Secure Cross-Border Exchange of Health Related Data: The KONFIDO Approach

Author(s):  
Sotiris Diamantopoulos ◽  
Dimitris Karamitros ◽  
Luigi Romano ◽  
Luigi Coppolino ◽  
Vassilis Koutkias ◽  
...  
Author(s):  
Sotiris Diamantopoulos ◽  
Marco Nalin ◽  
Ilaria Baroni ◽  
Fabrizio Clemente ◽  
Giuliana Faiella ◽  
...  

2015 ◽  
Author(s):  
William E. Hammond ◽  
Vivian L. West ◽  
David Borland ◽  
Igor Akushevich ◽  
Eugenia M. Heinz

2021 ◽  
Vol 13 (6) ◽  
pp. 3572
Author(s):  
Lavinia-Maria Pop ◽  
Magdalena Iorga ◽  
Iulia-Diana Muraru ◽  
Florin-Dumitru Petrariu

A busy schedule and demanding tasks challenge medical students to adjust their lifestyle and dietary habits. The aim of this study was to identify dietary habits and health-related behaviours among students. A number of 403 students (80.40% female, aged M = 21.21 ± 4.56) enrolled in a medical university provided answers to a questionnaire constructed especially for this research, which was divided into three parts: the first part collected socio-demographic, anthropometric, and medical data; the second part inquired about dietary habits, lifestyle, sleep, physical activity, water intake, and use of alcohol and cigarettes; and the third part collected information about nutrition-related data and the consumption of fruit, vegetables, meat, eggs, fish, and sweets. Data were analysed using SPSS v24. Students usually slept M = 6.71 ± 1.52 h/day, and one-third had self-imposed diet restrictions to control their weight. For both genders, the most important meal was lunch, and one-third of students had breakfast each morning. On average, the students consumed 1.64 ± 0.88 l of water per day and had 220 min of physical activity per week. Data about the consumption of fruit, vegetables, meat, eggs, fish, sweets, fast food, coffee, tea, alcohol, or carbohydrate drinks were presented. The results of our study proved that medical students have knowledge about how to maintain a healthy life and they practice it, which is important for their subsequent professional life.


2021 ◽  
Author(s):  
Ben Philip ◽  
Mohamed Abdelrazek ◽  
Alessio Bonti ◽  
Scott Barnett ◽  
John Grundy

UNSTRUCTURED Our objective is to better understand health-related data collection across different mHealth app categories. This would help in developing a health domain model for mHealth apps to facilitate app development and data sharing between these apps to improve user experience and reduce redundancy in data collection. We identified app categories listed in a curated library which was then used to explore the Google Play Store for health/medical apps that were then filtered using our inclusion criteria. We downloaded and analysed these apps using a script we developed around the popular AndroGuard tool. We analysed the use of Bluetooth peripherals and built-in sensors to understand how a given app collects/generates health data. We retrieved 3,251 applications meeting our criteria, and our analysis showed that only 10.7% of these apps requested permission for Bluetooth access. We found 50.9% of the Bluetooth Service UUIDs to be known in these apps, with the remainder being vendor specific. The most common health-related services using the known UUIDs were Heart Rate, Glucose and Body Composition. App permissions show the most used device module/sensor to be the camera (20.57%), closely followed by GPS (18.39%). Our findings are consistent with previous studies in that not many health apps were found to use built-in sensors or peripherals for collecting health data. The use of more peripherals and automated data collection along with integration with other apps could increase usability and convenience which would eventually also improve user experience and data reliability.


