C-H Chang ◽  
D Cella ◽  
O Fernández ◽  
G Luque ◽  
P de Castro ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Well Being ◽  
Cross Sectional Study ◽  
Self Report ◽  
Regression Analyses ◽  
Cross Sectional ◽  
Scale Scores ◽  
Multiple Sclerosis Patients

Objective: The cross-sectional study evaluated the psychometric properties of the Functional Assessment of Multiple Sclerosis (FAMS) Spanish version and its use in measuring quality of life (QOL) of multiple sclerosis (MS) patients in Spain. Methods: The FAMS is a factorially derived self-report scale designed to assess six primary aspects of QOL of patients with MS: Mobility, Symptoms, Emotional Well-Being, General Contentment, Thinking and Fatigue, and Family/Social Well-Being. Its Spanish translated version was used to assess QOL of 625 MS patients recruited in an outpatient clinic setting from 58 hospitals in Spain. Internal consistency of the Spanish FAMS was evaluated. Multiple regression analyses were performed to identify significant predictors from demographic, clinical and treatment characteristics, and Kurtzke Expanded Disability Status Scale (EDSS) scores in predicting FAMS scale scores. Results: Most of the patients are females (66%), and 74% were of the relapsing-remitting (RR) clinical subtype. Cronbach’s alpha coefficients were high (range=0.78-0.96), indicating subscale homogeneity comparable to that of the original English version. Linear multivariate regression analyses revealed that the EDSS is a dominant variable in predicting all the FAMS subscales, especially mobility (R2=0.51) and the total scores. Conclusions: The Spanish FAMS is a psychometrically valid instrument that allows clinicians and clinical researchers the ability to measure the QOL concerns of MS patients in Spain.

Quality of Life in Chilean Transgender Children and Adolescents

2021 ◽  
Author(s):  
Carolina Mendoza ◽  
Helena Poggi ◽  
Mónica Flores ◽  
Cristóbal Morales ◽  
Alejandro Martínez-Aguayo
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
School Environment ◽  
Social Acceptance ◽  
Well Being ◽  
Psychosocial Health ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Psychological Well Being

Introduction: Transgender (TG) children and adolescents experience problems in school as well as with family and social relationships that can adversely affect their physical and psychosocial health and impair their quality of life (QOL). This study aims to assess health-related quality of life (HRQOL) in TG children. Methods: We performed a cross-sectional study comparing HRQoL in gender nonconforming (Trans) and gender conforming (CIS) children and adolescents using the Spanish version of KIDSCREEN-52 in 120 Chilean Trans and CIS children (aged 8–18 years) and their parents. All scores were standardized according to the KIDSCREEN manual. Results: Among the 100 questionnaires answered, 38 corresponded to children and adolescents aged 8.4–18 years. Twenty-one of them were TG (71% trans males) and 17 were CIS (76% females). Sixty-two parents answered the questionnaires: 33 from families of TG children (PTrans) and 29 from families of CIS children (PCis). Trans children had lower HRQOL scores in all domains compared to CIS children. The lowest-scoring domains for TG children were “Moods and Emotions”, “Psychological Well-Being” and “Social Acceptance”, and the highest-scoring domain was “School Environment”. The PTrans group had significantly higher scores than the Trans group for 3 of the 10 domains: “Psychological Well-Being”, “Moods and Emotions”, and “Parent Relations and Home Life”. Conclusion: Our results revealed that TG children and adolescents have lower QOL than their CIS counterparts, especially regarding items related to mental health. Furthermore, their parents may underestimate their well-being, confirming the vulnerability of the TG population. This finding underlies the need to perform early assessments of QOL for early detection and intervention in aspects that could deteriorate their quality of life.

scholarly journals Quality of life of elderly people living with HIV/AIDS in outpatient follow-up

2018 ◽  
Vol 71 (suppl 1) ◽  
pp. 513-522 ◽  
Author(s):  
Juliano de Souza Caliari ◽  
Lilian Andreia Fleck Reinato ◽  
Daiana Patrícia Marchetti Pio ◽  
Letícia Pimenta Lopes ◽  
Renata Karina Reis ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Elderly People ◽  
Treatment Interruption ◽  
Cross Sectional Study ◽  
People Living With Hiv ◽  
Cross Sectional ◽  
Physical Changes ◽  
Living With Hiv ◽  
Hiv Aids

