Developing a Research Agenda on Ethical Issues Related to Using Social Media in Healthcare

2015 ◽  
Vol 24 (3) ◽  
pp. 293-302 ◽  
Author(s):  
SAMANTHA A. ADAMS ◽  
DENNIS VAN VEGHEL ◽  
LUKAS DEKKER

Abstract:The consequences of using publicly available social media applications specifically for healthcare purposes are largely unaddressed in current research. Where they are addressed, the focus is primarily on issues of privacy and data protection. We therefore use a case study of the first live Twitter heart operation in the Netherlands, in combination with recent literature on social media from other academic fields, to identify a wide range of ethical issues related to using social media for health-related purposes. Although this case reflects an innovative approach to public education and patient centeredness, it also illustrates the need for institutions to weigh the various aspects of use and to develop a plan to deal with these on a per case basis. Given the continual development of technologies, researchers may not yet be able to oversee and anticipate all of the potential implications. Further development of a research agenda on this topic, the promotion of guidelines and policies, and the publication of case studies that reveal the granularity of individual situations will therefore help raise awareness and assist physicians and institutions in using social media to support existing care services.

Author(s):  
Yllka Azemi ◽  
Wilson Ozuem

The consequences of social media applications are experienced at every level in an organizational context, but they are arguably most extensively experienced in developing effective marketing communication strategies. Drawing on constructivist perspectives, recognizing the socially constructed realities embedded within this evolving techno-cultural construct, the current chapter suggests that understanding social media must begin not in the technological domain, but in the way in which users negotiate meanings between and amongst themselves in the Internet ecosystem. This could potentially help marketers to develop effective marketing communications programmes. Understanding the co-evolution of social media connectivity and sociality in the context of the emerging culture provides deeper insight into how SMEs, particularly in transition economies, could adapt to and contextualize values of openness and connectedness offered by this technological tapestry. Certain conditions in which the deployment of cultural transformation is likely to succeed are identified, and a future empirical research agenda is suggested.


BMJ Open ◽  
2018 ◽  
Vol 8 (12) ◽  
pp. e022931 ◽  
Author(s):  
Joanna Taylor ◽  
Claudia Pagliari

IntroductionThe rising popularity of social media, since their inception around 20 years ago, has been echoed in the growth of health-related research using data derived from them. This has created a demand for literature reviews to synthesise this emerging evidence base and inform future activities. Existing reviews tend to be narrow in scope, with limited consideration of the different types of data, analytical methods and ethical issues involved. There has also been a tendency for research to be siloed within different academic communities (eg, computer science, public health), hindering knowledge translation. To address these limitations, we will undertake a comprehensive scoping review, to systematically capture the broad corpus of published, health-related research based on social media data. Here, we present the review protocol and the pilot analyses used to inform it.MethodsA version of Arksey and O’Malley’s five-stage scoping review framework will be followed: (1) identifying the research question; (2) identifying the relevant literature; (3) selecting the studies; (4) charting the data and (5) collating, summarising and reporting the results. To inform the search strategy, we developed an inclusive list of keyword combinations related to social media, health and relevant methodologies. The frequency and variability of terms were charted over time and cross referenced with significant events, such as the advent of Twitter. Five leading health, informatics, business and cross-disciplinary databases will be searched: PubMed, Scopus, Association of Computer Machinery, Institute of Electrical and Electronics Engineers and Applied Social Sciences Index and Abstracts, alongside the Google search engine. There will be no restriction by date.Ethics and disseminationThe review focuses on published research in the public domain therefore no ethics approval is required. The completed review will be submitted for publication to a peer-reviewed, interdisciplinary open access journal, and conferences on public health and digital research.


2018 ◽  
Vol 5 (2) ◽  
pp. e33 ◽  
Author(s):  
Sean D Young ◽  
Renee Garett

Due to the popularity of social media, researchers are increasingly conducting studies that monitor and analyze people’s health-related social media conversations. Because social media users can post about any topic at any time, no known best ethical practices exist as to whether and how to monitor participants’ posts for safety-related issues that might be unrelated to the study, such as expressions of suicidal intentions. This is a case study during a social media-based study on sleep and activity among freshman undergraduate students, where we by chance noticed that a student was using social media to express suicidal intentions. Although we connected the student to student psychological services in order to receive treatment, we encountered a number of barriers that initially prevented this from occurring, such as institutional review board and regulatory practices related to lack of experience with these newer types of studies. We discuss the implications of this experience for future research.


