scholarly journals 259 IDENTIFYING THE TOP 10 RESEARCH PRIORITIES FOR FAMILY CARERS: THE INTERFACE PROJECT

2021 ◽  
Vol 50 (Supplement_3) ◽  
Author(s):  
O Donegan ◽  
I Hartigan ◽  
K Cowan ◽  
N Dunne ◽  
R Hally ◽  
...  
Keyword(s):  
Healthcare Professionals ◽  
Research Priorities ◽  
Subsequent Development ◽  
Financial Strain ◽  
Family Carers ◽  
Group Discussions ◽  
Policy Makers ◽  
Health And Wellbeing ◽  
Multi Stakeholder

Abstract Background In assessing the global impact of the COVID-19 pandemic on society, it is important to understand the communities most affected and develop methods of support. Family carers provide a vital, yet often invisible role in our society and healthcare system. Identifying research priorities for carers helps establish overall gaps in the research agenda and increases awareness of the role of carers in the community. Methods A priority setting partnership methodology was engaged and through collaboration with carers, healthcare professionals and researchers, a participatory process was conducted to identify gaps in the current literature and prioritise research questions and uncertainties. Focus group discussions followed, the first consisted of family carers (n = 5). The second (n = 3) interviewed stakeholders namely healthcare professionals, researchers and policy makers. After collating the data, researchable questions were developed through an iterative process with a Multi Stakeholder Advisory Committee to identify the top 10 research priorities for Family Carers Ireland. Results The top 10 researchable questions were distilled from a list of 16 and fit into 7 broad categories. 1) economic impact and financial strain 2) Systemic issues, education, resources and policy 3) technology 4) support services and infrastructure 5) mental health and wellbeing of the carer 6) carers in society 7) Recognition and acknowledgment of the family carer. Conclusion The partnership focus of this project allowed the ‘ground-up’ development of research priorities for carers by carers. The COVID-19 pandemic served to magnify systemic issues already present in society, as well as highlight new burdens. As a result, the subsequent development of 10 researchable questions will guide further investigation to improve the support and wellbeing of family carers.

‘This is Still All about Love’: Practitioners’ Perspectives of Working with Family Carers Affected by the Harmful Behaviour of the Older Person for Whom They Care

2020 ◽  
Author(s):  
Louise Isham ◽  
Caroline Bradbury-Jones ◽  
Alistair Hewison
Keyword(s):  
Later Life ◽  
Ethical Challenges ◽  
Family Carers ◽  
Care Needs ◽  
Group Discussions ◽  
Health And Social Care ◽  
The Family ◽  
The Uk ◽  
Policy Systems

Abstract This article explores a hidden and under-acknowledged dimension of caring in family life: when older people with care needs act in a harmful, abusive or violent way towards the family member(s) who cares for them. Thirty-eight health and social care professionals, working in the UK, took part in five focus groups to explore their experience of working with families in this situation. The group discussions were stimulated by vignettes developed from interviews with carers affected by harmful behaviour, and the data generated using this method were analysed using a thematic approach. There were two principal findings: (i) ‘carer harm’ is a serious and under-acknowledged problem, which practitioners have extensive experiential knowledge of and (ii) practitioners face considerable practical and ethical challenges working with affected families. Drawing on Miranda Fricker’s concept of epistemic injustice, we discuss how contemporary social, legal and policy systems can make it difficult for practitioners to identify and meet the needs of affected families. Finally, we explore the role of social workers—and the support they need as a professional group—to work alongside a ‘hidden’ group of families seeking to manage the intersection of care, harm and intimacy in later life.

Fragility and Insurgency as Outcomes of Underdevelopment of Public Infrastructure and Socio-Economic Deprivation: The Case of Boko Haram in the Lake Chad Basin

2020 ◽  
pp. 154231662095018
Author(s):  
Robert A. Tayimlong
Keyword(s):  
Public Infrastructure ◽  
Economic Deprivation ◽  
Group Discussions ◽  
Boko Haram ◽  
Policy Makers ◽  
Lake Chad ◽  
Secondary Sources ◽  
Lake Chad Basin ◽  
Role Of Religion