ABSTRACT Objective: To analyze factors related to the quality of life of elderly people living with HIV/AIDS. Method: A cross-sectional study was carried out with people aged 50 years or more in a specialized outpatient clinic. The data collection was by means of an interview. For the analysis of data and characterization of the sample, descriptive statistics and comparison tests were used. The project met the ethical requirements. Results: Participants were 81 users aged 50 to 75 years, mean age was 57.8 (± 6.1) years, 71.6% of whom were men. There was a statistically significant relationship with the quality of life, the following variables: gender, children, occupation, religion, diagnosis time, HIV exposure, adverse effects, treatment interruption, viral load counts, hospitalization, dependence for daily activities and use of drugs. Conclusion: The results suggest that the quality of life deficit is related not only to physical changes, but to the anguish and stigma related to HIV/AIDS.

scholarly journals Caregiver strain and quality of life 6 - 36 Months post stroke

2013 ◽  
Vol 69 (4) ◽  
Author(s):  
J. Hilton ◽  
W. Mudzi ◽  
V. Ntsiea ◽  
S. Olorunju
Keyword(s):  
Quality Of Life ◽  
High Strain ◽  
Well Being ◽  
Cross Sectional Study ◽  
Caregiver Strain ◽  
Sectional Study ◽  
Demographic Information ◽  
Cross Sectional ◽  
Post Stroke

Background: Caregivers of patients with stroke are central in providing for the patient’s needs post stroke. The well-being and quality of life of the caregiver is important in the rehabilitation of the patient with stroke. This study sought to establish the: functional level of patients, level of strain and quality of life of the caregiver, and the factors that influence caregivers’ quality of life six to 36 months post stroke. Methods: This was a cross-sectional study which included 35 patients six to 36 months post stroke and their primary caregiver utilising a sample of convenience from local clinics/hospitals in Johannesburg. Demographic information was obtained from the patient and the caregiver using a questionnaire. The Barthel Index (BI), Caregiver Strain Index (CSI) and the EQ-5D were also administered. Results: On the BI, 60% of the patients were moderately dependent to independent while 77% of the caregivers were strained. Older caregivers were 81% more likely to experience a decrease in quality of life than younger caregivers. Conclusion: A large proportion of patients are discharged from hospital without receving rehabilitation and are still dependent on caregivers six to 36 months post stroke. Caregivers of patients with stroke need more support from health professionals to mitigate against the high strain and low quality of life that they experience when caring for patients six to 36 months post stroke.

scholarly journals The COVID-19 pandemic and first-year medical students’ academic motivation

2021 ◽  
Author(s):  
Aidos K. Bolatov
Keyword(s):  
Quality Of Life ◽  
Medical Students ◽  
Extrinsic Motivation ◽  
Academic Motivation ◽  
Well Being ◽  
Cross Sectional Study ◽  
First Year ◽  
Cross Sectional ◽  
First Year Medical Students

Abstract The study aimed to investigate the relationships between academic motivation and the psychological well-being of 1st-year medical students during the COVID-19 pandemic. The total number of respondents in the cross-sectional study was 273. Intrinsic motivation was positively correlated with fear of COVID-19 and negatively correlated with psychological collapse and negative changes in quality of life due to the COVID-19. Extrinsic motivation positively associated with fear of COVID-19. Amotivation positively correlated with psychological collapse and negative changes in quality of life. In conclusion, COVID-19-related changes in quality of life and psychological destruction were predictors of academic motivation among 1st-year medical students.

scholarly journals Factors Associated with the Quality of Life of People Living with HIV/AIDS

10.3823/2627 ◽  
2020 ◽  
Vol 13 ◽  
Author(s):  
Maria Sandra Andrade ◽  
Clarissa Mourão Pinho ◽  
Aline Ferreira Targino Soares ◽  
Eduardo Tavares Gomes ◽  
Cynthia Angélica Ramos de Oliveira Dourado ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Relations ◽  
Physical Environment ◽  
Sample Selection ◽  
Cross Sectional Study ◽  
People Living With Hiv ◽  
Cross Sectional ◽  
Stepwise Method ◽  
Living With Hiv

