scholarly journals The COVID-19 Global Rheumatology Alliance: evaluating the rapid design and implementation of an international registry against best practice

Rheumatology ◽  
2020 ◽  
Vol 60 (1) ◽  
pp. 353-358 ◽  
Author(s):  
Jean W Liew ◽  
Suleman Bhana ◽  
Wendy Costello ◽  
Jonathan S Hausmann ◽  
Pedro M Machado ◽  
...  
Keyword(s):  
Data Collection ◽  
Best Practices ◽  
Rheumatic Disease ◽  
Information Needs ◽  
Best Practice ◽  
Clinical Care ◽  
Phase 1 ◽  
Team Building ◽  
Research Priorities ◽  
Governance Structure

Abstract Objectives As the coronavirus disease 2019 pandemic developed there was a paucity of data relevant to people living with rheumatic disease. This led to the development of a global, online registry to meet these information needs. This manuscript provides a detailed description of the coronavirus disease 2019 Global Rheumatology Alliance registry development, governance structure, and data collection, and insights into new ways of rapidly establishing global research collaborations to meet urgent research needs. Methods We use previously published recommendations for best practices for registry implementation and describe the development of the Global Rheumatology Alliance registry in terms of these steps. We identify how and why these steps were adapted or modified. In Phase 1 of registry development, the purpose of the registry and key stakeholders were identified on online platforms, Twitter and Slack. Phase 2 consisted of protocol and data collection form development, team building and the implementation of governance and policies. Results All key steps of the registry development best practices framework were met, though with the need for adaptation in some areas. Outputs of the registry, two months after initial conception, are also described. Conclusion The Global Rheumatology Alliance registry will provide highly useful, timely data to inform clinical care and identify further research priorities for people with rheumatic disease with coronavirus disease 2019. The formation of an international team, easily able to function in online environments and resulting in rapid deployment of a registry is a model that can be adapted for other disease states and future global collaborations.

scholarly journals Oral care after stroke: Where are we now?

2018 ◽  
Vol 3 (4) ◽  
pp. 347-354 ◽  
Author(s):  
Mary Lyons ◽  
Craig Smith ◽  
Elizabeth Boaden ◽  
Marian C Brady ◽  
Paul Brocklehurst ◽  
...  
Keyword(s):  
Aspiration Pneumonia ◽  
Best Practice ◽  
Clinical Care ◽  
Oral Care ◽  
Research Priorities ◽  
Stroke Care ◽  
Weak Evidence ◽  
Perspective Drawing ◽  
Increased Risk ◽  
Risk Of Aspiration

Purpose There appears to be an association between poor oral hygiene and increased risk of aspiration pneumonia – a leading cause of mortality post-stroke. We aim to synthesise what is known about oral care after stroke, identify knowledge gaps and outline priorities for research that will provide evidence to inform best practice. Methods A narrative review from a multidisciplinary perspective, drawing on evidence from systematic reviews, literature, expert and lay opinion to scrutinise current practice in oral care after a stroke and seek consensus on research priorities. Findings: Oral care tends to be of poor quality and delegated to the least qualified members of the caring team. Nursing staff often work in a pressured environment where other aspects of clinical care take priority. Guidelines that exist are based on weak evidence and lack detail about how best to provide oral care. Discussion Oral health after a stroke is important from a social as well as physical health perspective, yet tends to be neglected. Multidisciplinary research is needed to improve understanding of the complexities associated with delivering good oral care for stroke patients. Also to provide the evidence for practice that will improve wellbeing and may reduce risk of aspiration pneumonia and other serious sequelae. Conclusion Although there is evidence of an association, there is only weak evidence about whether improving oral care reduces risk of pneumonia or mortality after a stroke. Clinically relevant, feasible, cost-effective, evidence-based oral care interventions to improve patient outcomes in stroke care are urgently needed.

