scholarly journals Pot Song as a Novel Cancer Communication Intervention: Lessons Learned from Developing, Implementing, and Evaluating a Culturally Grounded Intervention for Breast Cancer Education in Rural Bangladesh

2021 ◽  
Author(s):  
Aantaki Raisa ◽  
Anthony J. Roberto ◽  
Richard R. Love ◽  
Heather L. Story Steiness ◽  
Reza Salim ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Formative Evaluation ◽  
Cancer Education ◽  
Outcome Evaluation ◽  
Lessons Learned ◽  
Design Data ◽  
Intervention Delivery ◽  
Rural Bangladesh ◽  
Culturally Grounded ◽  
Cultural Grounding

Abstract Targeted public education may offer an approach to achieving more effective treatment in countries like Bangladesh, where breast cancer is a leading cause of cancer death in women. Effective cancer education interventions address the target population’s cultural and contextual needs. However, there is little published literature to guide the development of educational cancer interventions in a region where lack of resources combined with cultural stigma about cancer contribute to poor breast health outcomes for women. The goal of the current study was to design, test, and evaluate a culturally grounded intervention to promote breast problem care among women in rural Bangladesh. The current manuscript first describes the process of formative evaluation that led to the development of the intervention, including decisions about the audience, message construction, and mode of intervention delivery. Second, we describe the testing process, including process and outcome evaluation. Finally, we describe the lessons learned from the process. We conclude with recommendations related to cultural grounding for message development, questionnaire design, data collection procedures, and analysis.

The Breast-Cancer Education and Wellness (BE Well) Intervention: Congregants’ Intended Participation, Actual Participation, and Perceived Health Outcomes

2019 ◽  
Vol 46 (5) ◽  
pp. 843-852
Author(s):  
Angel Augustin ◽  
Penny A. Ralston ◽  
Iris Young-Clark ◽  
Catherine C. Coccia
Keyword(s):  
Breast Cancer ◽  
Health Education ◽  
Health Outcomes ◽  
Cancer Education ◽  
Perceived Health ◽  
Design Data ◽  
Significant Relationships ◽  
Food And Nutrition ◽  
Actual Participation

Objective. To evaluate a health leader–focused church-based breast cancer prevention intervention in relation to congregants’ intended participation, congregants’ actual participation, and perceived health outcomes at both individual and church levels using socio-ecological and theory of planned behavior frameworks. Method. Participants for the study were African American adults ( n = 52) from six churches in a North Florida county involved in implementing the 9-month, three-phase intervention. Using a pre/post without comparison group design, data were collected via self-administered surveys and analyzed using qualitative and quantitative (descriptive, analysis of variance, linear regression) procedures. Results. There was general alignment between congregants’ intended and actual participation when analyzed by content, especially in the areas of food and nutrition and health education. Regarding the number of intended versus actual activities, there was a significant, negative change in physical activity, a slight decline in health education activities, but a slight increase in food and nutrition activities. No significant relationships were found between extent of participation and the individual health outcomes (health ratings, health status), but significant relationships were found between extent of participation and church health outcomes (perceived role of church in improving health, p < .001; perceived role of the pastor in improving health, p < .001). Conclusions. The findings demonstrate that (1) congregants may follow through and participate in church-based health activities in which they express interest and that are made available and (2) the extent of their participation may be influenced by the perceived role of both the church and the pastor in improving their health.

Evaluating a Functional Family Therapy Intervention: Challenges and Lessons Learned

2021 ◽  
pp. 104973152098560 ◽  
Author(s):  
Katarzyna Celinska
Keyword(s):  
Family Therapy ◽  
Service Providers ◽  
Evaluation Research ◽  
Evaluation Process ◽  
Outcome Evaluation ◽  
Lessons Learned ◽  
Functional Family Therapy ◽  
Functional Family ◽  
Family Based

Purpose: This case study is the introspective account of the evaluation process of Functional Family Therapy (FFT) as implemented in Middlesex County in New Jersey between 2005 and 2011. The study presents challenges and issues in evaluation falling into three main categories. Methods: The case study is based on the recollections and documented experiences of the author who was responsible for all major aspects of the evaluation including designing the study, collecting the data, and handling daily evaluation activities. Results: The author differentiated among three main categories of challenges. In respect to research design, the relative merits of experimental versus nonexperimental designs and quantitative versus qualitative research methods are discussed. The second set of issues involves developing and exercising the social competence skills necessary to form working partnerships with service providers. The third set encompasses logistical barriers encountered during daily evaluation activities. Conclusions: The challenges and lessons learned from conducting the outcome evaluation of FFT are situated within scholarly debates on evaluation research, with the goal of providing further insights into the on-the-ground implementation and process of program evaluations. The experiences, recollections and processes illustrate challenges and solutions applicable to evaluations of other family-based violence prevention interventions.

