Evaluating an E-Learning Application to Protect Vulnerable Users From Cyberbullying

This research project evaluates Let's Be Safe, an e-learning application. This application aims to educate young adults with intellectual disability about cyberbullying—an issue prevalent among this population—and cybersafety. Twenty-two individuals with mild to moderate intellectual disability took part in the research. The study employed a mixed-methods design including observational and inquiry methods of usability evaluation as well as focus groups. The evaluation investigated the relationships between perceived aesthetics, emotional response, and usability for the application. The focus group gathered information from the participants regarding their knowledge and experience of cyberbullying and cybersafety. The analyses found no significant relationships between aesthetics, emotional response, and usability for this user group. However, the research gathered data, which will contribute to the development of Let's Be Safe. The findings of the focus group revealed that cyberbullying is an issue among this population.

Psychometric properties of the Wechsler-4 Scale for Deaf People with Moderate Intellectual Disability

This study aimed to identify the Wechsler-4 Intelligence Scale for Deaf people with Moderate Intellectual Disability. A descriptive survey method was used. The sample on deaf included (73) deaf students in Jordan and the WISC-IV standard was applied in the sign language on them. Validity indicators were content validity (80%), Construct Validity Internal (0.351 - 0.435) for each of the tests (Perceptual Reasoning Index, PRI), (Working Memory Index, WMI). And (Processing Speed Index, PSI), except for the Verbal (Comprehension Index, VCI) test, the value of the correlation coefficient with overall intelligence was (0.074), which are non-significant values at the significance level (0.01), and Concurrent Validity with the Goodenough-Harris Drawing scale (0.688) and achievement (0.887). Also, the Reliability scale was the Test Re-test method (0.866), the arbitrator's agreement (78.2%), the Split Half (0.901), and Cronbach Alpha (0.797). The results showed that the overall intelligence level (IQ=50.23).The results showed that there are differences in the level of the sub-tests and the value of the arithmetic mean (VCI) = (58.37), (PRI) = (52.73), (WMI) = (52.68), (PSI) = (64.14), and Full-Scale IQ = (50.23). The results showed that there were differences in the level of (PRI) attributable to gender in favor of males. And no differences in the level of intelligence attributed to the variable of hearing impairment. The study recommends related to the understanding of sign language of deaf Moderate Intellectual Disability, and studies related to the development of the perceptual intelligence of the deaf.

Craniospinal Irradiation As Part of Re-Irradiation for Children With Recurrent Medulloblastoma.

Background Many studies have demonstrated in the last years that once medulloblastoma has recurred, the probability of regaining tumor control is poor despite salvage therapy. Although re-irradiation has an emerging role in other relapsed brain tumors, there is a lack of strong data on re-irradiation for medulloblastoma. Methods This is a retrospective cohort study of patients aged 18 years or under, treated at least by a second course of external beam for recurrence medulloblastoma at Garrahan Hospital between 2009 and 2020. Twenty-four patients met eligibility criteria for inclusion. All patients received upfront radiotherapy as part of the curative-intent first radiotherapy, either craniospinal irradiation (CSI) followed by posterior fossa boost in 20 patients or focal posterior fossa radiation in 4 infants. The second course of radiation consisted of CSI in 15 and focal in 9. The 3-year post first failure OS (50% vs. 0%; p = 0.0010) was significantly better for children who received re-CSI compared to children who received focal re-irradiation. Similarly, the 3-year post-re-RT PFS (31% vs. 0%; p = 0.0005) and OS (25% vs. 0%; p = 0.0003) was significantly improved for patients who received re-CSI compared to patients who received focal re-irradiation. No symptomatic intratumoral haemorrhagic events or symptomatic radionecrosis were observed. Survivors fell within mild to moderate intellectual disability range, with a median IQ at last assessment of 58 (range 43–69). Conclusion Re-irradiation with CSI is a safe and effective treatment for children with relapsed medulloblastoma; improves disease control and survival compared with focal re-irradiation. However this approach carries a high neurocognitive cost.

TYPES OF AGGRESSIVE BEHAVIOR AMONG LEARNERS WITH MODERATE INTELLECTUAL DISABILITY IN NIGERIA AS PERCEIVED BY TEACHERS

This study examined aggressive behavior (verbal aggression, physical assault, socially unacceptable and destructive behavior) among learners with moderate intellectual disability in south-western Nigeria, through teachers’ perceptions. The study used a descriptive survey design. Convenient sampling technique was used to select respondents (87 teachers of pupils with intellectual ability in private and public schools in south West Nigeria). The aggressive behavior scale (ABS) was used to elicit responses. Data retrieved was analysed using descriptive and inferential statistics. Results showed that teachers’ perception of the developmental trend of aggressive behavior among learners with moderate intellectual disability was significant (T = 44.385, Mean Difference = 3.115 while p < .05). Also, there was no significant gender difference in verbal aggressive (F=0.997, p>.05), physical aggressive (F=3.628, p>.05), socially unacceptable aggressive (F=1.233, p>.05), and destructive behavior (F=0.571, p>.05). Interventions should be in line with these.

A qualitative exploration of stigma experience and inclusion among adults with mild to moderate intellectual disability in an Indonesian context

Background: People with intellectual disability are among the most stigmatised groups in society. There is a paucity of studies reporting on how stigma is experienced in low- and middle-income countries. This study aims to explore the experience of stigma among adults with mild/moderate intellectual disability and the extent of their inclusion in Indonesian society. Method: Fifteen adults with mild/moderate intellectual disability were purposively recruited from three service providers and were interviewed using a semi-structured interview schedule. The data were analysed using thematic analysis. Results: The findings suggest that adults with intellectual disability experience stigma in multiple settings (family, school, community), have limited access to social activities, and internalised the experienced stigma. Conclusion: This study adds to the international understanding of stigma experienced by adults with mild/moderate intellectual disability in daily life and their inclusion in society in a middle-income country.

Employability skills and quality of life among employees with mild and moderate intellectual disability who attend occupation centres in catalonia (Spain)

Background: The study explores the relationship between quality of life (QoL) and employability skills in a non-random sample of 100 employees of occupational centres (OCs) in Barcelona (Spain). The influence of gender, age and level of intellectual disability (ID) is also explored. Method: A quantitative approach was adopted to collect and examine data, gathered through two different instruments: the GENCAT SCALE (Verdugo et al., 2008) (and the Employability Skills Scale (Jariot, Laborda and González, 2020). Results: A correlation between QoL and employability skills has been found. A relationship between age and employability skills was also found, in which younger individuals reported better in employability skills. Age was also found to have an effect on some QoL domains. The ID level turned out to be a significant factor in the development of employability skills, as well as in some QoL domains. The crucial role of job placement in personal development is underlined, as well as the need for more inclusive procedures in occupancy services.

De Novo 1q21.3q22 Duplication Revaluation in a “Cold” Complex Neuropsychiatric Case with Syndromic Intellectual Disability

Syndromic intellectual disability often obtains a genetic diagnosis due to the combination of first and next generation sequencing techniques, although their interpretation may require revaluation over the years. Here we report on a composite neuropsychiatric case whose phenotype includes moderate intellectual disability, spastic paraparesis, movement disorder, and bipolar disorder, harboring a 1.802 Mb de novo 1q21.3q22 duplication. The role of this duplication has been reconsidered in the light of negativity of many other genetic exams, and of the possible pathogenic role of many genes included in this duplication, potentially configuring a contiguous gene-duplication syndrome.