scholarly journals LIVED EXPERIENCES OF MOTHERS OF CHILDREN WITH DOWN'S SYNDROME IN SELECTED SCHOOLS AT MANGALORE

2013 ◽  
Vol 03 (03) ◽  
pp. 087-092
Author(s):  
Reeja Mol R. ◽  
Sujatha R.
Keyword(s):  
Down Syndrome ◽  
Qualitative Study ◽  
Lived Experiences ◽  
Down's Syndrome ◽  
Down’S Syndrome ◽  
Lifestyle Changes ◽  
Research Approach ◽  
Special Schools ◽  
Children With Down Syndrome ◽  
Community Acceptance

AbstractThis qualitative study explored the mother's experiences of parenting a child with Down's syndrome. The research approach used in this study was Phenomenology. Interviews were conducted with seven mothers who had a child with Down syndrome. The study was conducted at selected special schools at Mangalore. From the Analysis of the data six major themes were emerged. Non acceptance – Birth of an abnormal child, Lifestyle changes, High bonding between family members, Worried about the unpredictable future of the child, Societal and Community acceptance and Positiveness towards life. These findings show that birth of a child with Down syndrome produces tremendous physical and psychological effect in parents. So parents need adequate support from nurses right from the very birth of a disabled child. Therefore this study is important for nurses working with families having children with Down syndrome. They need to realize and aware of the problems faced by the families and should advocate necessary support.

scholarly journals INCLUSÃO DE CRIANÇAS COM SÍNDROME DE DOWN: UM ENSAIO TEÓRICO SOBRE A IMPORTÂNCIA DA RELAÇÃO FAMÍLIA-ESCOLA

2022 ◽  
Vol 18 (1) ◽  
pp. 196-208
Author(s):  
Luana Pereira de Novais Silva ◽  
Jhenifer Prescilla Dias Fuzinelli ◽  
Rosemary Aparecida de Almeida Moraes ◽  
Fabiana Frolini Marques Mangili
Keyword(s):  
Down Syndrome ◽  
Scientific Literature ◽  
Down's Syndrome ◽  
People With Disabilities ◽  
Down’S Syndrome ◽  
Children With Down Syndrome ◽  
Inclusion Process ◽  
The Family ◽  
History Of ◽  
Barriers And Challenges

Faced with the theme of inclusion, discussions about the importance of the family-school relationship are relevant with regard to the socialization of children with Down Syndrome. In this perspective, the main objective of this essay was to explore the scientific literature about the challenges faced by parents, family and teachers in the process of inclusion of children with Down syndrome. Specifically, this article sought to propose discussions on the importance of community awareness and collaboration to change the paradigm of inclusion. Therefore, scientific articles, books and academic papers found in the Google Scholar database were selected, between the period 2011 to 2021, based on the following keywords: People with disabilities; Down's syndrome; Inclusion; History of people with disabilities; Diagnosis of a child with a disability and; Family-School Relationship. Among the main factors influencing the inclusion process of children with Down's Syndrome, beliefs and stigmas of parents, family members, school professionals and society about the child's ability to deal with other people and learn, stand out. family support and the lack of support/guidance from an interdisciplinary team. The inclusion of people with disabilities still faces barriers and challenges that need to be overcome, however, through the active participation of the scientific community and political-social movements, studies on the theme of inclusion show that changes in this scenario have occurred gradually.

scholarly journals Barriers and Facilitators to Promoting Resilience to HIV/AIDS: A Qualitative Study on the Lived Experiences of HIV-Positive, Racial and Ethnic Minority, Middle-Aged and Older Men Who Have Sex with Men from Ontario, Canada

2021 ◽  
Vol 18 (15) ◽  
pp. 8084
Author(s):  
Renato M. Liboro ◽  
Sherry Bell ◽  
Brandon Ranuschio ◽  
Lianne Barnes ◽  
Jenna Despres ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Ethnic Minority ◽  
Lived Experiences ◽  
Barriers And Facilitators ◽  
Research Approach ◽  
Middle Aged ◽  
Community Based ◽  
Sex With Men ◽  
Racial And Ethnic Minority ◽  
Hiv Aids

Evidence-based research has highlighted the need for exploring factors that support the mental health of men who have sex with men living with HIV/AIDS (MSMLWH), and environmental influences that promote their resilience to HIV/AIDS. This exploratory study utilized a community-based participatory research approach to investigate barriers and facilitators to promoting resilience to HIV/AIDS, specifically among racial and ethnic minority, middle-aged and older MSMLWH, a population that continues to be significantly impacted by HIV/AIDS today. This collaborative, qualitative study recruited participants who identified as racial or ethnic minority MSMLWH, were aged 40 or older, and resided in Ontario, Canada. Participants (n = 24) discussed in their interviews barriers and facilitators to promoting resilience to HIV/AIDS, which they recognized from their lived experiences. Utilizing thematic analysis, themes related to barriers and facilitators to promoting resilience to HIV/AIDS were identified. Themes related to identified barriers included: (1) language proficiency, (2) racism, (3) pernicious norms in North American gay culture, and (4) HIV stigma. Themes related to identified facilitators included: (1) compartmentalization, (2) perseverance, and (3) community-based health and social services. This article discusses the implications of the study’s findings, particularly on how they may influence the development of future services for racial and ethnic minority, middle-aged and older MSMLWH.