scholarly journals Harvesting Health Knowledge: Breast Cancer Perceptions in the South Florida Latinx Farmworker Community

2021 ◽  
pp. 104973232110035
Author(s):  
Felicia Casanova ◽  
Felicia M. Knaul ◽  
Natalia M. Rodriguez
Keyword(s):  
Breast Cancer ◽  
Community Health ◽  
Health Care Services ◽  
Health Knowledge ◽  
Health Workers ◽  
Cancer Education ◽  
Breast Cancer Diagnosis ◽  
South Florida ◽  
Theory Approach ◽  
Depth Interviews

South Florida agricultural regions, home to Latinx immigrant farmworkers, report higher rates of late-stage breast cancer diagnosis than national, state, and county-level averages. We conducted a community-based qualitative study on the needs, health knowledge gaps, barriers to breast cancer screening, and the role of community health workers (CHWs) in supporting the community’s access to early detection services. We conducted three CHW focus groups (FGs) ( n = 25) and in-depth interviews ( n = 15), two FGs ( n = 18) and in-depth interviews ( n = 3) with farmworker community members, and informal interviews with cancer clinicians ( n = 7). Using a grounded theory approach, five core themes regarding the community’s barriers to accessing health care services emerged: (a) lack of information; (b) social and economic barriers; (c) cultural factors; (d) fears and mistrust; and (e) psychosocial concerns. Findings yield implications for community health practice, the potential impact of CHWs, and the production of breast cancer education to improve health equity along with the care continuum.

scholarly journals Bringing Older Adults to the Table: Opportunities for Consumer Engagement in Planning and Policy Making

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 102-102
Author(s):  
Alice Prendergast ◽  
Kristi Fuller
Keyword(s):  
Data Collection ◽  
Community Engagement ◽  
Community Involvement ◽  
Social Connectedness ◽  
Planning Process ◽  
The United States ◽  
Lessons Learned ◽  
Service Planning ◽  
Community Members ◽  
Design Data

Abstract Efforts to include community voice in health policy and service planning are gaining recognition and support in the United States. Findings suggest community involvement can contribute to a better understanding of systems and factors that impact health, and, subsequently, more effective and sustainable policy and program design. Additionally, engagement can increase community buy-in, and community members can gain a greater awareness of services; increased confidence navigating systems; feelings of social connectedness; and capacity to advocate around issues through participation. Despite these findings, the extent to which community members are engaged in planning and decision-making varies considerably. Researchers from Georgia State University conducted a review of state plans on aging using the Person-Centered Outcomes Research Initiative (PCORI) Engagement Principles and the Health Research & Educational Trust’s Community and Patient Engagement Spectrum as frameworks to assess evidence of community engagement. The frameworks recognize engagement throughout the planning process, including design, data collection and interpretation, and dissemination. The review revealed that few planning processes described significant engagement, but rather met the minimal requirements established by federal policy. Federal guidance on community-informed planning practices is sparse, as are resources to support states in adopting these processes. To address this gap, the research team drew on the frameworks and other promising practices to design two community engagement projects, both in partnership with Georgia’s Division of Aging Services. Methods for participant engagement, data collection, interpretation and application of results, and lessons learned through both projects will be discussed, as well as potential implications.

scholarly journals Management of Breast Cancer in Nepal

2009 ◽  
Vol 48 (175) ◽  
Author(s):  
Yogendra P Singh ◽  
P Sayami
Keyword(s):  
Breast Cancer ◽  
Early Detection ◽  
Cancer Education ◽  
Tumor Biology ◽  
Metastatic Breast ◽  
Premenopausal Women ◽  
Clinical Breast Examination ◽  
Cancer Management ◽  
Breast Cancer Management ◽  
Clinical Breast

Breast cancer is the second most common malignancy among women in Nepal. It is more commonin young premenopausal women. Breast cancer continues to increase in incidence due to lifestylechanges in Nepalese women despite constant remarkable development in the management of thisdisease over the past three decades. Breast cancer was diagnosed solely clinically and surgery wasthe only treatment option until fi fty years ago. Multidisciplinary approach has been adopted fordiagnosis and treatment of breast cancer in Nepal. Imaging is required for the diagnosis, appropriatetreatment decision and proper follow up. Treatment modality depends upon the extent of thedisease and tumor biology. However, there is a strong need for standard guidelines for the propermanagement of breast cancer in Nepal so that surgeries, chemotherapy, hormone therapy andradiotherapy are standardized in the country. Palliative care has been initiated to provide to somepatients with metastatic breast cancer recently.The breast cancer management in Nepal is a little different when compared with the centers in thedeveloped countries. The reasons are socioeconomic status, lack of education and lack of facilities.Although cancer care is on the rise in Nepal, the optimal facility for centers managing breast cancerhas to be improved signifi cantly.Cancer education, screening and early detection are the keyelements to infl uence the diagnosis, treatment and prognosis of breast cancer in Nepal. Breast cancerawareness and clinical breast examination are important tools for early detection in our resourcelimited context. Breast cancer can be cured in majority of the cases if diagnosed in early stages.This review will focus on relevant patient data along with future recommendation regarding breastcancer treatment in Nepal.Key Words: Breast cancer, cancer education, chemotherapy, imaging, radiotherapy, surgery