2019 marked 10 years since the beginning of the Boko Haram insurgency in Nigeria—a violent conflict that later spilled over to Chad, Cameroon, and Niger, killing over 37000 people and displacing 2.6 million. For over a decade, researchers and policy makers in peacebuilding and development have been trying to understand the drivers of conflict in order to find lasting solutions. Whilst violent conflicts rarely have straightforward explanations, the narrative on the Boko Haram insurgency has been somewhat reductionist, largely addressing the role of religion, and to a lesser extent, other drivers. Moreover, a lot of the literature has focused on Nigeria, for the obvious reason that it was the birthplace of Boko Haram and the epicentre of its activities. As a result of the disproportionate focus on Nigeria, data on the conditions in the affected regions and provinces of Chad, Cameroon, and Niger that facilitated the regional spill over are very minimal. To fill the gap, this article examines the role of the underdevelopment of public infrastructure and socio-economic deprivation as underlying drivers of the insurgency in all four affected countries. Complemented by data from secondary sources, the article builds on primary evidence from field observation, key informant interviews, and focus group discussions in Borno State of Nigeria, the Lake Province of Chad, the Far North Region of Cameroon, and the Diffa Region of Niger, to establish the link between infrastructural development gaps, illiteracy, unemployment, and poverty and the Boko Haram insurgency.

scholarly journals Music and Dance in respiratory disease management in Uganda: A qualitative study of patient and healthcare professional perspectives

2021 ◽  
Author(s):  
Keir EJ Philip ◽  
Lucy L Cartwright ◽  
Debra Westlake ◽  
Grace Nyakoojo ◽  
Ivan Kimuli ◽  
...  
Keyword(s):  
Disease Management ◽  
Respiratory Disease ◽  
Healthcare Professionals ◽  
Low Cost ◽  
Low Resource ◽  
Health And Wellbeing ◽  
New Findings ◽  
Respiratory Conditions

AbstractIntroductionMusic and dance are increasingly used as adjunctive arts-in-health interventions in high-income settings, with a growing body of research suggesting biopsychosocial benefits. Such low-cost, low-resource interventions may have application in low-resource settings such as Uganda. However, research on perceptions of patients and healthcare professionals regarding such approaches is lacking.MethodsWe delivered taster music and dance for chronic respiratory disease (CRD) sessions to patients and healthcare professionals. We then conducted an exploratory qualitative study, using thematic analysis of semi-structured interviews with the healthcare professionals and patients regarding i) the role of music and dance in Ugandan life and ii) the perceived acceptability and feasibility of using music and dance in CRD management in Uganda.ResultsEleven patients with long-term respiratory conditions and eight healthcare professionals were interviewed after selection by purposeful convenience sampling. Four key themes were identified from (interview) analysis: Music and dance: 1) were central components of daily life; 2) had an established role supporting health and wellbeing; 3) had strong therapeutic potential in respiratory disease management; 4) the importance of modulating demographic considerations of culture and religion, and age.ConclusionMusic and dance are central to life in Uganda, with established roles supporting health and wellbeing. These roles could be built on in the development of music and dance interventions as adjuncts to established components of CRD disease management like pulmonary rehabilitation. Through consideration of key contextual factors, and co-development and adaptation of interventions, such approaches are likely to be well received.Summary Box: Key QuestionsWhat is already known?Music and dance are increasingly being used as adjunctive components of CRD management in high resource settings, with a growing body of research suggesting such approaches are effective, well-received, and can be delivered at low cost. However, the perceptions of patients and healthcare professionals about potential application of such approaches in low-resource settings, such as Uganda, is not known.What are the new findings?Music and dance have central roles in the social, religious and cultural life in Uganda, including a clear view that participation supports both collective and individual health and wellbeing. In this study, both healthcare professionals and patients saw great potential for the use of music and dance as interventions for people with CRD, and highlighted important factors for consideration for successful implementation.What do the new findings imply?Music and dance interventions for people with long-term respiratory conditions in Uganda are likely to be accepted with enthusiasm due to the existing role of such activities in daily life. Delivery is likely to be feasible, but interventions would need to be co-developed with patients, their family members, and healthcare professionals, considering a number of key factors. Suggested approaches to address these considerations are provided. More generally, this study highlights how genuine co-design processes can provide valuable insights into health intervention development.

scholarly journals Gender Inequality and Adaptive Capacity: The Role of Social Capital on the Impacts of Climate Change in Vietnam

2019 ◽  
Vol 11 (5) ◽  
pp. 1257 ◽  
Author(s):  
Loan Phan ◽  
Sue Jou ◽  
Jun-Hua Lin
Keyword(s):  
Climate Change ◽  
Gender Differences ◽  
Social Capital ◽  
Gender Inequality ◽  
Informal Networks ◽  
Group Discussions ◽  
Policy Makers ◽  
And Control ◽  
The Impact