scholarly journals Monitoring the Italian Home Palliative Care Services

Healthcare ◽  
2019 ◽  
Vol 7 (1) ◽  
pp. 4 ◽  
Author(s):  
Gianlorenzo Scaccabarozzi ◽  
Pietro Giorgio Lovaglio ◽  
Fabrizio Limonta ◽  
Carlo Peruselli ◽  
Mariadonata Bellentani ◽  
...  
Keyword(s):  
Palliative Care ◽  
Data Collection ◽  
Best Practices ◽  
Home Care ◽  
Cancer Patients ◽  
Best Practice ◽  
Activity Data ◽  
Care Services ◽  
Palliative Care Services ◽  
Year 2013

Background: In Italy, there currently is a lack of reliable and consistent data on home palliative care provided to people near death. Objectives: Monitoring the activities of the Italian Home Palliative Care Services, according to the 2014 national data collection program entitled “Observatory of Best Practices in Palliative Care” and providing process/outcome measures on a subsample (Best Practice Panel), on regulatory standards and on complete/reliable activity data. Design: A data collection web portal using two voluntary internet-based questionnaires in order to retrospectively identify the main care activity data provided within the year 2013 by Home care units. In the Best Practice Panel and International best practices, eligibility and quality measures refer to the national standards of the NL 38/2010. Setting/Subject: Home Palliative Care Services (HPCSs) that provided care from January to December 2013. Results: 118 Home care units were monitored, globally accounting for 40,955 assisted patients within the year 2013 (38,384 cancer patients); 56 (47.5% of 118) were admitted in the Best Practice Panel. Non-cancer (5%) and pediatric (0.4%) patients represented negligible percentages of frail care patients, and a majority of patients died at home (respectively nearly 75% and 80% of cancer and non-cancer patients). Conclusion: The study demonstrated the feasibility of the collection of certified data from Home care services through a web-based system. Only 80% of the facilities met the requirements provided by the Italian NL 38/2010. Moreover, the extension of the palliative care services provided to frail non-cancer and pediatric patients, affected by complex and advanced chronic conditions, is still inadequate in Italy.

scholarly journals Strategi pengembangan inovasi program pendidikan nonformal sebagai best practices bagi pusat kegiatan belajar masyarakat

2016 ◽  
Vol 3 (2) ◽  
pp. 187
Author(s):  
Muhammad Arief Rizka ◽  
Rila Hardiansyah
Keyword(s):  
Data Collection ◽  
Best Practices ◽  
Development Strategy ◽  
Education Program ◽  
Best Practice ◽  
Formal Education ◽  
Community Learning Center ◽  
Interactive Analysis ◽  
Collection Data ◽  
Program Innovation