scholarly journals Intellectual potential of pupils with Down syndrome and diagnosed intellectual disability in the opinion of their parents

2020 ◽  
Vol 18 (2) ◽  
Author(s):  
Krystyna Popowska
Keyword(s):  
Down Syndrome ◽  
Intellectual Disability ◽  
Speech Communication ◽  
Special Schools ◽  
Children With Down Syndrome ◽  
Governmental Organizations ◽  
Non Governmental Organizations ◽  
The Social ◽  
Intellectual Potential ◽  
E Mail

Research was conducted to find out about the parents’ opinions on the intellectual potential of their children with Down syndrome and diagnosed intellectual disability studying in 4–8 grades of common, integration and special schools. Additionally, the factors determining the respondents’ opinions were analyzed. The paper uses the author’s questionnaire was placed on groups for parents of children with Down syndrome on the social network site Facebook. In addition, surveys were sent by e-mail to the primary school districts and non-governmental organizations that help children with Down syndrome. Fifty two questionnaires were collected. The results indicate that, despite intellectual disability, parents recognize the intellectual potential of their children. It can be assumed that assessments of the intellectual potential of students with Down syndrome and diagnosed intellectual disability are determined by their siblings in the intellectual norm, gender, using verbal speech, communication skills, social skills and opinions of their parents about their successes in school and progress as a result of the therapy. 

scholarly journals Graves Disease And Down Sindrome : Clinical Case

2015 ◽  
Vol 21 (3) ◽  
pp. 163-168 ◽  
Author(s):  
Olesea Scrinic ◽  
Seila Ibadula ◽  
E. Circo
Keyword(s):  
Down Syndrome ◽  
Side Effects ◽  
Clinical Case ◽  
Down's Syndrome ◽  
Down’S Syndrome ◽  
Graves Disease ◽  
Ocular Involvement ◽  
Endocrine Disorders ◽  
Clinical Evolution ◽  
Antithyroid Therapy

ABSTRACT Introduction: Pacients with Down’s syndrome present an increase revalence of autoimune endocrine disorders. We communicate the case of 14 years and 6 months old pacient known with Down syndrome admitted in Endocrinology department with suspicion of hyperthyroidism, the diagnosis being confirmed by hormonal dosage. The particularity of the case consists in: symptomatology onset during puberty, clinical evolution with mild symptoms, without ocular involvement, morphological and functional remission obtained relatively soon after the initiation of antithyroid therapy, lack of posttherapy side effects, favorabile evolution under the “block and replace” therapy

Incidence of Celiac Disease in Children with Down’s Syndrome

2021 ◽  
Vol 15 (10) ◽  
pp. 2582-2583
Author(s):  
Sana Pervez ◽  
Syed Sajid Munir ◽  
Maimoona Saeed
Keyword(s):  
Down Syndrome ◽  
Celiac Disease ◽  
Biopsy Specimen ◽  
Venous Blood ◽  
Down's Syndrome ◽  
Down’S Syndrome ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Keywords Celiac Disease

Aim: Incidence of celiac disease among children with down’s syndrome Setting: Pediatrics department, Khyber Teaching Hospital, Peshawar Study design: Cross sectional study Study duration: 20/7/2019 to 20/1/2020 Methodology: A total of 241 subjects were selected. Five ml of venous blood was obtained from all patients to detect the Anti-tTG Ab. Among those patients who are positive for the antibody, endoscopy and biopsy specimen from duodenum were sent to hospital laboratory to confirm the presence of villus atrophy. Results: Mean age was 8 ± 4.57. 44% children were male and 56% children were female. More over 4% children had celiac disease and 96% children didn’t have celiac disease. Conclusion: The frequency of celiac disease was 4% among children presenting with Down syndrome. Keywords: Celiac disease, Down’s syndrome.

scholarly journals The prevalence of caries, def-t, and DMF-T index of children with Down Syndrome aged 6-14 years old

2012 ◽  
Vol 24 (1) ◽  
Author(s):  
Nor Fatihah Azhar ◽  
Eriska Riyanti ◽  
Iwan Ahmad Musnamirwan
Keyword(s):  
Down Syndrome ◽  
Genetic Disorder ◽  
Special School ◽  
Caries Prevalence ◽  
City Region ◽  
Special Schools ◽  
Normal Children ◽  
Children With Down Syndrome ◽  
High Level ◽  
Age Range