Climate change has exacerbated gender inequality, and women are a vulnerable group. Previous research attributed this to physical gender differences, gender differences in ownership and control of natural resources, and socioeconomic status. We used a survey of 99 participants, seven focus group discussions, and 13 in-depth interviews in a coastal community in Vietnam to gain insight into the roots of gender inequality in the capacity to adapt to climate change. We analysed the role of social capital in regulating and mobilising other livelihood assets from a gendered perspective and found that gender norms explain the division and interactions of men and women in formal and informal networks. Based on our results, we suggest that policy-makers should pay more attention to gender issues when proposing climate change policies and reducing the gender imbalance in the impact of climate change adaptation.

scholarly journals Facilitating Multi-Stakeholder Dialogue and Collaboration in the Energy Transition of Municipalities through Serious Gaming

Energies ◽  
2021 ◽  
Vol 14 (12) ◽  
pp. 3374
Author(s):  
Tania Ouariachi
Keyword(s):  
Empirical Evidence ◽  
Game Design ◽  
Local Level ◽  
Energy Transition ◽  
Group Discussions ◽  
Serious Gaming ◽  
Stakeholder Network ◽  
Multi Stakeholder

Within the EU, energy transition at the local level is embedded in a complex stakeholder network with highly interdependent actors; if these actors have to collaborate to contribute to an efficient transition, they have to initiate a dialogue about their roles and interests. A good way to achieve this goal could be via serious gaming. Scholars suggest that serious games have the potential to increase multi-stakeholder’s dialogue and collaboration on climate-change-related issues; however, empirical evidence on the effectiveness, and the process is still limited. The aim of this paper is to use the We-Energy Game as a case study to provide empirical evidence on how serious gaming could facilitate dialogue and collaboration among different stakeholders, and which specific features influence the engagement of participants with the issue. For that purpose, a qualitative analysis on feedback and observations of group discussions is conducted, together with a survey for 125 stakeholders from diverse municipalities in The Netherlands to assess what type of features influence the engagement. The study reveals that the game engages participants mostly at the cognitive level, and that key elements in this process are game design, the debriefing session, and the role of the facilitator.

scholarly journals Preventing Child Marriage: The Role of Strategic Actors in South Kalimantan

2021 ◽  
Vol 23 (1) ◽  
pp. 110
Author(s):  
Vinita Susanti ◽  
Reni Kartikawati ◽  
Irwan M Hidayana ◽  
Ida Ruwaida ◽  
Lusiana Rumintang
Keyword(s):  
Child Protection ◽  
Child Marriage ◽  
Group Discussions ◽  
Policy Makers ◽  
Governmental Organizations ◽  
Non Governmental Organizations ◽  
Depth Interview ◽  
Key Policy ◽  
Negative Impacts

South Kalimantan Province is the province with the highest number of child marriage cases, according to data from the Central Statistics Agency (BPS) in 2017 and 2019. This has resulted in various negative impacts, one of which is the high maternal mortality rate, as well as the low human development index (HDI) in the province, which is placed at the 22nd position from 34 provinces in Indonesia. This paper aims to examine various strategic actors who can prevent and reduce the practice of child marriage in South Kalimantan Province in three levels of analysis: the macro, mezzo, and micro levels. This paper seeks the relationship between the three aspects of structure, culture, and social processes at the three macro, mezzo, and micro levels, as the concept of analysis used to prevent child marriage practices from a child protection perspective and SRHR issues. This study uses a qualitative approach through in-depth interview methods to key policy makers and is supported by focus group discussions (FGD) to participants in discussions from various backgrounds, both government agencies, and non-governmental organizations concerned with the issue of child and women's protection in South Kalimantan Province. 

scholarly journals Involving healthcare professionals and family carers in setting research priorities for end-of-life care

2017 ◽  
Vol 23 (2) ◽  
pp. 56-59 ◽  
Author(s):  
Janet Diffin ◽  
Michael Spence ◽  
Rebecca Spencer ◽  
Peter Mellor ◽  
Gunn Grande
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Healthcare Professionals ◽  
Research Priorities ◽  
Life Care ◽  
Family Carers

scholarly journals Research priorities for the management of broken bones of the upper limb in people over 50: a UK priority setting partnership with the James Lind Alliance

BMJ Open ◽  
2019 ◽  
Vol 9 (12) ◽  
pp. e030028 ◽  
Author(s):  
Warren J Sheehan ◽  
Mark A Williams ◽  
Zoe Paskins ◽  
Matthew L Costa ◽  
Miguel Antonio Fernandez ◽  
...  
Keyword(s):  
Upper Limb ◽  
Priority Setting ◽  
Healthcare Professionals ◽  
Research Priorities ◽  
Broken Bones ◽  
Research Areas ◽  
James Lind Alliance ◽  
Research Questions ◽  
Multi Stakeholder ◽  
Priority Setting Partnership