Tujuan penelitian ini adalah untuk; (1) memetakan inovasi program PNF yang dikembangkan oleh PKBM di kota Mataram; dan (2) menganalisis strategi yang digunakan dalam mengembangkan inovasi program PNF yang dapat dijadikan sebagai best practices bagi PKBM di Kota Mataram. Penelitian ini menggunakan metode deskriptif dengan pendekatan kualitatif. Unit analisis dalam penelitian ini adalah PKBM-PKBM di Kota Mataram yang ditentukan secara purposif. Sumber data dalam penelitian ini yakni Pengelola PKBM, Tutor, dan Penilik PNF Kota Mataram. Teknik pengumpulan data menggunakan pedoman wawancara, pedoman observasi, dan dokumentasi. Analisis data penelitian dilakukan dengan menggunakan model analisis interaktif yang meliputi pengumpulan data, reduksi data, penyajian data, dan verifikasi atau pengambilan kesimpulan. Teknik keabsahan data dengan menggunakan triangulasi sumber dan diskusi dengan teman sejawat. Hasil penelitian ini mendeskripsikan bahwa (1) inovasi program PNF yang dikembangkan oleh PKBM-PKBM di Kota Mataram cukup variatif dan berbasis pada kebutuhan riil masyarakat dengan fokus inovasi program pada dimensi pelayanan, peningkatan kapasitas, dan kesejahteraan masyarakat. (2) Strategi yang digunakan dalam pengembangan inovasi program PNF pada PKBM di Kota Mataram antara lain yaitu startegi partisipatif, strategi persuasif, dan strategi pemetaan sosial yang dimana penggunaan strategi tersebut sejauh ini telah optimal dalam mengembangkan program PNF yang inovatif di masing-masing PKBM tersebut. Kata Kunci: strategi pengembangan, inovasi, program PNF. Development strategy of non-formal education program innovation as best practices for community learning center AbstractThis research aimed to; (1) map innovation of NFE program which was developed by CLC’s at Mataram city; and (2) analyse strategy which was used in developing innovation of PNF program that could become best practice for CLC’s at Mataram city. This research used descriptive method with qualitative approach. Analysis unit in this research was all CLC’s at Mataram city which determined as purposive. Data sources in this research namely CLC’s management, tutor, ad owner of NFE Mataram city. Technique of data collection used interview, observation and documentation. The data analysis was conducted with using interactive analysis through data collection, data reduction, data presentation, and verivication or conclusion. Tehnique of data validity with using sources of triangulation and discussion with friends. The result of research in describing that (1) innovation of NFE program which developed by all CLC’s Mataram city was quite variety and based on community real needed with focusing on innovation program on serving dimension, improving capacity, and public welfare. (2) strategy which used in developing innovation of NFE program at CLC’s Mataram city such as participatory strategy, persuasive strategy, and social mapping strategy which used strategy mention as far as this strategy was optimal in developing inovative NFE program on each CLC’s.Keywords: development strategy, innovation, nonformal education program

scholarly journals 973. Utilization of Project ECHO for COVID-19 Medical Knowledge and Best Practices for Health Professionals serving an Underserved Population

2021 ◽  
Vol 8 (Supplement_1) ◽  
pp. S578-S579
Author(s):  
Natalia Rodriguez ◽  
Melanie Goebel ◽  
Sheena Bhushan ◽  
Shital Patel
Keyword(s):  
Best Practices ◽  
Health Professionals ◽  
Best Practice ◽  
Healthcare Professionals ◽  
Community Organization ◽  
Clinical Care ◽  
Medical Knowledge ◽  
Underserved Population ◽  
Equitable Access ◽  
Project Echo

Abstract Background During the global COVID-19 pandemic, the release of research and data particularly to guide clinical care evolved rapidly and highlights the critical need for timely, and equitable access to medical knowledge and best practices. Specialized medical knowledge has historically been confined to specialists in academic medical centers and disconnected from healthcare professionals in underserved areas. It is important to bridge this gap and democratize knowledge through a model that supports rapid dissemination of best practices to build capacity in areas of need. Methods A Project ECHO partnership was implemented between academic infectious diseases specialists and local healthcare professionals involved in COVID-19 screening, diagnosis and management serving an underserved population. BCM COVID-19 ECHO supported the Access2Health SmartPod COVID-19 clinical operations staffed by a charitable community organization. The SmartPod clinical team were engaged in weekly one-hour ECHO sessions with didactic presentations and case discussions on diverse COVID-19 topics. The program was evaluated at 6 months. COVID 19 ECHO Model BCM COVID-19 ECHO Telementoring Program with the United Health Partners in the community BCM COVID-19 ECHO Telementoring Session Topics Curriculum developed for the health professionals seeing patients in the SmartPOD and clinics in underserved communities. Results In Fall 2020, BCM COVID-19 ECHO facilitated 10 sessions with an average attendance of 8 healthcare professionals per session. Evaluation results indicated high levels of satisfaction with session content and telementoring partnerships, with 80% expressing intent to apply the knowledge and skills acquired from the sessions to their clinical practice. Conclusion The Project ECHO model successfully engaged healthcare professionals in a continuous learning loop. With the rapid and vast amount of information during the COVID-19 pandemic, it is important to ensure health professionals have equitable access to medical knowledge and feel empowered to implement best practice changes. Disclosures All Authors: No reported disclosures

scholarly journals BEST PRACTICE PENYEDIAAN AKSES KOLEKSI E-BOOK DI PERPUSTAKAAN IAIN JEMBER

