Perceived burden and quality of life of the primary caregiver of patients aged 70 and over with cancer, 5 years after initial treatment

2021 ◽  
Vol 12 (8) ◽  
pp. S71
Author(s):  
V. Quipourt ◽  
J. Collot ◽  
S. Dabakuyo-Yonli ◽  
O. Billa ◽  
T. Collot ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Initial Treatment ◽  
Primary Caregiver ◽  
Perceived Burden

Sustaining Quality of Life of the Aged: Transplant or Mechanical Support (Sustain-It): Caregiver Perceived Burden

2020 ◽  
Vol 39 (4) ◽  
pp. S34-S35
Author(s):  
I.S. Okwuosa ◽  
Y. Xu ◽  
A. Andrei ◽  
A. Warzecha ◽  
A. Kao ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mechanical Support ◽  
Perceived Burden

Caregiver time burden in newly diagnosed glioblastoma: A prospective analysis.

2016 ◽  
Vol 34 (26_suppl) ◽  
pp. 242-242
Author(s):  
Lauryn Hemminger ◽  
Christine Pittman ◽  
Nimish Mohile
Keyword(s):  
Quality Of Life ◽  
Physical Dependence ◽  
Well Being ◽  
Prospective Analysis ◽  
Newly Diagnosed ◽  
Perceived Burden ◽  
Time Burden ◽  
Spearman Coefficient ◽  
Feeling Overwhelmed

242 Background: Caregiver (CG) burden is particularly high in glioblastoma (GBM) because neurologic deficits lead to cognitive dysfunction and physical dependence. The amount of time that CGs devote to GBM pts is not well described. The extent to which time burden impacts CG quality of life and perceived burden is unknown. Methods: We performed an IRB-approved prospective analysis of 38 CGs of pts with newly diagnosed GBM enrolled over 8 mo. at a single academic institution. CGs were defined as individuals responsible for any aspect of pt support, and multiple CGs were allowed for each pt. CGs completed the Caregiver Quality of Life in Cancer (CQOLC) survey plus questions about CG role and time dedicated to pt care within 2 mo. of initial neuro-oncology visit. We described time burden and correlated this with 3 CQOLC questions addressing CG stress, emotional well-being, and perceived burden. Results: 30/38 CGs completed the surveys. The 30 CGs (21 female) included 16 spouses, 8 children, 3 parents, 2 siblings and 1 friend. 21 were primary CGs (13 female). 21 CG spent > 40 hrs/wk with pt, 10 spent > 40 hrs/wk on direct pt care, and 7 spent > 40 work hrs/wk caring for the pt. Table 1 illustrates CG time burden stratified by primary vs non-primary CG. CG time spent on direct pt care positively correlated with CGs feeling overwhelmed by their responsibilities as assessed by the CQOLC (p < 0.0001, spearman coefficient 0.66). Amount of work hrs spent on pt care also correlated with the CG feeling overwhelmed. (p = 0.0003, spearman coefficient 0.61). Conclusions: CG time burden in GBM is substantial even at the time of diagnosis, and is most notable in primary CGs. CG time burden correlates with signs of emotional distress as measured by the CQOLC. Assessing time burden for individual CGs may help identify early risk for distress and develop interventions to improve CG quality of life. [Table: see text]

scholarly journals Elderly Who Care for Elderly: DoubleVulnerability and Quality of Life

2020 ◽  
Vol 30 ◽  
Author(s):  
Letícia Decimo Flesch ◽  
Samila Sathler Tavares Batistoni ◽  
Anita Liberalesso Neri ◽  
Meire Cachioni
Keyword(s):  
Quality Of Life ◽  
Cognitive Vulnerability ◽  
The Elderly ◽  
Demographic Variables ◽  
Health Evaluation ◽  
Self Assessment ◽  
The Past ◽  
Perceived Burden ◽  
Elderly Caregivers

Abstract Elderly caregivers of other elderly people suffer from double vulnerability because they must deal with demands for care and for their own health. The objective of this study was to identify the association between double vulnerability and quality of life of elderly caregivers. The 148 participants were evaluated in relation to socio-demographic variables, quality of life, health self-assessment, perceived burden, measures of physical health of the caregiver and physical and cognitive vulnerability of the elderly who is the target of care. The hierarchical multivariate analysis showed that the elderly caregivers with the highest risk of worse quality of life were those with three or more diseases, with medium or high burden and with a worse health evaluation compared to the past. Greater health weakness is expected over the course of ageing; therefore, to study elderly caregivers, the perception of changes in health is a more pertinent measure than just the assessment of immediate health.

scholarly journals Quality of life, depression and self-perceived burden among geriatric and non-geriatric hemodialysis patients

2021 ◽  
Vol 9 (8) ◽  
pp. 2225
Author(s):  
Kenan Evren Oztop ◽  
Ferhat Cetin ◽  
Ahmed Bilal Genc ◽  
Ceyhun Varim ◽  
Savas Sipahi
Keyword(s):  
Quality Of Life ◽  
Significant Positive Correlation ◽  
Depression Scale ◽  
Hemodialysis Patients ◽  
Life Questionnaire ◽  
Care Burden ◽  
Positive Correlation ◽  
Perceived Burden ◽  
Quality Of Life Scale

Background: Many hemodialysis patients need support at various levels from their relatives while performing their daily activities. The ‘burden’ of these needs of patients on their relatives and their negative effects on their lives have been shown in the literature. The aim of the study was to evaluate the ‘care burden’ in terms of the patient.Methods: The patient who had received hemodialysis for at least 3 months was included in the study. A patient identification form including demographic data and medical history data was prepared. The Perceived care burden scale, Beck depression scale and WHO Quality of life questionnaire were applied to the patients.Results: A statistically significant positive correlation was found between SPBS and BDI (p<0.001, r=0.820). A statistically significant negative correlation was observed between the perceived care burden and all sub-dimensions of the quality of life scale (p<0.001). The frequency of comorbidity in the geriatric group was higher than non-geriatric group. A statistically significant positive correlation was found between comorbidity and QOL (p<0.001).   The median scores of all sub-dimensions of the QOL scale were lower in geriatric group and there were significance differences except environment dimension.Conclusions: The self-perceived burden on caregivers of hemodialysis patients was positively associated with depression and negatively associated with QOL. Decrease in QOL was more pronounced in geriatric patients.

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