Author(s):  
Sandra Ukwuru ◽  
Prisca Nwankwo

Social media is the 21st-century media that has given every user an equal opportunity to publish news without passing through any form of gatekeeping, editorial, or professional scrutiny. This means that it has become a natural home for the spread of fake news even on the recent coronavirus with its consequent health implications. The authors deployed available materials and literature to discuss the burning issues surrounding fake news as misleading information on social media, especially how social media has become a natural home for fake news on coronavirus. More so, this paper reviewed the literature on the effects of fake news on coronavirus and then motivations for sharing fake news online as a way to provide a start-off point for an understanding of why social media misinformation on Corona virus has spread.  The authors concluded by presenting a gap in literature, in addition to a research agenda for studies on the spread of health-related disinformation in Nigeria.


Author(s):  
Samantha Engel ◽  
Linda Lee-Davies

Culture is not static and technological innovations have greatly changed culture throughout history, no more so than in recent years. Modern culture is very much influenced and defined by recent technology and media use, primarily through social media applications such as Facebook, Instagram, LinkedIn, Snapchat and Twitter. Although use and impact vary around the world, globalization brings this cultural change into wider and faster channels. Social media has transformed the way people interact and learn in local, national and international terms as well as evolving new social practices. Echo chambers, filter bubbles, and fake news dominate the internet and people's lives, determining and even limiting the content of learning that people are exposed to on social media platforms. This, in itself, channels cultural practice into homogenized tranches creating a cyclical influence which feeds back into evolving technology. This article sets out to discuss the current cultural impact of social media, its limitation on learning and surface the ethical issues surrounding its use.


2017 ◽  
Author(s):  
Sean D Young ◽  
Renee Garett

UNSTRUCTURED Due to the popularity of social media, researchers are increasingly conducting studies that monitor and analyze people’s health-related social media conversations. Because social media users can post about any topic at any time, no known best ethical practices exist as to whether and how to monitor participants’ posts for safety-related issues that might be unrelated to the study, such as expressions of suicidal intentions. This is a case study during a social media-based study on sleep and activity among freshman undergraduate students, where we by chance noticed that a student was using social media to express suicidal intentions. Although we connected the student to student psychological services in order to receive treatment, we encountered a number of barriers that initially prevented this from occurring, such as institutional review board and regulatory practices related to lack of experience with these newer types of studies. We discuss the implications of this experience for future research.


2020 ◽  
Vol 7 (3) ◽  
pp. 59
Author(s):  
Emine Serdaroglu

The use of various digital platforms and social media applications has significantly been rising worldwide in the recent years. In 2020, during the covid-19 pandemic, many of these online platforms became important tools to support the distance learning especially for children, hence, underlying the need for authentic, safe, reliable, and easily accessible online resources of information. Before the pandemic, most of the renown symphonic orchestras have been offering to their community a wide range of educational music programs designed for various age groups from toddlers to adult listeners. Most of these orchestras also support official YouTube channels to self-promote and connect with a wider audience. YouTube is a popular social media application offering a rich selection of uploaded music video content which may be utilized as an easily accessible tool for music education. The aim of this research is to explore whether the symphonic orchestras share their expertise and educational content on their official YouTube channels to create safe and trustworthy resources designed particularly for children, thus supporting the online music education during the time of the covid-19 pandemic.


2019 ◽  
Vol 10 (1) ◽  
pp. 37-48
Author(s):  
Samantha Engel ◽  
Linda Lee-Davies

Culture is not static and technological innovations have greatly changed culture throughout history, no more so than in recent years. Modern culture is very much influenced and defined by recent technology and media use, primarily through social media applications such as Facebook, Instagram, LinkedIn, Snapchat and Twitter. Although use and impact vary around the world, globalization brings this cultural change into wider and faster channels. Social media has transformed the way people interact and learn in local, national and international terms as well as evolving new social practices. Echo chambers, filter bubbles, and fake news dominate the internet and people's lives, determining and even limiting the content of learning that people are exposed to on social media platforms. This, in itself, channels cultural practice into homogenized tranches creating a cyclical influence which feeds back into evolving technology. This article sets out to discuss the current cultural impact of social media, its limitation on learning and surface the ethical issues surrounding its use.


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