2020 ◽  
Vol 7 (1) ◽  
pp. 41-46
Author(s):  
Fiqru Mafar
Keyword(s):  
Best Practices ◽  
Information Needs ◽  
Best Practice ◽  
Data Retrieval ◽  
Literature Study ◽  
Practice Method ◽  
Alternative Service ◽  
Book Collections ◽  
Research Show ◽  
Library Collections

The aims of this study is describes the best practices in providing access to e-book in the JAIN IAIN library. The method used is the best practice method by paying attention to every step that has been applied at the study site. Data retrieval is done by observation, literature study, and interviews. The results of the research show that the best practice carried out at the IAIN Jember Library in providing access to e-book collections is able to become a new service at the library. Not only that, the provision of these services is a lighter interest of users to access library collections. The e-book collection is also an alternative service that can be enjoyed by users in meeting their information needs. The results of these studies can be made recommendations for libraries who want to implement e-book services based on the condition of their respective resources.

scholarly journals Current Practices in UAS-based Environmental Monitoring

2020 ◽  
Vol 12 (6) ◽  
pp. 1001 ◽  
Author(s):  
Goran Tmušić ◽  
Salvatore Manfreda ◽  
Helge Aasen ◽  
Mike R. James ◽  
Gil Gonçalves ◽  
...  
Keyword(s):  
Data Collection ◽  
Best Practices ◽  
Product Development ◽  
Environmental Monitoring ◽  
Environmental Conditions ◽  
Best Practice ◽  
Unmanned Aerial Systems ◽  
The Many ◽  
Aerial Systems ◽  
Operational Guidance

With the increasing role that unmanned aerial systems (UAS) are playing in data collection for environmental studies, two key challenges relate to harmonizing and providing standardized guidance for data collection, and also establishing protocols that are applicable across a broad range of environments and conditions. In this context, a network of scientists are cooperating within the framework of the Harmonious Project to develop and promote harmonized mapping strategies and disseminate operational guidance to ensure best practice for data collection and interpretation. The culmination of these efforts is summarized in the present manuscript. Through this synthesis study, we identify the many interdependencies of each step in the collection and processing chain, and outline approaches to formalize and ensure a successful workflow and product development. Given the number of environmental conditions, constraints, and variables that could possibly be explored from UAS platforms, it is impractical to provide protocols that can be applied universally under all scenarios. However, it is possible to collate and systematically order the fragmented knowledge on UAS collection and analysis to identify the best practices that can best ensure the streamlined and rigorous development of scientific products.

scholarly journals Remote evaluations of violence against women and girls interventions: a rapid scoping review of tools, ethics and safety

2021 ◽  
Vol 6 (9) ◽  
pp. e006780
Author(s):  
Ilana Seff ◽  
Luissa Vahedi ◽  
Samantha McNelly ◽  
Elfriede Kormawa ◽  
Lindsay Stark
Keyword(s):  
Data Collection ◽  
Best Practices ◽  
Violence Against Women ◽  
Scoping Review ◽  
Mobile Applications ◽  
Best Practice ◽  
Online Surveys ◽  
Humanitarian Settings ◽  
Telephone Interviews ◽  
Women And Girls