scholarly journals Ekspressiv skriving som egenterapeutisk verktøy ett år etter brystkreftdiagnosen - resultater fra en norsk pilotstudie

2015 ◽  
Vol 10 (2) ◽  
pp. 45
Author(s):  
Birgitta Haga Gripsrud ◽  
Håvard Søiland ◽  
Kirsten Lode
Keyword(s):  
Breast Cancer ◽  
Pilot Study ◽  
Expressive Writing ◽  
Breast Cancer Diagnosis ◽  
Design Data ◽  
Illness Experiences ◽  
Electronic Writing ◽  
Scientific Context ◽  
One Year ◽  
The Mind

<p>Expressive writing as a self-help tool one year after the breast cancer diagnosis – results from a Norwegian pilot study</p><p>The article presents findings from a pilot study on expressive writing, a therapeutic method undescribed in a Norwegian scientific context. Objective: 1. Gain qualitative data on breast cancer women’s experiences with expressive writing. 2. Evaluate the intervention’s feasibility, based on participants’ experiences of the instruction, procedure, and circumstances for writing. Method &amp; design: The study has an exploratory descriptive design. Data collection was achieved through in-depth interviews, followed by experiential thematic analysis of transcripts. Results: Two women enrolled, participating in writing/interviews. Analysis revealed three themes: "The experience of the writing process", "Writing as working through and work to clear the mind", "Strength and vulnerability in relation to others". Conclusion: Findings reveal that expressive writing was experienced as achievable for two breast cancer women, one year after diagnosis. Writing provided an opportunity to work through, and sort out, feelings and thoughts connected to participants’ lives and illness experiences. The instruction was evaluated as easy to understand and inspiring. The women became absorbed in electronic writing in their own homes. They both recommended expressive writing for other women with breast cancer, especially in the period after initial diagnosis.</p>

Breaking Out of Conceptual/Methodological Traps: A Case Study from Research on the Computer Mediated Classroom

1988 ◽  
Vol 32 (18) ◽  
pp. 1305-1306
Author(s):  
Robert E. Richards
Keyword(s):  
Formative Evaluation ◽  
Computer Conferencing ◽  
Lessons Learned ◽  
Conceptual Frameworks ◽  
Army Training ◽  
Computer Mediated

This paper describes several lessons learned in the process of getting Computer Conferencing to work for Army Training. One methodological lesson was to better assess the maturity of the phenomenon to be studied and utilize formative evaluation rather than experimentation for immature areas of study. Another lesson was to not over-borrow from prevailing conceptual frameworks as they may be inappropriate for a new context. Some specifics, in case study form, are given to illustrate these lessons learned.

Being Culturally Responsive in a Formative Evaluation of a Professional Development School: Successes and Missed Opportunities of an Educative, Values-Engaged Evaluation

2020 ◽  
Vol 41 (3) ◽  
pp. 384-403
Author(s):  
Jori N. Hall ◽  
Melissa Freeman ◽  
Soria E. Colomer
Keyword(s):  
Professional Development ◽  
Culturally Responsive ◽  
Formative Evaluation ◽  
Professional Development School ◽  
Lessons Learned ◽  
First Year ◽  
Cultural Characteristics ◽  
Missed Opportunities ◽  
Responsive Evaluation ◽  
University Partnership

While evaluators have explored the implementation of culturally responsive evaluation (CRE), the failures of applying CRE are less often told. In this article, we use a reflective case narrative to explore our successes and failures in implementing our CRE approach, including an educative stance. We draw on a formative evaluation of a district–university partnership during its first year. Our analysis of the reflective case narrative makes transparent how our culturally responsive, educative approach was sufficient to employ culturally responsive methods. Yet, our culturally responsive, educative stance failed to provide critical midcourse feedback, which worked against the development of the district–university partnership. The lessons learned from the formative evaluation are important to draw attention to the intersections between the cultural characteristics of the evaluand and how the evaluation contributes to educative insights.

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