ObjectiveTo determine research priorities for the management of broken bones of the upper limb in people over 50, which represent the shared priorities of patients, their families, carers and healthcare professionals.Design/settingA national (UK) research priority setting partnership.ParticipantsPeople aged 50 and over who have experienced a fracture of the upper limb, carers involved in their care, family and friends of patients, healthcare professionals involved in the treatment of these patients.MethodsUsing a multiphase methodology in partnership with the James Lind Alliance over 15 months (September 2017 to December 2018), a national scoping survey asked respondents to submit their research uncertainties. These were amalgamated into a smaller number of research questions. The existing evidence was searched to ensure that the questions had not already been answered. A second national survey asked respondents to prioritise the research questions. A final shortlist of 25 questions was taken to a multi-stakeholder workshop where a consensus was reached on the top 10 priorities.ResultsThere were 1898 original uncertainties submitted by 328 respondents to the first survey. These original uncertainties were refined into 51 research questions of which 50 were judged to be true uncertainties following a review of the research evidence. There were 209 respondents to the second (interim prioritisation) survey. The top 10 priorities encompass a broad range of uncertainties in management and rehabilitation of upper limb fractures.ConclusionsThe top 10 UK research priorities highlight uncertainties in how we assess outcomes, provide information, achieve pain control, rationalise surgical intervention, optimise rehabilitation and provide psychological support. The breadth of these research areas highlights the value of this methodology. This work should help to steer research in this area for the next 5–10 years and the challenge for researchers now is to refine and deliver answers to these research priorities.

scholarly journals IS INTERPROFESSIONAL PRACTICE (IPP) FOCUSED ON MEDICATION SAFETY FEASIBLE IN INDONESIA? A QUALITATIVE STUDY

2016 ◽  
Vol 6 (4) ◽  
pp. 270
Author(s):  
Desak Ketut Ernawati ◽  
Ya Ping Lee ◽  
Bruce Sunderland ◽  
Jeff Hughes
Keyword(s):  
Medication Safety ◽  
Public Hospital ◽  
Healthcare Professionals ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Analysis Methodology ◽  
The Government ◽  
The University ◽  
Study Hospital

This paper explores facilitators for and barriers to the implementation of IPP focusing on medication safety in a public hospital in Bali, Indonesia. Qualitative methods involved interviews with stakeholders from a university and a hospital and focus group discussions with healthcare professionals in the hospital. Semi-structured questions were developed as a guide for the interviews and discussions. All interviews and discussions were recorded. The six steps of Braun and Clarke’s thematic analysis methodology were implemented in determining the themes. The Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist was employed in reporting of findings. Participants indicated that support from the government and perceived benefits of IPP were facilitators for IPP. However, the participants mostly mentioned the barriers of IPP including lack of competencies for IPP and lack of understanding of the role of other healthcare professionals as barriers to the implementation of IPP. This showed that these were the barriers identified to the implementation of IPP in the study hospital. Despite the fact that participants were supportive of IPP, the participants identified some barriers to the implementation of IPP in the study hospital. The implementation requires support of the government, professional organisations, and stakeholders at the university and hospital levels.

Lessons for India, Policy, and the Economics of Development

2018 ◽  
Author(s):  
Himanshu ◽  
Peter Lanjouw ◽  
Nicholas Stern
Keyword(s):  
Economic Development ◽  
Development Economics ◽  
Growth And Development ◽  
Growth Process ◽  
Explanatory Power ◽  
Research Priorities ◽  
Policy Makers ◽  
Public Pressure ◽  
The Subject

This chapter attempts to draw some broad lessons for policy-makers and for the subject of development economics from the close examination of economic development in Palanpur over seven decades. It considers possible implications for India’s wider development, and argues that the workings of policies in relation to Palanpur can raise questions as to how policies elsewhere might be created, modified, or abandoned. Theories of development should, if they are to have real explanatory power, help in understanding the growth and development of a ‘not particularly unusual’ village. The chapter considers which ideas contribute the most important insights for Palanpur and what are the implications for research priorities. These include the role of informal activities in understanding the growth process, entrepreneurship, sustainability, inequality as an outcome of mobility, and the role of empowerment in public pressure, all of which involve understanding the role and evolution of behaviour and institutions.

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