Although programmes and policies targeting violence against women and girls (VAWG) have increased in the past decade, there is a paucity of evidence on the effectiveness of these interventions. To expand this evidence base, researchers increasingly employ remote data collection (RDC)—including online surveys, mobile applications and telephone interviews—in their evaluations. Although RDC allows for evaluations without in-person interactions—which are restricted during crises such as the COVID-19 pandemic— information about these methods is necessary to understand their potential usefulness and limitations. This scoping review examines remote evaluations of VAWG interventions to describe the landscape of RDC methods, reflect on safety and ethical considerations, and offer best practices for RDC in VAWG research. Fourteen studies met eligibility criteria, with seven, five, and two studies employing telephone interviews, online surveys, and mobile applications, respectively. Studies commonly stated that participants were asked to use a safe email or device, but the method for verifying such safety was rarely specified. Best practices around safety included creating a ‘quick escape’ button for online data collection to use when another individual was present, explaining to participants how to erase browsing history and application purchases, and asking participants to specify a safe time for researchers to call. Only eight studies established referral pathways for respondents as per best practice. None of the eligible studies took place in low/middle-income countries (LMICs) or humanitarian settings, likely reflecting the additional challenges to using RDC methods in lower resource settings. Findings were used to create a best practice checklist for programme evaluators and Institutional Review Boards using RDC for VAWG interventions. The authors found that opportunities exist for researchers to safely and effectively use RDC methodologies to gather VAWG data, but that further study is needed to gauge the feasibility of these methods in LMICs and humanitarian settings.

Gastroesophageal Reflux Disease: A Gastroenterologist's Perspective

2011 ◽  
Vol 21 (3) ◽  
pp. 89-99
Author(s):  
Michael F. Vaezi
Keyword(s):  
Gastroesophageal Reflux Disease ◽  
Gastroesophageal Reflux ◽  
Reflux Disease ◽  
Best Practice ◽  
Clinical Care ◽  
Diagnostic Testing ◽  
Diagnostic Tools ◽  
Swallowing Function ◽  
Atypical Symptoms

Gastroesophageal reflux disease (GERD) is a commonly diagnosed condition often associated with the typical symptoms of heartburn and regurgitation, although it may present with atypical symptoms such as chest pain, hoarseness, chronic cough, and asthma. In most cases, the patient's reduced quality of life drives clinical care and diagnostic testing. Because of its widespread impact on voice and swallowing function as well as its social implications, it is important that speech-language pathologists (SLPs) understand the nature of GERD and its consequences. The purpose of this article is to summarize the nature of GERD and GERD-related complications such as GERD-related peptic stricture, Barrett's esophagus and adenocarcinoma, and laryngeal manifestations of GERD from a gastroenterologist's perspective. It is critical that SLPs who work with a multidisciplinary team understand terminology, diagnostic tools, and treatment to ensure best practice.

Formulating Industry-Academic Collaborations That Work: Best Practices to Ensure a Strong Relationship After the Agreements are Signed

2020 ◽  
Vol 21 (2) ◽  
pp. 169-177
Author(s):  
Michael B. Dilling ◽  
Anne C. DiSante ◽  
Ross Durland ◽  
Christine E. Flynn ◽  
Leonid Metelitsa ◽  
...  
Keyword(s):  
Decision Making ◽  
Best Practices ◽  
Product Development ◽  
Strong Relationship ◽  
Governance Structure ◽  
Collaborative Relationships ◽  
Skill Sets ◽  
Pragmatic Aspects

Collaborations between academia and industry are growing in scope, duration, and sophistication. The best collaborations recognize the unique strengths and skill sets of both parties and are structured to leverage what each party does best. In many cases, these collaborations develop into long-term relationships, and it is important to develop the systems and structures needed to support these relationships to ensure that they meet the needs of both sides. Successful collaborations require the formulation of a governance structure to facilitate communication, decision-making, assessment of progress, and the inevitable changes of direction that accompany product development. This panel explored the pragmatic aspects of successfully structuring collaborations and managing the relationships after the deal is done. Several dominant themes associated with successful collaborative relationships emerged from the discussion, and these will be explored in this article.

Sign in / Sign up

Export Citation Format

Share Document