Purposes: Evaluate the quality of life and the associated factors in people living with HIV. Methods: This is a cross-sectional study with a quantitative approach and random sample selection, carried out in two Specialized Assistance Services, with 356 people living with HIV. The comparison between the domain scores was performed using the student t test, ANOVA and Pearson’s correlation. Multiple linear regression was used to assess the contribution of variables to the outcome quality of life using the stepwise method. Results: The domains that showed the best results in averages were Psychological (17.0), Social Relations (14.9) and Level of Independence (14.0). The domain that had the greatest determination was the Psychological (R² = 0.49), followed by Social Relations (R² = 0.434), the lowest determination was the Spirituality domain (R² = 0.270). No domain had a score considered high. Conclusion: The quality of life presented unsatisfactory results, especially in the Physical, Environment and Spirituality domains. The need to formulate strategies aimed at coping with HIV and increasing the quality of life of people living with HIV is evident.

scholarly journals Quality of life evaluation of coinfected patients with HIV/tuberculosis in a hospital in northeast Brazil

2020 ◽  
Vol 11 (2) ◽  
pp. 0346
Author(s):  
Amanda D. SILVA ◽  
Thaylany C. AMORIM ◽  
Ádeny M. ARAGÃO ◽  
Maria J. IBAÑEZ ◽  
José A. FILHO ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Relationships ◽  
Well Being ◽  
Cross Sectional Study ◽  
Socioeconomic Conditions ◽  
Cross Sectional ◽  
Life Evaluation ◽  
General Quality ◽  
And Performance

Objectives: To evaluate the quality of life of patients coinfected with HIV/tuberculosis and to understand their perception of their health. Methods: A cross-sectional study was carried out in a hospital in the state of Pernambuco, Brazil. Data were collected between November 2017 and April 2018 through interviews. The WHOQOL-HIV Bref instrument was used, obtaining the total score and performance in the domains: physical, psychological, level of independence, social relationships, environment, spirituality. Sociodemographic and clinical data from the Logistic Control System of Medicines (SICLOM®) were also collected through a questionnaire. Results: Twenty-six patients were interviewed, 76.9% were male, mostly heterosexual, single, 43.1% presented an advanced state of immune system compromise. 73.1% considered their health "good" or "very good" and 69.2% did not consider themselves sick. The general quality of life, score from zero (worst quality of life) to one hundred (best quality of life) obtained an average of 69.6 ± 9.1. In the domains, the worst average was obtained at the independence level (11.1 ± 2.6) and the highest scores were in the spirituality (15.5 ± 3.8) and psychological (15.3 ± 2.2) domains. Conclusions: The low level of independence and the unfavorable socioeconomic conditions were important aspects influencing in the quality of life of the studied population. Knowledge about the most affected domains in the quality of life allows the elaboration of clinical guidelines and public assistance policies that contribute to the well-being of these patients.

scholarly journals Perception of health status and quality of life of people living with HIV in Patan city, Gujarat, India: a cross sectional study

2017 ◽  
Vol 4 (4) ◽  
pp. 1137
Author(s):  
Grishma T. Dixit ◽  
Nilesh Thakor ◽  
Mihir Goswami ◽  
P. B. Verma
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Study ◽  
People Living With Hiv ◽  
Age Group ◽  
Cross Sectional ◽  
Perceived Satisfaction ◽  
Study Population ◽  
Living With Hiv ◽  
Perception Of Health

Background: Human Immunodeficiency Virus is the biggest threat to the mankind today from their health perspective. To know the perception of health status and quality of life of people living with HIV/AIDS.Methods: This cross sectional study was undertaken during March 2015 to April 2016 at Patan city. After taking permission from NGO and Gujarat State AIDS Control Society (GSACS) total 100 purposively selected People living with HIV (PLHIV) attached to the NGO of Patan city were interviewed using predesigned semi-structured performa. Written informed consent was taken from all PLHIV. Ethical approval was obtained from institutional ethical committee for human research. Data safety and confidentiality was also given due consideration. Data were statistically analyzed using SPSS software (trial version). Results: Age of study population ranges from 18 to 68 years. Mean age of study population is 34.21 + 9.1 years. Maximum number of PLHIV, 51 % are in the age group of 31-40 years age group. Out of total, 76 have perception of being healthy .Out of total, 61 % PLHIV have faced stigma. Out of total,92% were enjoying life, 74% perceived good quality of life, 95% perceived safe in life, 96% perceived satisfaction with health services, 84% perceived  satisfaction with their day to day work capability and only 8% perceived fear about their future life. Conclusions: Positive attitude towards life and health was observed in People Living with HIV. 

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