Author(s):  
Kerina H Jones ◽  
Arron S Lacey ◽  
Brian L Perkins ◽  
Mark I Rees

ABSTRACTObjectivesData safe havens can bring together and combine a rich array of anonymised person-based data for research and policy evaluation within a secure setting. To date, the majority of available datasets have been structured micro-data derived from routine health-related records. Possibilities are opening up for the greater reuse of genomic data such as Genome Wide Association studies (GWAS) and Whole Exome/Genome Sequencing (WES or WGS). However, there are considerable challenges to be addressed if the benefits of using these data in combination with health-related data are to be realized safely. ApproachWe explore the benefits and challenges of using genomic datasets with health-related data, and using the Secure Anonymised Information Linkage (SAIL) system as a case study, the implications and way forward for Data Safe Havens in seeking to incorporate genomic data for use with health-related data. ResultsThe benefits of using GWAS, WES and WGS data in conjunction with health-related data include the potential to explore genetics at a population level and open up novel research areas. These include the ability to increasingly stratify and personalize how medical indications are detected and treated through precision medicine by understanding rare conditions and adding socioeconomic and environmental context to genomic data. Among the challenges are: data availability, computing capacity, technical solutions, legal and regulatory frameworks, public perceptions, individual privacy and organizational risk. Many of the challenges within these areas are common to person-based data in general, and often Data Safe Havens have been designed to address these. But there are also aspects of these challenges, and other challenges, specific to genomic data. These include issues due to the unknown clinical significance of genomic information now or in the future, with corresponding risks for privacy and impact on individuals. ConclusionGenomic data sets contain vast amounts of valuable information, some of which is currently undefined, but which may have direct bearing on individual health at some point. The use of these data in combination with health-related data has the potential to bring great benefits, better clinical trial stratification, epidemiology project design and clinical improvements. It is, therefore, essential that such data are surrounded by a properly-designed, robust governance framework including technical and procedural access controls that enable the data to be used safely.


10.2196/16879 ◽  
2020 ◽  
Vol 22 (5) ◽  
pp. e16879 ◽  
Author(s):  
Christophe Olivier Schneble ◽  
Bernice Simone Elger ◽  
David Martin Shaw

Tremendous growth in the types of data that are collected and their interlinkage are enabling more predictions of individuals’ behavior, health status, and diseases. Legislation in many countries treats health-related data as a special sensitive kind of data. Today’s massive linkage of data, however, could transform “nonhealth” data into sensitive health data. In this paper, we argue that the notion of health data should be broadened and should also take into account past and future health data and indirect, inferred, and invisible health data. We also lay out the ethical and legal implications of our model.


Author(s):  
James L. Wilson ◽  
Christopher J. Mansfield

More than a trillion dollars of public money is spent annually on health care in the United States. In order to inform policymakers, health advocacy groups, tax-paying constituents, and beneficiaries, it would be useful to present and analyze health outcome and health-related data at the U.S. congressional district level. Presently, health event data are not reported at this political unit; however, recent interest and advances in areal interpolation techniques are beginning to transcend the inherent limitations imposed by legacy data collection and analyses systems. In this paper, the authors use the dasymetric approach to illustrate how this areal interpolation technique can be used to transfer county-level mortality rate data from several causes of death to the U.S. congressional district level. The study’s primary goal is to promote areal interpolation techniques in the absence of a systematic and comprehensive national program for geocoding health events.


2020 ◽  
pp. 1-7
Author(s):  
A. Piau ◽  
Z. Steinmeyer ◽  
M. Cesari ◽  
J. Kornfeld ◽  
Z. Beattie ◽  
...  

The WHO action plan on aging expects to change current clinical practices by promoting a more personalized model of medicine. To widely promote this initiative and achieve this goal, healthcare professionals need innovative monitoring tools. Use of conventional biomarkers (clinical, biological or imaging) provides a health status assessment at a given time once a capacity has declined. As a complement, continuous monitoring thanks to digital biomarkers makes it possible to remotely collect and analyze real life, ecologically valid, and continuous health related data. A seamless assessment of the patient’s health status potentially enables early diagnosis of IC decline (e.g. sub-clinical or transient events not detectable by episodic evaluations) and investigation of its probable causes. This narrative review aims to develop the concept of digital biomarkers and its implementation in IC monitoring.


Sign in / Sign up

Export Citation Format

Share Document