Down syndrome is a common genetic disorder also known as Trisomy 21. There are special orofacial features of children with Down syndrome in contrast to normal children. The increasing occurrence of dental caries in Down syndrome children may be caused by the exposure towards cariogenic foods nowadays. This research was aimed to determine the prevalence of caries, def-t, and DMF-T index of 6-14 years old children with Down syndrome at Bandung in 2011. This study was a descriptive study with the surveying technique. The population of this research was the Down syndrome students of Special School (SLB) in Bandung City region with the age range of 6-14 years old. The Special Schools participated in this study were Muhammadiyah Special School; YPLB C-Special School; Asih Manunggal C- Special School; Terate S-Special School; Aditya Grahita BC-Special School; and YPLB Cipaganti BC-Special School. The sample of this research was 30 students. The caries prevalence, def-t, and DMF-T index of the students was measured by the examination of decayed, extracted or missing, and filled teeth. The research results showed that the prevalence of caries was 93%, while the def-t index was 3.03 and DMF-T index was 6.1. The conclusion of this research was the caries prevalence of children with Down syndrome was very high, whereas the def-t index was categorized in the moderate level, and the DMF-T index was categorized in the high level.

scholarly journals Association of Haemophilia with Down Syndrome

2016 ◽  
Vol 36 (1) ◽  
pp. 75-77
Author(s):  
Gursharan Singh Narang ◽  
Tarsem Singh ◽  
Anubha Sharma ◽  
Supriya Malik ◽  
Amandeep Kaur
Keyword(s):  
Down Syndrome ◽  
Blood Clotting ◽  
Down's Syndrome ◽  
Down’S Syndrome ◽  
Bleeding Disorder ◽  
Factor Ix ◽  
Hemophilia B ◽  
Clotting Factor ◽  
Blood Clotting Factor

Hemophilia B is a hereditary bleeding disorder caused by a lack of blood clotting factor IX. Without enough factor IX, the blood cannot clot properly to control bleeding. Hemophilia B presenting in association with Down’s syndrome is quite rare. We report a case of a one month old child who presented to us with continuous unexplained bleeding.J Nepal Paediatr Soc 2016;36(1):75-77.

Percepção das Mães Quanto à sexualidade de seu Filho Adolescente com Síndrome de Down / Perception of Mothers Who Have Children with Down Syndrome Regarding their Teenage Child’s Sexuality

1970 ◽  
Vol 6 (2) ◽  
pp. 53-64
Author(s):  
Daniele Cristina da Silva ◽  
Mariângela Gomes da Paixão ◽  
Débora Vitória Alexandrina Lisboa Vilella
Keyword(s):  
Down Syndrome ◽  
Sexual Orientation ◽  
Qualitative Study ◽  
Minas Gerais ◽  
Snowball Sampling ◽  
Children With Down Syndrome ◽  
New Vision ◽  
Teenage Sexuality ◽  
The Way

Objetivo: Identificar o conhecimento e a percepção das mães quanto à sexualidade de seu filho, portador da Síndrome de Down, nas cidades do Sul de Minas Gerais. Materiais e métodos: Estudo de abordagem qualitativa do tipo descritivo, exploratório e transversal. A amostra foi constituída de 20 participantes, que foram escolhidos pela amostragem bola de neve. Para tanto, foi necessário ampliar para as cidades ao redor de Itajubá, são elas: Delfim Moreira, Paraisópolis, Piranguinho e Santa Rita do Sapucaí. Foi utilizado o método do Discurso do Sujeito Coletivo (DSC), iniciando através da identificação das Expressões Chaves (ECH) onde revelaram as essências do depoimento e a partir delas foram formuladas as Ideias Centrais (IC), que revelaram e descreveram o sentido de cada um dos discursos analisados. Resultados:  A maior parte das mães está consciente da sexualidade de seu filho adolescente, portador de Síndrome de Down, porém não percebem no cotidiano. A segunda maior parte das mães não considera a sexualidade, assim seus filhos são reprimidos e não recebem orientação sexual apropriada.  Conclusão: Oportunizou uma nova visão de atendimento adequado a elas e consequentemente melhor compreensão das mesmas para com seu filho.Palavras-chave: Adolescentes, Sexualidade, Síndrome de Down.ABSTRACTObjective: Identify the knowledge and awareness of mothers who have children with Down syndrome about the sexuality of their children in  cities of southern Minas Gerais. Material and methods: Qualitative study, which uses a descriptive, exploratory and transversal methodology. The sample consisted of 20 participants who were chosen by the snowball sampling. Thereby, it was necessary to expand the study to others cities around Itajubá, such as Delfim Moreira, Paraisópolis, Piranguinho, and Santa Rita do Sapucaí. The Collective Subject Discourse (CSD) was the method used, starting with the identification of the Key Expressions (KE) which revealed the essence of the testimony. By these means, the Central Ideas (CI) were formulated and these central ideas revealed and described the meaning of each analyzed speech. Results: The majority of mothers are aware of the sexuality of their teenage child with Down syndrome, but they do not notice it in day-to-day life. Yet, some of the mothers do not consider sexuality; so, their children are repressed and do not receive appropriate sexual orientation. Conclusion: This new vision provides an opportunity to adequate a counseling treatment to the mothers changing, consequently, the way they understand their children.Keywords: Teenage, Sexuality, Down Syndrome.

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